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Update on my mom.
So from my last post til now there has been little change. Mom is still in ICU on the ventilator, they give her daily breathing tests to see if the ventilator can be removed but she continues to fail them since her blood pressure, c02 levels and blood acidity increase. There are shadows on her chest x-rays that the…
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should I get a second opinion - help - new to this
Hello, OK I have a 16cm complex mass, my CA125 is at 21. My doc said she is going to surgically remove the mass and one ovary. She said she will do a vertical incision for 2 reasons. 1. The mass is large and 2. she wants to look inside my stomach. She said it still looks suspicious - fair and something about a left wall…
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Has anyone been hospitalized and sedated?
It's been a rough couple of weeks. My mom had to stay in the hospital after they put in her left plurex catheter for a pneumerthorax, she was there for 4 days before it was resolved. While there she requested a ua done because she thought she had a uti, turns out she did and they gave her antibiotics to take home. I…
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Good news/bad news
Good news first.......after finding a reoccurance of ovarian cancer (after 4 1/2 years!) my petscan came out CLEAR....NO SIGN OF CANCER!!!!!! Bad news.........8 more chemo treatments to complete the plan, for "good remission" Ended up in the hospital for 2 days last week, got a transfusion..........at least my numbers were…
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dropping CA125 numbers
I just had blood work yesterday before chemo (only 3 more to go after yesterday). My CA125 is down to 12.5. which my doctor says is my "baseline"......he showed me the graph where that is what I tested at when my catscans came out NED in the past. I said, great, let's see it go down even lower. It took a while for me to…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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waiting for results
Well doc found a 16cm mass on my ovary. Had MRI and ultrasound done. So far, she said no swollen lymphnodes, no fluid build up. and mass does not look that complex. Waiting for bllod work to come back. Will I need surgery, if so, how bad is the surgery.
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happy new year everyone!
It's the Jewish New Year and I want to wish everyone a healthy, happy year to come....may we all be inscribed in the Book of Life for the New Year!
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Finished
Today I had my tattoos for my double mastectomy. I am now finished with plastic surgery. The first week of October I see my oncologist for the 3 month ovarian check up. Life is good!
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Out of office
Tomorrow morning I'm flying to Paradise Island, Bahamas for a week. My PARP drug is coming on vacation with me. To those who've been on this board for a while and know me: this time I'm going with my husband of 21 years, so I must behave and don't expect any R-rated stories when I come back; OK maybe a few. Ladies, I will…
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Call me crazy
I have been in chemo for just about three years now.and I know what it is. I have asked several people what they were on..they had no idea...some didn't want to know! Are they crazy....the most important med they are given...I was just dumbfounded , have any of you come across this? Hope you are are well....me still…
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Crap, it's back...
Just read an e-mail from my Cousin in Michigan... her CA126 has been going up big time.. and a scan told the tale... the Crap Cancer is back.. Neck, Liver and Lymph Nodes near the Vena Cava... Boooo........ I sent her an e-mail with some info... thanks to you ladies... and of course I told her she can call me 24/7. No, I…
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Anybody had the cold while on chemotherapy?
It looks like my mom finally caught the bug that Dad says he caught at the hospital. I caught it after him but even with the massive amounts of lysol I was spraying around, she started coughing today. For my Dad and myself we felt awful for one day and then had lingering congestion. I don't know how bad it will get for her…
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Diverticulitis. Oh my, any suggestions?
Good evening to everyone continuing the fight of this miserable disease. I have not been on for awhile as the last few months have been very difficult but I always get great encouragement from positive reports from others that are hanging in there. No one really knows what it is like except for you ladies on this site. I…
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Tell me how to cope with Doxil
Hi, everyone! I've had a pleasant few months on Gemzar. It gave me absolutely no side effects except tiredness/fatigue. Unfortunately, it was not giving my cancer a hard time, either! So, tomorrow, I start Doxil. I am surprised at the level of anxiety I am feeling, because I have read many posts about the nasty side…
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SO BLESSED - Onc appt today still with NED -- Hope this isn' tduplicate post stroke short term memo
I m s I saw Onc today as a follow up to CT & PET last week Dx stage 3C 4” & tumor on left Ovary Ca125 was 4,000 May 2013tx started May 2013 to shrink tumors enough for debulking after 2 rounds of chemo shrinkage was finally good enough for debulking in Oct luckily I had uterus out yrs earlier. Of course chemo post…
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Teal ribbons jewelry t-shirtsis there a
Hi gals I am wondering if there is a legit fundraising site to purchase some of these Ovarian cancer items I am hoping the proceeds would go either to the Canadian or American cancer societies. aany one have any exoerience with this - thot I might get something to stimulate questions & conversation for OvCa awareness…
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Swith to Carboplatin (Inject from IV port ) instead of cisplatin (from IP port)
Hi: One of my oncology call me today. I am schedule for chemo next week. Originally they are plan to use Taxol (First day from my chest port) and Cisplatin (second day IP chemo, direct to my abdomen) but my doctor consider the side effect and other issue it may occur in the future. She decided switch to Carboplatin (Inject…
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Has anyone had a plurex catheter? Something weird just happened.
Warning, if you have a weak stomach please stop reading now, this is gross and not too much weirds me out. OK, so my mom has had the plurex catheter installed in her right plurel cavity maybe 2-3 weeks ago. I set her up and do the draining which has steadly been decreasing over the past week. Yesterday, we only got about…
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Teal Toes and Fingers for OVC Awareness month
Teal toes and fingers
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Mixed Results
My mother had her CT scan last week and we finally got the results today, which were not that encouraging but could have been worse. The scan shows that most of her tumors have remained around the same size. The only one that grew was the one they initially thought was a cystic tissue but now appears to be a tumor. We were…
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Avastin tough
Hi all had chemo no 5 with avastin added and it has been awful the side effects that i seem able to cope with when on chemo alone are magnified , neuropathy , constipation , headaches , decided to get some fresh air 5days after treatment and passed out ! Blood tests being done now to see whats up , needless to say I'm not…
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6th Chemo Today, but May Have to Endure a 7th
I was diagnosed with an ovarian cancer and have gone through Taxol/Carboplatin chemo over the past 4 months, 6 rounds so far. My CA 125 jumped after the first chemo from 170 to 446. It has gradually been coming down after each chemo session, but my doctor is concerned as to why it has remained high (even though it is…
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Can some one please give me some advise
Hi: I am new member for American Cancer Society. Last month diagnosis and doctor told me I got ovarian cancer stage III. I done the surgery last month, Removed the tumor and both of my ovarials. Doctor told me I need chemo as soon as possible. (I don't think I am fully recover yet! only been 5 weeks, still not feeling…
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Bad couple of weeks
had my last chemo August 15th....while recouping I developed two rectal abcsesses and other cheek rectal fistula acted up....had surgery one week after chemo. I was supposed to go visit my son in Atlanta. Very painful and will probably come back...surgeon says it's probably from chemo...these are very life threatening to…
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Had my post chemo scan with disappointing results
After 6 miserable rounds of carbo/gemzar/avastin my ca125 is 5...good, no? The scan, however, still shows tumors. While smaller by half, they are still there. The 64 thousand dollar question is....are they cancer, are they scar tissue or are the tumors still gonna shrink? The answer is...don't know, come back in 3 months,…
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How to cope with Taxol and Cisplatin ( for IV and IP Chemo )
Hi: I am new member to American. I am going to start my chemo next week. Doctor told me I need IP and IV both (First IV for TAXOL, Second day IP for Cisplatin) I am super norvious. I read so many side effect may happen. Can any one tell me how to cope with them ? Thank you so much
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Ascites for the 1st time ever. I gained 5 lbs. of fluid weight in 3 days. :(
I guess each of us has something that frightens us, and for me it has always been ascites. I too vividly remember Linda Dorian and Nancy and the ascites they had so bad at the end. I guess I associate sudden weight loss and ascites with the 'end of days', so to have ascites for the 1st time myself..... I gained 5 pounds…
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Anyone have sister or sisters that are BRCA positive if you are negative (or vice versa)??
I was diagnosed in 1/2013 w/stage 1c OC. My mother's family - at least the one's I know of have a big history of Breast Cancer - 2 of her sisters died young 37 and 50 years old -- the one that was 37 died back in the early 1970s, the other one in the early 1990s. I also have 2 cousins who are sisters (their dad is my mom's…
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Carboplatin real allergy
I have a real allergy to Caboplatin and have tried desenitiazation twice and both times failed. I am told that this is the best hope to go along with my taxsol for stopping my recurrance and giving me more time. I am finding it hard to believe that all the doctors in the world put all their eggs into the one basket of…