Weary of Horror Stories - Aromatase Inhibitors

mgm42

I will be starting Arimidex next week. All of my research and conversations about this drug seem to result in "horror stories" about the nasty side effects. I would like to hear from those of you have taken aromotase inhibitors and are having or had good luck with them. I guess I'm just weary of hearing all of the negatives. I need to hear some positives. Thanks. Marilynn

cabbott

First things first, look at the results! According to the studies I've read and my oncologist has told me about, the aromatase inhibitors, including Arimidex, give you twice as good of protection against reoccurance and twice as long of disease-free survival as Tamoxifen. That means that if you had 90 % chance of no cancer for five years on nothing, you have 95% chance of no cancer on Tamoxifen and 97.5% chance of no cancer on Arimidex. The worse your cancer odds, the better and better Arimidex looks. I'll let you do the math. Just divide you chance of getting cancer or a reoccurance in half once for Tamoxifen benefits and once again for the aromatase inhibitor benefits. Another thing to note: many times breast cancers progress to where they begin to feed off the Tamoxifen. That is why we are taken off of Tamoxifen after 5 years. No research as shown that aromatase inhibitors stop working and start back-firing. Trust me, that's great news. It means we may have a long-lasting weapon in our arsenal against the beast that doesn't quit killing the creature. Next, all meds have side effects. All people differ in their reaction to any given medicine. I have a bit of joint inflamation in my toes. Sometimes getting out of bed in the morning makes me feel like the Little Mermaid, if you have ever read the story. I have feet but I don't feel much like walking on them. But every morning I get up anyways and by the time my shoes are on (complete with toe splints that look like little foam pads and an elastic loop!), I'm fine and dandy and off to the gym. Today was kick boxing and doing the "300's". The 300's include 50 jump ups and step downs. I did 'em all, so obviously the pain for me is not all that bad. (I will admit to doing them on just the step with no risers, but maybe next time I will try to jump higher). Vitamin D fixed up most of the pain problems, which the onco nurse said might work. Get yours tested if you have a problem. Another side effect is bone loss. I'm taking calcium supplements and drinking milk to save my bones. I like milk, so it is no big deal and the supplements are cheap. Cancer, on the other hand, is a very big deal to me. And cancer is very expensive. If and when I go into stage 4 cancer, chemo will be there waiting for me. The side effects of chemo compared to arimidex are like an elephant compared to an ant. So those are the poitive things I keep in mind every night when I take my little pill. Opps, one more: the pill tastes kind of sweet if you don't swallow it fast and it's very tiny. Hope that helps!

chenheart

Marilyn,
I am just about to finish my 5th year of Arimidex~ and I have not suffered from any side effects AT ALL! Well, if you consider not having a recurrence a side-effect, I guess you could definately say that is a welcome one!!!

My bones have not degenerated ( I have had 2 bone scans), I have not had any of the bad things which I possibly could have experienced.

I hope that helps, sweet sister!

I take my one little Arimidex in the morning with breakfast and I honestly forget about it!

Hugs,
Claudia

tlmac

Hi Marilynn,
I began taking Arimidex in May 2003. I was 54 at the time and already suffering osteoporosis. My gynecologist put me on Fosamax for bone density. I'm pleased to say that, 5 years later and despite being on Arimidex, my bone density is now normal. My hair has thinned a little from the loss of estrogen but I style it so you can't tell and I have several friends with thin hair who've never taken Arimidex. I'm a little stiff first thing in the morning and after riding in the car for long distances without a break but have NO debilitating bone or joint pain. My oncologist and I have even decided I should stay on Arimidex, for the foreseeable future, until we're convinced it's no longer effective. My cancer was aggressive and I feel especially fortunate to have Arimidex in my corner. I can also tell you that two of the women in my breast cancer support group also take Arimidex with zero side effects (no thin hair or bones). We tend to hear more often from the women who suffer from a treatment and my heart breaks for them. But there are a lot of us out there doing great. Best of luck.
terri

DiO

I'm just finishing my 4th year of Arimidex, and also am lucky to have few and very mild side effects. I have some mild joint pain and stiffness, which at my age (60) may be totally unrelated to the drug--just arthritis I would have anyway. For the first year I had some gradually increasing pain in my finger joints, but about the time I was beginning to feel it was becoming a real problem it disappeared, so I do think our bodies adjust over time. I had a bone density test before starting the drug and have had two since (every two years), and while I've had some decrease in density I'm still within the normal range, so no treatment for that except the calcium/vitamin D supplements and low fat dairy products.

Good luck and blessings, Di

mgm42

DiO said:

I'm just finishing my 4th year of Arimidex, and also am lucky to have few and very mild side effects. I have some mild joint pain and stiffness, which at my age (60) may be totally unrelated to the drug--just arthritis I would have anyway. For the first year I had some gradually increasing pain in my finger joints, but about the time I was beginning to feel it was becoming a real problem it disappeared, so I do think our bodies adjust over time. I had a bone density test before starting the drug and have had two since (every two years), and while I've had some decrease in density I'm still within the normal range, so no treatment for that except the calcium/vitamin D supplements and low fat dairy products.

Good luck and blessings, Di

Thanks so much to all of you gals who responded so quickly and so positively about your experiences. Now I can face this latest phase in my breast cancer battle with more confidence. I was very aprrehensive because I had such horrible side effects from my chemo that I was dreading another medication. Thanks so much. You're made me feel so much better. Hugs, Marilynn

mgm42

DiO said:

I'm just finishing my 4th year of Arimidex, and also am lucky to have few and very mild side effects. I have some mild joint pain and stiffness, which at my age (60) may be totally unrelated to the drug--just arthritis I would have anyway. For the first year I had some gradually increasing pain in my finger joints, but about the time I was beginning to feel it was becoming a real problem it disappeared, so I do think our bodies adjust over time. I had a bone density test before starting the drug and have had two since (every two years), and while I've had some decrease in density I'm still within the normal range, so no treatment for that except the calcium/vitamin D supplements and low fat dairy products.

Good luck and blessings, Di

Thanks so much to all of you gals who responded so quickly and so positively about your experiences. Now I can face this latest phase in my breast cancer battle with more confidence. I was very aprrehensive because I had such horrible side effects from my chemo that I was dreading another medication. Thanks so much. You're made me feel so much better. Hugs, Marilynn

AnnArbor

mgm42 said:

Thanks so much to all of you gals who responded so quickly and so positively about your experiences. Now I can face this latest phase in my breast cancer battle with more confidence. I was very aprrehensive because I had such horrible side effects from my chemo that I was dreading another medication. Thanks so much. You're made me feel so much better. Hugs, Marilynn

Weary of Horror Stories -- How is it going?
I just found this discussion board, and I'm curious how YOU are doing with the aromatase inhibitors, Marilynn. I was on Femara for 8 months and am switching to Arimidex this month. I had a lot of the side effects others have written about (especially foot pain), but I've still managed to play soccer 2 - 3 times per week and walk my dog several times per day. It is getting out of bed that's the problem!

mgm42

AnnArbor said:

Weary of Horror Stories -- How is it going?
I just found this discussion board, and I'm curious how YOU are doing with the aromatase inhibitors, Marilynn. I was on Femara for 8 months and am switching to Arimidex this month. I had a lot of the side effects others have written about (especially foot pain), but I've still managed to play soccer 2 - 3 times per week and walk my dog several times per day. It is getting out of bed that's the problem!

Going GREAT!
Hi, AnnArbor. I was just up in your neck of the woods a few weeks ago. Beautiful Michigan. I've been on Armidex for two full months now and so far, no side effects. It's like taking a vitamin each morning. No big deal. At first, I thought it was causing me some insomnia, but it wasn't. And, instead of gaining weight, I'm actually still losing a little weight. Nothing dramatic - but steady. Of course, I'm watching what I eat and trying to walk a few miles each day. I'm so grateful for the Armidex, particularly after reading the response from C. Abbot. That's one smart cookie when it comes to breast cancer. But, as for me, I feel great. Thanks for asking. Hugs, Marilynn

Joycelouise

mgm42 said:

Going GREAT!
Hi, AnnArbor. I was just up in your neck of the woods a few weeks ago. Beautiful Michigan. I've been on Armidex for two full months now and so far, no side effects. It's like taking a vitamin each morning. No big deal. At first, I thought it was causing me some insomnia, but it wasn't. And, instead of gaining weight, I'm actually still losing a little weight. Nothing dramatic - but steady. Of course, I'm watching what I eat and trying to walk a few miles each day. I'm so grateful for the Armidex, particularly after reading the response from C. Abbot. That's one smart cookie when it comes to breast cancer. But, as for me, I feel great. Thanks for asking. Hugs, Marilynn

Looks like I will be
Looks like I will be switching from Tam. to Arimidex due to lowered Estradiol levels. So I went back and read this post and comments and it sure helped me. Thanks Marilyn, Cabbot and all who posted. You all are a great source of information and support. love, Joyce

smedina1103

https://csn.cancer.org/discussion/158406/weary-of-horror-stories-aromatase-inhibitors

Hello mgm42, I am now facing the same dilemma as you; stage 1 bc; had double mastectomy and I’m sure Arimidex will be prescribed; can you tell me what your experience has been like?

Disney girl

Its so good to hear the good regarding this medication.

How is everyone doing dealing with libido. I have none, it's actually painful for me. I have tried all over the counter.water and silicone based to help.

However I do have osteoporosis and on fosamax as well. This is my second bout with breast cancer. And my chemo was very aggressive with times.

Any input would be greatly appreciated