Endometriod Adenocarcinoma Recurrance to the liver

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wcrowell29
wcrowell29 Member Posts: 9
in Uterine/Endometrial Cancer #1

Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that my cancer had returned. I went through brachytherapy radiation and it was gone again. A year ago Nov, I finished my first ever chemo treatments. The Keytruda they had me on during chemo was continued. I have my next Pet Scan on Friday to see if the 2 miniscule dots, one on each lobe, are either inflammation or cancer. Previously, there were 6 lesions on my liver. Then, I suppose, due to the Keytruda drip I still receive, they went away. A few reappeared on my spleen, then went away. I sure hope they are not back on my liver. My oncologist doesn’t seem too worried and tells me not to worry until he says we have cause to worry. He has not told me that I will only live for 5 more years, but everything I see online indicates that, being as there is no cure once a recurrance happens, 5 years is what the statistics say. I want to be an exception to the rule!! My liver is currently under immunotherapy palliative care. Should I be more concerned than I am? And what does this C124 number measure? I may not have remembered the number correctly. It’s C something, anyways. I want to ask my doctor about this. I saw it on another post earlier. So, does anyone else have experience with a metastasis to the liver? I would appreciate any insight anyone has. Thank you,

Wendy

Comments

  • anne609
    anne609 CSN Member Posts: 10 Member
    #2
    https://csn.cancer.org/discussion/329365/endometriod-adenocarcinoma-recurrance-to-the-liver

    I am sorry about your recurrence and hope the Keytruda does the job. On the CA125 (cancer antigen) blood test, it is used to help diagnose and monitor uterine cancer — "normal" levels are under 35 but it isn't a reliable diagnostic tool. I gather that the levels rising or falling are markers for whether treatment is working or if there may be a recurrence.

  • wcrowell29
    wcrowell29 Member Posts: 9
    #3
    https://csn.cancer.org/discussion/comment/1722707#Comment_1722707

    Hi Anne,

    Thank you for your response. Hopefully no bubbles will illuminate on the Pet Scan on Friday! I a.so appreciate you explaining the CA125 blood test. Do you know why it is not reliable?

    Wendy

  • anne609
    anne609 CSN Member Posts: 10 Member
    #4
    https://csn.cancer.org/discussion/comment/1722708#Comment_1722708

    Apparently it can return false positives or negatives — it would be great if there were a reliable blood test to screen for uterine and endometrial cancer.

  • anne609
    anne609 CSN Member Posts: 10 Member
    #5

    And Wendy, I hope you get a "good report" on your Pet Scan.

  • Fridays Child
    Fridays Child Member Posts: 284
    #6

    Wendy, good luck on your PET scan. If it's any encouragement, I had Stage 1a, grade 1 endometrioid cancer diagnosed in 2012. Six years later we found a recurrence to my hip and lungs. It has now been almost seven years since I finished chemo for that.

  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,591 Member
    #7

    wcrowell29, I'm sorry to hear you have had to deal with this again. It is good to hear the Keytruda is working and I hope it keeps doing that.

    Good luck with the PET scan and please let us know how it goes.

    Hugs dear

  • trishwhite81
    trishwhite81 CSN Member Posts: 1 *
    #8

    Hi wendy i recently had the same thing happen at that time i was placed on everlimus and told to contiue take the other oral chemo as well, I went and had a scan last week and was told today that the spot on the liver is gone and that the meds are working in that sense but now its in the adreanal gland that i have to have another surgery to remove it, i am scared and mentally exhausted but still fighting everyday. anyone have this surgery?

  • Forherself
    Forherself CSN Member Posts: 1,043 Member
    #9
    https://csn.cancer.org/discussion/comment/1723541#Comment_1723541

    Hi trishwhite81. Did you have cancer in your adrenal glands? I don't remember anyone else having this problem. Sorry to read about your battle! It will make a difference if you had a metastasis in your adrenal vs. a new cancer. Prayers for a successful surgery.

  • Mercorby
    Mercorby Member Posts: 146
    #10
    https://csn.cancer.org/discussion/comment/1723541#Comment_1723541

    HI,

    I am on everolimus and anastrozole. What other chemo drug are you on?

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