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Uterine/Endometrial Cancer

Ten Things I Learned...
I published a story today and would love to share it with you. Here's a "friend link." Hope you like it! After you read it in the site, you can "click" the applause button at the bottom of the article up to 50 times, which helps bump me up the food chain as a writer. If you like it, thanks. If not, that's okay too. Love to…
Will a tooth extraction put my chemo on hold my
Had a tooth ache, the dentist said I have an abscess in my tooth with the root canal and recommends an extraction. He said my immune system is being comparmised so I was voluable to the tooth abscess, he will call my oncologist Monday to discusses the plan, has anyone been in this situation, being on antibiotics and…
Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it in lymphodes, one ovary (removed), the Doc said it was also hanging off the colon, rectum, and bladder and its in my Omentum...…
My hysterectomy
I had my hysterectomy Tuesday morning. They got me in prep by 6:00. I was given Tylenol and tramadol during prep and after they got me groggy they did a nerve block in my back and put in a second IV. I very vaguely remember being put in recovery. Someone told me I got to keep my ovaries and it went great. I was so out of…
Avastin
After surgery, chemo. radiation, keutruda, I am now on avastin. Anyone else on this path?
Diagnosed with stage IVB Endometrial cancer
I'm 42 years old. I'm overweight but otherwise have been in good health till now About maybe 10 weeks ago I noted my belly was getting more solid, but I am overweight and was purposly losing weight. Then I had a super heavy period for 2 weeks that left me weak for a few days but I assumed it was blood loss and took iron…
Im 34!!! Please any advice On thickened endometrium 15.90mm
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
Plateaued CA125
In Oct I was diagnosed with recurrent Uterine Cancer. Numerous tumors in my abdominal cavity. My ca125 was 135 at time of diagnosis. 8 weeks later it was 439 (before treatment). Next draw was 244 (2 days before first treatment). After my first treatment it was 214 and then 222 after 2nd. Had my 3rd cycle last week so don't…
Worried- thickened endometrium with bleeding
Hello, Hope everyone is well and staying safe. I'm writing here to see if I can hear any experience or opinions that are similar to my mom's thickened endometrium and postmenopausal bleeding. A little background: She's about 65 y/o. In october 2019 she had some spotting so we did an ultrasound which showed thin endometrium…
Abnormally thick endometrium
Good morning, I am a 44 year old premenapausal woman. I have been having pelvic pain for months. I had elevated CA-125 levels and finally got my pelvic ultrasound and they found a probable corpus luteum cyst, 2 probable uterine fibroids and Abnormally thickened and unusually heterogeneous endometrium with internal…
Looking for mentor
Uterine stage IV leiomyosarcoma. Uterus, lungs, brain lesions. Six rounds five days in patient chemo. Soon 4-5 radiation therapy sessions on brain lesions January 2022. Female, 37 at diagnosis. Looking for similar YA cancer survivor with my stage and metastasis and how they survived. Also what did they do in the mean time…
4 years since Stage 4B diagnosis, 3.5 years NED
Hello, everyone - I don't stop in often anymore but wanted to share good news I received recently. I was diagnosed in January 2018, initially as Stage II, then 3 months later after a scan, Stage IVB with nodules having spread to my lungs via LVSI. Life looked like it would be quite abbreviated. Yet here I am, 59 now, and…
Keeping our mental game strong during treatment
One challenge I faced during chemo was my head game, so I thought I'd start a thread on this to gather experience and wisdom from all of us who have been through it. Maybe future visitors will benefit. By "head game," I mean the mental "game" that helps us navigate very difficult circumstances. I don't mean toxic…
Seeing a PA at follow-up instead of ONC?
Hi, Ladies I have a 9mth post-treatment follow-up appointment tmo at ONC’s office. When I called today, I was told I would be seeing the PA. I said, “I won’t be seeing the doctor???” She said, “No. For 3-6-9-….blah…blah….you see the PA. If she thinks there’s some reason for concern, she’ll tell the doctor.” This is new.…
Hernia after hysterectomy
Hello, I just had my second 6 month Chest/Pelvis CT and celebrating No Enlarged or Inflamed Lymph Nodes and No Mass! However, I now have a 2 cm umbilical hernia I did not have last CT. I also have a thickened urinary bladder wall sine the last CT. Has anyone else developed these after surgery or radiation?
When did radiation start after hysterectomy?
I had a hysterectomy and I am next scheduled for radiation treatments. For those that had radiation only after hysterectomy how long after your hysterectomy did you start your radiation treatment? My radiation treatments will start 11 weeks after my surgery. I am concerned because I read an article that said if radiation…
Special evaluations can help seniors cope with cancer care
Interesting article about cancer care at older ages: https://abcnews.go.com/Health/wireStory/special-evaluations-seniors-cope-cancer-care-61867560
Inappropriate Message on CSN
Someone named Barnies85 has sent me fundraising information. Anyone else get that one?
Another Update since I went to CTCA Atlanta
On November 10 and 11th I had my first appointment at the Cancer Treatment Center of America in Atlanta. This experience has been unlike any other hospital I have been to. We drove but they paid for our hotel stay and paid us mileage. I had a ton of blood pulled and they checked just about everything I think lol. The…
I’m thinking of quitting pelvic radiation
Has anyone here had no negative life altering after effects of pelvic radiation where there is no tumor to direct the radiation to? I’ve only had 5 treatments of external pelvic radiation - IMRT - (7 days after starting treatment) and I’m thinking of quitting treatment. I started constant diarrhea on day 5. After reading…
Willing to share my surgery experience
I had a couple of interesting things happen with my surgery 3 years ago. I don’t want to scare anyone but if you are curious then ask away.
3 years NED
So I see others on here getting congratulations and happy comments. Kind of makes me sad that all I get is crickets. 🤷‍♀️Only one person has responded, Thank you, cmb.
New Site Format Question
I am having a hard time with the way the site was redesigned. Is it just me or is is there no longer a way to jump to new comments on a post? Also do posts and replies no longer show the date and time? It seems like when you go to read new comments to a post that when you click on the post it takes you to the original post…
How long should I worry about developing lymphedema?
I'm now 26 months post-surgery and have no lymphedema symptoms. They took all my pelvic nodes, so I've been worried about it. I exercise vigorously every day and am quite active. I've read that for breast cancer survivors, the risk of developing lymphedema drops off dramatically after 3 years. Does anyone know how long…
Lymph vascular space invasion (LVSI) on pathology report
Anyone have experience including this added metastatic risk factor, please?
3+ years NED and a comment on LVSI
I am 3+ years NED. I had mixed clear cell and serous but was 1A. I don’t come on here too much because for me, I don’t think about the cancer I had very much. But that’s just me. I have visited lately and wanted to share a few things. I would be happy to share about my post op recovery, I had one unusual thing but mostly…
Badges
I see badges on some ladies bio, what does that mean, please?
Food during chemo
First of all I have to say that although the new set up here can be confusing, I have been joining in again because I get e-mails about new comments. Secondly. I know there is a thread somewhere about food during chemo, but I can’t find it. So I’m starting a new one for the new people. 😊 On treatment day I felt great(…
Blessed, but Threatened
Hello Everyone, I am Nettie, I am 62 years young and I was just diagnosed in December 2021 with a grade 2-3 Serous Uterine Cancer. I just had a total hysterectomy on 1/12/2022. I was totally blessed with a final result of coming in at a Stage 1A after surgery. This rare serous cell is usually much further along than 1A at…
(2nd) 3 month checkup today - all good!
I had my (2nd) 3-month exam and labs today and got a great report. Pelvic and rectal exam good! I was admonished for not having a colonoscopy which was advised 3 months ago (I was due last September anyway) so I know I need to scheduled one. My GI doctor retired last year and my husband went to his replacement for his…

Uterine/Endometrial Cancer

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