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Fluff
I just learned that Fluff passed away Friday. She was in a Facebook group I'm in. So sad.
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Pelvic soft tissue mass on CT
Hi everyone. I'm here to support my mom (Stage IV UPSC). I've gotten so much good information from the posts, so I wanted to add in case anyone else has a similar situation. A little background--cancer was found last May, surgery in July (everything out including omentum), optimal result. 6 rounds carbo/taxol done in…
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My Recurrence Journey
It was seven years ago that I was diagnosed with UPSC stage 3 and I really thought I beat it when severe pelvic pain sent me to my local ER last August. The CT scan there showed 3 enlarged pelvic lymph nodes. I notified my gyn/onc and he immediately ordered the scan results and sent me in for a CA 125 which was in the…
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Carsinosarcoma 3 C
Need information please! My mom, age 88, has uterine cancer--carsinosarcoma Stage 3C1. She's had a hysterectomy and now has declined follow up treatment. I respect and understand this decision. From what I have read this is an aggressive cancer with poor prognosis. Can anyone help me understand what's ahead and how fast it…
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Farewell to Donna Faye
Not long after our dear Donna Faye bid us goodbye in her last post at https://csn.cancer.org/node/322878, she passed away amongst her beloved family. Her obituary is at https://www.articobits.com/obituaries/american-cremation-and-funeral-service-durham-nc/faye-gregory-obituary. It's a beautiful tribute to the woman we got…
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Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
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14 pound overnight
Is 14 pound weight gain after hysterectomy normal. I just got home from the hospital and stepped on the scales - I have gained 14 pounds between going to the hospital yesterday and arriving home today. My stomach is bloated but my hands and feet aren’t swollen. the Only thing I have had to eat in 4 days is corn flakes this…
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Early stage Serous Endometrial Cancer article
This topic is discussed a lot on the board. I found this very recent article from the Mayo Clinic. I cannot post a live link so maybe someone else can. It confirms what we have discussed. https://pubmed.ncbi.nlm.nih.gov/33622859/
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Persistent unilateral hip/pelvic pain - could it be a met?
I'm a little bit worried, and hoping I might get some feedback. I've been having right sided hip pain for perhaps three months. It's intermittent - occasionally I'll have a day or two without it. It is not present when I'm lying or sitting down. Starts up about 15 minutes after I start walking around. It is sharp, twingy,…
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Medicare story
I want to share this slightly off topic story because many of us have Medicare. I recently had spinal fusion surgery and stayed one night. I am an RN and can manage my care at home, and I am concerned about the risk of hospital borne infection, especially MRSA and COVID. I have Medicare and Regence Blue Shield…
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Sad news - our dear Abbycat2
Ladies, and especially for those who have been fortunate to be around a few years, I have some sad news to share. We have lost our dear Abbycat2, Cathy. Below is her picture from her profile here on CSN. I had been in touch with her over all the years, having had the chance to meet her when she came through Indiana in…
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How to determine NED
Hello dear ladies, My mom is currently undergoing chemo: Carbo/Taxol and is in a Keytruda trial. She has finished 3 treatments so far and had a CT scan last week which showed some shrinkage of the tumors. I am trying to be optimistic and praying hard. When her planned 6 treatments end, she will have a CT scan. How do the…
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Hi im new and I have a supplements ?
Hi Im Izzy and im not a cancer patient but my mother has stage 4 and I know it has spread to lungs and lymph notes. she was diagnosed september 2020 and she had complication from a surgery she had so she didnt start first round of chemo until at the end of January. BTW my mom is a diabetic and was told her cancer was…
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Have I pissed of the universe?????
I must have done something wrong. I'm being punished..... :( So you all know I had a rough time after Christmas. And it just went from bad to worse. At the end, I was bedridden all day and I couldn't keep anything down. So at one point, I thought. This is not good. Went to the ER and they committed me to the hospital On…
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Nigella Sativa
I ran several searches and only saw the black seed oil (nigella sativa) mentioned in here in passing. Because I feel fairly new at this, I hesitate to say too much. I still have so much to learn and I don't know what's been discussed. I'm wondering if any of you have tried the nigella sativa (black seed oil) or know anyone…
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Promising news for serous cancer survivors
Dana Farber Cancer Center has some good results in a Phase 2 trial for recurrent serous endometrial cancer. I thought I would pass it along. This is their press release. The research is in a clinical journal cited in the article for those who wish more detail.…
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Hurting and waiting..
I had the biopsies last friday.. They didn't hurt, minor bit of cramping, but it lasted most of the day. Every day the spotting got a little worse, as did the pain. Today I switched from pantiliners to pads and the pain is steady.. Normal? Still no results, she told me they would be here Monday or Tuesday but plan on…
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Endometrium Biopsy
Hi Ladies I just found this forum last night. I appreciate all of your thoughtful answers. Here is my situation- maybe you can give me your opinions. I am 41 years old. I am not menopausal. Actually, my periods are very regular overall. However, in December, my period became super heavy with giant clots ( size of your…
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5 year anniversary
Well it’s hard to believe today marks 5 years since my final chemo infusion and end of treatment. My external radiation was done in the beginning along with chemo, vs sandwiched in or at end of chemo. I was diagnosed at age 54 with Stage IIIC1, Grade 3, Mixed 50% Endometrioid Adenocarcinoma (EAC) and 50% Uterine Serous…
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Waiting results
Hope it's ok to ask a few questions here. I have not been diagnosed with cancer. I am 63, 10 years post menopause, had some bleeding, saw Dr--transvaginal ultrasound showed thickened something-- had biopsy today waiting results should be here Monday or Tuesday. From her experience looking at ultrasound pictures she said…
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Pelvic Lymphedema
Has anyone acquired lymphedema in their pelvic area (below the belly button)? if so, how long after surgery and what are you doing for it?
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Winter is long this year
Hi ladies, My laptop gave out, and it was so hard reading this site from my phone that I drifted away for a while. But I have a rare night to myself, and I've been thinking of you all so often. I noticed that this place is pretty quiet lately, and I just wanted to come in and turn the porchlight on and dust everything off…
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Hi girls ;)
It’s been a while since my last post. To be honest, I’ve been miserable.... Actually like I’ve never been before, in this crap journey. So about 2 months ago, I noticed that my left leg was thicker than the other. About 3 inches. At that point, that was all. Only the swelling. But oh my gosh, that changed. I’m in total…
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New Here and Very Frustrated with Kaiser Permanente
So to make long story short going on my second D&C in 3 year. Last one was negative for cancer had pendunculated fibroid or polyp removed in February 2019. Two years forward history of spotting and recent clotting and bleeding again and I am 55 and post menopausal. Had ultrasound last time and the stripe was enlarged or at…
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AFib
Anyone develop AFib during chemo? If so, how long did it take to go away? I had it through 6 cycles and was scheduled for a cardio conversation last Monday and when I went in to get that done, I for the first time in months was in normal sinus rhythm. So they sent me home and for almost a week, I go in/out of AFib. Next…
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What year and age dx?
What year were you diagnosed at, and at what age? What type of uterine cancer do you have?
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Alternate Chemo treatment Serous cell
Hi Guys, My wife has just had an MRI and it looks like the Paclitaxel/Carboplatin treatment is not being effective at fighting a reacurrence. My wife was originally diagnosed with Stage 1 high grade and had a full hystorectomy in June of last year. They staged the cancer as Stage 1A, but as 15% of cells were Serous they…
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Awaiting biopsy results
Hello everyone, hope it is ok for me to post on here. Not diagnosed, but waiting on results of biopsy. Still wrapping my head around it. I'm 46, but already postmenopausal (early). For about 4 years my period was 11 months apart, finally was at 2.5 years so officially considered post menopause. For the last couple months I…
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How quickly things change
I have done very well since deciding no more treatment and joined hospice to have someon to contact. Up until January 15. Was prefectly fine and then cancer hit with a vengence. Thankfully they put me in a hospice care unit for 7 days. Felt awful and frankly was ready to call the game, but alas they got me stable and sent…
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Question about treatment and keeping ovaries
Hi, this is my first time posting and I am glad to have found these boards. One year ago I had my uterus and fallopian tubes removed and found out that I had endometrial cancer, adenocarcinoma, FIGO stage 1. I had 2 D & C's prior to the surgery that came back inconclusive. I kept my ovaries because I did not know that I…