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Six Years NED from UPSC
Six years ago today I had my hysterectomy. My surgeon thought he got it all even though it had spread. I only made it through three chemos. Lots of side effects I've had to live with, but the important word here is "live." So many wonderful women here didn't make it but, for some reason I did. Thanks to all the women on…
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What are the symptoms that led to diagnosis
I am 54 yrs old and considered in perimenopause. I used to have 28 day cycles up until my late 40's. They started becomming more erratic, coming farther apart some months which I attributed to perimenopause. They currently are doing the same although they have gotten much lighter but last longer. There have been a few…
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Thank you all but the time has come to say goodbye
The time has come for me to say goodbye to all you wonderful ladies , you are all true warriors and I thank you for all your wisdom and support , I pray and hope all of you live long lives and beat this terrible disease , I for one have let this disease beat me and I don’t even have it , my anxiety and depression are off…
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Sex
Years before cancer, UPSC, I had a lot of vaginal stenosis making sex painful, and, as a result infrequent. My husband and I tried many things available to us through the pharmacy and by prescription through my ob/gyn, all without much success. Now, 3 years from my dx, and, after 6 rounds of carbo/taxol, 32 rounds of IMRT,…
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Update-DNC Biopsy
Hi ladies, I haven't been on here awhile, I've been super busy sewing gifts and decorations for the up coming holidays. Today I had my DNC biopsy done at MOFFIT. I am bleeding and feeling cramps which I hope go away tomorrow. I should have results within 7 to 10 days. I am going to flip out again waiting to find out wether…
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My Lenvima/Keytruda experience so far - please share yours
My recurrence diagnosis was Aug 19, 2019. Metastatic UPSC to multiple lymph nodes. Did 6 more cycles of Taxol/Carbo ending 12/30/19. PET scans Jan & Mar indicated some response, but also spread to more lymph nodes. Started Keytrud, 200 mg infusion on 4/6. On 4/7 started Lenvima 14 mg. By day #3 my blood pressure was way…
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Sad New from LouDy22
I'm sorry to report that Billy's mother has passed away from Stage 4B carcinosarcoma. Despite conventional chemo, immunotherapy and her previous good health, her cancer proved to be intractable. A very sad loss for Billy and his family, especially since his mom was only 59.
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Hair Loss - Not From Chemo - Hormonal?
My surgery was 6/10 and I had brachy treatements in late July/early. Noticed the past few weeks increased hair loss in my brush after brushing or in the shiwer after washing my hair. Is this hormal/estrogen related after having everything removed during surgery and if so, any recommendations besides biotin which I have…
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Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it lymphodes one ovary (removed) and in my Omentum... It takes you back getting a diagnois like this. Makes you want to stop and…
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Post-Brachytherapy Inflammation
For those who have had bracytherapy and experienced what feels like a UTI but isn't after treatemnt is over, any suggestions? I finished my last treatment a week ago and had no issues until mid-week last week (a few days after lats one) when I started feeling like I might be getting a UTI. I had been drinking massive…
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Stage II endometrial cancer
My husband's cousin just had a hysterectomy last Thursday and they found Stage II endometrial cancer. They are telling her the only treatment is hysterectomy AND they left her ovaries. Do any of you know anything about Stage II endometrial cancer?
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Covid Booster
Got a call from oncology scheduler before my last immunotherapy treatment asking if I wanted the Covid booster. Sure. 24 hours later I had body aches, headache and chills. No fever. I had no reactions after first two shots. Today after waking up I felt great--so 24 hours of feeling bad. Probably why I "let" my husband buy…
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It's my Birthday!
Happy Birthday to all my September friends also! I was born 9/9/59, which makes me 62 this year. Last year, we were fleeing our home, as wildfires raged nearby. The sky was pink, orange, then black. Smoke was so thick we could scarcely breathe. We evacuated five cattle, two cats, and three dogs--and grabbed our passports…
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Initial Follow-Up Exam Schedule Question
Hi Ladies, I had my surgery on 6/10/21 - hard to believe it's been 3 months already. Sorry if below is TMI. I saw my surgeon/medical oncologist for a post-op follow-up exam on 7/19/21 and my next visit with her is 3 months later for 10/18/21. I had 4 brachy treatments that ended on 8/2/21. The radiation oncologist told em…
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Stage 3 Grade 3-starting chemo soon
Hi, I talked with my Dr. Friday and he confirmed stage 3 grade 3 mixed endometrial/serous cancer. It was contained in the utereous and 1 out of 14 lymph nodes, but I guess it doesn't matter, because serous is always treated aggressively. I'm starting chemo Dec 10th, 6 rounds, 3 wks apart. He originally said no radiation,…
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Interesting article about radiation
https://www.cedars-sinai.org/newsroom/radiation-therapy-effectiveness-for-cancer-patients-influenced-by-gut-fungi/?utm_source=FACEBOOK&utm_medium=referral&utm_campaign=cs_social&utm_content=post&fbclid=IwAR19OeIcebSOGO1oIQ5KrmFYPLM234s4W8aT1B53bC49rW18krAXL74VAas
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Mom stopping treatment
So I got the text today from my father about how mom wanted to talk to us , deep down in my heart I knew what it was about , today has been the hardest and saddest day in my 36 years of life ..... even worst from the day the dr said " your mother has a very rare and aggre cancers called Carcinosarcoma which carries poor…
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Hope to be a survivor soon
Dear All: I was dx'ed with Stage1A-Grade 2 endometrial cancer in April 2019 when I was 70. I had a total hysterectomy and six brachytherapy treatments. I was just dx'ed with a recurrence on my vaginal wall and will soon start daily intensity modulated radiation therapy (IMRT) for five weeks followed by a TBD amount of…
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Potential New Treatments Using Covid19 Vaccine Technologies
Hope everyone is doing well. I thought you might find these interesting. Wouldnt it be wonderful if something good came out of this pandemic? https://www.fiercebiotech.com/research/biontech-reports-promising-data-mrna-cocktail-mouse-models-colon-cancer-and-melanoma…
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New here-just told this morning.
Hi, everything is moving quickly, saw a gynocologist on sep 30, received news 5 days later that it was cancer, saw my gyno/onc surgeon Oct 21st, had Da Vinci surgery on Nov 6th, today was told I have mixed endometrioid (75%) and serous (25%). Figo Grade 3, one lymph node involved (IIIC1). I guess that means I'm stage 3…
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This Can't be good
I received a call from MOFFIT today when I had dirt and dust all over my hands and pants. I had my roomba in pieces as I cleaned everything, removed wheels etc. I didn't get to the phone in time so after I listened to the message from someone named Lindsey that they were wanting to change appointment time. Well I called…
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what would you do?
hi everyone! i'm posting for my mother who doesn't speak english very well. this is an amazing space, i've been reading/translating a lot of posts to her and she's told me that it's helped her feel much less alone. thanks to everyone who has posted here and shared their stories. my mom was recently diagnosed with stage 1a…
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Full abdominal radiation
I have UPSCALE. I had chemo(6) surgery and the 25 radiation treatments to my abdome. After the radiation I was really sick for awhile diarrhea, nausea etc. then it calmed down. I finished radiation in the end of Januar. But now it's sept and I have bouts of burning pain in my abdomen. This last one was about 10 days worth.…
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Really great essay about cancer
https://www.theatlantic.com/health/archive/2021/08/caitlin-flanagan-secret-of-surviving-cancer/619844/?utm_source=pocket-newtabR Although Caitlin had breast cancer, this essay is invaluable to all of us who have gone through cancer diagnosis, treatment and recovery. The "Think Positive Police" have been neutered, if we let…
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Brachytherapy dilator use
I've just finished my 6 rounds of chemo and am now scheduled for brachytherapy radiation (they had found stage 1A carcinosarcoma (MMMT) and UPSC). I'm now scheduled for 3 brachytherapy sessions. I'm finding that I'm rather anxious particularly about the long term dilator use. I found that research on the effectiveness…
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Resonated With Me - Wanted To Share
This resonated with me and thought I would share. I thought there was an option to embed a link so you could just click on it but I guess you have to copy and paste to browser. Happy Tuesday. https://www.theatlantic.com/health/archive/2021/08/caitlin-flanagan-secret-of-surviving-cancer/619844/
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S/P TAH BSO= Status post total abdominal hysterectomy bil salpingo oophrectomy
Happy July 19th, my day of discovering I have high grade endometrioid adenocarcinoma FOGO grade 3, what a mouthful! I am 3 weeks postop and my very fisrt surgery ever, at age 69...lucky me. I felt the surgery was easy, almost pain-free too....only took 3 tramadol 50mg once discharged. I just happen to be a RN and wow it…
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Partial Vaginectomy
I noted in my surgical report (from the doctor I left behind, as we did not work well together) that my gyn onc performed a Partial Vaginectomy on me, as he was doing the TH BSO etc. Has anyone else had this done? I woke up at 4 am feeling angry at the gyn onc, and I've been dwelling on the fact that I did not sign a…
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Pathology Report Part I
So, here I am again writing on this forum because it is so challenging to have anything explained....or to reach my current ob/gyn. Thankfully, due to advice received from ladies on this forum, I have switched insurance, contacted my representative early for my member ID number, and I was lucky to receive an appointment…
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Diet
Lately I've been adjusting my diet a bit to become more alkaline and less acidic. According to my research, an alkaline diet is healthier for those who have had cancer or those with cancer. Recognizing that many of "us" have had to turn to the BRAT diet (bananas, rice, apple sauce, toast) to just keep food down on…