Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Foundation One Testing Question
When I first joined this group after initial diafgnosis, someone recommended having Founadtion One test done at the front end after surgery so I reqiested this from GO. This was before I had surgery and final path. I recently messaged their office to inquire about this and they nurse said they had to get my pslides back…
So Many Questions...
First, I want to mention that reading the posts here have been helpful. I initially joined this site months ago to read more regarding my father's diagnosis (he was diagnosed in March of 2020 with kidney cancer). Weeks later, we understood he was Stage IV with mets to lungs and bones. He has been receiving immunotherapy,…
MRI results are in
My MRI was scheduled for the 19th. It wasn't as bad as I thought it'd be. I went in feet-first and could see out of the machine and had ear plugs AND headphones so the noise was very muffled. Anyways I got the results the next afternoon and it is a stage 1A. It said it was less than 50% myometrial invasion, and it said the…
I Know I’m Overreacting
Well the latest news is that Dr Whenham MD, MS, FACOG, FACS at MOFFITT, who is the department chair; and WOW theres a lot of initials after his name( I'll probably go bankrupt seeing him, lol); his scheduler called yesterday to tell me he's taking me as a patient and I now have my first appointment on September 14. I am…
Good news thread
We all have so much to deal with, I thought I'd start a "good news" thread. Can be medical, or not. I'll start (since I'm bursting with it). My youngest got accepted to Harvard this past week.
Uterine Carcinsosarcoma Stage 1A
I am new to the board. This is my second cancer. I had anal cancer 9 years ago and I am pretty sure this cancer is secondary to the radiation I had for that as pelvic radiation is a risk factor for this cancer. I have had 5 rounds of chemo and 3 of brachytherapy. I am thinking of skipping the final infusion because there…
My thoughts about chemo and radiation
First of all I had stage 1A Grade 3 cancer, and it was clear cell. Rare and scary. I was diagnosed after some spotting led to further testing. I had an ultrasound and then a biopsy. Yes, the biopsy hurt pretty bad! Then had robot assisted hysterectomy with all the other stuff taken out also, and 22 lymph nodes which were…
Recently diagnosed with Endometrial cancer
June 27 I went in for a hysteroscopy with D&C to get to the bottom of unexplained bleeding I had had since last October. 2 polyps were removed and me and my husband were hopeful that this would increase our fertility chances and I would finally be able to get pregnant after years of infertility. Yesterday morning my doctor…
My Garden Style Cancer is Kicking My ***
Spent yesterday feverish and ill. I am leaking from my backside from the HDR brachytherapy. This is not the most fun I've had in life. On the up side, I am vertical, no longer so dizzy and ill that I can't walk. I'm torn on whether to make the four hour round trip to our house on the Oregon Coast. Daughter, son-in-law, and…
Chemo after immunotherapy
Looking for anyone with this experience. Since starting immunotherapy treatments in May--2 Pembro and 2 dostarlimab--my oncologist is considering moving me to Doxil due to disease progression. I had one X-ray and one chest CT that indicate very rapid pulmonary tumor growth--from 9mm to 3.8cm in 3 months--and now extensive…
Do I Trust Doctor or Look Elsewhere
Hi Ladies, Well I canceled my biopsy last week and my gynecologist referred me to Dr Michelle Cofield to do a DNC to see if I have cancer. Her office is supposed to call me to make an appointment to dicuss the procedure. Well today I googled her online and found good reviews and bad. The bad were about having to wait theee…
Fatigue
Hello, My mom was diagnosed in December 2020 after her hysterectomy. There was spread to her lymph nodes. She started Carbo/Taxol and was in a Keytruda trial. She had her 8th (and scheduled to be last) chemo 4 weeks ago. She had a Keytruda infusion last week. From her 8th chemo and since, she has been incredibly tired. She…
Editing Your Comments & Date Change
Recently I noticed that editing an existing comment that I've made in the past now changes the date to the new edit date. This is different behavior than in the past when editing a comment didn't change the original comment date. There have been times in the past when I wished an edited comment would include the change…
Post Op - Loss of Ovaries Question / Issues / Recommendations
Hi All, So unrelated to UC per se but as a result of surgery I am wodnering about side effects and isssues resukt from losing both ovaries plus all your other ladyparts. I am have been post-menopausal for many years and most of the side effects were behind me except for occasional night sweats and sleep issues. Since…
Dr. John Boik's (of M.D. Anderson and Stanford) 20 top cancer fighting foods
His was the book that got me started in the usefulness of natural therapies and he is a huge proponent of synergy in using foods. Natural Compounds that help fight cancer In 2001 John Boik of the MD Anderson Cancer Center in Texas launched a book called ‘Natural Compounds in Cancer Therapy’ It should have been compulsory…
How long did you stay on aromatase inhibitor?
I continue to wrestle with the side effects of the aromatase inhibitor (AI) I've been on since chemo and brachy. It's 3 years at this point and my gyn onc has now asked me to consider going off the AI because the side effects are increasingly disabling despite the fact that I'm very active (most recently, it's causing…
Aromatase inhibitor and tendonitis/tendinopathy
Hi everyone. My uterine cancer is ER+ and I've been on exemestane since completing chemo in September 2018. I was initially on anastrozole and was switched to exemstane in an attempt to address joint pain from the drug. The AI has always given me quite a bit of pain in my joints, particularly feet, knees and hips. I can…
Out Patient DNC
Hi Ladies, I want to thank all of you for your suggestions to avoid getting a biopsy which my doctor canceled today, Yay. I told her that I don't want the oncologist she's sending me to, to miss anything, or need to turn around and do a DNC anyway. She said she suggested the biopsy because it's easier and less invasive but…
Six Weeks Post-Op: My Questions
I took the following questions to my gyn onc who did my DaVinci robotic-assisted laparoscopic TH BSO and partial vaginectomy. He did not want to address my questions, and instead sent his PA in to talk with me and we went through them. Because they had a particular "vibe" going on at the clinic, she was also a bit…
Neulasta Onpro ??
I’ve had my 5th cycle of carbo/Taxol delayed 3 times now due to low blood counts. The first time it was cancelled I had low platelets and low WBCs, but specifically too low of neutrophils along with my platelets being too low for chemo. I was told to come back a week later. 2nd trip showed my neutrophils had increased some…
MY FINAL PATHOLOGY - ANY INSIGHTS OR SUGGESTIONS?
Got my call this mroning from my GO. Stage 1B Gradec 3. Tumor confined to uterus. All lymph node negative. Shocked at how many nodes were taken and worried about lymphedema risk. I had BC and lymph nodoes removed on both sides 5+ years ago. I was told that I need 25 external radiation treatments to start in about 4 weeks…
Anybody else suffering from extreme fatigue and/or chronic diarrhea?
It's been over five years since I finished my chemo; I never had radiation. There are some days when, as my friend says, I feel like I was "rode hard and put away wet." I know part of it is the chronic diarrhea but this fatigue is just so sporadic. I felt great Saturday and Sunday but yesterday, I could hardly move and…
Finally some relief - neuropathy and diarrhea
I had seen my doctor's PA a few times who was much easier to talk to than my doctor who is from India. I signed the paperwork that I did not want any further testing like mammograms, colonoscopy, etc. I explained that I would not accept any further treatment if the cancer came back. Then she had me go through this…
Pseudoprogression in Immunotherapy
I haven't done an update other than scatter some comments on other threads. I had my second Jemperli infusion last week but because the GO didn't like sounds--or lack ther of--I was scheduled for a CT scan which was today and results were posted within hours. Not pretty. The only good news was I have no blood clots that…
TVUS Result 13mm, Scared to Death
Hi, I am new on here and hoping to find out more about Endometrial Cancer, testing, testing results, questions I should ask doctor, etc, etc. I have spent hours and days researching online and all I can do is cry, Im scared of dying and scared about the pain and side effects like Lymphedema that treatments could cause. I…
How is NED determined?
Hello! My mom just finished 8 rounds of Carbo/Taxol and is in a Keytruda trial. She is going for a CT scan right now (I'm praying hard). I was wondering how NED is determined? At her last CT scan, which was after Chemo #6, there were still 2 lesions. Does the lesion have to go away completely and no new ones to say NED?…
newly diagnosed with serous carcinoma
Good Morning, On Tuesday I was diagnosed with high grade serous carcinoma after suffering with nebulous symptoms for months. I have yet to see a gynecological oncologist, but have appointments with two. One at a suburban hospital near my home and another at a leading university hospital in Philadelphia. As it is the…
Brachy Question - If You Do Brachy Can You Do External Pelvic Later If You Recur?
Hi Ladies - me again - sorry to be a pest. Does anyone know for certain if you do brachy only as initial post-op treatment, is external pelvic radiation an option if you have a local recurrence? I had one RO tell me yes, one tell me yes but at not at as strong a dosage as you would have had if you did external first and…
Waiting of the other shoe to drop?
Hi, Ladies! So, that's my question! I've had 2 rounds of Paclitaxel & Carboplatin and I feel pretty darn good! I asked my GO,"So, should I be waiting for the other shoe to drop!" He said, "No!" Round 1: That one hit me like a ton of bricks. I really felt like my body had been ASSAULTED. Partly my fault...even though I was…
Metallic smell after treatment
I have just finished day 8 of 28 external radiation treatments. I was not prepared for the strong metallic odor I encountered on my person after treatment. Originally, I thought the odor was in the house somewhere at first... my cats, the trash etc. Then I realized it was attached to me.I thought it was in my clothes since…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards