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Uterine/Endometrial Cancer

Ibrance--Pfizer patient assistance
Hi everyone, I'm writing to share our experience with the Pfizer patient assistance/oncology together program. My mom was prescribed Ibrance for her recurrent MMMT based on the genomic testing results (CCND1 amplification, which may be targeted by Ibrance). Ibrance is not FDA approved for uterine cancer (just breast cancer…
Ibrance and Aromitase Inhibitor
Hi there, After two recurrences, I was put on Ibrance and an aromatase inhibitor. I am in remission for now. I've been on this regimen since December, 2017. Is anyone else on this combo? If so, for how long? Thanks.
With or without treatment
My husband has Stage 4a Squamous cell carcinoma in the left lymph node and base of the tongue with no distant metastatic disease. We are meeting with the surgeon next week. My husband is not known for going to the doctor and I wonder what course this will take if he refuses surgery and treatment and what to expect with…
Waiting for biopsy
Hi all, I am a breast cancer survivor, stage 1 in 2018, cancer-free after bilateral mastectomy. I went to the ER last week with severe abdominal pain and had an abnormal vaginal ultrasound. Post-menopausal, 16mm endo thickening, small cysts throughout, and hyper vascular. I thought I was still perimenopausal so I didn’t…
Endometrial cancer findings
Had radical hysterectomy 20 days ago. My follow up is in 3 days from now. The oncologist that performed the surgery already tood me I would need chemo and radiation so that is what it is. I have a long description in my online medical chart ..but this is the part I find confusing . Their findings ...no 1 and no 3 seem to…
Dx with uterine cx 5 years ago, newly dx with breast cancer
Has any had breast cancer after having uterine cancer? I was diagnosed with endometrial cancer in 2018. Just diagnosed with breast cancer in May. Has anyone been through this?
DazedScaredConfused
I’m new here. On 7/11 I received the most frightening news of my life, I was diagnosis with stage 1 endometrial cancer. Through out my life I’ve always suffered from heavy periods, heavy clotting at one point I bleed for 9 months straight. I was young adult no insurance to scared to tell my mother. After that I would have…
I’m new here ~
May I ask why there is so little current activity? Or are questions just answered in posts that already exist? i’m 68, and very overweight. I had issues my while live with bad periods, heavy, clotting, bad cramps. I never took off work, unless getting a D&C, which my doc used to thin my uterine lining, I guess because…
After Kidney Removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
Just got biopsy results — A little overwhelmed
Hi everyone. My name is Elyce, I’m 66, and I’m in Chicago. My gynecologist, who performed my hysteroscopy and D&C, just informed me two days ago that my biopsy results showed endometrial cancer. I had previously had an ultrasound which didn’t show anything in the muscle wall, so she’s pretty sure that it’s early stage. She…
Another newly diagnosed
hello, diagnosed with endometrial endometrioid carcinoma FIGO grade 1. I know it’s common and usually the hysterectomy will be all I need. But. Still scared and overwhelming. I am scheduled for my robotic total hysterectomy on 8/21. I am fortunate that my care team is very responsive and so far have been helpful. I will be…
Considering hormone therapy, concerned about lipedema
Thanks to all who post here and who offer support to others – I’ve found reassurance here and I am grateful. I’m offering my story in case it is helpful to anyone. I will try to provide updates and answer questions. In Feb 2022 I was diagnosed with endometrial adenocarcinoma, FIGO grade 1, p53 wild type, ER positive and PR…
Is it Lymphadema
good afternoon ladies, it's been a few weeks since I last posted here but I am again in search of your wisdom and knowledge. So, I completed 25 rounds of radiation on the 27th of Jan and it went fairly well with fatigue being the most significant issue. Towards the middle of the treatment I noticed swelling in the groin…
Follow-Ups and Putting My Foot Down
I also second-guess myself but I put my foot down today and hope I made the right decision. I had my surgery last June and 5 brachy treatments too follow. I started my 3-month follow-up with my gynecologist oncologist last October (although she saw me a couple of times after surgery) and saw her in late January and will…
Radiation/uterine
I was diagnosed in May 2023 with Adenocarcinoma Endometroid . Lining of my endometrium very thick more than likely due to 1 mg of estrogen for many many years without progestogen. I am 75 yrs. old and have never had surgery anesthesia. I was beyond depressed and terrified. Long story short referred to Oncologist GYN who…
Types of Uterine/Endometrial Cancer
While I knew that I had an unusual type of uterine cancer when I was diagnosed, I later learned that there are a variety of uterine cancer types. And these types can be referred to in different ways, which was initially confusing for me when I first started reading this Board. So, for the benefit of our newer members, I'm…
Plain talk - I like it
I'm finding that I like the "flavor" of this board because people are speaking very practically about cancer and treatment, good and bad, etc. In real life, I don't have a spouse to speak this way with and I'm finding that family and friends, when I'm asked about what's next, are really put off by my matter-of-fact tone in…
PET scan after 2 months of Hormone Theray
My mother had a PET scan done last Friday. This was about 8 weeks after starting the Hormone Therapy (Anastrozole). Hormone therapy was started on May 15, 2023 and she had the last chemo before on Feb 3, 2023. So essentially she did not have any cancer treatment about 12-14 weeks in between. The PET scan from last week…
Contamination from laparoscopic hysterectomy - Anyone else have this?
Hi, My 2nd occurrence was over almost 6 years ago. It was a tumor in my rectus abdominis muscle as a result of contamination in one of my scars from the laparoscopic hysterectomy. It occurred 6 months after chemo for the 1st recurrence (in 2 pelvic lymph nodes - which was found about a year and a half after the original…
Just stopped radiation after 5 treatments
Here is my official dx copied from My Chart- Uterus, bilateral fallopian tubes and bilateral ovaries, excision: Endometrial endometrioid adenocarcinoma, Grade I of III, with the following additional features: - Tumor invades greater than 50% of the wall thickness - 0.8 of 1.0 cm, 80% - Angiolymphatic invasion identified. -…
biphasic - carcinosarcoma -had been serous carcinoma in initial ln biopsy
Hi, I wrote a rather long email last night that I think got stuck in some sort of approval process, so apologize if it turns up later. I wrote a week ago to say my left groin LN biopsy came back as serous carcinoma. Everyone told me to BREATHE until I saw a gyn/onc, which I did Monday. Great guy associated with a respected…
last week--high-grade serous carcinoma--this week adding in a high-grade sarcoma
Hi, folks, last week, a couple of the seniors here suggested I take a deep breath. I needed it--this week saw a respected gyn/onc here in the Philadelphia area. Very smart. Runs his shop like a clock, and is highly placed in the health system I am now going to. He said I had Stage IVB (because it had spread to the inguinal…
Endometrial Adenocarcinoma that is involved Adenomyoma’s
I am 60 and recently diagnosed with Endometrial Adenocarcinoma. After my surgery my pathology report looked good with just a 3mm Myometrial invasion, and clear lymph nodes, fallopian tubes, and ovaries. However it also stated that In addition to superficial Myometrial invasion, the tumor involves the Adenomyoma/s…
Reading recommendations for someone with a new diagnosis
Hello! I recently have been diagnosed with Endometrial cancer. It was a total shock and I am still just trying to process everything that I have going through my head. I am in my early 40's and had basically no symptoms. I have had heavy periods my whole life and the last time I went to the doctor for blood work I…
Endometrial endometrium adenocarcinoma
Very scary words FUGO Grade 2 - nothing more on the report. I met with doc and being referred to gyne oncology doctor. Hopefully I’ll know when they can see me by Friday. the first part of my report says…. benign endocervixal glandular mucosa with background reactive appearing ectocervical squamous epithelium negative for…
Just had first chemo
I had my first chemo with Keytruda on Thursday. During the night, I started having severe leg, ankle and foot pain. Like muscle or bone pain. And leg weakness. It has continued all through the day. Tramadol, Tylenol and ibuprofen aren’t really helping. Has anyone experienced this? Did you find anything to help? Is it a…
Surgery 5 years ago today
Just sharing, 5 years ago today I was recovering from a few hours post surgery, scared of the results, even though the surgeon said there was nothing else seen. A week later I got the pathology results, no malignancy seen in the hysterectomy specimen. I still did not believe it. Here it is 5 years later I am starting to…
genetic testing and assays
There a few newer members here, and while I know the board has been on the quieter side, and these articles have been posted before, I wanted to share them so everyone can see that things are continually changing and getting genetic testing may discovered some of the new drugs are showing promise where the chemo/radiation…
My moms cancer is recurring (for the second time) and I’m confused, please help
My mom is 56 years old, and the strongest woman I know. She had lung cancer when I was really young, and they cut out one of her lungs. I guess it wasn’t deemed necessary, but she didn’t go through chemo. 3 to 4 months ago she was diagnosed with uterine/cervical cancer. About a month ago, they noticed a growth in one of…
Research article on resistant tumors
This is not specific to uterine cancer but is so interesting https://www.bbc.com/future/article/20230704-the-mystery-of-microbes-that-live-inside-tumours

Uterine/Endometrial Cancer

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