New Guy

Dayle0928

I was diagnosed with Esophageal Cancer last Monday. I'm a mess. Nightmare of care co-ordination with providers and insurance. How do I see the entire post of people who post? I see things like, "The most important thing you can do to survive is....."

And then gets cut off. Tips, suggestions, advice welcome. Thank you.

LimogesGuy

I had the same problem. Posts just wouldn’t expand when clicked on. But the result seems to have remedied itself in the last hours.

Anyway how you coping. We seem to be in the same boat.

Little information waiting for treatment.

jwkelly

https://csn.cancer.org/discussion/327629/new-guy

I had immunotherapy when first diagnosed but insurance stopped it at the treatment center I used and the ew location wasn't close so I couldn't get it

NGC1514

"The most important thing you can do to survive is....."

1. Get to an NCI-Designated Cancer Center (assuming you are in the US). https://www.cancer.gov/research/infrastructure/cancer-centers
2. Follow the medical treatment plan exactly as it is laid out.
3. Do not waste time or money on any alternative treatments: they do NOT work!

I was diagnosed with Stage 2b adenocarcinoma with a 7cm tumor and 2 suspected lymph nodes on October 6, 2000; had 12 weeks of chemo, 4 weeks on radiation with chemo, and a transthoracic esophagectomy on April 9, 2001. The nodes proved to be non-cancerous on my post-op pathology report and I was downstaged to 2a.

It is a crappy disease, but it can be beaten.

Good luck

jwkelly

https://csn.cancer.org/discussion/comment/1713238#Comment_1713238

My entire esophagus has a tumor but my stomach feeding tube keeps me alive and gives me the nutrition I need. Mine is inoperable,can't tolerate any of the treatments either. I'm advanced stage 3b since December 2021. Good days and bad