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Gone
My birth brother died today from brain cancer. He is now free. Free from the pain. It is a blessing.
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YAY ??????????? Good Petscan report
A little background: Feb. 2009 diagnosed with stage 4 ovarian cancer. Biopsy.Chemo.Neublasta. @ 6 months Total hysterectomy with debulking. Chemo. Neublasta-like drug. 12 months later in remission. Woked for first 6 months of treatment, Hours cut due to failing economy (enough hours to pay my weekly insurance premium)…
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Need ideas for supplements ASAP, please help
Greetings, this is my first post here. I am looking for support/ideas. My mother-in-law was diagnosed with ovarian cancer 3 years ago. They removed her ovaries and she has been doing chemo on and off. There was a time she was cancer-free but then it came back with a vengeance. She had to suspend chemo for a while due to…
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Eh, who likes cartoons?
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Camp-Mak-a-Dream
Hi Everyone: I was just wondering if there was anyone planning on attendng the camp in September at Camp-Mak-Dream in Montana.
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5th Annual Ovarian Cancer Symposium
Sep 22-23, 2014 Princess Margaret Hospital, Toronto This annual two-day ovarian cancer research symposium focuses on new developments for improving prevention, detection and treatment of ovarian cancer. I am going; if you are in or near Toronto - please join me. If you have questions you want me to ask - please PM me.…
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Great news, Alexandra!
I'm so happy ot hear that your ca125 is 8 and your scans are clear...what a miracle! I've just finished chemo, my ca125 is 7.8 and I haven't been scanned yet....hoping it's clear too. The last 4 months have been horrible. I am sick of feeling sick all the time. I hope to have some remission time. Will you just stay on the…
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Good News for a Change
So, when last I reported my mother had just had her ct scan and it showed a decrease in most of her lesions but a study rise in her ca-125 values from 1247 at the start of the trial in late March to 3042 at the end of June which was a little dishearting. At the end of July we really got a blow when we saw the number rise…
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It's been awhile...
Hello everyone, it's been awhile so I figured I would check in. It's actually been about 2.5 months give or take! I made a post back in May freaking out about the possibility of cancer. My doctor reffered me to a gyn and I wasn't able to get in until June 9th. On June 9th the doctor I visited did not do any furture testing…
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July check in
let's us know how you are...me had chemo two weeks ago...next one August....hanging in there.....Val
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Just checking in
I left this board last year, due to harassment, and I am not back to stay. But I miss all of you ladies and hope things are going well. I just wanted to share that it is the 5 year anniversary of my debulking surgery for stage IIIc papillary serous adenocarcinoma. My surgery was suboptimal. I received conventional…
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Three days before my daughter's wedding, and guess what? SHINGLES!
So far, just some minor itching and discomfort. They're going to be calling me in some medicine later this afternoon. They're on the right side, along my waist. Over night a few more came up on my stomach. Well, nothing's stopping me from enjoying my daughter's wedding Friday night. Carla
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Dr. appt.
I have an appt. this morning with my gyn. I forgot it a couple of weeks ago and had to reschedule. I am hoping for just a routine check up. In 5 days from today four years ago is when I heard those words you have cancer. It sure has been a emotional roller coaster but I do feel that I have been blessed. I have noticed in…
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I found this website helpful
http://www.medicalnewstoday.com/categories/ovarian_cancer http://www.medicalnewstoday.com/releases/275129.php For ovarian cancer, disease-free survival estimates improve over time The probability of staying disease-free improves dramatically for ovarian cancer patients who already have been disease-free for a period of…
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My book on OC awareness
I was the caregiver for my sister, who died from OC March 20, 2014. I am broken hearted, but I am determined to write a book about her journey. First of all, I am not a writer. I am a retired school teacher. I am going to attempt to write a book about my sister's journey with OC. Two reasons: 1. I want to honor my sister.…
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Good news and bad
Hi everyone , when I reported debulking surgrey went well think I was jumping the gun a little , my surgeon said all visible cancer was removed , I had a ct scan 3 weeks after and then to see oncologist the scan reports still show significant abnormalities and what looks like 2new areas of concern ca125at 77...all that in…
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4 month check up NED
Went to my wonderful oncologist today and I am NED! August I will hit the two year mark for NED.
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venofer therapy
Has anyone had Venofer with their chemo? I just completed chemo #5 today, bloodwork showed anemia....and I told the Dr. I slept most of last week, constant fatigue. He thought it was time for some iron, so I will be getting Venofer weekly: Week 1 cisplatin and Taxol; Weeks 2 & 3 Taxol. Then Week 1 starts the cycle all over…
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Cancer Rally
Hi Ladies... FYI, in case any of you wish to attend... Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September…
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Doxil side effects - whoa!
I posted this on the Inspire board a few days ago. If you are on both, please excuse the repetition. "I'm beginning to realize how lucky I've been in the past with the severity of the side effects I've felt with the two other chemo combos I've been on. (Does that even make sense?!). I had Taxol/Carbo, and a huge amount of…
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Just checking in...been a long while
It's been a long while, but this evening I felt pulled to these boards. I wanted to reach out, to check on each of you. So many of you were so helpful when my mom was sick, your kndness and generosity of spirit touched me deeply. September will be 3 years since she lost her fight, but we continue to wage a war in any way…
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ct scan results
So I had my results of my ct scan today still stable but my oncologist cant understand the rise of CA numbers. So he is going to do 2 more rounds of Doxil and another scan. Depending on the results he will put me on Topetcan not sure if spelling is correct. Has anyone used this and what is side effects and how does it…
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Horrible
My birth brother was told by his oncologist to call hospice. He has brain cancer. Two tumors. Impacting his ability to walk and talk. Cancer is horrible.
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Sad News: Hissy Fitz
To my sister warriors, I learned today that our dearest friend and supporter, Carlene Mullins (aka, Hissy Fitz), passed into the arms of Christ on Friday. My heart is breaking as I write this, because for so long I have put off contacting her. I do not know the cause of her death, whether or not it was related to cancer is…
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Told Not Cancer, but still have questions
I posted this on the uterine cancer board and someone suggested I post it here. I hope that is OK. I am 60 years old and have been in menopause since I had chemo for breast cancer over 11 years ago. I recently had spotting and pelvic pressure. I saw my gynecologist and she did a very painful uterine biopsy in her office…
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On Topotecan - what's next?
So i started topotecan a few weeks ago. Leading up to it have gone through a pretty typical protocol of drugs: Carbo/taxol twice. Then doxil, gemzar and now topotecan. This seems to be where the road map sort of ends. There a couple of other drugs - avastan (sp?) for example my doc doesn't really want to use because my…
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Waiting for results...
Hi everyone. My dad is dying of prostate cancer right now. He was "fine" (no noticable symptoms) in February of this year. But week by week after that, he got worse and worse. He visited the Emergency Room no less than 8-10 times and they kept sending him home, saying it was nothing. One urology resident actually said…
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Did this procedure cause my cancer?
Apparently the warnings have been around for some time, but this is the first I've heard of them. When I had a hysterectomy 6 yrs ago, the procedure was laparoscopic & robotic. If this particular technique--power morcellation--was used, I didn't know it. But it sounds like it was possble. And now I learn it can cause…
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Update: elevated ca125, large multiloculated cyst
I'm sorry to have taken so long to post and update on what is going on with me. As per my previous post during a Scan for kidney stones a large 7cm multiloculated cystic lesion found on left ovary , along with adenomyosis of the uterus, a left tube filled with fluid and debris, small amount of pelvic fluid and a fast…
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molecular testing
Did anyone have molecular testing done? Did you start a targeted treatment?