The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

Do I have to take steroids after doxil
S teroids
New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
Curcumin and broccoli supplements
Has anyone been allowed to take curcumin or broccoli supplements during cancer treatment. I read that the broccoli sprout supplements can be effective at killing stem cells but am not sure if that is based on real science. I am healing from a hysterectomy for StageIV serous endometrial cancer and doing research to see if I…
SURVIVOR....UTERINE CARCINOMA. STAGE 4-2b
Are we all a survivor of a very small percentage of people??? How long does a person stay in remission with a metastatic cancer??
My mom has Serous endometrial carcinoma
My mom just got her biopsy results back for serous endometrial carcinoma. I'm looking for advice on where to take her for treatment and what I should look for in the treating facility. What should I ask during the consult? I'm on the East Coast. Does anyone have any good recommendations for gyno oncologists? I'm only in my…
Postmenopausal for 8 years
Hello ladies. I Am 59 years old and started lightly bleeding in late January. I have been having a light colored discharge for months but I wondered if i wasn't leaking pee 🫣. My gyn got me in same day I called. I have been going to the same GYN since I was 25! He did pelvic exam and told me that I had a big polyp coming…
External radiation and brachytherapy for reoccurrence
I was diagnosed with Stage 1 grade 1a endometrial adenocarcinoma last year and had a total hysterectomy. Last month they discovered a recurrence and had a PETCT scan. Thankfully, they found nothing more but I learned today that the protocol is 5.5 weeks of external radiation (5 days/week) followed by 3 sessions of…
Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
PMB and Endometrium at 26mm
Hi Everyone, My mom, age 65, experienced PMB about 3 weeks ago. I immediately got her scheduled to see the gyno and her ultrasound came back showing her endometrium measuing 26mm! She is scheduled for a D&C in 2 weeks. She had a D&C done almost 6 years ago for PMB when they found a polyp in her uterus, removed it, and the…
Ketogenic diet
Has anyone tried the ketogenic diet to help reduce/stop cancer growth during chemo treatments. I have read a few stories where women went into remission and credit part of it to their ketogenic diet. I think it might be worth a try but need to find a Doctor who believes in it to monitor my diet and health during chemo.
I’m Terrified
I recently had a Pap smear which came back normal but there were endometrial cells present. I am 49 years old, no symptoms, perimenopausal, obese (31 bmi). My doctor wants to do an endometrial biopsy. Now I am scared to death that I have cancer. Any advice on how to handle? I am particularly freaked out because I have ocd.…
Granulation tissue biopsy after surgery
I was diagnosed with Endometrial Adenocarcinoma Grade 1 in March, and I had a hysterectomy with da Vinci robot on April 17 (Stage Ia). I've felt fine since then and had no problems/symptoms. Yesterday I saw my oncologist for a follow-up. He said I have what appears to be "granulation tissue" at the top of the vaginal cuff.…
Leg Pain?
I am 73 years old and was recently diagnosed with endometrial cancer. For the past week, I have experienced severe pain in my left leg. In fact, I can barely walk. I cannot put weight on my leg. Has anyone else experienced this? Is this from the cancer? Any suggestions for relieving the pain would be greatly appreciated.…
Her2 positive stage 3C serous uterine cancer
Hi. I’m a newly diagnosed 52 year old mama with her2 positive papillary serous adenocarinoma. Can anyone tell me if this is survivable? I’m petrified and want to see my children grow up!
Uterine Serous Carcinoma: Seeking doctor and hospital recommendations for my mom
Hi all - First of all sending support to all of you in this group. You are all so strong! I am posting because my mom was recently diagnosed with serous endometrial carcinoma (final pathology c/w Stage 1A mixed serous endometrioid endometrial adenocarcinoma without myometrial invasion). She also separately and…
Chemo/immunotherapy
I have uterine cancer, stage 3c and am soon starting chemo and immunotherapy. Wondering if anyone has had these concurrently and if there is anything I should be asking prior to starting treatments. My hysterectomy was Dec. 3 and was hospitalized twice - once for excessive bleeding and another for an infection. So I will…
What to do when you get a recurrence of Endometrial Cancer In 6 months
My mom is my everything. She was diagnosed with endometrial cancer. She had a hysterectomy, & chemotherapy with paclitaxol & carboplatin. Was in remission for only 6 months post 5 cycles, she was supposed to have 6 cycles, but could not have her last cycle due to neutropenic fever putting her in the hospital, & since her…
JOINT PAIN AFTER CHEMO
I went through 6 rounds of carboplatin and taxol chemo treatments this past year. I finished in April and a few weeks later I began to feel extreme joint pain. My Doctor said it was probably because I had not been active during my chemo, but as I was reading on here, there are many people who have gone through similar…
Advice re biopsy
Hoping for a little advice, first my history; I’m 51 post menopausal, have 3 kids had 4 miscarriages, Mom had breast cancer. I’ve had cramping for a while and pain in the tops of my legs, I then had some spotting so went to obgyn, had transvaginal scan which showed cyst in cul de sac and thickening of lining at 6.3. Dr…
Not sure what to expect...anyone else been through similar?
Hi! Wondering if anyone had similar ultrasound findings and what the results were? I had a biopsy done a few days ago and now waiting on results. I'm 3 months into taking tamoxifen because I was diagnosed with breast cancer in April of this year, but that would be very quick for these changes to happen. Horrified at the…
New to site
I am 30 years old and I just got dignaose with Endometrial Cancer. I have lot of questions and a lot of things I do not understand. I will be going to see a specialist on Oct 1st. To say I am scared is an understament. I found out on Wed since then I have hardley slept and have spent most of the time crying. Family and…
Synchronous primary cancer
Hello, I am a 54 year old who last year was diagnosed with endometrial and ovarian cancer. I have finished radiation, chemo, and brachytherapy and currently on Keytruda. Is there anyone else on here that has been diagnosed the same?
Feeling Ugly
It has been four months since my last chemo and my recent CT scan showed no evidence of cancer. I know I should be ecstatic, but I am so depressed. I know this is selfish of me to feel this way, and I am super lucky to be alive, but I feel so ugly since chemo. My hair is growing back, but it's not the beautiful red it used…
Follow ups after surgery
Just diagnosed w endometrial cancer caught early stage1A1 had my surgery which went very well and now just have the every 3-4 month check for reoccurrence, my first coming up next month. My gyn/onc said I could follow up w my regular gyn whom I have a appt w the month after. Im at the nervous stage of “what if its back”.…
Frodolass Update...
I also posted to the "long" thread which I read and found some great information. I just wanted to introduce myself. I'm 52 years-old and was diagnosed with UPSC with clear cell features in early August. I had a total abdominal hysterectomy with ovaries and fallopian tubes removed as well. I hadn't been to the doctor in a…
Any low grade endometrial cancer stage 4 survivors out there?
Hi, Just wondering if there is anyone with low grade stage 4 endometrial cancer and if so what treatment options were you given and how successful are the treatments for your low grade cancer? I'm needing some hope for a newly diagnosed friend. Any stories of hope would be really appreciated!
Stage 4b cancer
Hi. Anyone else diagnosed with stage 4b cancer? Last December had an 8 hour surgery to remove lady parts and the visible uterine cancer that spread and was wrapped around my bladder and other parts. 6 rounds Chemo ended in April. now in immunotherapy infusions for years. Having all kinds of side effects. Hoping others have…
Uterine Carcinosarcoma, any survivors out there?
Hi everyone, My mom was diagnosed with carcinosarcoma in Dec '08, she had a total hysterectomy and removal of pelvic lymph nodes (cancer was found there). Since then has done chemo and radiation, finishing in the summer of '09. She's doing ok now, but I was just wondering if there was anyone out there with a similar…
Recently Diagnosed and Adjusting
I was diagnosed with endometrial cancer on July 2nd. Had radical hysterectomy on July 18th. They thought it was going to be a simple day procedure but discovered that cancer had spread to a lymph node which they couldn’t removed because it was too close to a major blood vessel. I ended up staying a night in the hospital.…

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

Discussion List

Discussion Boards