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What a weekend!!!!
Dear Ladies, What a what a weekend. Friday morning a friend was taking me to a couple of appointments. She could not get me to respond. She noticed my van in the parking lot. She went to the my manager's apartment. She let could get not get me to respond, She went to my apartment manager. When she unlocked my door, I was…
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Hi Everyone... It has Been A Long Time....
Hi ladies... It has been a long time since I posted in here but I come in all the time and read to stay up to date. I us mostly my tablet these days and it is so much quicker to type on my laptop..... Since I posted last we have moved again.... Yikes. Third time since we moved to New Hampshire in April 2013.. They say…
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Has your OC's DNA been sequenced?
Met with the gyn/onc surgeon yesterday to discuss what comes next, after I had a bad reaction to Doxil, new tumors were discovered, & my CA125 was not going down much. So Gemzar is next for me. The whole story is here: http://CaringBridge.org/visit/CaroleSeaton But what I wanted to know is this: have any of you had your…
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Stupid Google. I need to hear your brain mets success stories
Hi Ladies, As I reported last week, my 3 month scans continue to show worsening of the disease. From the neck scan, a spot was found on the lower brain. I am scheduled for an MRI Friday (Feb 6). I am scheduled to see the radiation doctor on the 10th. I am terrified. Now like I know I shouldn't have done, I just googled the…
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Pedaling with Purpose
I was flipping through the inflight magazine and saw a picture of women sitting on bicycles and it was "Wheel to Survive" and was SHOCKED to see that this fundraising event was founded in 2012 by the Be the Difference Foundation, a groups started by four ovarian cancer survivors. Upcoming Wheel to Survive events: Dallas -…
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New; questions about symptoms; appt w/ GYN ONC
Hi everybody. I have history of endometriosis (including cysts & an endometriomas) without ever having elevated ca125. Last 3 ultrasounds showed persistent complex mass on left ovary (with some growth, but not substantial) and smaller one on right. I am hoping it is another endometrioma yet an MRI showed septations I think…
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Planning for the future
Sorry about this long post. I am trying to organize my thoughts by putting them on "paper". Quick recap: I am BRCA+, diagnosed OVCA 3C in May 2012, had optimal THBSO, 7 rounds of IV Carbo/Taxol. After 9 months remission recurred in Sep. 2013, refused more chemo, no treatment for 8 months. Since Apr. 2014 been on PARP…
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fatigue post- Christmas exhaustion
Hi all As most of you know I completed my first-line tx for OvCa in April -- 8 mos ago-- also I am a 12 yr survivor of a giant-golf-ball size brain anneurysm that left me with severe stroke deficits & paralysis on my left side. The brain damage from the stroke is known to cause true fatigue. MY QUESTION IS from your…
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Scan report is in, and it's not good...
Hi Ladies, I had my scans this morning. My wonderful dr. called me with the results this afternoon. First of all, I now have brain mets. This showed up in the lower part of the brain. He is starting me on steroids tomorrow. He hopes by next week to have an MRI and set me up with the radiation dr. I had an MRI in June was…
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Those DREADED scans!
Hi ladies, Tomorrow (29th) I have my dreaded 3 month scans. Every scan since Dec. 2013 has been showing disease progression. I have been on irinotecan for 3 months. My dr. says we have more reason to hope, since this drug came back as one beneficial on the test. (Where they re-construct the tumors, can't remember what it's…
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Scan
Good luck on your scan tomorrow, Alexandra. I'll keep my fingers crossed
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Has anyone had ROMA (risk of ovarian malignancy algorithm) test prior to diagnosis?
Hello all I have had an 8cm complex ovarian cyst for at least 11 months. It was found during an u/s to date my pregnancy but my OB assured me that due to my age (31) it was probably nothing and recommended we check it after delivery. I was scheduled to have it and the ovary removed but my ROMA came back high so now I have…
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Stage 1 Mucinous and 23
Hi, this past August I was diagnosed with what it seems to be stage 1c mucinous that ruptured during surgery. I understand that this type of cancer needs to be differentiated from other abdominal cancers and I just want to know others' experience with this type? I had 4 rounds of Carbo/taxol. Prior to surgery my ca-125 was…
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1st Recurrence
Well, I had 10 great healthy months and now my first recurrence. Ironically, a year to the day that I was declared NED, I had my port put back in on Friday. Start chemo again tomorrow. My question is has anybody had Carbo/Doxil for recurrence after Cisplatin/Taxol the first time around? Was it easier? Did you lose your…
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Article in Globe and Mail - immunotherapy - trial for ovarian cancer patients?
Article in Globe and Mail. Mentions ovarian cancer.... I don't think I came across this trial in my research, but maybe I missed it.... http://www.theglobeandmail.com/life/health-and-fitness/health/scientists-unleash-the-power-of-immunotherapy-on-stubborn-cancers/article22371088/?click=sf_globefb "..., a participant in…
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Ovarian MMMT (Malignant Mixed Mullerian)
I am new. I was diagnosed with this cancer last Oct. 2014. Is there anybody else here who is battleing this cancer? Would love to hear from anybody.
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Vital Signs with Dr. Sanjay Gupta (CNN)
I came across this article and thought the Teal Warriors might enjoy: http://www.cnn.com/2014/12/30/health/cancer-cure-experiment/
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Happy new year
happy new year to all on this board , im now 3 months post 1st line treatment but numbers are going up from 33 , 39 now 45 so guessing I start more treatment once ct scans show something , this 3 months has been great there's even been the odd moment where I can forget, I've had a holiday to dubai , learnt to meditate and…
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we lost another teal warrior
chemo Princess...Natalie Nicole passed Dec 27....36 years old. She had been my friend for many years. she didn't visit this site too much..but a few years back she did. God bless you my friend
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Happy New Year
Happy New Year Ladies, Just popping in to wish all of you the very best New Year. I try to read through the posts as much as time allows. Life is keeping me busy. I have a new grandbaby that I watch a few times a month, and have been doing a bit of travelling with my hubby or my older grandkids. Just living and loving as…
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Perineal burning?
Hi there. I am going through my third regimen of Carbo/Taxol, started 5 weeks ago. Suddenly on the 26th I started experiencing some burning in the perineal area. No improvement in the last three days, and there is a definite "ouch" on urination, but it doesn't feel like a bladder infection, which I used to get years ago.…
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cisplatin & chronic kidney disease CKD
I was recently diagnosed with Stage III CKD (chronic kidney disease). I have no known risk factors i.e. high blood pressure, high cholesterol, overweight, family history, race, etc. except my age,74. I've been pondering this and wondered if it could be related to my ovarian cancer treatment almost 17 years ago. I had 6…
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The cost of cancer
I have pretty much had it as the medical community is sucking every last cent out of us. I am on SS disability, my husband was forced to take early retiremenrt during the latest recession (which is supposed to be over...ha-ha) so he has reduced SS benefits and a small pension (which automatically takes $350 monthly for his…
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How Psychedelic Drugs Can Help Terminal Patients Face Death
I came across this old NY Times article and found it interesting. Maybe you will too. I'm neither advocating taking illegal drugs nor trying to offend anyone's religious feelings.
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Merry Christmas
Merry Christmas! Hope you have a gret day! Hug your family and lived ones. Blessings to you!
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Loss of appetite and nausea
I am currently taking irinotecan. (this is my 9th drug). This is the first time I am dealing with loss of appetite. I'm also experiencing nausea and vomiting. I have lost 7 lbs. since beginning this drug the end of October. The dr. said this drug is hard on the digestive system. I have weight to lose, but this isn't good.…
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I finally finished my book! Hope to spread OVC awareness
Hello, It has been a while since I posted here. Some of you might remember my sister Julie, who I had mentioned. She lost her life to ovc at the age of 46 after 14 months of fighting this disease. I am not an author, but just a heartbroken sister, who loved her baby sister. I wrote a book, Julie's Journey, to honor her and…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Fighting the beast again.
I don't come on here much. I guess Facebook has me in it's clutches. I am in treatment for my second recurrence. It is going well. After first chemo I had a 7-day stint in the hospital, 4 days in ICU. My onc adjusted my chemo dosage (I wasn't aware that could be done) and has me take Neupogen for 7days following chemo.…
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Cancer and Depression
Does anyone else struggle with depression? I seem to wake up everyday and go to bed every night depressed, anxious and sad. I just don't know how to shake this. Anyone been thru this? What did/do you do? Any suggestions will be appreciated! Kathy