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FIGO staging updates for endometrial cancer
Just came across this news. The FIGO stages now have a bit more detail in the breakdown. I hope this will help to improve treatment for anyone diagnosed in the future. Inclusion of the various histological types, tumour patterns, and molecular classification to better reflect the improved understanding of the complex…
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Terrified and can’t decide what to do. Precancerous, doctor tells I need full removal of everything
Hi everyone! my biopsy came back with borderline adenocarcinoma, and suddenly I was offered atomic bomb version - full removal of uterus, ovaries, cervix - all of it. Sounds a bit too excessive to me, and I am not sure what to do? They say it has 25% chance of developing cancer. I am 52, thin, fit, eating healthy and never…
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just diagnosed with endometroid adenocarcinoma stage 1
I was just diagnosed with stage 1 utereine cancer and have an appointment with a gyn/onc next week. I am so nervous about all this. .I am on HRT and they told me to just stop it.. I dont want to stop it cold turkey and I am hoping I can take it after surgery.. I wont be able to function without it. . has anyone else had…
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I feel alone…
Hi, so I wanted to tell my story and maybe just get some advice. I was diagnosed with Endometrial Cancer at 22 years old. My doctor says I’m one in a million for this diagnosis.. I feel guilty for being diagnosed on my moms birthday, I feel like now she just connects her birthday with the day her little girls whole world…
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Looking for information on/experiences with conservative treatment (Mirena/levonorgestrel)
Recently diagnosed with endometrioid adenocarcinoma FIGO grade 1 and had a Mirena IUD placed due to being at high risk for complications from hysterectomy. Does anyone have experience with this? Approximately how long did it take for relief of symptoms (bleeding, discharge) with this treatment ? What side effects were…
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4.5 yrs out, 2 brief bouts peritoneal irritation, and Ca125 up
Hello to all. Since I completed surgery, chemo, and radiation for uterine serous/clear cell, 1a but isolated tumor cells found out in one sentinel node (surgeon only took one sentinel node on each side), I have only come on annually, to report that I've had no recurrence of the uterine serous. (I do also have an indolent B…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…
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New To All Of This - Overwhelmed
This is my first time on this site. I was recently diagnosed with endometrial cancer. I am scheduled for a hysterectomy and lymph node removal in six days. It's been a bit of a waiting game until that is done and I know exactly where I am as far as stages and how far the cancer has gone. I am feeling so overwhelmed with…
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Letrozole side effects? stage 1A
Hi - I'm new to the board and this is my first post. Was diagnosed with stage 1A, grade 2 endometrial cancer earlier this year. Had full laparoscopic hysterectomy early August (overall healing ok) - no spread, lymph nodes clean - but positive pelvic wash. Surgeon and hematologist have put out the option of taking letrozole…
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Roll call for Endometrial Adenocarcinoma any stage
No many active posts now, so I said let start this topic just for information, anyway the difference between Endometrial adenocarcinoma and UPSC is minimal. Thanks I'm Endometrial Adenocarcinoma Stage 4. Diagnosed in April 2015.
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Newly diagnosed
Would anyone care to comment on what kind of pain they experienced while waiting for surgery? A small amount of spotting and what felt like menstrual cramps at age 67 led me to see a gynecologist that did an US and a biopsy. The biopsy showed group 1 cancer cells. I have met with a gynecological oncologist and I am…
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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Recurrence of uterus cancer in vaginal cuff
I have asked questions before and everyone was so helpful. i was recently diagnosed with recurrence of my uterus cancer in the vaginal cuff. The standard care seems to be external radiation and brachytherapy? I went to Stanford and the Mayo Clinic and was basically given the same options? Has anyone out there had…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Confused with Mother's treatment plan
Would like some help in managing my mother's treatment plan: My mother is 86 and has been diagnosed with Metastatic stage 4 endometrial cancer (uterus being the primary source). She had about 7 cycles of chemotherapy consisting of Carboplatin and Taxol from Aug 2022 to Feb 2023. The PET scan in Jan 2023 showed her 80% free…
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Article on Brachytherapy
I hope this link works an interesting article. https://www.medscape.com/viewarticle/991987?ecd=WNL_mdpls_230530_mscpedit_nurs_etid5478199&uac=389007SR&spon=24&impID=5478199
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Checking In! Year 2 Surgery Anniversary & NED!
Sorry I have not been around for months and trying to get caught up on many posts this morning. Always difficult to see new members joining the group but gratifying to read my positive posts and more good and long NED news from members. I am coming up on 2-year surgery anniversary on June 10th and just a good 3-month…
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Newbie question
Just got biopsy results... carcino sarcoma... I am a BC survivor, and 10 years on Tamoxifen... looks like this cancer is extremely complex and aggressive. Any recommendations for treatment in Whittier, CA? I am close to City if Hope and USC Norris cancer centers. Within PIH network. Ihave been referred to a Dr. Im in…
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Uterine Cancer Mortality on the Rise, but Research Remains Underfunded
I came came across this article recently and it infuriated me. Very upset to read about uterine cancer funding particularly in relation to mortality. I was not really surprised that breast cancer is the most funded but shocked at the variance.. I wish there was more we can do s a patient, survivor and consumer to lobby for…
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I am 72 and have terrible vaginal dryness
I have tried just about everything I can find without much success. I thought Replens worked the best but my husband is telling me it burns his mouth during oral sex. He says the burn is similar to drinking coffee when its to hot and you burn your tongue. Has anyone else heard of this? If i don't use anything to help the…
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Hopeful news and why genetic testing is critical to us
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June Is First Uterine Cancer Awareness Month
The International Gynecologic Cancer Society announced yesterday that June will be the first Uterine Cancer Awareness Month. https://www.prnewswire.com/news-releases/international-gynecologic-cancer-society-announces-inaugural-uterine-cancer-awareness-month-301831248.html A few highlights from the news release: "Incidence…
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10 years
Hello everyone. I know everyone counts differently, but my anniversary (for me) is from my last treatment. Yes, it is 10 years ago today I was getting my last chemo and I write here for two reasons. One, to give newbies hope. I know when I was diagnosed I had no idea what was in the future, and to be fair I think many of…
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Radiation options and side effects for stage 3 endometrial cancer adenicarcinoma
I was diagnosed with Stage IIIC1 endometrial cancer Adenomacarcinoma on 9/11/2020 after complete hysterectomy including cervix and 12 lymph nodes removed with 1 pelvic one positive for cancer. Uterine wall invaded 82%. I am more than 1/2 way through the chemo treatment with two more to go. It was recommended that I have 5…
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Diagnosed March 2023 Uterine cancer
Good morning! I am 52 y/o and was diagnosed with uterine cancer on March 6 and had surgery on March 30, totally hysterectomy. My doctor thought my stage was a 3, but talking with the oncology board it was staged at a 2 grade 1. I am needing vaginal radiation soon. I am very scared of this and terrified of the side effects.…
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8 years post chemo (Recap of Lost Posts, Topic Created by snyderpm on Dec 24, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. snyderpm Dec 24, 2018 - 11:57 pm Hi to all. I haven't been here is several years, and the last time I got a lot of advice and support. My last chemo was March 21, 2011, and I have been good to go since. All scans were negative, with…
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Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1
Hi everyone, I was just diagnosed with Endometrial Adenocarcinoma - Endometrioid type - FIGO grade 1 P16 and P53 wild type stains) on 2/28. Have appointment with Oncologist on March 10th. Seems like years away after cancer diagnosis. I have had very heavy period since November 29th. Nobody should have to have a period this…
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Chemo, when did you feel normal again?
Hi, I am posting this here since the OC board is pretty dead and I also had uterine cancer. For those of you who went through chemo, when did you feel back to your old self again in regard to energy, stomach issues etc...? Did it take weeks or months once treatment had finished? Also, has anyone here been on letrozole…
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Ovaries removed under duress
Has anyone had a total hysterectomy planned and we decided initially to keep ovaries - then on the operating table the doctor talked me into taking the ovaries so under duress I agreed she could take them but that wasn’t what I wanted and now I’m so sad - I feel so empty and can’t stop crying
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Abnormal ultrasound
I have very recently had an abnormal ultrasound of my uterus. I am trying to stay calm but I like to get as much information and advice as possible. So here it goes. Went to doctor for something totally unrelated and just happened to mention how my monthly cycles have been lasting longer than normal. I thought that I may…