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Cancer Rally
Hi Ladies... FYI, in case any of you wish to attend... Ron Dear Members of the “AACR SSP Family,” As a valued participant in the American Association for Cancer Research (AACR) Scientist-Survivor Program (SSP), I am writing to make you aware of the Rally for Medical Research Hill Day, which is scheduled for September…
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Doxil side effects - whoa!
I posted this on the Inspire board a few days ago. If you are on both, please excuse the repetition. "I'm beginning to realize how lucky I've been in the past with the severity of the side effects I've felt with the two other chemo combos I've been on. (Does that even make sense?!). I had Taxol/Carbo, and a huge amount of…
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Just checking in...been a long while
It's been a long while, but this evening I felt pulled to these boards. I wanted to reach out, to check on each of you. So many of you were so helpful when my mom was sick, your kndness and generosity of spirit touched me deeply. September will be 3 years since she lost her fight, but we continue to wage a war in any way…
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ct scan results
So I had my results of my ct scan today still stable but my oncologist cant understand the rise of CA numbers. So he is going to do 2 more rounds of Doxil and another scan. Depending on the results he will put me on Topetcan not sure if spelling is correct. Has anyone used this and what is side effects and how does it…
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Horrible
My birth brother was told by his oncologist to call hospice. He has brain cancer. Two tumors. Impacting his ability to walk and talk. Cancer is horrible.
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Sad News: Hissy Fitz
To my sister warriors, I learned today that our dearest friend and supporter, Carlene Mullins (aka, Hissy Fitz), passed into the arms of Christ on Friday. My heart is breaking as I write this, because for so long I have put off contacting her. I do not know the cause of her death, whether or not it was related to cancer is…
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Told Not Cancer, but still have questions
I posted this on the uterine cancer board and someone suggested I post it here. I hope that is OK. I am 60 years old and have been in menopause since I had chemo for breast cancer over 11 years ago. I recently had spotting and pelvic pressure. I saw my gynecologist and she did a very painful uterine biopsy in her office…
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On Topotecan - what's next?
So i started topotecan a few weeks ago. Leading up to it have gone through a pretty typical protocol of drugs: Carbo/taxol twice. Then doxil, gemzar and now topotecan. This seems to be where the road map sort of ends. There a couple of other drugs - avastan (sp?) for example my doc doesn't really want to use because my…
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Waiting for results...
Hi everyone. My dad is dying of prostate cancer right now. He was "fine" (no noticable symptoms) in February of this year. But week by week after that, he got worse and worse. He visited the Emergency Room no less than 8-10 times and they kept sending him home, saying it was nothing. One urology resident actually said…
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Did this procedure cause my cancer?
Apparently the warnings have been around for some time, but this is the first I've heard of them. When I had a hysterectomy 6 yrs ago, the procedure was laparoscopic & robotic. If this particular technique--power morcellation--was used, I didn't know it. But it sounds like it was possble. And now I learn it can cause…
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Update: elevated ca125, large multiloculated cyst
I'm sorry to have taken so long to post and update on what is going on with me. As per my previous post during a Scan for kidney stones a large 7cm multiloculated cystic lesion found on left ovary , along with adenomyosis of the uterus, a left tube filled with fluid and debris, small amount of pelvic fluid and a fast…
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molecular testing
Did anyone have molecular testing done? Did you start a targeted treatment?
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no treatment today
So when I had my last treatment of Doxil in June they did my CA125 and found out it was 1049 way up from 300. So we didnt do treatment today because of the 4 week waiting period between doxil treatments. So we are going to do a scan tomorrow then possible treatment next week depending on what the scan says. So scared.
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Got a makeover at chemo yesterday!
A nice young woman from Saks came by my pod and treated me to a makeover...it was fun and helped pass the time! I never wear foundation over my freckles but I gotta admit it looked nice...got some samples too...will I ever use it?...doubt it, but it was a good spirit lifter. That and the therapy dogs that came by. Chemo…
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Cancer Hospital Ratings
HI Ladies.. I brought this link from another forum, thought you may be interested to see how your hospital is rated.. Ron http://health.usnews.com/best-hospitals/rankings/cancer
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Insomnia Thoughts
I had chemo today. It was much more eventful than usual, and we were there hours longer than we expected. Had to get lots more steroids than usual, so I expect I will be awake until....Monday morning when I get to work!! Haha!!! So, while I'm not sleeping, I am reflecting on some emotions I've experienced lately. First, an…
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Hysterectomy leakage
I am new at this so sorry , I just had a hysterectomy on July 8 2014 , today 7-15-14 I started leaking fluid this evening . The first of any issue . I have no blood in urine I have had no bleeding in general , it has my attention and concern I do have a doctors appointment tomorrow to find out what kind of cancer I have,…
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can neuropathy cause bad itching sensation
Hi Oh experienced ones Yesterday the palm of my left hand was driving me nuts itching - no topical reason could be seen - no spots bumps or rashes. Laat night at bed time the other hand started itching. I started thinking about it - if the nerve mess from neuropathy can cause the sensations it does Could itching be a…
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Debulking done
Hi everyone I first posted on this site 17th June ,I had been diagnosed with 3c ovarian cancer and I was waiting for debulking surgery , I'm glad to say that has now been done , all gone very well my surgeon was able to remove all cancer he could see and omentum ect. I felt quite poorly for the first couple days but…
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Treatment
Started my second round of chemo today with carbo and gemzar. Did have flushing and itching with carbo. This i the 8th cycle when you count my initial treatment. They stopped the infusion, and treated me with benadryl and solumedrol. I was able to finish with no problem. My CA125 is down to 32!!! Kim
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Here we go again! Stupid OVCA!! I HATE this disease!!
Hi Ladies, I do not know what I would do without the support these boards offer. I have a "lump" about 1 centerimeter in my neck. (left side). I will have CT of neck, chest, and abdomen next Tuesday (10th). The dr. said he doesn't know for sure what this is. He just doesn't want to wait. Also, I have lost 4 lbs. in 9 days.…
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What to do when the doctors don't agree?
So we are not sure who to trust with these doctors. When my mother got her last CT scan it showed decreased overall mass in all of her tumors except one and what the radiologist described as a ‘significant reduction in plural nodularity and decrease in now small plural effusions’ this sounded promising even if her ca 125…
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Has anyone heard of this or been treated in this way? HIPEC
New treatment effectively kills Ovarian cancer Doctors are trying a new way to treat Ovarian cancer by using chemotherapy that's been heated up to kill cancer cells. By Denise Dador Thursday, June 19, 2014About 22,000 women are diagnosed with Ovarian cancer each year and more than half die from it. The disease is hard to…
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CA-125 at 37.5 after Surgery
Hello there, I am Naval. My husband has been posting and asking details about my Ca all this while. Its a month since my Surgery and I have gathered the courage only now to come onto this Forum and talk about my Ca. My husband is always in so much praise about this Forum. Thanks all of you for your advices and opinions. It…
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So confused ...elevated CA 125
Good morning , this is an update to my previous post. 3 weeks ago a ct scan and ultrasound found a 7cm complex ovarian mass on left ovary, a small comp. mass on the right as well as a enlarged left Fallopian tube with fluid and debris in it, a 5cm fibroid, enlarged uterus the size of 4 month pregnancy and small amount of…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Avastin and Doxil
Hello, I was wondering if anyone has been on doxil and avastin after being on several other treatments. How long did it work. I have stage lll ovarian cancer thanks
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Alexandra
Good luck on your ct scan tomorrow
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OvCa WEB site
Hi Ladies... not sure if you were aware of this one or not... but has some interesting videos... the current one talks about a combo of oral drugs... http://www.onclive.com/onclive-tv/Dr-Patel-on-an-Analysis-of-Olaparib-and-Cediranib-for-Ovarian-Cancer Ron
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Let's have some fun..
all of us being in a chemo haze one time or another have done or said very embarrissing things ....one of my worst was a a few years ago I wished everyone a Happy Mothers Day....on the prostate cancer site. Can't make this stuff up...walked around with shoes on wrong feet.Wore shirt inside out. Thinking back you just gotta…