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Help! Post-Op Follow-Up Exam With GO & Also Exam by RO
The radiation oncologist told me he would need to physically examine me before starting external treatments. I kind of freaked out as the timeline wiill fall around the same time as when I am due for my post-op follow-up with my GO which I am sure also requires a physical exam. I had surgery on 6/10 and my appt with GO is…
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1B3 - 2nd opinion slight different about radiation - internal vs external
My GO post-surgery and final path recommended 25 external radiation treatments for 1B3 EC no lymph involvement pelvic wash clear etc. I sought second opinions. I had one yesterday and the GO said to do inernal radiation instead. She acknowledged there is limited data spefically on 1B3 with no lymph node involvement and it…
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low BP after chemo infusions ??
As I mentioned in my earlier post, I had my chemo infusion a week ago today. Did pretty well in regards to side effects until yesterday around noon when I had an "episode" where I think I was close to passing out. I had the same thing happen on day 8 after my 3rd cycle of chemo. Ended up in the ED that day because I also…
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Blister Pill Packs (and Imodium)
I'm starting this topic after reading a comment on another post. As I've mentioned in other posts, I've been plagued with diarrhea ever since I started taking Metformin for my Type 2 diabetes back in 2014. The diarrhea was far worse after my surgery and chemo treatments. And I continue to have problems today. Loperamide…
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Chemo and keytruda
I have endometrial adenocarcinoma, stage 4 and after chemo I am now on key truss for life. I have noticed lately my thinking is off. I confuse dates, times, appointmrnts. Example is talking with a peer and saying I knew we had the program this month. There was a pause....it was LAST month. My mind was blank. Anyone else…
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NCCN Guidelines
The National Comprehensive Cancer Network (NCCN) has just issued a new version of its Uterine Cancer guidelines. While the patient-centered version hasn’t been updated in a couple of years (see its link in the FAQ), the comprehensive guidelines intended for clinicians are generally updated once or twice a year, with more…
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Lusafag: Your Treatment Dilemma
Lusafag I hope you'll forgive me if I recap what you've posted in several messages since it many be easier for others to respond to your questions if they have a better understanding of your situation by reading it in one message. As I understand it, you and your husband are doctors in Pakistan, but since neither of you…
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Are there any other MMMT survivors out there?
I am a 34 yr old woman who was diagnosed with stage 4B uterine MMMT. Mine had metastasized to my omentum, colon, appendix and most of my pelvic and abdominal lymph nodes. I am 3.5 years in remission. I would love to hear from other survivors. I know this is a very uncommon cancer in relation to most uterine cancers. I've…
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Questions To Ask Radiation Oncologist For External Radiation
Hi All - I have an appointmnet this Monday afternoon with a radiation oncologist that my gynecologist oncologist referred me to for 25 external radiation treatments she feels I need post-op for my stage 1b grade 3 EC. I am still in the process of getting second opinions about next steps/treatemnt from one local GO and…
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Icing, I think it helped.
Hi all, I started chemo again yesterday. Cycle 4 yesterday, with a break in between for radiation therepy. For those who don't know, I am undergoing "sandwich therapy" for Grade 1, Stage 3B Endometrioid carcinoma. This regimen consists of 3 cycles of chemo, followed by 25 sessions of EBRT (external radiation) and 3…
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First Jemperli (dostarlimab) infusion today
Mixed bag today when I went to a local satellite clinic for Huntsman for my 3d Keytruda infusion. Nurse told me they had the new drug and were going to give it to me as soon as I signed the acknowledgement form. Good news there although I hadn't had any really negative side effects from Keytruda the Jemperli was approved…
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Clinical Trial Testing the Addition of the Immunotherapy Drug, Pembrolizumab, to the Usual Radiation
Has anyone been or currently in this trial or on this drug and have any opinions about it? By reading the info I think I would qulaify and it isbeing done at my location. Not sure I want to but before asking my doctor thought I would ask here. Testing the Addition of the Immunotherapy Drug, Pembrolizumab, to the Usual…
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MD Anderson Question
Is anyone currently or has anyone either been treated at or had a seconds opinion at MD Anderons for post-surgical treatment and/or follow-up surveillance and if so, who your oncologist was and your thoughts on them. Also if you were treated threre, did you also see or coordinate anything with their Integratuve Medicine…
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Post-Surgery Walking (Steps)
Hi All - I am 8 days post-op robotic and curious how much walking I should be doing in terms of daily steps. It's been wicked hot (high 90's/almost triple digits) and the mosquitos are bad so I have pretty mcuh bene housebound walking loops around our one story house. I have done between 2500-3300 steps a day and…
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PARP inhibitors
Hi, Ladies! I'm starting this new thread for a new discussion...which I doubt most of you have encountered, but I'm curious if you have! My doctor is encouraging me to take a PARP for maintenance, Zejula (nirapibib), post-chemo. I need to make a decision in the next month or so. So...everything I read...all research…
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Had My Robotic Surgery Thursday But I Am Very Grumpy At Home Today (Saturday)
Just a quick note to say hi and update. I was able to have the robotic surgery and that went well and the doctor did not have to remove anything more than planned - uterus, cervix, tubes, ovaries and sentinel nodes. My surgery was a little after 7am and I was in my room by 1:30. I had a great nurse and aide when I got to…
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supplements/hyaluronic acid
I havent been on here for quite a while. I am 2 years and 4 months from my last chemo and I am doing fine, except for arthritis in my hips and fibromyalgia which has been worse ever since chemo. My question is: I want to take a supplement for my hips that has hyaluronic acid in it, which is supposed to be very helpful, but…
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Post-surgery, SBRT, genomic analysis consult
Happy to report I am in a good place 6-months after my left lung wedge resection and right apical lung "CyberKnife" radiation for slow-growing bi-lateral nodules. My follow-up CT was this morning, and the results already posted on my patient portal!!! I reaffirm the inspiration provided by our late, great friend Donna…
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New here, but am learning a lot
Hello, I'm new here and am so glad I came across this forum. I've been to the ACS website quite a bit these past few months trying to learn what I can about my type of cancer and have learned a lot, but for some reason never noticed the forums. This is a new thing for me, so will be learning along the way, please excuse…
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I Am New Also
Hello. I am newly diagnosed with Uterine Cancer, Carcinosarcoma. Last CT scan tomorrow with surgery scheduled for June 23, 2021. I am in that initial scary place however look forward to reading about your journeys as I believe they will help me with my own. Any suggestions appreciated.
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11 years cancer free
Went to the oncologist today and he said I don't ever have to come back and that I am a success story. My journey started in 2010 when I started bleeding after a pap test. It took 2 years before I got the correct diagnosis. Had a complete hysterectomy and them chemo with carbo/taxil for my combination Endrometrial Cancer…
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Treatment options for newly dx of endometrial adenocarcinoma
Hello I just received new info on my treatment options from a Dr friend of a friend re: chemothetapy vs external radiation vs brady therapy. The NCCN guidelines of '09 do not reccomend chemo for my particular case. (If anyone wants this for their personal use, I can forward it by email; or possibly download it to this site…
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Update: To add radiation or not after chemo
I was diagnosed in October with Stage IIIA endometrioid adenocarcinoma after a total debulking surgery. My gyno oncologist prescribed 6 cycles of taxol/carboplatin and I just finished my 2nd infusion on Wednesday (2 down, 4 to go!). When reading the posts in this forum, I noticed that most of you received brachytherapy or…
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New treatment option for dMMR endometrial cancer
Dostarmilab (brand name Jemperli), a monoclonal antibody, has received accelerated approval for recurrent/advanced endometrial cancer associated with deficient mismatch repair (dMMR) and previously treated with platinum-containing chemotherapy. Here's the press release: PD-1 Inhibitor Approved for dMMR Endometrial Cancer I…
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Newbie Again - Can Someone Tell Me What this Means In Doctor's Note
Sorry for all the questions. I noticed on mychart that my gyno onco surgeorn posted after visit note from a video call we had last Tuesday. Not copying entire message but can anyone tell me what this means? MMMR Intanct? Performance status is 0. Recent pathology shows high-grade endometrial carcinoma, MMR intact.…
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Young and Sadden Need someone to talk to.
Hello. I'm a 34 year old girl who just bee diagnosed with a less than 50% invasion 0.3cm myometrial trumor in my uterus. They told me I should do a hysterectomy asap. (Well actually they been pushing that option since I walked in complaining about extreme bleeding I had, (Which was fixed with medication I'm taking now.)…
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Help - Don't Know Where To Start
I will try not to write to much or ask too many questions at once. I am in shock and scared. I am 68 and learned late today I have endometrial cancer. Please excuse typos as I have wet macular degeneration in both eyes and some vision loss and there's no spell check here. I started havung vaginal spotting about 6 weeks…
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Newbie Update - Pre-Surgery Scans Were Clear!
As I mentioned, I am newly diagnosed and will be having my hysterectomy this Thursday June 10th but my gyno ocno sent me for cat scans from neck to pelvis a week ago Friday. This is her protocol to see the whole picture before rather than after. I had them done late Friday but I wnated her to call me with the results but…
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Laparascopic vs Robotic vs Abdominal Surgery
Hi everyone. While my surgeon told me she may have to do open surgery she has me book for the below HOWEVER after doing a lot of research over the weekend I do not want robotic surgery for a number of reasons. I am concerned abourt my age, the position they have to put you in and issues that i alreday have with my eye…
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OncLive Peer Exchange videos
Series of videos from OncLive Peer Exchange if anyone is interested. Hopefully it is a good set up for the click and access in a new windowl…