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MD Anderson Question
Is anyone currently or has anyone either been treated at or had a seconds opinion at MD Anderons for post-surgical treatment and/or follow-up surveillance and if so, who your oncologist was and your thoughts on them. Also if you were treated threre, did you also see or coordinate anything with their Integratuve Medicine…
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Post-Surgery Walking (Steps)
Hi All - I am 8 days post-op robotic and curious how much walking I should be doing in terms of daily steps. It's been wicked hot (high 90's/almost triple digits) and the mosquitos are bad so I have pretty mcuh bene housebound walking loops around our one story house. I have done between 2500-3300 steps a day and…
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PARP inhibitors
Hi, Ladies! I'm starting this new thread for a new discussion...which I doubt most of you have encountered, but I'm curious if you have! My doctor is encouraging me to take a PARP for maintenance, Zejula (nirapibib), post-chemo. I need to make a decision in the next month or so. So...everything I read...all research…
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Had My Robotic Surgery Thursday But I Am Very Grumpy At Home Today (Saturday)
Just a quick note to say hi and update. I was able to have the robotic surgery and that went well and the doctor did not have to remove anything more than planned - uterus, cervix, tubes, ovaries and sentinel nodes. My surgery was a little after 7am and I was in my room by 1:30. I had a great nurse and aide when I got to…
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supplements/hyaluronic acid
I havent been on here for quite a while. I am 2 years and 4 months from my last chemo and I am doing fine, except for arthritis in my hips and fibromyalgia which has been worse ever since chemo. My question is: I want to take a supplement for my hips that has hyaluronic acid in it, which is supposed to be very helpful, but…
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Post-surgery, SBRT, genomic analysis consult
Happy to report I am in a good place 6-months after my left lung wedge resection and right apical lung "CyberKnife" radiation for slow-growing bi-lateral nodules. My follow-up CT was this morning, and the results already posted on my patient portal!!! I reaffirm the inspiration provided by our late, great friend Donna…
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New here, but am learning a lot
Hello, I'm new here and am so glad I came across this forum. I've been to the ACS website quite a bit these past few months trying to learn what I can about my type of cancer and have learned a lot, but for some reason never noticed the forums. This is a new thing for me, so will be learning along the way, please excuse…
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I Am New Also
Hello. I am newly diagnosed with Uterine Cancer, Carcinosarcoma. Last CT scan tomorrow with surgery scheduled for June 23, 2021. I am in that initial scary place however look forward to reading about your journeys as I believe they will help me with my own. Any suggestions appreciated.
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11 years cancer free
Went to the oncologist today and he said I don't ever have to come back and that I am a success story. My journey started in 2010 when I started bleeding after a pap test. It took 2 years before I got the correct diagnosis. Had a complete hysterectomy and them chemo with carbo/taxil for my combination Endrometrial Cancer…
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Treatment options for newly dx of endometrial adenocarcinoma
Hello I just received new info on my treatment options from a Dr friend of a friend re: chemothetapy vs external radiation vs brady therapy. The NCCN guidelines of '09 do not reccomend chemo for my particular case. (If anyone wants this for their personal use, I can forward it by email; or possibly download it to this site…
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Update: To add radiation or not after chemo
I was diagnosed in October with Stage IIIA endometrioid adenocarcinoma after a total debulking surgery. My gyno oncologist prescribed 6 cycles of taxol/carboplatin and I just finished my 2nd infusion on Wednesday (2 down, 4 to go!). When reading the posts in this forum, I noticed that most of you received brachytherapy or…
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New treatment option for dMMR endometrial cancer
Dostarmilab (brand name Jemperli), a monoclonal antibody, has received accelerated approval for recurrent/advanced endometrial cancer associated with deficient mismatch repair (dMMR) and previously treated with platinum-containing chemotherapy. Here's the press release: PD-1 Inhibitor Approved for dMMR Endometrial Cancer I…
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Newbie Again - Can Someone Tell Me What this Means In Doctor's Note
Sorry for all the questions. I noticed on mychart that my gyno onco surgeorn posted after visit note from a video call we had last Tuesday. Not copying entire message but can anyone tell me what this means? MMMR Intanct? Performance status is 0. Recent pathology shows high-grade endometrial carcinoma, MMR intact.…
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Young and Sadden Need someone to talk to.
Hello. I'm a 34 year old girl who just bee diagnosed with a less than 50% invasion 0.3cm myometrial trumor in my uterus. They told me I should do a hysterectomy asap. (Well actually they been pushing that option since I walked in complaining about extreme bleeding I had, (Which was fixed with medication I'm taking now.)…
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Help - Don't Know Where To Start
I will try not to write to much or ask too many questions at once. I am in shock and scared. I am 68 and learned late today I have endometrial cancer. Please excuse typos as I have wet macular degeneration in both eyes and some vision loss and there's no spell check here. I started havung vaginal spotting about 6 weeks…
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Newbie Update - Pre-Surgery Scans Were Clear!
As I mentioned, I am newly diagnosed and will be having my hysterectomy this Thursday June 10th but my gyno ocno sent me for cat scans from neck to pelvis a week ago Friday. This is her protocol to see the whole picture before rather than after. I had them done late Friday but I wnated her to call me with the results but…
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Laparascopic vs Robotic vs Abdominal Surgery
Hi everyone. While my surgeon told me she may have to do open surgery she has me book for the below HOWEVER after doing a lot of research over the weekend I do not want robotic surgery for a number of reasons. I am concerned abourt my age, the position they have to put you in and issues that i alreday have with my eye…
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OncLive Peer Exchange videos
Series of videos from OncLive Peer Exchange if anyone is interested. Hopefully it is a good set up for the click and access in a new windowl…
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Update from the newbie
Hi All - I am the newbie recently diagnosed who started a different thread about being scared and needing help. Everyone was great last weekend. I did talk to my doctor this week and got more info. I asked her about grade after D&C and hysteroscopy last week and she said this was not conclusive but the radiologist opinion…
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Urine Cytology in Detection of Endometrial Cancer with Dr. Emma Crosbie
In this episode of the IJGC podcast, Editor-in-Chief, Dr. Pedro Ramirez, is joined by Dr. Emma Crosbie to discuss urine cytology in detection of endometrial cancer. Dr. Crosbie is an NIHR Advanced Fellow, Professor and Honorary Consultant in Gynaecological Oncology at the University of Manchester. Her research focuses on…
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Scan time coming up...
- and im trying to be cool about it. Having blood work done tomorrow, scan Monday. Result 12 days later. It’s a long wait. In Denmark, scan results as well as result on blood work will be in my patient portal after some days. It’s hard times ahead. Wondering if any habe tried getting a recurrence 3-4 months after…
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Other Sites Or Groups?
Me again. Not that I wwnat to overload myself but are there any other support/user foorum websites or secure FB groups that are recommended. Thanks.
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Is There A Way To Get Email Notifications When Anyone Replies To Your Post
I have tried to find if there is somehwere where I can set my profile to get emials whne anyone replies to a pots or commnet I make so that I don;t have to keep logging onto te webiste and lookimng for my post but with no success. If anyone can guide me I'd appreciate it.
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Carcinosarcoma presumptive 4B
O boy where do I begin ? I been looking at this page since March 24 everyday for hours at a time so I decided to just join and hopefully find some comfort . My mother was diagnosed with Uterine Carcinosarcoma and it feels like my heart and soul have been ripped from my chest , i don't want to take to anybody and I am just…
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Promising Lynch Article
https://www.mdanderson.org/publications/cancer-frontline/aacr-phase-i-trial-show-naproxen-promotes-immune-activation-in-lynch-syndrome-patients.h00-159381156.html?fbclid=IwAR0hvSlwvgJ_H7Q1s9BRAEuvOm2zhjWJc66tzdeHnNXHOGDrpAMroi3Y6Rg Good morning Ladies! More good news for those of us with Lynch. I hope everyone is having a…
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New article by the New England Journal of Medicine Endometrial cancer
https://www.nejm.org/doi/full/10.1056/NEJMra1514010#.X7cGIUBYvR4.twitter
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Biopsy negative, but still turned out to have cancer?
Hi All, I am a breast cancer survivor (10 years!), but this is my first time on the Unterine board. I was hoping you could help me with advice- I am 59 years old, post menopausal. Six months ago, an ultrasound revealed I had an ovarian cyst. My GYN told me it should be followed up again in 6 months. In the mean time, I had…
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Sanexas Therapy For Neuropathy
Hi everyone! Has anyone tried Sanexas therapy for Neuropathy. I looked it up and it sounds interesting and insuranance may cover it. Has anyone tried this, if so has it helped with your neuropathy? Here is a link to some information about the therapy.…
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Multiple Second Opinions
My mom has clear cell endometrial cancer and adenocarcinoma. After a hysterectomy followed with carbo-tax chemotherapy and radiation, she had a clear PET scan last summer. However, she had some intestinal trouble last November and learned that the cancer had recurred, presenting in her small intestine. She had part of her…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…