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Roll call for Endometrial Adenocarcinoma any stage
No many active posts now, so I said let start this topic just for information, anyway the difference between Endometrial adenocarcinoma and UPSC is minimal. Thanks I'm Endometrial Adenocarcinoma Stage 4. Diagnosed in April 2015.
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Newly diagnosed
Would anyone care to comment on what kind of pain they experienced while waiting for surgery? A small amount of spotting and what felt like menstrual cramps at age 67 led me to see a gynecologist that did an US and a biopsy. The biopsy showed group 1 cancer cells. I have met with a gynecological oncologist and I am…
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Icing hands and feet to prevent peripheral neuropathy from carboplatinum, taxol, other meds
Just a reminder to newcomers here that this works. I was in for a completely unrelated treatment last week, and saw a woman beginning chemo who had been offered the scalp icing to save her hair, but had not been offered hand/foot icing, which I think is a terrible shame, since hair grows back quickly, but the pain of…
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Recurrence of uterus cancer in vaginal cuff
I have asked questions before and everyone was so helpful. i was recently diagnosed with recurrence of my uterus cancer in the vaginal cuff. The standard care seems to be external radiation and brachytherapy? I went to Stanford and the Mayo Clinic and was basically given the same options? Has anyone out there had…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Confused with Mother's treatment plan
Would like some help in managing my mother's treatment plan: My mother is 86 and has been diagnosed with Metastatic stage 4 endometrial cancer (uterus being the primary source). She had about 7 cycles of chemotherapy consisting of Carboplatin and Taxol from Aug 2022 to Feb 2023. The PET scan in Jan 2023 showed her 80% free…
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Article on Brachytherapy
I hope this link works an interesting article. https://www.medscape.com/viewarticle/991987?ecd=WNL_mdpls_230530_mscpedit_nurs_etid5478199&uac=389007SR&spon=24&impID=5478199
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Checking In! Year 2 Surgery Anniversary & NED!
Sorry I have not been around for months and trying to get caught up on many posts this morning. Always difficult to see new members joining the group but gratifying to read my positive posts and more good and long NED news from members. I am coming up on 2-year surgery anniversary on June 10th and just a good 3-month…
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Newbie question
Just got biopsy results... carcino sarcoma... I am a BC survivor, and 10 years on Tamoxifen... looks like this cancer is extremely complex and aggressive. Any recommendations for treatment in Whittier, CA? I am close to City if Hope and USC Norris cancer centers. Within PIH network. Ihave been referred to a Dr. Im in…
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Uterine Cancer Mortality on the Rise, but Research Remains Underfunded
I came came across this article recently and it infuriated me. Very upset to read about uterine cancer funding particularly in relation to mortality. I was not really surprised that breast cancer is the most funded but shocked at the variance.. I wish there was more we can do s a patient, survivor and consumer to lobby for…
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I am 72 and have terrible vaginal dryness
I have tried just about everything I can find without much success. I thought Replens worked the best but my husband is telling me it burns his mouth during oral sex. He says the burn is similar to drinking coffee when its to hot and you burn your tongue. Has anyone else heard of this? If i don't use anything to help the…
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Hopeful news and why genetic testing is critical to us
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June Is First Uterine Cancer Awareness Month
The International Gynecologic Cancer Society announced yesterday that June will be the first Uterine Cancer Awareness Month. https://www.prnewswire.com/news-releases/international-gynecologic-cancer-society-announces-inaugural-uterine-cancer-awareness-month-301831248.html A few highlights from the news release: "Incidence…
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10 years
Hello everyone. I know everyone counts differently, but my anniversary (for me) is from my last treatment. Yes, it is 10 years ago today I was getting my last chemo and I write here for two reasons. One, to give newbies hope. I know when I was diagnosed I had no idea what was in the future, and to be fair I think many of…
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Radiation options and side effects for stage 3 endometrial cancer adenicarcinoma
I was diagnosed with Stage IIIC1 endometrial cancer Adenomacarcinoma on 9/11/2020 after complete hysterectomy including cervix and 12 lymph nodes removed with 1 pelvic one positive for cancer. Uterine wall invaded 82%. I am more than 1/2 way through the chemo treatment with two more to go. It was recommended that I have 5…
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Diagnosed March 2023 Uterine cancer
Good morning! I am 52 y/o and was diagnosed with uterine cancer on March 6 and had surgery on March 30, totally hysterectomy. My doctor thought my stage was a 3, but talking with the oncology board it was staged at a 2 grade 1. I am needing vaginal radiation soon. I am very scared of this and terrified of the side effects.…
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8 years post chemo (Recap of Lost Posts, Topic Created by snyderpm on Dec 24, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. snyderpm Dec 24, 2018 - 11:57 pm Hi to all. I haven't been here is several years, and the last time I got a lot of advice and support. My last chemo was March 21, 2011, and I have been good to go since. All scans were negative, with…
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Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1
Hi everyone, I was just diagnosed with Endometrial Adenocarcinoma - Endometrioid type - FIGO grade 1 P16 and P53 wild type stains) on 2/28. Have appointment with Oncologist on March 10th. Seems like years away after cancer diagnosis. I have had very heavy period since November 29th. Nobody should have to have a period this…
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Chemo, when did you feel normal again?
Hi, I am posting this here since the OC board is pretty dead and I also had uterine cancer. For those of you who went through chemo, when did you feel back to your old self again in regard to energy, stomach issues etc...? Did it take weeks or months once treatment had finished? Also, has anyone here been on letrozole…
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Ovaries removed under duress
Has anyone had a total hysterectomy planned and we decided initially to keep ovaries - then on the operating table the doctor talked me into taking the ovaries so under duress I agreed she could take them but that wasn’t what I wanted and now I’m so sad - I feel so empty and can’t stop crying
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Abnormal ultrasound
I have very recently had an abnormal ultrasound of my uterus. I am trying to stay calm but I like to get as much information and advice as possible. So here it goes. Went to doctor for something totally unrelated and just happened to mention how my monthly cycles have been lasting longer than normal. I thought that I may…
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Our posts show up in Google Searches?
Are members aware that their posts may show up in google searches? I was not and even after reading the CSN Privacy Policy I am not clear how that would or could happen. https://csn.cancer.org/discussion/324374/privacy-notice. I was searching for something last night that related to a recent post of mine and when I got to…
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Cystoscopy after Hysterectomy
Hello, I was recently diagnosed with grade 1 uterine cancer and I have surgery scheduled April 17. I was advised that immediately following the hysterectomy, a cystoscopy would be performed. Has anyone had this done during their procedure? I am assuming they want to rule out bladder mets. I have been experiencing ongoing…
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Endometrial Serous Carcinoma stage 3C
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Interesting article about Endometrial cancer and Older women
Treatment of Older Women With Endometrial Cancer: Improving Outcomes With Personalized Care | American Society of Clinical Oncology Educational Book https://ascopubs.org/doi/10.1200/EDBK_158668?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%20%200pubmed
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Testosterone
Ladies - I posted asking about HRT after this cancer in uterus is gone - I read it is safe because everything is removed - but I’ve been reading it’s not true - what about testosterone ?
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Decision about radiation
Greetings - I reached a milestone yesterday, completing my 6th and hopefully final round of chemo (Yay for Carbo/Paxel). Tolerated it reasonably well, and have started Keytruda as continuation treatment. But I'm facing a dilemma about radiation. My gyn-onc and radiation onc, both wonderful clinicians that I trust fully,…
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Mammogram and "gynecologic cancer" question
Hello ladies. So some of you may know I moved from the northern half of the U.S. down to the south and it has been quite a learning experience. For those of you up north I was surprised to hear that you have to water the foundation of your house down here. Never heard of it and I continue to learn what the south has to…
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Anxious about my mom
Hey everyone, First of all I wanna say thank you to all the brave women here, during the past few days I’ve been gathering so much useful information from this board. Last week my mom experienced vaginal bleeding, she is 52 and her last period was about 6 years ago. She had some tests and they showed her endometrium is 9mm…
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Endometrial cancer
Hi, I am 25 year old and I got diagnosed with endometrial cancer. Me and my husband were planning to have a baby but this is what we found out on Jan.16 2023. They did start doing test since Aug. 2022. Now, am taking Megestrol 160mg daily. Doc said they might will remove everything and you won’t able to have baby , only…