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Uterine/Endometrial Cancer

Uterine papillary serous carcinoma (UPSC), Brain metastasis
Hello all, I'm new to this forum. Dx'd 2017 with UPSC stage 4B. Metastasized to lung, brain, adrenal gland over the course of 2019-2021. I've been NED since Sept 2021 (after adrenal gland removed). More details on my profile. I'm curious to know of others who had USPC metastasized to brain - symptoms, treatment, status…
My endometrial cancer surgery
As promised I am updating here on the next step. I have been called in to; to attend a Pre Admission Clinic ( PAC) on the 2nd of January The surgery is scheduled for the 8th of January. I was wondering what exactly happens at a pre-admission clinic? Do they do more tests and answer our questions? I have been given 4 hours…
Question on post D&C operative report
Hello all, 39, premenopausal. After more than a year with increasingly heavy (but regular) menstrual bleeding and anemia, in late 2023 I found an OBGYN clinic that could see me several months earlier than my regular OBGYN. On my first visit, I had a pelvic exam and PAP smear, which found a slightly enlarged uterus and good…
Unexpected D&C results for CAEH - Likelihood of cancer?
I am 48 and haven't had my period in a couple of years. I had unexpected bleeding in September 2023, finally got an appt in October 2023 with my gynecologist who used ultrasound to diagnose 1cm thickness of my endometrius and a polyp. I had my D&C on Jan 2, 2024 and thought it would be like a previous polyp. Benign and no…
Experience with Keytruda/Lenvima?
I am trying to decide which regimen, among three of four choices, to try. The first best would be another carbo/taxol, but I am unwilling to lose my hair again. The second best choice -- medically best, I mean -- would be Keytruda/Lenvima. It seems like most posts about that combination have been pretty dire in terms of…
Uterine Serous Carcinoma
Hello- I am new to your board. I am stage 3C2 and 61 years old. I was diagnosed in October. I had open abdominal surgery Nov. 7 to remove my uterus, cervix, etc... and 4 enlarged cancerous lymph nodes. Next Wednesday (29th), I start chemo ...6 cycles once every 3 weeks. I want to try icing/cold therapy on my hands and…
USPC and breast cancer
I have gone through 2 bouts with BC, one in 2002, the next in 2010 (new primary in lateral breast, NOT recurrence.) In Oct 2011, less than a year after my last chemo for BC I was dx with USPC grade 2, stage 1a. Now here is what I want to share..... My onc said uterine CA has been associated with BC but because many women…
Endometrial biopsy
I am just curious if anyone's endometrial biopsy missed cancer. If so, how did you find out about the cancer?
I was just diagnosed today, I think I've had symptoms for a long time, anyone else?
my diagnosis is Endometrioid adenocarcinoma, FIGO 1. and my doctor says the outlook is good because it's not something that's been going on for years and years but now that I think about it, I have had symptoms for years and years, I have had difficulty in urination and I guess that's a symptom, now I am super worried
New to Board - Anyone recently diagnosed with Endometrioid Adenocarcinoma FIGO Grade1?
Greetings, I was diagnosed Dec 28 with endo cancer. Trying to get my arms and mind around this. I am 58 yrs old and had post-menopausal spotting which led to an ultrasound and then a biopsy. Full hysterectomy scheduled for Feb 5, 2024, and staging will be done with tissue sample as well as identification if cancer has…
Port - take it out or not?
My last chemo was 6 weeks ago, I want this port out. My Dr said she recommends leaving it for a while but I could have it out if I want. It bothers me, I’m always bumping it and sometimes it itches. Should I be cautious and live with it? I choose to think I am done with all this and the port is not needed anymore, so I…
UPSC: 11 years NED
Hi all - it’s been awhile since I’ve posted so wanted to pop in! 2 months ago I celebrated my 12-year cancerversary. I was surprised with a UPSC diagnosis 10/20/11 after a robotic hysterectomy (had a fibroid in an awkward spot near my cervix - dr tried a D&C but I had a septum in my uterus [im just full of surprises] hence…
Shifting my attention slightly
Hello ladies, Does anyone know about changes in microsatellite instability from "stable" to "high?" And what about changes from mismatch repair deficiency "absent" to "present?" I thought the designation was always one way or another and was imprinted in all your cells. I think now it is dependent on the tumor tissue. I am…
Endometrial cancer in lung
2017 diagnosed with endometrial carcinoma. Had hysterectomy. No other treatment. 2023 diagnosed with endometrial tumor in vigina. 25 radiation therapy and 3 brachytherapy. Tumor gone, but a nodule on lung 8mm. Biopsy showed endometrial cancer. I am now on Everolimus and letrozel for life or until I can’t. Tumor seems to be…
Endometrial metastic to both lungs
I have just been diagnosed with endometrial metastic to both lungs. It is inoperable and I have just started chemo treatments. I was never given a chest xray since my first cancer in 2012. Can anyone explain this to me? I was the one who asked for a chest xray even though I had no symptoms. The xray showed spots so CT scan…
Overwhelmed and Impatient
Hello ladies! I am 39, pre-menopausal, and was diagnosed via biopsy with Endometrioid Adenocarcinoma a few days before Christmas. I had the good fortune to learn about it in a short phone call from my ob/gyn because they were closing up shop for Christmas where pretty much nothing was explained to me. Dr. Google and these…
Any tips for external pelvic radiation ?
Im looking for advice from those who have experience with Pelvic radiation. I found out I had Endometrial cancer Oct. 2021 and had full hysterectomy the day after Thanksgiving 2021. They took my ovaries and Fallopian tubes also. When reviewing my pathology, They found a tumor in my Fallopian tube which changed me from…
Uterine lining thickness
Hi, I am a 63 y.o. and post menopausal. I say post because I haven't had a period for more than 10 years. For the last several months the doctors have been trying to figure out why I am severely anemic. I have a history of Ulcerative Colitis, but no flare-up recently. The did a MRI of the small bowel and incidentally found…
Waiting for D&C post menopausal bleeding & thickened lining- wanting to hear similar stories
Google led me here. I wasn't going to join or even post. But here I am… Im 54 post menopausal, I did HRT for about 4 years, patches & then 3 rounds of pellets. Estradiol & Progesterone. I noticed spotting a year ago don't know when it started. I had some symptoms of a UTI but tested negative several times I had pain &…
5 year anniversary
Hi all, I think I will add to the 5 year celebration. I just marked my 5 year anniversary and am declared cancer free. 1a serous. So relieved and happy to have achieved this milestone. I want to thank all of the ladies who helped me over the years, supported me, gave such good advice. I honestly don't know what I would…
Pelvic nodule and endometrial cancer
Anybody have endometrial cancer , no myometrial invasion but MRI found a pelvic nodule ? Is it concerning for Mets? No hysterectomy yet, newly diagnose endometrial Ca.
Has anyone heard from CMB?
I haven’t seen any posts from her lately Has anyone heard from her I hope she’s ok
Anyone have any experience on Femara (letrozole)?
Hi Ladies The ugly beast has raised it's head again and my latest CT/PET scan indicates that I have got my third recurrence. It's still confined to the pelvis (no organ or lymph node involvement by the looks of it), but my team reckon it is too close to sidewall to operate and get clear margins (although my scans are going…
Choose your Dr.
Since I have hit the 5 year milestone, I feel compelled to add a little advice to ones who are just starting this journey. I am old but not always wise! Lol. I would say to first get a list of Oncology Ob/Gyn Drs that your insurance accepts. Then decide if you want a male or female Dr. (In my case I wanted a female Dr)…
Thanking All of You and Wishing You a Happy Holiday Season
Hello, friends-- Today I had a check up in at OHSU--Oregon health sciences university. I see Dr. Munro there, a great oncologist for me. The difference between my first cancer clinic--Compass Oncology--and OHSU is like night and day. Night being a dark, scary place; day being a bright, cheerful place where my questions are…
5 years no recurrence uterine serous with isolated cells in sentinel node
Just had my 5 year anniversary, no evidence of recurrence. Had a total hysterectomy for uterine serous/clear cell, staged at 1a with tumor in fundus, but had isolated tumor cells in one of two sentinel nodes sampled. Had 6 rounds of chemo (cisplatin, taxol, herceptin) followed by IMRT pelvic radiation (not just vaginal…
Scared Mom
My daughter got a diagnosis Monday of Cancer after a DCS. On Tuesday the results came back as Carcinosarcoma. At first, on Monday, I just kicked into high gear of we are going to kick this, no problem, but after reading the survival rate, I cannot keep my mind from going to a very dark place. I don't have a great support…
5 Year Anniversary
Five years cancer free today. In the early days I couldn’t imagine what survivorship would look like in 5 years. And here I am. Thank you to so many women here who offered encouragement, love and hope to me years ago when I was terrified and uncertain.
Getting ready for my first chemo session
Pardon my ignorance. i’m 34 years old. I was diagnosed with endometrial cancer stage 2 last year. Had a full hysterectomy and brachytherapy. About a month ago I found out the cancer is back and has spread. I will be starting chemo as well as immunotherapy. Honestly, I’m terrified. I have one sister who lives in Cali. I’m…
Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatm
We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor…

Uterine/Endometrial Cancer

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