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Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
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Radiation for refractory PMBCL: proton v photon
I have Primary Mediastinal Large B-cell Lymphoma and the chemo didn't work. Started working and then quit responding. Now I am in between Photon and Proton therapy and not sure what to do. Has anyone on here had any experience in this? The Proton would be at 60Cy and the Photon at 20cy. CAR-T as well. Anyone have any input?
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Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
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Choosing not to do Hormone Therapy after Lumpectomy
Two months ago I had a lumpectomy to remove Grade 1, Stage 1 Estrogen Progesterone positive mucinous cancer. My oncologist wants me to take Aromatose as I am 74. This drug is known to cause bone loss. I am .1 point away from osteoporosis. A Mammoprint test was done and the outcome shows a possible 98% non recurrence with…
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Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
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Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
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Young Esophageal Cancer Patient
Hi everyone, my name is Emily, and I was diagnosed with Stage 3A Adenocarcinoma of the Esophagus at the age of 26. I wanted to share my story with those who might find it helpful, or just insightful in the journey of someone going through this cancer treatment at this age. In May of 2021, I ended up in the ER with upper…
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Option on Stent vs J Tube
Hi All, My dad has Esophegal Cancer which he was diagnosed with in 2021, to date he has had 2 rounds of chemo and 2 rounds of radiation, as a family we decided we did not want to go the surgery route. The second time was because there were signs that the cancer had moved into a small section of the liver. He finished last…
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Proton Therapy for Breast Cancer
Anyone know of any proton therapy for early stage breast cancer?
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vigina problems
after 7 months since my last cancer treatment. still having problems with sex. Hurts very much. I feel bad for my husband. I don't want to give that part of my life up. Anyone else have these problems?
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I am pretty terrified
Since mid sept. I have been passing blood very intermittently, sharp pain as if I am passing glass/sand paper and persistent itching around the anus almost every bowel movement. I have no pain outside of BM I am 37 years old, non immune supressed, no hiv etc otherwise in healthy shape in a long term relationship. I had a…
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Folfiri
I have stage 4 metastatic colon cancer. I did 8 rounds of Folfox and only had hair thinning. I ended Folfox back in Sept 2024. Now I am in folfiri currently finished cycle 3. When did people start loosing /thinning hair? I most likely will be on at least 12 cycles maybe more.
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robotic partial nephrectomy in my future
ct scan says i have a 3.4 mass on right kidney probably RCC. No biopsy was done. kidney function is good. they found it by accident looking for kidney stone in the ER. That pain was stupid nasty! The dr. says it's a piece of cake to take it out. I'd love to hear from you guys what i can really expect. How long will i be in…
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2 cm Kidney Mass
Hi everyone. The VA found a 2 cm mass on my husband's right kidney during an US. His CT is scheduled for the end of the month. He is 33, very athletic-he is a competitive strongman-among other things. They only found it because he had protein in is urine. We have 5 kids. So, I am a mess. I am just trying to find some…
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Male Caregiver
Dear Americans, I am a British man, living in the UK. My wife Debbie has advanced blood cancer. I find myself becoming increasingly gloomy and short-tempered, which is of no help to Debbie, especially as it is she and not me who is facing death. Do any male caregivers out there have any advice they could offer me? Thanks…
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Concern About Bone Health After Cancer Treatment
Hi everyone, I’m reaching out because I’ve been feeling a bit concerned about my bone health after going through cancer treatment. I was diagnosed with, and after undergoing treatment (chemo/radiation/surgery), I’ve noticed some unusual aches and pains, particularly in my joints and bones. I’ve read that cancer treatments…
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Post Week Updates
post Week 1 completed For recap, during the weekend between treatment 34 & 35 I had some alcohol on Friday and ate baby back rib meal. I ate whatever my wife cooked for meals Saturday and Sunday I went back to my chicken and rice diet Monday morning 🚜😎🚜 I was fine Friday and Saturday. However, starting Sunday morning at…
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Hepatic liver mass
What type of food have proved helpful in reducing the grow and activeness of hepatic liver mass?
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Pneumonia
I managed that thing that makes us all careful of what we eat and drink.. aspiration pneumonia. Apparently I am allergic to doxycycline, as I found out by hitting the floor one to many times! I am ok'ish now, except the sore throat will not go away! I was already dealing with a significantly smaller oesophagus (less than 1…
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UPSC survivor 15 years NED
I had USPC in 2010 and remain cancer free after 15 years. I had 6 rounds of chemo and brachytherapy. Other than screwing up my vagina with the brachytherapy ( it is not a straight tunnel any more) I am doing well. Having sex at 74 is still great even if it involes lube and vibrator stimulation. There was another lady that…
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Long Term Effects of Mantle Radiation for Hodgkins Disease - Dropped Head Syndrome
I've read about a number of people experiencing neck and shoulder pain along with dropped head syndrome as long term effects of Hodgkin's Disease. I have experienced these symptoms for over a year and my doctor believes these are effects of radiation. I was treated 18 years ago and have basically been healthy. I am…
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Invasive Cancer of the Bladder (In the Bladder Wall)
I'm 22 years old, and I'm not ready to say goodbye to my father... He's been diagnosed with invasive cancer of the bladder, after having a tumor removed from his bladder about the size of a lemon... His current doctor will not perform the surgery needed (removing the bladder and making a new one out of his large…
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BLESSED
MAY GOD POUR OUT HIS BLESSINGS ON ALL OF YOU. HAPPY HOLY WEEK
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Dr. Onik's Immunotherapy
I have prostate cancer with extracapsular extension and am considering Dr. Onik's immunotherapy treatment. Does anyone have any experience with his immunotherapy?
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Treatment options - IRE / Nanoknife Experiences
Hello All, I was recently diagnosed with Prostate cancer. I'm 44 years old and otherwise in great shape. Gleason 3 + 4 in 8 of 32 cores. It's all located on one side of the gland. My urologist and Oncologist both recommend removal. Pretty standard of care and well documented. I'm not opposed to this treatment as a last…
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Very cold air conditioning
Can very cold a/c be detrimental to a recovering lung cancer patient? Both my dad (at age 68) and my uncle (at age 71) died from lung cancer. My brother (age 61) now has been fighting it for 2y6m. The last 3 cat scans show cancer is in remission. His cancer numbers are up in the 70s. He has a hard time to breathe and an…
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Diagnosis: Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
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Kidney Cancer (ccRCC)
Hi everyone, My name is Halil, I am 51 years old and I live in Belgium. I’m joining this community to share my journey with kidney cancer and find support. I’ve had a long road with two kidney cancers, and I’d love to connect with others who’ve been through similar experiences. Here’s my story: • January 26, 2010 – First…
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What do you do to prevent recurrence?
Hello, I’m looking into what can I do to minimize recurrence risks other than eating healthy etc. and found this article suggesting that one should attack these specific types of cancer cells to ensure non-recurrence. Anyone care to comment? Do you know about this topic or do you follow a preventive regime that you can…
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Face Discoloration
Howdy! I'm new here so please bear with me. I am currently on the oral Ibrance (Paxlovid) and have been for over 3 years. My face, ugh! There's an uneven tone and age spots. I've spent a fortune on face creams, etc. but nothing works. My hubby says it's due to the medication. I always had a nice face and never had pimples!…