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Let's have a roll call!
We have a lot of new people and although the board has been pretty quiet lately, let's have a roll call. 1. Type of uterine cancer - Stage & Grade 2. Treatment 3. Current status 4. Anything else you'd like to share or what you've learned from this journey, etc. If you've been following the posts but haven't posted…
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uterine serous carsinoma
Willow oaks Posts: 1 Joined: Jan 2020 Jan 22, 2020 - 5:17 am Uterine Serous Carcinoma I’ve just been learned I have Serous Carsinoma. I’m scared on too many level To think about!
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Building up WBCs
My care team has started to order me either Neulasta or Udenyca for my upcoming treatments since my WBCs are already on rhe "low" end. Anyone have any up front info for educating me on these drugs? I already have been briefed that I will most likely get BONE PAIN for days after the injection is given cause the wbcs are…
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Just a little laugh.
Just thought this might give someone a little smile. I had Neulasta after 5 of my 6 chemo infusions. I had that little thing they attach to you. They put mine on my belly, said that was less intrusive than my arm,🤷♀️. Anyway after they stick it on you, it counts down a few seconds and then you get a tiny prick. I have a…
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USPC - how to approach my specialist with questions regarding treatment?
Uterine Serous Papillary Carcinoma - 1A but with high risk mismatch repair gene protein expression proficient (p53 mutant), and specialist advising a watch and wait after surgery. It is scary that so many have the same diagnosis as myself and we seem to be around the same age (just turned 62) and had a few episodes of…
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Feeling like deja vu
Hello all, I've posted a few times in regards to my mom's battle with stage IV endometrial cancer in regards to a thread about Keytruda & Lenvima side effects but figured this might reach others as well. Quick background: in March of 2018 my mom had a total hysterectomy for what was confirmed as stage 1 endometrial cancer.…
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Cancer and a Cooper's Hawk
You'll appreciate this story! I blended my cancer experience with rescuing a fledgling hawk.
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Immunotherapy in Endometrial Cancer: Expanding Horizons Online Presentation
I just watched one of the presentations that was delivered as part of the online Survive and Thrive event that woodstock99 told us about at in her post at: https://csn.cancer.org/node/324033 The session I watched was "Immunotherapy in Endometrial Cancer: Expanding Horizons" at…
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Choose your Dr. and facility wisely.
I just feel like I have to comment on this. Especially since reading about lack of compassion and a Dr who was not a good match. After my diagnosis, I researched treatment facilities and Drs. I didn’t want to go to our nearest large town, Salem, OR. (I try to avoid Salem whenever possible. Lol) I knew I wanted a female Dr.…
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Another Story Just for Funsies :)
Here you go, ladies! Hope it's fun to read.
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First chemo session
On Friday, March 4th I went in for my first ever chemo session of Taxol and Carboplatin. I was a "fast track" on that day because my labs were done the previous week. Anyways after the team got me settled in and explained all the procedures that would be happening, then I put my sig on the forms. I just thanked God I was…
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I Ditched my Dirty Doctor (you ladies heard this story informally last year)
Well, I'm now writing again! How 'bout that! Enjoy.
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A Cheerful Diversion from the 2
I told you I'd been accepted as a writer for "Crow's Feet," a publication for older adults (mostly). Here is my first published article!
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Sex after radiation
For those that have had external beam radiation and brachytherapy how long afterwards did it take before you were able to have sex? I'm concerned about vaginal stenosis. After those radiation treatments is a relatively normal sex life possible? I'm currently going through radiation treatments now and I'm concerned about…
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Normal wound healing??
Yesterday I removed the steri strips since today marks 3 weeks since surgery and last week when I talked to the after-hours nurse he told me if they hadn't started coming off by this week to let them know. Well 2 out of 5 look awesome, can't even hardly tell they did anything there. I have just a small bump under the skin.…
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Beginning Keytruda and Lenvima
Hello! I had 4 Taxol/Carboplatin sessions and had mixed results. After 3rd, the doctor ordered another CT because my CA125 was stabilizing in the low 200's. The results were mixed. Some grew, couple shrunk, and no new tumors. The doctor decided to move to Keytruda and Lenvima. I did have one more session of chemo. I go…
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Undergoing second hysteroscopy w D&C
Hi all, I am curious if anyone has had this happen and whether there is anything more I should know or advocate for myself. I am undergoing my second Hysteroscopy w d/c for suspected polyp removal. I am 53 peri menopausal w recent irregular bleeding (spotting for 2 weeks right after period x2, and one or more bleeding…
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Updated NCCN Guidelines
NCCN has updated both its clinical and patient guidelines. You do need to setup a free account with NCCN in order to access and download the clinical guidelines, although the patient guidelines don't require an account. One major change is that separate pathways were created for the following high-risk endometrial…
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Questions about CA-125 test
I will be starting radiation soon. I was diagnosed with endometrial adenocarcinoma. I asked my doctor yesterday if I had a CA-125 test before or after my hysterectomy. I only asked because I see that test mentioned so frequently in everyone's posts. The doctor told me that test was for ovarian cancer and that I haven't had…
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Just given the diagnosis of MMMT
Uugh. I just received the diagnosis of MMMT / carcinisarcoma. From what I have read, the prognosis isn't very good. I know I need to keep my head up but it's tough. I am fairly young, 49, so I hope that is in my favor. Anybody have succes beating this beast? ~Melissa
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March Birthdays?
Today is March 1st and I am going to blazenly say, It is My Birthday! I am so happy to celebrate this day feeling good! I walked an extended walk this beautiful morning just to prove I could. As always, I think today how fortunate I am and of all the ladies here with first dx and starting various treatments...particulatly…
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Immunotherapy Fail-dostarlimab
I knew this time would come but I didn’t know how fast. For the past month I’ve had some severe pain in my right hip at the top of the bone. I never thought it was “cancer related”. Last Friday a week ago I sent a note to my team detailing how bad I felt and got an acute care appointment at the cancer center. Even with…
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Just Feeling a Bit Emotional Tonight
I want to be positive. I want to help other women. I want to know the good, the bad, the ugly. If you get really ill, I won't leave. I just want to say that I know most of you are the same. I'm not afraid of getting too close to people. If I like you, I like you. Same with love. Because cancer is such a nasty little…
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Did anyone else receive a private message from Silverfox2022?
Hi, Ladies I was just curious…it freaked me out a little…like, where did he come from? and now he seems to have vanished. We are very close here, and are pretty adept at sniffing a “fox in the henhouse.” Pun intended! I don’t think a more apropos pun exists! 😂 So this guy, Silverfox2022…Had some “red flags”…1) he’s a…
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POSSIBLE UTERINE POLYP MY MOTHER DIED AT 49 IN 4 MONTHS FROM ENDOMETRIAL CANCER!
Hi, Below is a post I made on the HysterSisters site. I have not been going through this since 2008 at all, as I said in July 2008 I had a regular Pap test that found some endometrial cells on it and so I went to a new gynecologist who gave me the TruTest biopsy which uses a Tao brush which some say is more accurate and…
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Newly diagnosed with a recurrent Endometrioid Adenocarcinoma
First, thank you all for contributing, listening, and encouraging. I had a total laporoscopic hysterectomy in 2019 as a postmenopausal woman, after lots of bleeding, pain, and misery -eventually several biopsies found the cancer. It was stage 1a and my doctor did no other treatments after the surgery. I had been going for…
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Back home from surgery!
Hi All: Well my surgery went well. Unfortunately they were unable to do it laparoscopically due to how much scar tissue I had so they had to do an incision. It is higher up that my previous ones. They removed scar tissue and also removed a piece of my small bowel which seemed to have been stuck which may have been causing…
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DAK <3 Our Deb 1
Dear Deb 1, I know you're very busy taking care of yourself, and I was afraid that it would be hard for you to find a note from me, and perhaps from all of us. I know others who love you may add a note below. I just want you to know I am so grateful for all the love and encouragement I've gotten from you in this last year.…
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another NED
Sorry I haven't been able to post an update before now. It has just been a crazy busy week. However, I really wanted to share with my fellow "cancer warriors" the good news. I had my baseline CT scan on Monday, and the results were: "No evidence of metastatic disease." Hallelujah! I also had post-chemo labs done that day…
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Cancer Care Package
Hello ladies, My friend has just recently been diagnosed with uterine cancer and is currently in week 3 of 7 1/2 weeks of treatment. She is receiving external radiation 5 times a week for 7 1/2 weeks and internal radiation once a week for 5 weeks. She is also receiving chemo (Cisplatin) but I am not sure how many times a…