-
LONG TERM SARCOMA SURVIVORS WANTED
I'd like to hear the stories of some long term survivors. Please tell me your story. I'd like to be able to see that this isn't only a dismal disease. Thanks.
-
Chondro sarcoma
I had a skull based chondrosarcoma surgically removed from behind my right ear in 1990. Another was diagnosed, growing in the same place, in 2000. Surgical removal is not an option second time around. Although only slow growing I have had two bleeds in the last 18 months, one into surrounding brain tissue, the other inside…
-
Radiation side effects
I just finished this week 30 treatments of esophagus radiation, about 4 inches above my stomach junction. I also went through 30 radiation treatments for neck cancer and 6 weeks of chemo. My question is I have acid reflux bad and the dry heaves that are really misserable, how long before this all goes away. Thanks for any…
-
Blood work
So I recently had 2 iron infusions for iron deficiency anemia. I just had my blood work redone and now my red blood cell count is high and it was normal before? Also my MCV, and MCH are lower than before and my RDW is higher than before? Anyone know anything about blood work?
-
Prostate, need to get Biopsy.
47 year old. PSA kept rising, highest 3. MRI (2 lesions), it doing well mentally, planning a transperneal Biopsy: CLINICAL INDICATION: Prostate screen, PSA > 3, post repeat (PSA, DRE, benign workup) Encounter for screening for malignant neoplasm of prostate Z12.5; TECHNIQUE: Using a body phased array coil small…
-
free flap reconstruction of gums
Just wondering if anyone else has had free flap reconstruction in mouth. It doesn't seem to be too common and I really would love to discuss with someone who has been through this.
-
Nephrostomy tube
has anyone had a nephrostomy tube placed for the instillation of Jelmyto to treat urothelial cancer in the renal pelvis. If so, how was it ?
-
Bladder cancer treatment
My friend diagnosed with stage 2 bladder cancer, doctor say that they need to remove bladder in order to treat cancer. but, my friend worred about bladder removal, is any other effective way to treat stage 2 bladder cancer.
-
A TRUE LOVE STORY
People always talk about true love stories, most of them being fiction, but this is mine and it is true. My name is John and I want to talk about my and my wife's battle with cancer, how it affected both of our lives and how our faith was not broken at all. I met Gail at McDonalds in Winston-Salem, NC where we both lived…
-
For those recently diagnosed....
There is hope. I was diagnosed last February, had surgeries in March and October, and am currently on the path to recovery. One thing I learned: Cancer is not a "ME" disease, but a "WE" proposition. WE CAN ALL HELP EACH OTHER. I detailed my journey in this 10 minute read. I hope this helps YOU, whether you are a patient or…
-
fallopian tube cancer
Diagosed with fallopian tube cancer 11/25/08. Surgeon removed tubes, ovaries, utereus and followed up with 6 sessions of chemo. Last CT Scan was good CA125 was 2 Follow up CT in 6 months. Anyone out there with this disease, how long ago was surgery and treatment? Can find LITTLE information regarding this form of cancer.…
-
Post catheter Urine stream slowing
On Monday my catheter came out and my urine stream seemed stronger than before but not because of any enlarged prostate issues previously. I had always for the last 15 years just had a slow stream. So initially I was wow this is great. Now over the last three days my urine stream is slowing down again and the last time it…
-
Interpreting Surgical Pathology Report
I have my follow surgery discussion with my surgeon 9/4. He did call me after he got the report and said he had good news , clean margins, clean lymph nodes, etc…everything looked good. But I want to make sure I can ask proper questions regarding my report. My initial Gleason score in February was 3+4+7, intermediate…
-
Treatment advice
I'm I 58 year old male healthy, non smoker no drugs in very good shape on active surveillance for 1 year. My PSA has been stable for last 9 months at 6.0. Original Biopsy (1year ago) I had 3 cores 3+3 and grade 1. Recent Biopsy I had 5 cores 3 at 3+3 and 2 at 3+4. I'm seeking treatment advice from anyone who would like to…
-
18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…
-
"Translocation" RCC
I received a phone call from my Drs office this week stating thet were performing more tests and stains on the mass they removed from my kidney. Originally I was told it was clear cell now they are saying it may be "translocation." type. This has me very worried based on what I've read about this type of cancer. Anyone…
-
Proton Treatment
I have been on this site previously. Been on AS for 3 years. Continuing growth in positive cores and appearance of 3+4 in two cores are moving me to treatment. I am committing to Proton believe the following Cost is much higher than SBRT/IBRT Curative power for PCA is equal to other radiation types and RP Lower secondary…
-
Do I have surgery to remove the endo even though they think it's a very low chance it's cancer?
My story is that I had a CT scan back in March when I was sent to have due to stomach pains which, at the time, they thought was appendicitis but just wanted to confirm before sending me to the hospital. It ended up being diverticulitis but they found a mass and a fibroid in the CT scan which required further looking into.…
-
New here
I am 66 year male, diagnosed in April 2024 with Colorectal cancer. After an MRI & CT scan which were done soon after the surgical resection, I was given a Stage 3c and was told by cancer board that no treatment plan was needed for 6 months and a follow up is upcoming in late September. I have changed my diet since April to…
-
New Here with severe Iron deficiency
I just found out I am severely iron deficient. I also have anemia. I have had changes in bowel habits, quite a bit of bleeding and bloating and gas. I have a colonoscopy on 9/10 but I’m freaking out in the mean time. My brother has colon cancer. Has anyone else had these symptoms but not had colon cancer?
-
It's September again.
I suddenly realized it's that month, in which was my original diagnosis, on my late wife's birthday, [Sep. 25], our Anniversary [Sep. 1], and my last CRC/liver resection [Sep. 5 or 6]. Always a muted observance, but this year is 10 years since the Labor Day Friday, of my last cancer surgery in 2014, and 17 years past the…
-
Colonoscopy
Hello all, I had my 1st year post colon cancer. The gastrologist took a biopsy of the surgical site, but said he didn't expect to have any bad results indicating to me it was a routine thing he did. There were no polyps and the resection surgery I had done a year ago healed nicely his words. Is it routine to have a biopsy…
-
Biochemical reoccurrence
Underwent a prostatectomy on 9/7/2022, pathology showed: adenocarcinoma, Gleason 7 (4+3); focal extraprostatic extension present (right anterior, right lateral), positive margin (left apical), involves 6-10% of prostate; 0/10 right pelvic, 0/5 left pelvic LNs involved; pT3aN0Mx. PSA on first test was .07, second test 3…
-
Cancer Journey
First of all thank you to everyone here that shares their experience and expertise. I have learned so much from this forum. Like many wives of husbands diagnosed with prostate cancer we become their biggest advocates and cheerleaders. Here is our ongoing story which started 13 years ago. My husband was diagnosed with…
-
Having difficulty with caretaking
Hi. My mom was diagnosed with stage 1b pancreatic cancer in December and underwent chemotherapy almost immediately after and had a total pancreatectomy in April. She has bounced around from care facilities to hospitals and is now home. She is unable to walk on her own, use the restroom alone, and constantly needs someone…
-
Anyone have surgery after 6 rounds of chemo/immunotherapies?
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
-
Unveiling the Mystery of Cancer Staging
In this video, we delve into the often confusing world of cancer staging and reveal the secrets behind how it is determined. Understanding cancer staging is crucial for making informed treatment decisions and assessing prognosis. Join us as we simplify this complex topic and shed light on the key factors that influence the…
-
Sister Has Pancreatic Cancer
Hi. My sister has pancreatic cancer. She lives in Western Canada and I live on the East Coast of the U.S. I went to visit her in October for a week to help her while she was getting chemo. The challenge I’m facing is that I don’t really know what is happening. She is being very optimistic about “kicking cancer to the…
-
Labor Day Celebrating America's Workers & Summer's Last Hurrah
Hello to everyone here on CSN H&N group, all members and visitors alike. I would just briefly like to wish everyone a wonderful Labor Day holiday no matter where you are may you have a wonderful day. My Oh My it's hard to believe we are near summers end already the time goes so fast and we need to cherish the moments. I am…
-
Recent breast cancer diagnosis
Hi, I am new here. I was diagnosed in May with IDC, and I just had a lumpectomy 2 weeks ago. Before surgery, I also had a breast MRI and it showed that I only had the single tumor (~1.5 cm) with no other suspicious areas or lymph nodes. Since the surgery, my tissue pathology came back and fortunately I have clear margins…