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New to Board - Anyone recently diagnosed with Endometrioid Adenocarcinoma FIGO Grade1?
Greetings, I was diagnosed Dec 28 with endo cancer. Trying to get my arms and mind around this. I am 58 yrs old and had post-menopausal spotting which led to an ultrasound and then a biopsy. Full hysterectomy scheduled for Feb 5, 2024, and staging will be done with tissue sample as well as identification if cancer has…
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Port - take it out or not?
My last chemo was 6 weeks ago, I want this port out. My Dr said she recommends leaving it for a while but I could have it out if I want. It bothers me, I’m always bumping it and sometimes it itches. Should I be cautious and live with it? I choose to think I am done with all this and the port is not needed anymore, so I…
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UPSC: 11 years NED
Hi all - it’s been awhile since I’ve posted so wanted to pop in! 2 months ago I celebrated my 12-year cancerversary. I was surprised with a UPSC diagnosis 10/20/11 after a robotic hysterectomy (had a fibroid in an awkward spot near my cervix - dr tried a D&C but I had a septum in my uterus [im just full of surprises] hence…
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Shifting my attention slightly
Hello ladies, Does anyone know about changes in microsatellite instability from "stable" to "high?" And what about changes from mismatch repair deficiency "absent" to "present?" I thought the designation was always one way or another and was imprinted in all your cells. I think now it is dependent on the tumor tissue. I am…
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Endometrial cancer in lung
2017 diagnosed with endometrial carcinoma. Had hysterectomy. No other treatment. 2023 diagnosed with endometrial tumor in vigina. 25 radiation therapy and 3 brachytherapy. Tumor gone, but a nodule on lung 8mm. Biopsy showed endometrial cancer. I am now on Everolimus and letrozel for life or until I can’t. Tumor seems to be…
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Endometrial metastic to both lungs
I have just been diagnosed with endometrial metastic to both lungs. It is inoperable and I have just started chemo treatments. I was never given a chest xray since my first cancer in 2012. Can anyone explain this to me? I was the one who asked for a chest xray even though I had no symptoms. The xray showed spots so CT scan…
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Overwhelmed and Impatient
Hello ladies! I am 39, pre-menopausal, and was diagnosed via biopsy with Endometrioid Adenocarcinoma a few days before Christmas. I had the good fortune to learn about it in a short phone call from my ob/gyn because they were closing up shop for Christmas where pretty much nothing was explained to me. Dr. Google and these…
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Any tips for external pelvic radiation ?
Im looking for advice from those who have experience with Pelvic radiation. I found out I had Endometrial cancer Oct. 2021 and had full hysterectomy the day after Thanksgiving 2021. They took my ovaries and Fallopian tubes also. When reviewing my pathology, They found a tumor in my Fallopian tube which changed me from…
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Uterine lining thickness
Hi, I am a 63 y.o. and post menopausal. I say post because I haven't had a period for more than 10 years. For the last several months the doctors have been trying to figure out why I am severely anemic. I have a history of Ulcerative Colitis, but no flare-up recently. The did a MRI of the small bowel and incidentally found…
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Waiting for D&C post menopausal bleeding & thickened lining- wanting to hear similar stories
Google led me here. I wasn't going to join or even post. But here I am… Im 54 post menopausal, I did HRT for about 4 years, patches & then 3 rounds of pellets. Estradiol & Progesterone. I noticed spotting a year ago don't know when it started. I had some symptoms of a UTI but tested negative several times I had pain &…
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5 year anniversary
Hi all, I think I will add to the 5 year celebration. I just marked my 5 year anniversary and am declared cancer free. 1a serous. So relieved and happy to have achieved this milestone. I want to thank all of the ladies who helped me over the years, supported me, gave such good advice. I honestly don't know what I would…
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Pelvic nodule and endometrial cancer
Anybody have endometrial cancer , no myometrial invasion but MRI found a pelvic nodule ? Is it concerning for Mets? No hysterectomy yet, newly diagnose endometrial Ca.
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Has anyone heard from CMB?
I haven’t seen any posts from her lately Has anyone heard from her I hope she’s ok
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Anyone have any experience on Femara (letrozole)?
Hi Ladies The ugly beast has raised it's head again and my latest CT/PET scan indicates that I have got my third recurrence. It's still confined to the pelvis (no organ or lymph node involvement by the looks of it), but my team reckon it is too close to sidewall to operate and get clear margins (although my scans are going…
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Choose your Dr.
Since I have hit the 5 year milestone, I feel compelled to add a little advice to ones who are just starting this journey. I am old but not always wise! Lol. I would say to first get a list of Oncology Ob/Gyn Drs that your insurance accepts. Then decide if you want a male or female Dr. (In my case I wanted a female Dr)…
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Thanking All of You and Wishing You a Happy Holiday Season
Hello, friends-- Today I had a check up in at OHSU--Oregon health sciences university. I see Dr. Munro there, a great oncologist for me. The difference between my first cancer clinic--Compass Oncology--and OHSU is like night and day. Night being a dark, scary place; day being a bright, cheerful place where my questions are…
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5 years no recurrence uterine serous with isolated cells in sentinel node
Just had my 5 year anniversary, no evidence of recurrence. Had a total hysterectomy for uterine serous/clear cell, staged at 1a with tumor in fundus, but had isolated tumor cells in one of two sentinel nodes sampled. Had 6 rounds of chemo (cisplatin, taxol, herceptin) followed by IMRT pelvic radiation (not just vaginal…
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Scared Mom
My daughter got a diagnosis Monday of Cancer after a DCS. On Tuesday the results came back as Carcinosarcoma. At first, on Monday, I just kicked into high gear of we are going to kick this, no problem, but after reading the survival rate, I cannot keep my mind from going to a very dark place. I don't have a great support…
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5 Year Anniversary
Five years cancer free today. In the early days I couldn’t imagine what survivorship would look like in 5 years. And here I am. Thank you to so many women here who offered encouragement, love and hope to me years ago when I was terrified and uncertain.
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Getting ready for my first chemo session
Pardon my ignorance. i’m 34 years old. I was diagnosed with endometrial cancer stage 2 last year. Had a full hysterectomy and brachytherapy. About a month ago I found out the cancer is back and has spread. I will be starting chemo as well as immunotherapy. Honestly, I’m terrified. I have one sister who lives in Cali. I’m…
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Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor…
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Uterine Serous Carcinoma
Elected not to have Chemo. is that the right decision? scared......Help... Atypical cells present, suspicious for malignancy Suspicious for carcinoma A. PERITONEAL NODULE, EXCISION: - Metastatic high grade serous carcinoma B. LEFT OVARY, BIOPSY: - Metastatic high grade serous carcinoma C. UTERUS AND CERVIX, BILATERAL TUBES…
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do i need to prepare mysef for bad news?
hi, i'm new to this site and i hope someone can shed some light on my scan results and symptoms. I'm 37, have not been able to have children and got a long gyny history relating to that. I have been bleeding and/or spotting between my periods for 8 months non stop now and also had midcycle spotting more than a year ago. My…
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Please Advise, I'm Overwhelmed
Hello, friends. I am really hoping some of you might be able to chime in on my situation as I am overwhelmed and don't know what to do. I went from never having a period (years) to having one 50% of the time, and they were painful, long and heavy. Had an ultrasound which revealed a thick lining and some polyps. Had a…
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Biopsy Scheduled
So I’m just on edge.. I had an ultrasound done a month ago and the doctors were concerned about a cyst. Had a follow up appointment this week to have another ultrasound and the cyst was gone, but the doctor is still concerned My endometrium measured at over 13mm in October when I was a week from getting my period and at…
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Low Grade Endometrial Stromal Sarcoma
I know this is a very rare type and as such I don’t see much in here about it. Newly diagnosed and haven’t even seen my doctor post hysterectomy to discuss treatments. I would like to hear from others.
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Thickness of Uterine Lining
New and Nervous. I'm 51 years old and admittedly overweight and pre-diabetic. I've been on seasonique (combination hormone birth control) for almost 10 years. In mid July I had spotting for a couple of days that stopped. I called my Gynecologist and she said it could happen. In August I had a normal pap. (I understand it…
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Hair Loss with Carboplatin Alone
Has anyone had experience with hair loss/hair thinning on carboplatin alone? It's very hard to find a consistent answer to this question. I've looked at all the most reputable sites, and the answer varies when it comes to how likely that would be. So. I'm hoping for information from women who have taken/are taking…
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New from Canada
I have just been diagnosed with Endometrial cancer after a biopsy. My first meeting with my oncologist surgeon is scheduled for the 16th of November at the Princess Margaret Cancer Hospital in Toronto. What do I expect in this first meeting?
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Endometrial cancer and pregnancy
hi. Newly diagnose . I wanted to see how everyone's experience was with being young and still wanting to have children. Please tell me your experience!