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Uterine Cancer

8.5 pound uterine tumor removal/total hysterectomy
Hello to all, we are survivors! I had a 8.5 pound uterine leiomyoma tumor removal July 16th of 2021, with a full total hysterectomy, so no more ovaries or cervix, with omentumectomy where they had to remove around the vascular branches of the tumor clear up to my liver portal vein, lymphnode removal, and umbilical hernia…
Checking in...
I just returned from my semi-annual checkup and I continue to be NED, four years! Secondly, pertaining to a conversation we were having a few months ago, when I reach my 5 year mark they will "graduate" me, their words for kicking me to the curb, cured. While I am sad that they will not continue to monitor me, I understand…
NED appointment today, 5th NED
Hey, friends-- I'm exhausted, having had another 3-month check up today. I'm happy to report that I'm still in NED status! Such a relief, but I am so exhausted. I'm realizing that I dread these appointments. I prepared this morning by taking a bath and using my dilator. I am horrible about about routinely using it! I do…
Pt1b endometrial cancer Figo Grade 3 myoinvasive
What does this mean?
5 year+ survivors of endometrial cancer
Are there any 5 year + survivors of endometrial cancer in this group? If so, would you mind replying with your diagnosis and treatment you had completed? I would really appreciate it as it gives many of us hope as we charter these unknown waters....Thank you.
Awaiting biopsy results - pre menopausal
Hello alL THANKS so much in advance for reading here. I am 46 with a long complicated OBGYN history. I have had abnormal mid cycle (every 15 day or so) heavy bleeding and spotting at other times. I have also had UTI like symptoms but UTI test is negative but they did find blood in the urine not sure if that is normal or…
USPC Stage 3c - 5 lympn nodes after Rad. Mod. Hystorectomy - so quick!! Please read ~
Hi everyone...well, we are new to this forum. Wow, so many of you here, stupid cancer. Prayerfully, we all have great milestones and amazing stories during our journeys. My mom, 67, was diagnosed with Endometrium and Serous Cancer only 5 weeks ago so they did a Radical Modified hystorectomy very quickly and biopsied…
5 Years NED – Uterine Carcinosarcoma (MMMT)
I saw my gynecological oncologist today and I’m happy to report that I’m still NED, five years after my treatment for Stage 3B, uterine carcinosarcoma (MMMT) ended. When I was first diagnosed, reading reports of others with this type of cancer who had survived for several years gave me cause to hope that I might have the…
Types of Uterine/Endometrial Cancer
While I knew that I had an unusual type of uterine cancer when I was diagnosed, I later learned that there are a variety of uterine cancer types. And these types can be referred to in different ways, which was initially confusing for me when I first started reading this Board. So, for the benefit of our newer members, I'm…
Are there any maintenance drugs after radiation/chemo treatment is done?
Some backstory: My mom was diagnosed with Stage 3c carcinosarcoma of endometrium last November, underwent total hysterectomy and bilateral salpingoophrectomy. CT scan after the surgery showed no cancer. After she recovered from the surgery she had 5 weeks of radiotherapy treatment. 1st and 4th week during the the…
Recently diagnosed with Stage III Uterine Cancer
I was recently diagnosed with stage III Uterine Cancer; I had a complete hysterectomy 2 and a half weeks ago and I am scheduled to meet with the medical oncologist for information regarding starting chemo in the next two days. Being diagnosed with cancer was a total shock for I have been seeing my gynecologist yearly for…
Journey
Oh man where to start. Been a member on CSN for quite a while, not active for a long time. Sorry if I babble through this post. First and foremost, I'm a caretaker for my wife. She is a ten-year colon cancer survivor (stage IIB). Everything was going so good for us. Then she was diagnosed with Stage 1B uterine cancer. The…
Im in the waiting phase, and Im terrified.
Im new here, so I apologies if this isnt how things are done. But I really need some help from anyone who is willing to listen. Please excuse the text wall. So, a little background information ( sorry for the information overload): 1) I got my first period when I was about 9 (early periods are common in my family)...2) my…
Lymph nodes and pressure in veins
Hello, I've was diagnosed with uterine cancer about 6 weeks ago, had a total hysterectomy along with lymph node removal, (I've not yet found out how many or if all were removed from my groin area-I will be asking at my follow-up visit in a few days). I also haven't gotten my staging yet. My question is, my right inner leg…
Need encouragement and advice
Hi - I am new and not yet diagnosed with anything but am starting to process of trying to figure out what is going on. Reading this board has been so helpful. I've hit a snag and would like your thoughts. So, I am post menopause several years. I am overweight and have never had children. For several months I've had…
has anyone gone to a shaman for healing??
sisters, i just got the name of two shamans, one an older nepalese woman who travels around the world, and is only here infrequently. i am on a list to be notified of her return to this area, possibly in 4 months. she apparently has quite a following, and is one of the 13 grandmothers from nepal working for world peace.…
New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
Endometrial Cancer Recurrence
Hello Everyone, I’m here for my mother. She was diagnosed with Stage 1A Grade 2 endometrial cancer in November 2021 and had hysterectomy the next month. We were told no chemo or radiation was needed since there was no lymph node or other organ involvement. We took my mother to the ER September 2022 and they found the…
Rise in CA125 in 6 months after last chemo
Has anyone experience a rise in CA-125 in 6 months after the last chemo. Mine jumped from 9 to 40 and I’m alarmed. I’m having CT scan of the chest, abdomen, and pelvis next Friday, 9/23/22. I felt some pressure in my lower abdomen that is going away now . I was off from zejula for about a month because of the side effects…
Four years after mixed serous/clear cell uterine cancer, and no evidence of recurrence.
When I was first diagnosed, I found hope here in the postings by long-term survivors of this highly aggressive cancer, in addition to the amazing companionship and support from the women on here who were so generous in sharing their time and their experience and their advice. I'm now four years out from diagnosis, probably…
Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
Saturday 9/17/22 Online 3rd Annual Chicago Gynecologic Cancer Researcher-Survivor Summit
All - missed this email in my inbox but this is tomorrow and via Zoom and is free to register. Saturday, September 17 Chicago Gynecologic Cancer Researcher-Survivor SummitThe 3rd annual virtual event will bring gynecologic cancer survivors, clinicians, researchers & community advocates together for education &…
Realize it is a good problem to have...
...but looking for feedback from everyone. So I moved to Texas and was given the name of a gyn onc down here from one of the long-time ladies on this board. I just called and found out that the doc would not take someone not in active treatment and just following up. I realize that this is a very fortunate problem to have,…
Anxious After First Colonoscopy Tomorrow Morning Since Surgery/Treatment
Not my first one and never had any problems in past except for a few pesky polyps removed but super anxious about the one I have tomorrow morning. Maybe it's the hunger pain setting in and the fear of prep to start in 5 hours but honestly nervous as it's the first one since my hysterectomy and brachytherapy last year and…
Help! Sentinel lymph node biopsy? Endometrial cancer level 1
Wonderful to find this website! I've been sitting around alone worrying and wondering. In a few days I am having a full hysterectomy due to endometrial cancer that has "probably" advanced to left adnexa, per CT scan. My doctor wants to do sentinel lymph node mapping removal and biopsy, but if that is unsuccessful, she…
Scared it could be uterine cancer
I’m only 41 and not had menopause yet. However, I’ve had irregular bleeding for a few months before telling my doctor. I thought it was normal and changes were normal due to my age so I didn’t worry about it. Then I went in for my annual exam and had a Pap smear. Everything was normal, even the Pap smear but gynecologist…
Questions about Brachytherapy
I have uterine cancer and had a complete hysterectomy in November of 2021. On my 6 month checkup the cancer was back. Only 3% of patients have a recurrence of the cancer. I started radiation treatment on August 10th. I am scheduled to start brachytherapy next Wednesday September 7th, and three additional treatments, along…
Uterine Cancer Stage 4
Good Morning; Last week I had a complete robotic hysterectomy. We received the pathology report and met with the surgeon this past Thursday. The findings were that the cancer has moved from my uterus to the fallopian tubes and on the surface of the ovaries. The biggest finding was the it has also spread to the omentum and,…
Metastasis Stage 4 High Grade Serous
Hello all, is there anyone out there that got initial diagnosis with stage 4 uterine cancer with metastasis? My mom of 67 was diagnosed with Stage 4 High grade serous adenocarcinoma 4 months ago. The Pet scan found it on liver and mostly lymphnodes throughout abdomen. A few lymphnodes in the chest/neck area. No other organ…
Spouse with cancer?
Just wondering if any of you are in a marriage where both of you have cancer? My husband has metastatic prostate cancer 4B which is responding well to chemo. He was diagnosed in February. So my diagnosis this month was… a lot to process. Our kids are adults, but we still have work and a home… and I’m trying to process how…

Uterine Cancer

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