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Time for reflection
Its hard to believe that we started this journey only 6 months ago, it seems like years have gone by. My arling wife of 37 years (as of a couple of weeks ago) went to the emergency room with a pain in the tummy and vomiting and was admitted. Over the next 4 days all sorts of scans and tests were done leading the surgeon to…
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New teal sister
Hello all , have been reading this site since being diagnosed on 1st April this year, some of you lovely ladies have made me laugh and cry and given me the strength to fight my diagnosis. After months of doctors visits for integestion tummy pain and bloating eventually a laparoscopy was done and I was diagnosed with stage…
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Need advice Ovary Removal
I need some advice. According to the cancer.org site women who have a "harmful" gene mutation in the brca 1 or 2 should consider removing the ovaries. My sister, who just died from OC at age 46 had a mutation that was Favor Polymorphiism in braca 1. I took the test and have the same mutation. However, according to my…
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Please Help I am So Scared!!
Hello to All! I Am new to this forum and searching frantically for answers or help. I am 32 (33 next month), I have had a long history since the age of 17 with severe endometriosis and pelvic adhesive disease as well as autoimmune thyroid disease. I'll try to keep this as condensed as possible . In April I ended up in the…
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NO BRAIN METS!!
I am so thankful and relieved. Thanks for all your support!! Carla
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Happy Father's Day!
Missing my dad today. He died 2009. He was a quiet, supportive, caring father.
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Finished out my mastectomy
Today I had a surgery to finish out my mastectomy. Evened out right and left and did the origami fold to creat the nipples. Next on the horizon, tattooing. All is well.
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Guidance to upload a pic - where do I start?
can siomeone point me to where I go to upload a snap of me. Tks Susan P
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Carla, how is it going today!
I'm thinking of you and hoping you feel calmer and less panicked. Susan
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Follow up to beginning tx for 1st recurrence
I met with an oncologist at the University of Chicago yesterday and another gyn -oncologist at Northwestern in Chicago. They both agree that standard chemo with a platium drug and another one such as gemzar, doxil or taxol would be appropriate. They also felt since I responded with initial treatment and I'm BRCA 1 that I…
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Anybody have Cyber Knife? Or know anybody who has?
Hi ladies, I habe a consult on June 18th to find out about cyber knife. I was wondering of anybody has had it done or know of anybody who has for ovarian cancer? I only found a few articles about it and ovarian cancer. It sounda definitely worth a shot especially for women with in operable tumors. Thanks Joyce Aka: Too…
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Doctor just called. Today's scan reports are BAD! I am beyond TERRIFIED!!
My dr. just called. I had a node come up in my neck, so he also ordered scans of it today. There is node activity in my neck. Also, they found a suspcious spot in the pons of my lower brain. He is scheduling an MRI for asap. He said if it has metasized there that he will do radiation. Also, I now have two spots in my…
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Medicare ?
Hi ladies, In August I will be eligible for medicare since I will have been on disability for 2 years. (I will turn 52 in August). Anyway, I have been working with an insurance agent to find my supplement and drug coverage. He said that most of the time medicare will not pay for clinical trials. That option is probably in…
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iDO inhibitor
Io was asked at las visit if I'd liketo take part in a clinical trial - I was excited hoping it was PARP after googling Parp - I think I have an idea ofhow it works. can't seem to find a simple explanation for IDO - the company is Incyte Tks Susan P from Alberta Canada &TX& WY
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Anybody on a Clinical Trial using MEK162 Drug?
Hi Ladies, The second opinion doctor I went to suggested two options for me. 1 is surgery but she that said she may be asking for trouble because due to the small size, position and the unkown of other possible site. I didn't really like that answer. The other options was a clinical trial for the Drug MEK162. IS anybody…
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Its back...:-( Does anybody have my type of Ovarian Cancer?
HI Ladies, I know I haven't been on here for a while because I pretended that I never had cancer. But after three years in remission its back. They found 3 small nodules on Pet scan. They are in deep pelvis. I am so frustrated because my type of ovarian cancer isn't "common" my oncologists say it doesn't really does not…
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dentist
Has anybody gone to the dentist while on chemo. If so what was the procedure. I really need to go.
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Good News from PET scan-- learning to take these things with a grain of salt
Hi all - I saw my gyne/onc yesterday & they are very pleased with the results- but there us a very small spot they are interested in following 1/4" square they are not convinced that it is or may be cancer because of its proximity to the surgical inscision SO I have an appt in 3 mos for a follow up PET & appt. not NED yet…
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Alexandra
Just wondering if you are ok.....missing your humor! Debra
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update..
A little while back I posted and asked a lot of questions. Here is a quick update. The hospital faxed all the paperwork, contrast ct scan results and my ultrasound results to my doctor. My doctor had me sign the release forms at my appointment and that's all we did. She called me the next day (weds) to inform me that has…
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Doxil-hair loss
I am starting Doxil at the end of this month. I have heard and read different comments about hair loss and Doxil. Some sites are saying I will loose my hair, others are saying I will probably have thining of the hair. I have lost my hair before, so this will not be new to me. I would just like to be prepared. I would like…
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It's been a while... 19 y/o stage 4
I've had a lot going on lately, so I haven't been able to make it back to these boards in a while, but it's been on my mind and I wanted to update you all on my progress. I don't remember what all I said before, I think the last I checked in was around the time I was having my breasts biopsied. So I'll do a quick recap. I…
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Kimberlysue
Been thinking about you all day..hope all went well with surgery today...
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Do any of you ladies live in the Memphis, TN area?
Hi Ladies, I was wondering if any of you live in the Memphis area? If so, who is your doctor? When my medicare begins in August, I will be able to see a gyn/onc. All 4 gyn/onc. are at West Clinic, which does not accept my current insurance. http://www.westclinic.com/gynecologic-oncology/center-for-gynecologic-oncol…
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tough day
I saw my surgeon today. It was 2 weeks from my surgery. It was great to get the staples out. Just a review, first diagnosed 3/2012 optimally debulked and did chemo dense treatment which ended October 2012. Low CA125 for 17 months, then started to rise until abnormal level in April 2014. Second surgery due to tumors found…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Pole dancing in teal
My 2 year "cancerversary" is in a few days. I was first diagnosed on May 3rd, 2012. Physically I am exactly in the same condition as I was 2 years ago. Recurrent cancer is uncontrolled, CA125 is 800+, moderate pain, yesterday I had 4.4 liters ascites drained and as of tomorrow I will be getting daily IV fluids at home in…
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Avastin
My mother was diagnosed Oct. 2012 with UPSC (rare grade 3 form of uterine cancer that acts like ovarian) We have been through radical hysterectomy, carbo/taxol 8 rounds, then 2 rounds doxil, and 2 more rounds of carbo/taxol. It's stopped working. She has ascites which has flared up again and they have noticed changes in…
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CA125 levels increasing after removal of two tumors
My sister is in recurrence--original DX in 02/11, stage IV B. She is scheduled to start chemo in a couple of weeks but has some concerns about the treatment plan. Her GYN had her tested for targeted chemo, but before the results have come back, her ONC has scheduled her for chemo. Additionally, she is not going to give her…
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Robotic surgery for one lymph node?
Hi all, I've just come to the end of 8 chemo-free months, and am facing my 2nd recurrence. The recent PET/CT scan shows one glowing lymph node, 2 cm in size. My gyn/onc gave me the choice of more chemo (the traditional 6 cycles), or robotic outpatient surgery to remove the offensive node, followed by two or three cycles of…