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1st Recurrence
Well, I had 10 great healthy months and now my first recurrence. Ironically, a year to the day that I was declared NED, I had my port put back in on Friday. Start chemo again tomorrow. My question is has anybody had Carbo/Doxil for recurrence after Cisplatin/Taxol the first time around? Was it easier? Did you lose your…
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Article in Globe and Mail - immunotherapy - trial for ovarian cancer patients?
Article in Globe and Mail. Mentions ovarian cancer.... I don't think I came across this trial in my research, but maybe I missed it.... http://www.theglobeandmail.com/life/health-and-fitness/health/scientists-unleash-the-power-of-immunotherapy-on-stubborn-cancers/article22371088/?click=sf_globefb "..., a participant in…
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Ovarian MMMT (Malignant Mixed Mullerian)
I am new. I was diagnosed with this cancer last Oct. 2014. Is there anybody else here who is battleing this cancer? Would love to hear from anybody.
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Vital Signs with Dr. Sanjay Gupta (CNN)
I came across this article and thought the Teal Warriors might enjoy: http://www.cnn.com/2014/12/30/health/cancer-cure-experiment/
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Happy new year
happy new year to all on this board , im now 3 months post 1st line treatment but numbers are going up from 33 , 39 now 45 so guessing I start more treatment once ct scans show something , this 3 months has been great there's even been the odd moment where I can forget, I've had a holiday to dubai , learnt to meditate and…
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we lost another teal warrior
chemo Princess...Natalie Nicole passed Dec 27....36 years old. She had been my friend for many years. she didn't visit this site too much..but a few years back she did. God bless you my friend
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Happy New Year
Happy New Year Ladies, Just popping in to wish all of you the very best New Year. I try to read through the posts as much as time allows. Life is keeping me busy. I have a new grandbaby that I watch a few times a month, and have been doing a bit of travelling with my hubby or my older grandkids. Just living and loving as…
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Perineal burning?
Hi there. I am going through my third regimen of Carbo/Taxol, started 5 weeks ago. Suddenly on the 26th I started experiencing some burning in the perineal area. No improvement in the last three days, and there is a definite "ouch" on urination, but it doesn't feel like a bladder infection, which I used to get years ago.…
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cisplatin & chronic kidney disease CKD
I was recently diagnosed with Stage III CKD (chronic kidney disease). I have no known risk factors i.e. high blood pressure, high cholesterol, overweight, family history, race, etc. except my age,74. I've been pondering this and wondered if it could be related to my ovarian cancer treatment almost 17 years ago. I had 6…
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The cost of cancer
I have pretty much had it as the medical community is sucking every last cent out of us. I am on SS disability, my husband was forced to take early retiremenrt during the latest recession (which is supposed to be over...ha-ha) so he has reduced SS benefits and a small pension (which automatically takes $350 monthly for his…
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How Psychedelic Drugs Can Help Terminal Patients Face Death
I came across this old NY Times article and found it interesting. Maybe you will too. I'm neither advocating taking illegal drugs nor trying to offend anyone's religious feelings.
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Merry Christmas
Merry Christmas! Hope you have a gret day! Hug your family and lived ones. Blessings to you!
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Loss of appetite and nausea
I am currently taking irinotecan. (this is my 9th drug). This is the first time I am dealing with loss of appetite. I'm also experiencing nausea and vomiting. I have lost 7 lbs. since beginning this drug the end of October. The dr. said this drug is hard on the digestive system. I have weight to lose, but this isn't good.…
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I finally finished my book! Hope to spread OVC awareness
Hello, It has been a while since I posted here. Some of you might remember my sister Julie, who I had mentioned. She lost her life to ovc at the age of 46 after 14 months of fighting this disease. I am not an author, but just a heartbroken sister, who loved her baby sister. I wrote a book, Julie's Journey, to honor her and…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Fighting the beast again.
I don't come on here much. I guess Facebook has me in it's clutches. I am in treatment for my second recurrence. It is going well. After first chemo I had a 7-day stint in the hospital, 4 days in ICU. My onc adjusted my chemo dosage (I wasn't aware that could be done) and has me take Neupogen for 7days following chemo.…
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Cancer and Depression
Does anyone else struggle with depression? I seem to wake up everyday and go to bed every night depressed, anxious and sad. I just don't know how to shake this. Anyone been thru this? What did/do you do? Any suggestions will be appreciated! Kathy
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decisions
Hello Ladies, Did any of you ladies have endometrial cancer and decided to remove only your uterus and developed ovarian cancer. I was recently diagnosed with stage one of endometrial cancer and they suggested that I get a a hysterectomy but I want d to keep my ovaries in case I want to still have kids in the future and…
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Good news for BRCA mutants!
FDA today approved Olaparib as a treatment for advanced OC for BRCa mutants ( such as myself) this offers an alternative to chemo that has fewer side effects and a good response rate. our Alexandra had a good result with a PARP inhibitor....wahoo!
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Fluid retention
What causes fluid retention around the ankles? Every few weeks they put me on lasix to reduce the swelling but don't want to put me on it on a regular basis as it could cause kidney damage (if I have that right). Due to see doc today, would like to be able to discuss with her intelligenly. Thanks for any info you can…
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FDA Approves Avastin for Recurrent platinum-resistant Ovarian Cancer
http://www.medpagetoday.com/HematologyOncology/OvarianCancer/48597 Swiss drugmaker Roche said Friday that the Food and Drug Administration approved its drug Avastin as a treatment for ovarian cancer. Roche said the FDA approved Avastin in combination with chemotherapy as a treatment for recurrent cases of cancer that are…
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Radiation for ovarian cancer
Has anyone had good results with radiation for ovarian cancer? Just finished 6 rounds of topotecan. Counts are climbing. I have two lymph nodes that are growing, probably about 6 that are stable but still there and CT scan shows a small amount of asicites (which probably scares me the most). Onc says while they don't…
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5 Year anniversary today
Exactly 5 years ago today I was operated on for ovarian cancer. Just to let you know there is hope. I am doing well and feel good. Praise God for healing
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parb trial
I finished my 1st reoccurence treatment with gemzR and carbo about five weeks ago. My CA125 normalized to 7. This week I started the niraparib/placebo trial. It is of course a double blinded study, so i don't know if I am taking the drug. If anyone has any info to share about the parp inhibitors, I would appreciate it. Kim
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Shingles & elevated ca#
Hi all I had my 2nd 3-month appt today 4,000 at dx in May 13 & 16 arter debulking & last tx Apr 14 CT & PET= NED My ca May = 36 today' s=130 I have a bad cold & broinchial cough saw my fam doc yesterday to dx shingles - early & on anti=viral had my blood test about a weewk ago - so both those things would have been going…
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What if my new doctor hates me?
I posted what's below on my Caring Bridge blog a few days ago, so some of you may already have seen it. But I was just wondering if anyone else found themselves in a situation where a doctor was apparently alienated. Does it matter? I don't have ovarian cancer, but this same doctor I've described below once told me I…
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Happy Thanksgiving!
Blessings to you this holiday morning from the Pacific Northwest! Today I am thankful for my husband of 23 years, my two boys, my family, friends, community and home. I am thankful for love and for life. God is good. What are you thankful for?
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Three month scans show continued disease progression
My OVCA continues to progress. I'm dealing with both lung and liver mets. However, my dr. said he has three more drugs to try. He said if those don't work, maybe by then something else will come along. I will see a urologist on November 7. He said I will most likely have a stent put into one of my kidneys as one is not…
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newbie
Hi, I am new here and glad to have found this messageboard. I was diagnosed on july 31 of this year with OC. I thought I had a bowel blockage so i went to the er. To my surprise and thiers, I had a ovarian tumor the size of a grapefruit. I had been very bloated and just not feeling well. That night my mother passed away in…
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2 time survivor
I've been away from this board for far too long. My name is Leesa and I'm a two time survivor. I was diagnosed at stage 3c in January 2010 and rediagnosed stage 4 after brain mets in 2011. I'm still going strong. Don't ever give up hope, I think my survival is partially due to a refusal to acknowledge the effects of the…