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Uterine Serous Carcinoma
Elected not to have Chemo. is that the right decision? scared......Help... Atypical cells present, suspicious for malignancy Suspicious for carcinoma A. PERITONEAL NODULE, EXCISION: - Metastatic high grade serous carcinoma B. LEFT OVARY, BIOPSY: - Metastatic high grade serous carcinoma C. UTERUS AND CERVIX, BILATERAL TUBES…
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do i need to prepare mysef for bad news?
hi, i'm new to this site and i hope someone can shed some light on my scan results and symptoms. I'm 37, have not been able to have children and got a long gyny history relating to that. I have been bleeding and/or spotting between my periods for 8 months non stop now and also had midcycle spotting more than a year ago. My…
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Please Advise, I'm Overwhelmed
Hello, friends. I am really hoping some of you might be able to chime in on my situation as I am overwhelmed and don't know what to do. I went from never having a period (years) to having one 50% of the time, and they were painful, long and heavy. Had an ultrasound which revealed a thick lining and some polyps. Had a…
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Biopsy Scheduled
So I’m just on edge.. I had an ultrasound done a month ago and the doctors were concerned about a cyst. Had a follow up appointment this week to have another ultrasound and the cyst was gone, but the doctor is still concerned My endometrium measured at over 13mm in October when I was a week from getting my period and at…
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Low Grade Endometrial Stromal Sarcoma
I know this is a very rare type and as such I don’t see much in here about it. Newly diagnosed and haven’t even seen my doctor post hysterectomy to discuss treatments. I would like to hear from others.
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Thickness of Uterine Lining
New and Nervous. I'm 51 years old and admittedly overweight and pre-diabetic. I've been on seasonique (combination hormone birth control) for almost 10 years. In mid July I had spotting for a couple of days that stopped. I called my Gynecologist and she said it could happen. In August I had a normal pap. (I understand it…
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Hair Loss with Carboplatin Alone
Has anyone had experience with hair loss/hair thinning on carboplatin alone? It's very hard to find a consistent answer to this question. I've looked at all the most reputable sites, and the answer varies when it comes to how likely that would be. So. I'm hoping for information from women who have taken/are taking…
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New from Canada
I have just been diagnosed with Endometrial cancer after a biopsy. My first meeting with my oncologist surgeon is scheduled for the 16th of November at the Princess Margaret Cancer Hospital in Toronto. What do I expect in this first meeting?
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Endometrial cancer and pregnancy
hi. Newly diagnose . I wanted to see how everyone's experience was with being young and still wanting to have children. Please tell me your experience!
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Dosage of megace for endometrial cancer stage 1 what are you taking? Please reply!!!
Dosage of megace for endometrial cancer stage 1 what are you taking? Dosage of megace after diagnosis of endo carcinoma stage 1 Hey all, I'm new to this forum have ben reading a lot but this is my first post.I had my first IUI 02/28/12 I found I was pregnant and then miscarried.they found a polyp on hysterosonogram.I had a…
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Can yellow vaginal discharge be a sign of recurrence?
I know bleeding and spotting can, I am hoping this is just some kind of low estrogen problem/over doing after a move, but my hysterectomy was Jan 2022 and I have had the cuff for a long time. I am going to be getting checked soon however I am just looking for some assurance this doesn't sound like any kind of recurrence.
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35 yrs old just had a baby less then 2 years ago
Hi there, I am 35. I had a baby girl about 20 months ago and also have a 4 year old son. Soon after having my daughter and getting my period back I started having pretty heavy periods. I do have a history of heavy periods but these are pretty bad. I did think it was normal because I had a VBAC and had no experience of…
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Uterine serous carcinoma
I have just be diagnosed with Uterine serous carcinoma. Having a CT in 2 days. The surgeon, after examining me said that she believes it has spread. I'm so scared! I've had a lot of issues in the last 6 months, 2 tumors on my parathyroid and a kidney stone that had to be surgically removed. I'm afraid my body is not strong…
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Mom w/ Stage 3C Uterine Serous Carcinoma recently finished treatment.
My incredible mother was diagnosed with Stage 3C Uterine Serous Carcinoma back in September. She underwent a radical hysterectomy, had 3 brachytherapy treatments and 6 rounds of chemotherapy. She was treated at Memorial Sloan-Kettering, which was the right choice for us. I made a video for my mom's birthday...she loved it.…
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Protocel 23
HAs anyone tried or taken Protocel 23? Any success? Its quite expensive ($108 for a bottle, month supply, liquid you take up to 6 times a day with a lot of water) It is supposed to flush out cancer cells and reduce the size of tumors alos, quick update, I have decided to do the recommend radiation and chemo treatmants by…
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Have very thick uterus
Hi, I have not been diagnosed with anything cancerous. But I have 3 children all were born by c-section. My last child was born in Oct. I never stopped bleeding after I had her. Sometimes it was heavy sometimes I spotted and other times just a wierd discharge. I went to the doctor and they done a transvaginal sonogram.…
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Endometrial biopsy
Hello. I am new here. I am scheduled for endometrial biopsy tomorrow that I have put off for far too long. My mom passed from uterine cancer. I had some bleeding but I was barely perimenopausal. Ultrasound showed the lining was enlarged. My question is, I asked for a paracervical block. I am wondering if anyone had a block…
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The wheels are in motion
Saw the GYN onc today, I need labs next week because I am diabetic and I'm going to have a CT chest/abdomen/pelvis with contrast on Aug 8, then I need to get an appointment w/my PCP to get clearance for surgery and having a robotic hysterectomy (everything) on Aug 29. My postop for the D&C is this coming Tuesday, still…
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Immunotherapy
I have vaginal cancer - serous adenocarcinoma. I've been through carboplatin and taxol, and external & internal radiation. I'm supposed to start immunotherapy this next week. Keytruda and Lenvima. Was curious as to anyone's experience with these drugs. How were your side effects? How long before side effects appeared.…
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high-grade serous carcinoma - likely uterus - experiences, thoughts, hope?
Hi, first time here. Got results from biopsy of a mammoth lymph node (inguinal) today--I have this type of carcinoma. CT scan received Sunday said I had what looked like a neoplasm that had invaded my uterus. Waiting to get a uterine biopsy, but I am hoping they cut straight to a radical hysterectomy, as the scan…
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The more I know the less I feel like I know.
Hi all, I had FIGO grade 1 adenocarcinoma with hysterectomy in 2019. I had bad medical care and my ovaries were left in place. After diagnosis I was referred to Siteman, had a PET scan that showed nothing and was monitored the next three years. In spite of multiple appointments due to cramping/bloating the only test…
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Help me understand my path report
Histologic Type: Endometrioid carcinoma, NOS Histologic Grade: FIGO grade 2 Two-Tier Grading System: Low grade (encompassing FIGO 1 and 2) Myometrial Invasion: Not identified Uterine Serosa Involvement: Present Lower Uterine Segment Involvement: Not identified Cervical Stromal Involvement: Not identified Other Tissue /…
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MMMT survivors
Hi to June, Jan and all the other MMMT ladies Just wanted to check in with you. I had a check-up today with my surgeon and all seems to be fine. It was just a physical exam - they don't believe in routine scans at UCLH - but I feel reassured. Just fyi I was stage Ia and had TAH/BSO in November 2010 with removal of several…
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Looking for advice/ similar experience
I’m 41. I had my tubes tied 13 years ago. I’ve struggled with horrific periods. Blood gushing when I stand up, terrible cramps, anemic, long heavy periods. Spot in between periods. I went to the GYN who initially thought I had adenomyosis. He said my uterus was globally slightly enlarged “8-10 weeks”He suggested a…
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Just Released A New Video "Recurrences" On My UPSC YouTube Channel
Just released episode 8 to my YouTube channel. I decided to cover "Why Does Cancer Come Back". If interested, you can watch this episode by clicking on the link below. Thank you all for your suggestions for this episode! ❤️ https://www.youtube.com/watch?v=Ca8VXeOKNCI&t=8s
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MMMT Stage IV
Hello all - My Mom was very recently diagnosed with MMMT - malignant mixed Müllerian tumor. At first they thought it was localized to her uterus, and were confident it was Stage I or II, but her CT scan shows a mass in her lung as well, making it Stage IV. She's having a total hysterectomy next week, and chmo following. We…
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Newly Diagnosed
Greetings to all you prayer warriors! We got some not so good news on Friday, but we’re trying to stay positive. After an ultrasound and D&C, I received preliminary results stating I have Endometrioid endometrial carcinoma, FIGO grade 1. My GYN told me that I will need to have a hysterectomy to start with. So, we have…
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Topics for Next YouTube Episode
Hi everyone, I will be working on episode 8 of my UPSC YouTube channel and wanted to get your input as to what you would be interested in hearing about. I was considering 1)What causes cancer to recur 2)Medical marijuana 3)Keytruda....I asked this question in the Facebook group and got a few ideas and am leaning toward…
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Highlights from SGO Meeting for Endometrial Cancer
Hello everyone! If you are interested, I am so hoping you can click on the link below and watch the eight, short videos from recent Society of Gynecologic Oncology meeting that just took place. They touch on the RUBY and GY018 studies that show some interesting promise on treating our cancer.…
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Fallopian tube recurrence in lung?
Hi, Ladies. I haven’t created a new post here in a very long time. And I’m just sick (and furious) that I have a reason to do so now. In late 2020 diagnosed Stage II FTC with secondary peritoneal. Remission 2021. Last fall my CA125 rose very slightly and so GYN/ONC was insistent I have CT. I was so devastated and so ill…