Angiosarcoma

jbeck7406
jbeck7406 Member Posts: 3 Member
edited March 2023 in Rare and Other Cancers #1

38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all that yet, I’m a bit worried . I live in Nebraska and am hoping to see a specialist at Mayo Clinic in hopes of a doctor reviewing my case to get the right treatment. Only problem is they don’t take my insurance .. it’s just a scary thing not knowing the how’s and why’s and what to do next …

Comments

  • 2519
    2519 Member Posts: 1 Member
    #2
    https://csn.cancer.org/discussion/326323/angiosarcoma
    https://csn.cancer.org/discussion/326323/angiosarcoma

    I am currently undergoing treatment and they are using the Mayo Clinic protocal. I do not see an update from you, but hoping you were able to get the treatment you needed. Any feedback would be appreciated. M

  • jbeck7406
    jbeck7406 Member Posts: 3 Member
    #3

    update :

    Well everything’s been good so far . After having both surgeries to remove tumor and NOT undergoing any chemo or radiation treatments , no signs of recurrence!! I’m just living my life as usual and staying 100% positive !!!
    one thing I do know is BEING YOUR OWN ADVOCATE IS EXTREMELY IMPORTANT, only you know yourself the best , doctors are wonderful ppl but if you think for one second something is wrong then most likely something is wrong . Getting a second opinion or second scan is most definitely what saved my life . !! You got this keep fighting love STAY ACTIVE AS MUSH AS POSSIBLE EVEN WHEN YOU ARENT FEELING WELL , PUSH YOURSELF ❤️!!!!!#POSITIVE VIBES #F***CANCER

  • ktyoh2025
    ktyoh2025 Member Posts: 1 Member
    #4
    https://csn.cancer.org/discussion/comment/1718080#Comment_1718080

    I like what you said about if a person thinks for one second that something is wrong, then there probably is something wrong. Sometimes certain procedures and tests can miss diagnosing angiosarcoma of the breast, maybe because it's vascular. Eventually, a biopsy will confirm it.

    I hope you are feeling well in this new year, 2025. I send you prayers and good wishes!

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