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December Birthdays
If you are celebrating your birthday this month, share with us so we can wish you a Happy Birthday! Are you celebrating holidays this month? What are your plans?
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Good-Bye
I am posting on behalf of my mother, Donna Dalton. She left specific instructions to post her passing on this forum. She had went on hospice Oct 17 and passed away peacefully today. We, her family, appreciate this forum more than you can imagine. Mom's first oncologist was just going to monitor her condition after her…
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UPSC - Has anyone done SBRT for a recurrence
Has anyone done Stereotactic Body Radiotherapy (SBRT) to kill a nodule that that grew (from 1 cm to 3 cm) while undergoing chemotherapy that in 3 rounds killed everything else and CA125 is now normal.
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help interpreting results
I am 45 years old and had a vaginal ultrasound for heavy menstrual bleeding with very large clots. I work in a hospital so i am able to view my results but i do not see my Gyno again unti Dec 30th when she will do a endometrial biopsy. Anyone here have similar results and can offer any insight? Thickened heterogeneous…
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Change is hard!
I suppose we will all get used to the new format but I am VERY surprised to see my email address made public.
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New Info for those with Lynch
Two New Breast Cancer Genes Emerge from Study of Lynch Syndrome | Columbia University Irving Medical Center Just another reason to get mammograms every year! I hope everyone had a wonderful Thanksgiving holiday. Love and Hugs, Cindi
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Happy Thanksgiving
Even though this has been one of the worst years ever for a myriad of reasons, I am still grateful for all I have and wish everyone a Happy Thanksgivig and wonderful holiday weekend.
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Vaginal Atrophy
Hello Ladies! I wanted to get some information and education from any of you who have dealt with vaginal atrophy. I am assuming most of us have had a radical hysterectomy due to our diagnosis either prior to menopause, during the process or post menopause. I was 3 years post menopause, and fortunately had very few…
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Metformin, EC, Solid Tumor Panels---oh my!
Recently, a note came up in one of my primary physician's documents that indicated I'd had some sort of genetic test done, as the note said something about an increased risk for ovarian cancer (all a moot point, as they went out along with the kitchen sink!). Anyway, this prompted me to write my doctor and ask where'd…
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Preparing for surgery-seeking support and advice
I am scheduled for a laproscopic hysterectomy on 11/30. Can anyone share how they prepared themselves emotionally for this surgery? Also, how was the recovery? Thank you,
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Brachytherapy - The good, the bad and the ugly
In case anyone is interested, here is how my first round of brachy went with two more to go. My appointment was at 1:00 on Friday. They were a little late getting me in. I met with the nurse and went over all the usual stuff, allergies, drugs I’m on, any issues. An aide took me to a room that resembled a bank vault, double…
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Liver resection for mets
After my PET scan showed my somewhat stable disease has reared its ugly head again its recommended I have a liver resection and possibly ablation. Is there anyone who has had this and willing to share their experience? Any hints on how to prepare and help recovery along? Jan
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LOSE the Great News! Red Banner!
Okay. If I were King of the Forest, I would ditch the Good News! banner up top. Is a site improvement good news? Yes. But I keep trying to open various topics that are dealing with cancer, feelings, physical stuff, and all I can see is GOOD NEWS! at the top in bright red. Also, like and love clicks, but also sad and mad…
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Terrible Hip Pain Associated with Endometrial Cancer
I was Dxed with Endometrial Cancer last month. Extremely heavy bleeding for over 2 yrs. I didn't have health insurance and went to a free clinic. I'd had Pap Tests, blood work, my heavy bleeding was written off as being 47 yrs old and going thru Menopause. My hip and back pain, as well as other health issues, got to a…
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Reduced cost for BRCA testing for Ashkenazi Jews.
My husband has Ashkenazi Jewish heritage so we were looking to get him tested as well as my youngest daughter for the BRCA genes. I found this site: yodeah.org. This is a simple saliva test one can mail back to the testing lab. They subsidize the cost of this test attempting to reach as many in the Ashkenazi Jewish…
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LVSI grading
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Newly Diagnosed-Seeking support-waiting on Cat Scan Results
Hello Everyone, I was recently diagnosed with Endometrial Cancer(Grade I) and had a CAT Scan on Saturday. I am praying for good results. Can anyone share how they coped with waiting? Any positve experiences would be greatly appreciated. I am scheduled for a Laparoscopic Hysterectomy at the end of November. Really scared.…
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I am celebrating 3 years NED!
I just returned from my 6 month checkup with the oncologist. We both were gratified that I am still NED, having finished my last treatment in October, 2018. I was dx with 1a serous (grade 3) with LVSI. I had hysterectomy, BSO, chemo and brachy. This is a big deal for me and it was encouraging to think that I may only have…
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Three years after UPSC/clear cell diagnosis, and NED
I'm not on here much now, but I found hope here when I was diagnosed, so I wanted to post for those on now, and those to come. I was diagnosed in fall of 2018 (but had had symptoms for a year prior) with UPSC mixed with clear cell, with isolated tumor cells in one of the two sentinel nodes taken, so clearly with lymphatic…
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Thank you everyone
Years ago I joined this board with a diagnosis of IVB adenocarcinoma grade 1. This board and especially one that has closed that was called Eyes On the Prize, were a lifeline for me. I know that a great number of people have migrated to Facebook but this site is still extremely valuable. Keep sharing and supporting each…
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I'm 35 y/o. Anyone else around my age?
Hi everyone! I have never posted on a discussion board before, but today I got my pathology back that I have Stage 1 endometrioid carcinoma. I have endometrial atypical hyperplasia and had a D&C with hysteroscopy almost a month ago. I had been having prolonged and SEVERE bleeding for months straight, which I know you all…
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November Birthdays, anyone?
Let's see -- would you be Scorpio? Born in the month of Thanksgiving, a late Autumn baby? I know you're out there. Who has a birthday? 'fess up! Let's celebrate you!
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October Birthdays
Let us help you celebrate! After all, we fight HARD to make it to these dang birthdays, right? If you have a birthday in October, please reply and tell us when it is, and if you plan to celebrate! We ALL honor you, and will be so glad to wish you a HAPPY Birthday! Deb 2
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PET CT results
One thing I admire about Huntsman is they get scan results read and posted quickly! Had my PET CT Friday morning and Saturday the radiation oncologist was calling me as results were posted on My Chart. Once again it was a bit of a mixed bag. Larger tumors continued to grow but by mm, not cm. The subcarinal node is still…
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Hysterectomy after all
Yesterday was my follow up appointment where my gyn onco went over the MRI. It is stage 1a, with less than 50% invasion into the myometrum but she said it's not a good idea to go forward with fertility sparing treatment. I feel like I have NO say or control and a hysterectomy is not what I want. I am 37 years old. She said…
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Hard-to-Treat Uterine Corpus Cancers Increasing
Hard-to-Treat Uterine Corpus Cancers Increasing Uneven impact on racial-ethnic groups * by Diana Swift, Contributing Writer * Among all U.S. women, rates of more aggressive non-endometrioid cancer subtypes have been rising rapidly. And trends show marked racial differences and disparities, with higher rates of uterine…
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Survive & Thrive - free online event
Read about this in a newletter and wanted to share this free online event sponosred by Northwestern University on Saturday 10/16/21. Here is the link to register: https://www.cancer.northwestern.edu/events/public/thrive/index.html On Saturday, October 16, the Lurie Cancer Center will host Survive & Thrive, a virtual…
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Test Results In
I found my biopsy results on MOFFITT patient portal, I have an appointment in two weeks with the doctor to find out what these actually mean. I am cutting and pasting it here hoping that you ladies can tell Me what these results mean and what should be my next steps. Surgical Pathology Final Report 10/7/2021 13:34 EDT…
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My uncle was just dx with melanoma.
Off topic, I know, but we just learned today from our 83 year old treasured uncle that he has been diagnosed with melanoma. I was horrified to learm of the missteps, incompetence and sheer lunacy of what he had already had to endure. Same story that many of us tell. Dermatologist dx melanoma after a biopsy, clown car…
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First 3-Month Check-Up All Good!
Good news on my first official check-up with my gynocologist oncologist this morning! While I had a pelvic exam check-up by the radioation oncologist a month ago about 6 weeks after brachy ended and he said all looked good, that exam caused me so much discomfort that I was terribly anxious about my exam and labs today but…