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Good But Not Great
I'm sorry it's been so long since my last post which was rather bleak sounding, we have been very busy a very tired. My mother woke up after they removed the ventilator and she started breathing on her own. She spoke a few words that day and has been improving since. I would like to thank everybody for their kind thoughs…
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Side effects Taxol/Carbo
Hello, my mom was recently dxd with OC in August. She underwent a massive resection/Debulking surgery bc her tumors presented inside the colon/rectum. All pathology states OC stage 4. She spent 12 days in the hospital and her incision site became infected. She had to wear a wound vac pump for 9 weeks. It has now healed…
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To my teal sisters
Lovely ladies, I read your threads and my heart cries for what you all have gone through. Ovarian cancer is such a tough one and too often doctors aren't watching for the symptoms until it is late. Today I had my quarterly doctor visit and as I sat in the waiting room a young couple came in and sat down. I don't know about…
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Happy Halloween! (an early start) Stay safe and healthy!
Please post pictures of your costumes or decorations, the scarier and sexier the better. Boo!
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Unsure
I've been reading this board for awhile because of symptoms Ive been having and need some advice on how to proceed. Almost a year ago I experienced right ovary pain during sex. I went to my gynecologist who did feel it during the pelvic exam ( or caused me to feel the pain) and scheduled me for an ultrasound. Between the…
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Please Pray For My Mother
So, I know my last post sounded promsing but in the meeting with the pulmenologists and palitive care doctors today, it did not go well. The steroids have decreased her inflammation some but not enough. Her breathing test this morning was poor and she had to go back on support. They cannot leave the trach tube in any…
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New Update on Mom
Today, we had good news they had switched her sedation from verset(sp?) which is similar to valium to propoflo (the michael jackson drug) and that has eased her discomfort greatly. They also took her off of the blood pressure supporters and she managed her pressure on her own. Her fever was once again into normal levels…
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I wish you a blessed and meaningful Yom Kippur, Day of Atonement
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Update on my mom.
So from my last post til now there has been little change. Mom is still in ICU on the ventilator, they give her daily breathing tests to see if the ventilator can be removed but she continues to fail them since her blood pressure, c02 levels and blood acidity increase. There are shadows on her chest x-rays that the…
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should I get a second opinion - help - new to this
Hello, OK I have a 16cm complex mass, my CA125 is at 21. My doc said she is going to surgically remove the mass and one ovary. She said she will do a vertical incision for 2 reasons. 1. The mass is large and 2. she wants to look inside my stomach. She said it still looks suspicious - fair and something about a left wall…
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Has anyone been hospitalized and sedated?
It's been a rough couple of weeks. My mom had to stay in the hospital after they put in her left plurex catheter for a pneumerthorax, she was there for 4 days before it was resolved. While there she requested a ua done because she thought she had a uti, turns out she did and they gave her antibiotics to take home. I…
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Good news/bad news
Good news first.......after finding a reoccurance of ovarian cancer (after 4 1/2 years!) my petscan came out CLEAR....NO SIGN OF CANCER!!!!!! Bad news.........8 more chemo treatments to complete the plan, for "good remission" Ended up in the hospital for 2 days last week, got a transfusion..........at least my numbers were…
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dropping CA125 numbers
I just had blood work yesterday before chemo (only 3 more to go after yesterday). My CA125 is down to 12.5. which my doctor says is my "baseline"......he showed me the graph where that is what I tested at when my catscans came out NED in the past. I said, great, let's see it go down even lower. It took a while for me to…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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waiting for results
Well doc found a 16cm mass on my ovary. Had MRI and ultrasound done. So far, she said no swollen lymphnodes, no fluid build up. and mass does not look that complex. Waiting for bllod work to come back. Will I need surgery, if so, how bad is the surgery.
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happy new year everyone!
It's the Jewish New Year and I want to wish everyone a healthy, happy year to come....may we all be inscribed in the Book of Life for the New Year!
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Finished
Today I had my tattoos for my double mastectomy. I am now finished with plastic surgery. The first week of October I see my oncologist for the 3 month ovarian check up. Life is good!
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Out of office
Tomorrow morning I'm flying to Paradise Island, Bahamas for a week. My PARP drug is coming on vacation with me. To those who've been on this board for a while and know me: this time I'm going with my husband of 21 years, so I must behave and don't expect any R-rated stories when I come back; OK maybe a few. Ladies, I will…
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Call me crazy
I have been in chemo for just about three years now.and I know what it is. I have asked several people what they were on..they had no idea...some didn't want to know! Are they crazy....the most important med they are given...I was just dumbfounded , have any of you come across this? Hope you are are well....me still…
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Crap, it's back...
Just read an e-mail from my Cousin in Michigan... her CA126 has been going up big time.. and a scan told the tale... the Crap Cancer is back.. Neck, Liver and Lymph Nodes near the Vena Cava... Boooo........ I sent her an e-mail with some info... thanks to you ladies... and of course I told her she can call me 24/7. No, I…
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Anybody had the cold while on chemotherapy?
It looks like my mom finally caught the bug that Dad says he caught at the hospital. I caught it after him but even with the massive amounts of lysol I was spraying around, she started coughing today. For my Dad and myself we felt awful for one day and then had lingering congestion. I don't know how bad it will get for her…
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Diverticulitis. Oh my, any suggestions?
Good evening to everyone continuing the fight of this miserable disease. I have not been on for awhile as the last few months have been very difficult but I always get great encouragement from positive reports from others that are hanging in there. No one really knows what it is like except for you ladies on this site. I…
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Tell me how to cope with Doxil
Hi, everyone! I've had a pleasant few months on Gemzar. It gave me absolutely no side effects except tiredness/fatigue. Unfortunately, it was not giving my cancer a hard time, either! So, tomorrow, I start Doxil. I am surprised at the level of anxiety I am feeling, because I have read many posts about the nasty side…
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SO BLESSED - Onc appt today still with NED -- Hope this isn' tduplicate post stroke short term memo
I m s I saw Onc today as a follow up to CT & PET last week Dx stage 3C 4” & tumor on left Ovary Ca125 was 4,000 May 2013tx started May 2013 to shrink tumors enough for debulking after 2 rounds of chemo shrinkage was finally good enough for debulking in Oct luckily I had uterus out yrs earlier. Of course chemo post…
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Teal ribbons jewelry t-shirtsis there a
Hi gals I am wondering if there is a legit fundraising site to purchase some of these Ovarian cancer items I am hoping the proceeds would go either to the Canadian or American cancer societies. aany one have any exoerience with this - thot I might get something to stimulate questions & conversation for OvCa awareness…
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Swith to Carboplatin (Inject from IV port ) instead of cisplatin (from IP port)
Hi: One of my oncology call me today. I am schedule for chemo next week. Originally they are plan to use Taxol (First day from my chest port) and Cisplatin (second day IP chemo, direct to my abdomen) but my doctor consider the side effect and other issue it may occur in the future. She decided switch to Carboplatin (Inject…
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Has anyone had a plurex catheter? Something weird just happened.
Warning, if you have a weak stomach please stop reading now, this is gross and not too much weirds me out. OK, so my mom has had the plurex catheter installed in her right plurel cavity maybe 2-3 weeks ago. I set her up and do the draining which has steadly been decreasing over the past week. Yesterday, we only got about…
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Teal Toes and Fingers for OVC Awareness month
Teal toes and fingers
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Mixed Results
My mother had her CT scan last week and we finally got the results today, which were not that encouraging but could have been worse. The scan shows that most of her tumors have remained around the same size. The only one that grew was the one they initially thought was a cystic tissue but now appears to be a tumor. We were…
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Avastin tough
Hi all had chemo no 5 with avastin added and it has been awful the side effects that i seem able to cope with when on chemo alone are magnified , neuropathy , constipation , headaches , decided to get some fresh air 5days after treatment and passed out ! Blood tests being done now to see whats up , needless to say I'm not…