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Anyone have debulking after 6 rounds of chemo? (Cross posted in Ovarian group)
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
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Travel or no travel?
I just had my D and C and hysteroscopy this morning. I have four days to wait for results and I plan to keep busy and not dwell on the possibilities. But I feel knowledge is power so I am prepping myself with info. If I need treatment, ( and I do expect at least a hysterectomy), I am wondering if I should go to the local…
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Newbie - trying to put it all together
Had a D&C and Hysteroscopy on Friday and awaiting results, I guess in a few more days. This procedure followed a biopsy that said I had endometrial atrophy. Endometrial thickening was 5 mm on ultrasound. I have a great gyn/onco. I’m concerned because I have also been having a work up with my Endocrinologist over the past…
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Mid-chemo CT scan question
Hi everyone. I’ve completed 3 out of 6 chemo cycles and my CA125 continues to trend downward but my CT scan is unchanged. How is that possible? I was so certain I’d see at least SOME tumor shrinkage so I’m feeling very disappointed and concerned…has anyone gone through this? Quick background: Dx: uterine adenocarcinoma…
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CT Scan of Vaginal Cuff
I had a hysterectomy in 2016 do to Complex Atypical Hyperplasia. While experiencing ovarian torsion I had a CT Scan and an ultrasound done. The CT Scan showed thickening and enhancement of the vaginal cuff. My doctor says it looks okay so it’s fine. Should I get a second opinion or is it okay?
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Asymmetrical soft tissue on vaginally cuff
My CT scan shows an asymmetrical soft tissue mass on the right vaginally cuff. Now, my doctor has ordered an ultrasound of the area. Could this be indicative of cancer?
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Spotting
I am 13 months past my hysterectomy. Two weeks ago I had some blood in my underwear. Is this common this long after surgery?
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Article about new treatment protocol
It's always nice to see a new article about endometrial cancer.
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Recommendations for wigs or hat/cap wigs?
Trying to prepare for the upcoming hair loss and could use any recommendations or tips you all have. Any advice for buying a wig? I hear the hat/cap wigs are a good choice too - any particular brand recommendations? Also, any other brand recommendations for scarves, hats, etc.?
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New here. Unexpected biopsy
Hi all. Me: 55 yrs old, on hrt since menopause began, been about 4 years. started having a period. Full blown, major bleeding cramps, some urinary dysfunction (urge incontinence). I just figured this was part of menopause, made an appt for annual. After exam, doctor says “we need to do a biopsy” and blammo I was having a…
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Link to MD Anderson endometrial cancer treatments
I like to share this link once in awhile for updates. Sue
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Thickened endometrium & nervous
Hi everyone. I’m a post menopausal mom who had a little bit of spotting and as soon as I told my GP, she kindly ordered a transvaginal and pelvic ultrasound. That showed thickened endometrium of 8 mm and the endometrial biopsy is in 3+ weeks. So I’ve been reading all about it… and trying to understand what lies ahead. If…
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Does endometrial thickness correlate with malignancy
Hi. I put a comment in the wrong spot a couple of days ago when I was panicking and I still got a couple of kind answers. I had a TVUS a month ago and it found an over 20 mm endometrial stripe. Ovaries clear. Post menopausal at 67. In one week I am having a D and C and hysteroscopy. Petrified of the anesthesia and of the…
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New Here and Biopsy Tomorrow
hello everyone, I’m new here, and have endometrial biopsy tomorrow I had an ultrasound and the results are my endometrial stripe is too thick I don’t have the exact measurement as I haven’t seen the doctor since the ultrasound and was called to schedule biopsy Im 51 yrs old. Over 22 yrs ago I had mild endometriosis,…
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New Diagnosis and Consumed by Fear
Hi Everyone. First, I want to recognize all of you as warriors. As I start my own journey, I hope to be half as courageous as all of you. But for now, I am just consumed with fear and need help, guidance and words of wisdom. Diagnosis 6/13/24: Stage IVB, Figo Grade 3, dMMR, Endometriod Adenocarcinoma. Had…
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New Diagnosis of Stage 4 Metastatic Uterine Cancer
Hi, I’m new here and wanted to introduce myself. My name is Heather. I’m 42 years old. After many trips over the years going to the ER over pain and being pushed away as they accused me of being a drug seeker, I found out in May of this year that I have stage 4 metastatic uterine cancer. After many tests and appointments,…
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Surveillance Visits By NP?
Hi All - I hope this finds everyone doing well. I am not on here often anymore due to a million other life things but I am always grateful to all the support and knowledge here. Currently 3 years NED. I am curious about whether or not your GO has a NP do surveillance check-up exams? I was told by a nurse that my GO office…
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New lab test
I was reading a study on ovarian cancer and came across this information about a lab test that is mentioned as being useful for endometrial cancer as well. This is quoted Laboratory Studies and Biomarkers Serum laboratory testing should typically include a complete blood count and metabolic profile.[7] The American Society…
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Endometrial high grade serous carcinoma grade 4B Keytruda/Lenvima
Hi all! I am new to this board. I was on the breast cancer boards for several years starting in 2010. Now I am 64 yo and I have high grade serous carcinoma grade 4B. Had a radical hysterectomy June 2023. No radiation (yet). I went thru 5 out of 6 rounds of carbo/taxol and my cancer didn't respond to it. Now I'm on…
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2024 --Is anyone currently treating for UPSC?
I'm starting chemotherapy January 8th, and not sure how many cycles -- perhaps only three. Since I just turned 82 and my hysterectomy showed no disease, it is questionable how much therapy I should get balanced against the toxicity of the chemotherapy. I had an exploratory hysteroscopy in October (as a result of spotting…
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Pain in the Butock
Hi lovely people newbie here 😀 I have been 3 years out for Gynae cancer and last week suddenly started to get aching butt pain with tenderness in my pelvic area. The butt ache is the same side my tumour was on, GP thinks it’s Sciatica and I’m due to have bloods taken. My cancer nurse is aware and will come back to me once…
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Searching this Site (with Examples)
The site redesign in December, 2021, included a number of welcome improvements in searching. You can now search for a combination of words such as "carboplatin and leg pain" and get results that include all three key words, unlike in the past when the system would only find items that matched the exact phrase. And you can…
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Newly diagnosed with endometrial cancer….
Hello! So, here I am on the journey no one wants to take. I’ve recently been diagnosed at the end of February 2024 with Endometrial Cancer. I’m 57 and had some spotting and bleeding, which led to a biopsy and the cancer diagnosis. Saw my ONC/GYN at the beginning of April, and just had my radical hysterectomy robotically…
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Tips for surgery and after?
Dear wonderful people on this discussion list, I so appreciate all the tips I have received so far! I am facing surgery this Friday--laparoscopic and robotic. I should go home the same day. I have every confidence in the surgical team and have been assured by a doctor friend that Kaiser here is the best for this kind of…
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Wife's pathology for endometrial cancer
My wife recently had a D and C because of some post menopausal bleeding which we assumed was because of the diet drug she is talking. Yes, the drug can trick the body into acting younger and having a menstrual period. After the D and C the doc said they removed a polyp as well. We were told the pathology came back…
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Just letting people know I am 5 years NED.
I don’t visit here much but I do appreciate the help and support when I was first diagnosed. I was 1A grade 3 with some clear cell. I owe my good outcome to my wonderful Dr and the great facility I went to and still go for my yearly checkup. I am very sorry that another person on here continues to give bad reviews on my…
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Regular Scans for Watchful Maintenance - Patient Advocacy NEEDED!
Hello, I was recently made aware of the fact that many uterine cancer patients are not getting regular scans because "the research shows that they don't extend long-term survival." Those are generalized quotes that I heard from a couple of doctors. However, those same doctors tell me that liquid biopsies are not really up…
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Ladies going through chemo - how are you doing? Or those just starting or curious
Hi ladies! I know Teddi Bear, Editgirl and I are in active treatment. I thought it would be good to check in, see how you all are doing, share ideas, information etc. i am in a clinical trial consisting of Aldoxorubicin and Gemzar infusion on day 1, gemzar on day 8, neulasta shot on day 9 and start all over again on Day 22…
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From Stage 1A Grade 1 Endometrial Adenocarcinoma to 6 yrs NED to Metastatic Stage4B
Greetings everyone! Along with sharing my journey here and checking in to support others in theirs, I am wondering if anyone has had experience with Stage 1A Grade 1 Endometrial Adenocarcinoma recurring after 6+ years being NED at each 3 month, six month, exam. The first time I was diagnosed (at 58) it was removed (via a…
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Atypical Glandular Cells Undifferentiated on Pap Smear
Hi all! Who started out with Atypical Glandular Cells Undifferentiated on Pap Smear? I'm trying to find literature about this and what this means!? My GYN did not explain.