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Need Advise!
Hello Ladies, I'm coming from the Lymphoma board in need of some advise, hope someone can help me. I've had some problems with my menses, my period began on April 23 and has not stopped till this day. I went to the emergency room on mother's day but the Dr only found some cyst and told me to go to my Dr or to a…
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"Right to Try" bill - compassionate care triumph or a cruel joke?
Governor John Hickenlooper signed into law Colorado House Bill 14-1281, The Right to Try Act. The bill was co-sponsored by a retired physician and supported by others who wish to improve access to unapproved, investigational drugs for terminally-ill patients. Similar “Right to Try” bills are pending before state…
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Update, reoccurance and surgery
I have an official reocurrance. Last week I had surgery. My new surgeon was unable to reduce my tumors optimally, but felt he was able to get a lot of tumor. He also stated, I was close to a bowel obstruction and thus had some bowel repair to do. I was hospitalized 8 days and got home yesterday. It is good to be home. I…
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Ovarian Cancer Awareness
My niece had the teal on her mortar board at her college graduation to honor the memory of her mother, my sister, Julie, age 46, who lost her battle March 20. So proud of my niece. See my profile picture. Debbie
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ct scan
So I got my results of my ct scan on wednesday, the two lymph nodes that they found have not grown nor have they shrunk. My oncologoist is telling me that I am stable. There are no new nodes but for some reason my CA number is rising. So we are going to do 3 more rounds of my current chemo which is Doxil then another scan.…
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Gabapentin & water retention - ankles swollen by night time & Lyrica ?
any onr else noticed this with gabapentin? I read it could be a side effect -cbut you never what drug is causing it I'm on 1200 mg/day 400 3 times a day I was talking to a breast cancer survivor a few days ago while visiting at the smalll hospital where I last had tx & got onto neuropathy - she switched to Lyrica froim…
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Shortness of breath
I've just had my second round of carbo/gemzar/avastin for a first recurrence. I am so short of breath, I can hardly walk from one room to the next. I talked to my gyn/onc's nurse who was unconcerned and said it is a side effect of all the meds. My bloodwork was ok enough to do the chemo...hemoglobin was 9.2 and white blood…
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Ovarian Cancer and treatment?
I went to the ER yesterday and hoibble pain in my lower belly. (abdominal pain) I had the pain for a few days. ( I still have it) After blood work, urine test, ct scan and ultrasound I found out I have cyst on my right ovary. The ER doctor said it looks very complex and possibly cancerous. He gave me a name and a number to…
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PET scan next & 1 year since dx
I wa diagnosed a year ago in May -- 1st TX May 27/ saw my gyne onc Weds May 15 to review CTScan~ finished Tx Apr 1 at first it was 3 mos to start Wait & see program then another doc ( this is a teaching hosp) came in with opitions as some spots were seen could go another round of chemo - in hopes of getting them.OR we…
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Saudi cleric says driving risks damaging women's ovaries
Women who drive risk damaging their ovaries and pelvises and producing children with clinical problems, according to a conservative Saudi cleric. http://www.bbc.com/news/world-middle-east-24323934 Not to critisize anybody's religion but... has anyone ever damaged their ovaries while driving? Excluding adventurous ladies…
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Alexandra
Hey there. Just wanted to check in and see how the trial going? Any new news to report? I am thinking about you and hope all goes well.
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Some sad News
I have been unable to message on this board for many months because of some tempremental cyber problem I knew I wanted to persist today. After quite a few hours I finally made it back. I knew that many of you would remember the beautiful Juliebelle with that lovely smile and I also knew you would be saddened to know that…
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ARIMIDEX (ANOSTROZOLE) QUESTION
Hi Everyone: I've been on the Anostrozole (1mg daily) for about 2 months now. Side affects for me have been massive weight gain, painful joints, occasional headaches, just to name a few. Before I started taking it the doctor said the side effects are 'temporary' and subside after 6 months or so. I am all for sticking…
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IP chemo
Anyone who has done IP chemo please post what your protocol was. Did you have to ve in the hospital for it? Kim
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Happy Mother's Day!
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Ativan/lorazepam for everyday use?
First of all thank you to all of the wonderful people on this site who continue to fight the fine fight and who are willing to share your experiences, triumphs, and fears with others so that we know we are not crazy. Currently I am on chemo for stage 3c ovarian cancer. Recently my nerves seems to have been getting the best…
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Sad news - Loewenhart
Maureen (Mo) passed away peacefully yesterday morning shortly after 2:00am. There is no words to make it easier. We never met but I feel like I knew Mo personally. She was such a wonderful vibrant lady. I will miss her strength and encouraging words. Rest in peace dear Teal Sister.
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Gemzar and fatigue
Hi Ladies. For those of you have taken gemzar, did you experience extreme fatigue? This past Friday I took week 3 (3 weeks on, one week off) of cycle number 2. I am SO tired and sleepy. I have had carbo/taxol, cistplatin, doxil and topotecan. Doxil caused fatigue, but nothing like gemzar. Hope all of you are getting ready…
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The week in review: my cancer journey
Last week on Wednesday April 14, I had a CT scan. I spoke with the nurse on Thursday; she said the doc would call after he studied the scan with the radiologist and consulted his other expert friends. Office visit scheduled for later in month. by Monday, he hadn't called, so I assumed must not be much to report...life is…
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Reoccurance
Here is my follow up. Saw my gyn/onc today and received the results of my pet scan. At least 3 new tumors, 2 in my groin and one behind my liver. The plan is surgery again to debulk optimally again. Then IP/IV chemo therapy. Ca125 is 94 and where I have been having pain is where the tumors were found. Kim
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HELP! Attitude adjustment needed
It looks like it will be another beautiful day, but my mood is dark and dreary. I was first diagnosed in December 2011. I had the customary debunking surgery and carbo taxol regiment. Was NED for 14 months then it returned. Did 6 rounds of Doxil and avastin but counts went down then up to 22. I was doing okay mentally for…
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finally did my "about me page & made mistake I'd like to change & can't ----- insteasd of 23 grandd
I've tried to edit & can't get a cursor - i can highlght but can't delete *** any help would be appreciated** Stroke brain & chemo brain really mess up sometimes. tks Susan P
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What happened?
I am Julie's sister. My sweet, 46 year old sister, just passed away from Ovarian Cancer, just 14 months after initial diagnosis. Her husband and I were her caregivers, researchers, etc. We are still wondering what happened? We thought she was getting better, but I guess we had our head in the sand. I am on this site hoping…
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Shoes for neuropathy..
Have neuropathy is my feet because of chemo. Am having a hard time finding shoes that feel good. Any suggestions ? Thanks
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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I don't think I can do this
Had the devastating news of a third recurrence. CT scan finally showed signs of disease on my liver, and elevated CA 125, which has been climbing steadily from the teens or twenties to 300 since I finished chemo for my last (second) recurrence 15 months ago. I am so not up for this. The tears are flowing abundantly. In a…
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depressed
So I had my appt with my onc. today and it seems my CA number is rising, they are checking todays numbers. I guess they worry only when it consistly rises. I had my treatment today then will have a scan to see whats what. Its so depressing i just want to be over with this disease. It seems I take one step forward then 10…
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Life after Chemo
It has been two years and a half since my chemo but it seems like life will never be the same. I never feel 90% and it seems like it is one physical element after another. Am trying very hard not to get discouraged but it is hard. Was always so healthy until this came along and am now declared NED. Thank you God but just…
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Ovarian cancer recurrence
Hello... after 5 years cancer survivor, on March 2014 my cancer recurrence. the ct scan told I develop tumor in 4 cm and the tumor was blockage left kidney. With my limited English I' m trying to find information and a person who probably having similar issue with me to educated me with all the chemo and radiation. What…
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What's Coming Down the Pike
Hello Ladies..! OK, I have been reading around here for a while. But I did not find a thread of this type. Over in the Kidney secition one of our brainiacs started a thread with the above name. This has all the latest and greatest new treatments in Clinical Trials. Also for those that may not be aware there is this WEB…