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Uterine/Endometrial Cancer

Im 34!!! Please any advice On thickened endometrium 15.90mm
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
Plateaued CA125
In Oct I was diagnosed with recurrent Uterine Cancer. Numerous tumors in my abdominal cavity. My ca125 was 135 at time of diagnosis. 8 weeks later it was 439 (before treatment). Next draw was 244 (2 days before first treatment). After my first treatment it was 214 and then 222 after 2nd. Had my 3rd cycle last week so don't…
Worried- thickened endometrium with bleeding
Hello, Hope everyone is well and staying safe. I'm writing here to see if I can hear any experience or opinions that are similar to my mom's thickened endometrium and postmenopausal bleeding. A little background: She's about 65 y/o. In october 2019 she had some spotting so we did an ultrasound which showed thin endometrium…
Abnormally thick endometrium
Good morning, I am a 44 year old premenapausal woman. I have been having pelvic pain for months. I had elevated CA-125 levels and finally got my pelvic ultrasound and they found a probable corpus luteum cyst, 2 probable uterine fibroids and Abnormally thickened and unusually heterogeneous endometrium with internal…
Looking for mentor
Uterine stage IV leiomyosarcoma. Uterus, lungs, brain lesions. Six rounds five days in patient chemo. Soon 4-5 radiation therapy sessions on brain lesions January 2022. Female, 37 at diagnosis. Looking for similar YA cancer survivor with my stage and metastasis and how they survived. Also what did they do in the mean time…
4 years since Stage 4B diagnosis, 3.5 years NED
Hello, everyone - I don't stop in often anymore but wanted to share good news I received recently. I was diagnosed in January 2018, initially as Stage II, then 3 months later after a scan, Stage IVB with nodules having spread to my lungs via LVSI. Life looked like it would be quite abbreviated. Yet here I am, 59 now, and…
Keeping our mental game strong during treatment
One challenge I faced during chemo was my head game, so I thought I'd start a thread on this to gather experience and wisdom from all of us who have been through it. Maybe future visitors will benefit. By "head game," I mean the mental "game" that helps us navigate very difficult circumstances. I don't mean toxic…
Seeing a PA at follow-up instead of ONC?
Hi, Ladies I have a 9mth post-treatment follow-up appointment tmo at ONC’s office. When I called today, I was told I would be seeing the PA. I said, “I won’t be seeing the doctor???” She said, “No. For 3-6-9-….blah…blah….you see the PA. If she thinks there’s some reason for concern, she’ll tell the doctor.” This is new.…
Hernia after hysterectomy
Hello, I just had my second 6 month Chest/Pelvis CT and celebrating No Enlarged or Inflamed Lymph Nodes and No Mass! However, I now have a 2 cm umbilical hernia I did not have last CT. I also have a thickened urinary bladder wall sine the last CT. Has anyone else developed these after surgery or radiation?
When did radiation start after hysterectomy?
I had a hysterectomy and I am next scheduled for radiation treatments. For those that had radiation only after hysterectomy how long after your hysterectomy did you start your radiation treatment? My radiation treatments will start 11 weeks after my surgery. I am concerned because I read an article that said if radiation…
Special evaluations can help seniors cope with cancer care
Interesting article about cancer care at older ages: https://abcnews.go.com/Health/wireStory/special-evaluations-seniors-cope-cancer-care-61867560
Inappropriate Message on CSN
Someone named Barnies85 has sent me fundraising information. Anyone else get that one?
Another Update since I went to CTCA Atlanta
On November 10 and 11th I had my first appointment at the Cancer Treatment Center of America in Atlanta. This experience has been unlike any other hospital I have been to. We drove but they paid for our hotel stay and paid us mileage. I had a ton of blood pulled and they checked just about everything I think lol. The…
I’m thinking of quitting pelvic radiation
Has anyone here had no negative life altering after effects of pelvic radiation where there is no tumor to direct the radiation to? I’ve only had 5 treatments of external pelvic radiation - IMRT - (7 days after starting treatment) and I’m thinking of quitting treatment. I started constant diarrhea on day 5. After reading…
Willing to share my surgery experience
I had a couple of interesting things happen with my surgery 3 years ago. I don’t want to scare anyone but if you are curious then ask away.
3 years NED
So I see others on here getting congratulations and happy comments. Kind of makes me sad that all I get is crickets. 🤷‍♀️Only one person has responded, Thank you, cmb.
New Site Format Question
I am having a hard time with the way the site was redesigned. Is it just me or is is there no longer a way to jump to new comments on a post? Also do posts and replies no longer show the date and time? It seems like when you go to read new comments to a post that when you click on the post it takes you to the original post…
How long should I worry about developing lymphedema?
I'm now 26 months post-surgery and have no lymphedema symptoms. They took all my pelvic nodes, so I've been worried about it. I exercise vigorously every day and am quite active. I've read that for breast cancer survivors, the risk of developing lymphedema drops off dramatically after 3 years. Does anyone know how long…
Lymph vascular space invasion (LVSI) on pathology report
Anyone have experience including this added metastatic risk factor, please?
3+ years NED and a comment on LVSI
I am 3+ years NED. I had mixed clear cell and serous but was 1A. I don’t come on here too much because for me, I don’t think about the cancer I had very much. But that’s just me. I have visited lately and wanted to share a few things. I would be happy to share about my post op recovery, I had one unusual thing but mostly…
Badges
I see badges on some ladies bio, what does that mean, please?
Food during chemo
First of all I have to say that although the new set up here can be confusing, I have been joining in again because I get e-mails about new comments. Secondly. I know there is a thread somewhere about food during chemo, but I can’t find it. So I’m starting a new one for the new people. 😊 On treatment day I felt great(…
Blessed, but Threatened
Hello Everyone, I am Nettie, I am 62 years young and I was just diagnosed in December 2021 with a grade 2-3 Serous Uterine Cancer. I just had a total hysterectomy on 1/12/2022. I was totally blessed with a final result of coming in at a Stage 1A after surgery. This rare serous cell is usually much further along than 1A at…
(2nd) 3 month checkup today - all good!
I had my (2nd) 3-month exam and labs today and got a great report. Pelvic and rectal exam good! I was admonished for not having a colonoscopy which was advised 3 months ago (I was due last September anyway) so I know I need to scheduled one. My GI doctor retired last year and my husband went to his replacement for his…
Seroma? Just curious.
I haven’t seen anything on here about a seroma happening after surgery. I think I had two right after my total hysterectomy but mine were very unusual! I will try to explain. A few days after my surgery, (robotic, so I had tiny incisions) the lowest incision on one side started leaking clear fluid, then over the next 2…
6 month check up today, all good!
I am right at the 3 year mark, and I am all good still. Yay! I had a nice chat with my onc/gyn/surgeon. She said generally speaking, recurrences happen sooner than later and 3 years is a good milestone for not recurring. That was so good to hear since my cancer was the rare clear cell/serous mixed. I will have one more ct…
chemo overdose?
For months, I have noticed that one of my oncologists did not seem to really be paying attention to the details of my case. Tests were delayed, answers to questions did not seem to fit the situation, statements she made did not match what the radiation oncologist was saying. The last meeting with her was a week earlier…
Looking for Buddy to help me figure out my recurrence of Endometrial Cancer
I was diagnosed with Endometrial Cancer in March 2020 and had a radical hysterectomy. I received six chemotherapies and was in remission until this past October 2021 when I was told that I have a recurrence of the same cancer in my Omentum (pelvic area). My cancer is a high grade serosarcoma. I am looking for information…
Abnormal biopsy and anxiously waiting - update for appt #2
Last update until the results are in. This morning I had my hysteroscopy, polypectomy, colposcopy and biopsies followed by the clean sweep of the entire lining. He took pictures and shared them with us, looks like an alien atmosphere, couldn't really understand it but he said there is a lesion next to the polyp and then…
Fibromyalgia and Chemo?
Just wondering if anyone on here has fibromyalgia and if it was worse after chemo? I have had it for a long time but it was never very bad. I am almost 3 years from my last chemo treatment and it just seems like I have been more achy ever since. Maybe it’s just a long lasting side effect of chemo. Any thoughts?

Uterine/Endometrial Cancer

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