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CT Scan Next Week / Check up was today
Today my radiation oncologist examined me and said the tissue looks really good, with no evidence of disease. She still wants me to do the CT scan next week to make sure all is ok, as I've had ongoing pain for so long. Probably adhesions. Anyway, I should be really happy, but I'm so exhausted. I'm guessing most of you feel…
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Lymphavascular Invasion (LVSI)
Hello Ladies, Happy Thursday! I have a question and wondering if any of you got dx with lymphvascular invasion ? I had my hysterectomy and BSO on Dec 8 2017. When I received my pathology results , & staging results , came back endometrial adenocarcinoma Stage 1 with LVSI. My gyno/oncologist told me that it was present and…
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Advice for biopsy and ablation
Hello, My name is Kate. I do not have a cancer diagnosis and it is with much love and prayers of healing for all that do or have had that I visit here tonight. I’m hoping that someone may be able to offer some advice or perhaps share an experience that is similar to mine, as I want to make sure I am asking the right…
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Doxil & Taste Changes
Hi ladies, Hope everyone is enjoying their holiday season! I'm reaching out as my mom started Doxil after finding out the Keytruda/Lenvima combo wasn't working. She had her first infusion December 8 and didn't really have any side effects at first. It's hard to tell though as she is absolutely ballooned up with ascites and…
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Recently had surgery
I had a radical hysterectomy on November 24 with many complications. After surgery I was bleeding internally and had to have another operation to stop the bleeding. I also ended up with nerve damage to my left food (hopefully not permanent) but is still quite painful, plus my bladder is now not working and I have to self…
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Questions for first visit to Gyn Oncologist
I recently had a biopsy, trans vag, and full pelvic ultrasound, and then hysteroscopy with biopsy and D & C. This all started because I started bleeding at my one year mark of menopause. I am 55 yrs old. I was told by many friends, family, and acquaintances that this was normal, but since I have an awesome menopause…
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Happy Holiday
Wishing everyone and their loved ones a wonderful holiday season - whichever one you celebrate - and all the best of health, happiness, peace and joy in 2022! A collective hug and merry everything! “The best and most beautiful things in the world cannot be seen or even touched. They must be felt with the heart. Wishing you…
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28 Female Thickened Endometrium
I have a few questions regarding thickened endometrium. I am 28 years old, mother of 2, obese, had juvenile diabetes. Following some issues, i had a transV ultrasound which noted.... a 21.1 mm Endometrium and atleast two 2.1mm cysts in the endometrium. The results are clear in stating that my ovaries look great. What are…
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Merry 🎄 and update
Never planned to post on Christmas Day, but realize it is a good time to be thankful for the many on this forum. I have made it to the 3 year mark for serous cell uterine and 2 year mark, for thyroid cancer. The checkup range is now 6 months, instead of 3 months and I find that anxiety is less. My doctors also have said…
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December Birthdays
If you are celebrating your birthday this month, share with us so we can wish you a Happy Birthday! Are you celebrating holidays this month? What are your plans?
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Good-Bye
I am posting on behalf of my mother, Donna Dalton. She left specific instructions to post her passing on this forum. She had went on hospice Oct 17 and passed away peacefully today. We, her family, appreciate this forum more than you can imagine. Mom's first oncologist was just going to monitor her condition after her…
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UPSC - Has anyone done SBRT for a recurrence
Has anyone done Stereotactic Body Radiotherapy (SBRT) to kill a nodule that that grew (from 1 cm to 3 cm) while undergoing chemotherapy that in 3 rounds killed everything else and CA125 is now normal.
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help interpreting results
I am 45 years old and had a vaginal ultrasound for heavy menstrual bleeding with very large clots. I work in a hospital so i am able to view my results but i do not see my Gyno again unti Dec 30th when she will do a endometrial biopsy. Anyone here have similar results and can offer any insight? Thickened heterogeneous…
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Change is hard!
I suppose we will all get used to the new format but I am VERY surprised to see my email address made public.
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New Info for those with Lynch
Two New Breast Cancer Genes Emerge from Study of Lynch Syndrome | Columbia University Irving Medical Center Just another reason to get mammograms every year! I hope everyone had a wonderful Thanksgiving holiday. Love and Hugs, Cindi
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Happy Thanksgiving
Even though this has been one of the worst years ever for a myriad of reasons, I am still grateful for all I have and wish everyone a Happy Thanksgivig and wonderful holiday weekend.
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Vaginal Atrophy
Hello Ladies! I wanted to get some information and education from any of you who have dealt with vaginal atrophy. I am assuming most of us have had a radical hysterectomy due to our diagnosis either prior to menopause, during the process or post menopause. I was 3 years post menopause, and fortunately had very few…
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Metformin, EC, Solid Tumor Panels---oh my!
Recently, a note came up in one of my primary physician's documents that indicated I'd had some sort of genetic test done, as the note said something about an increased risk for ovarian cancer (all a moot point, as they went out along with the kitchen sink!). Anyway, this prompted me to write my doctor and ask where'd…
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Preparing for surgery-seeking support and advice
I am scheduled for a laproscopic hysterectomy on 11/30. Can anyone share how they prepared themselves emotionally for this surgery? Also, how was the recovery? Thank you,
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Brachytherapy - The good, the bad and the ugly
In case anyone is interested, here is how my first round of brachy went with two more to go. My appointment was at 1:00 on Friday. They were a little late getting me in. I met with the nurse and went over all the usual stuff, allergies, drugs I’m on, any issues. An aide took me to a room that resembled a bank vault, double…
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Liver resection for mets
After my PET scan showed my somewhat stable disease has reared its ugly head again its recommended I have a liver resection and possibly ablation. Is there anyone who has had this and willing to share their experience? Any hints on how to prepare and help recovery along? Jan
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LOSE the Great News! Red Banner!
Okay. If I were King of the Forest, I would ditch the Good News! banner up top. Is a site improvement good news? Yes. But I keep trying to open various topics that are dealing with cancer, feelings, physical stuff, and all I can see is GOOD NEWS! at the top in bright red. Also, like and love clicks, but also sad and mad…
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Terrible Hip Pain Associated with Endometrial Cancer
I was Dxed with Endometrial Cancer last month. Extremely heavy bleeding for over 2 yrs. I didn't have health insurance and went to a free clinic. I'd had Pap Tests, blood work, my heavy bleeding was written off as being 47 yrs old and going thru Menopause. My hip and back pain, as well as other health issues, got to a…
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Reduced cost for BRCA testing for Ashkenazi Jews.
My husband has Ashkenazi Jewish heritage so we were looking to get him tested as well as my youngest daughter for the BRCA genes. I found this site: yodeah.org. This is a simple saliva test one can mail back to the testing lab. They subsidize the cost of this test attempting to reach as many in the Ashkenazi Jewish…
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LVSI grading
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Newly Diagnosed-Seeking support-waiting on Cat Scan Results
Hello Everyone, I was recently diagnosed with Endometrial Cancer(Grade I) and had a CAT Scan on Saturday. I am praying for good results. Can anyone share how they coped with waiting? Any positve experiences would be greatly appreciated. I am scheduled for a Laparoscopic Hysterectomy at the end of November. Really scared.…
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I am celebrating 3 years NED!
I just returned from my 6 month checkup with the oncologist. We both were gratified that I am still NED, having finished my last treatment in October, 2018. I was dx with 1a serous (grade 3) with LVSI. I had hysterectomy, BSO, chemo and brachy. This is a big deal for me and it was encouraging to think that I may only have…
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Three years after UPSC/clear cell diagnosis, and NED
I'm not on here much now, but I found hope here when I was diagnosed, so I wanted to post for those on now, and those to come. I was diagnosed in fall of 2018 (but had had symptoms for a year prior) with UPSC mixed with clear cell, with isolated tumor cells in one of the two sentinel nodes taken, so clearly with lymphatic…
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Thank you everyone
Years ago I joined this board with a diagnosis of IVB adenocarcinoma grade 1. This board and especially one that has closed that was called Eyes On the Prize, were a lifeline for me. I know that a great number of people have migrated to Facebook but this site is still extremely valuable. Keep sharing and supporting each…
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I'm 35 y/o. Anyone else around my age?
Hi everyone! I have never posted on a discussion board before, but today I got my pathology back that I have Stage 1 endometrioid carcinoma. I have endometrial atypical hyperplasia and had a D&C with hysteroscopy almost a month ago. I had been having prolonged and SEVERE bleeding for months straight, which I know you all…