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Ovarian Cancer

Doctor just called. Today's scan reports are BAD! I am beyond TERRIFIED!!
My dr. just called. I had a node come up in my neck, so he also ordered scans of it today. There is node activity in my neck. Also, they found a suspcious spot in the pons of my lower brain. He is scheduling an MRI for asap. He said if it has metasized there that he will do radiation. Also, I now have two spots in my…
Medicare ?
Hi ladies, In August I will be eligible for medicare since I will have been on disability for 2 years. (I will turn 52 in August). Anyway, I have been working with an insurance agent to find my supplement and drug coverage. He said that most of the time medicare will not pay for clinical trials. That option is probably in…
iDO inhibitor
Io was asked at las visit if I'd liketo take part in a clinical trial - I was excited hoping it was PARP after googling Parp - I think I have an idea ofhow it works. can't seem to find a simple explanation for IDO - the company is Incyte Tks Susan P from Alberta Canada &TX& WY
Anybody on a Clinical Trial using MEK162 Drug?
Hi Ladies, The second opinion doctor I went to suggested two options for me. 1 is surgery but she that said she may be asking for trouble because due to the small size, position and the unkown of other possible site. I didn't really like that answer. The other options was a clinical trial for the Drug MEK162. IS anybody…
Its back...:-( Does anybody have my type of Ovarian Cancer?
HI Ladies, I know I haven't been on here for a while because I pretended that I never had cancer. But after three years in remission its back. They found 3 small nodules on Pet scan. They are in deep pelvis. I am so frustrated because my type of ovarian cancer isn't "common" my oncologists say it doesn't really does not…
dentist
Has anybody gone to the dentist while on chemo. If so what was the procedure. I really need to go.
Good News from PET scan-- learning to take these things with a grain of salt
Hi all - I saw my gyne/onc yesterday & they are very pleased with the results- but there us a very small spot they are interested in following 1/4" square they are not convinced that it is or may be cancer because of its proximity to the surgical inscision SO I have an appt in 3 mos for a follow up PET & appt. not NED yet…
Alexandra
Just wondering if you are ok.....missing your humor! Debra
update..
A little while back I posted and asked a lot of questions. Here is a quick update. The hospital faxed all the paperwork, contrast ct scan results and my ultrasound results to my doctor. My doctor had me sign the release forms at my appointment and that's all we did. She called me the next day (weds) to inform me that has…
Doxil-hair loss
I am starting Doxil at the end of this month. I have heard and read different comments about hair loss and Doxil. Some sites are saying I will loose my hair, others are saying I will probably have thining of the hair. I have lost my hair before, so this will not be new to me. I would just like to be prepared. I would like…
It's been a while... 19 y/o stage 4
I've had a lot going on lately, so I haven't been able to make it back to these boards in a while, but it's been on my mind and I wanted to update you all on my progress. I don't remember what all I said before, I think the last I checked in was around the time I was having my breasts biopsied. So I'll do a quick recap. I…
Kimberlysue
Been thinking about you all day..hope all went well with surgery today...
Do any of you ladies live in the Memphis, TN area?
Hi Ladies, I was wondering if any of you live in the Memphis area? If so, who is your doctor? When my medicare begins in August, I will be able to see a gyn/onc. All 4 gyn/onc. are at West Clinic, which does not accept my current insurance. http://www.westclinic.com/gynecologic-oncology/center-for-gynecologic-oncol…
tough day
I saw my surgeon today. It was 2 weeks from my surgery. It was great to get the staples out. Just a review, first diagnosed 3/2012 optimally debulked and did chemo dense treatment which ended October 2012. Low CA125 for 17 months, then started to rise until abnormal level in April 2014. Second surgery due to tumors found…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
Pole dancing in teal
My 2 year "cancerversary" is in a few days. I was first diagnosed on May 3rd, 2012. Physically I am exactly in the same condition as I was 2 years ago. Recurrent cancer is uncontrolled, CA125 is 800+, moderate pain, yesterday I had 4.4 liters ascites drained and as of tomorrow I will be getting daily IV fluids at home in…
Avastin
My mother was diagnosed Oct. 2012 with UPSC (rare grade 3 form of uterine cancer that acts like ovarian) We have been through radical hysterectomy, carbo/taxol 8 rounds, then 2 rounds doxil, and 2 more rounds of carbo/taxol. It's stopped working. She has ascites which has flared up again and they have noticed changes in…
CA125 levels increasing after removal of two tumors
My sister is in recurrence--original DX in 02/11, stage IV B. She is scheduled to start chemo in a couple of weeks but has some concerns about the treatment plan. Her GYN had her tested for targeted chemo, but before the results have come back, her ONC has scheduled her for chemo. Additionally, she is not going to give her…
Robotic surgery for one lymph node?
Hi all, I've just come to the end of 8 chemo-free months, and am facing my 2nd recurrence. The recent PET/CT scan shows one glowing lymph node, 2 cm in size. My gyn/onc gave me the choice of more chemo (the traditional 6 cycles), or robotic outpatient surgery to remove the offensive node, followed by two or three cycles of…
Should I switch to a GYN/ONC when medicare kicks in?
Hi Ladies, In August I will have medicare since I will have been on disability for two years. I have had all my chemo administered by a medical oncologist due to my insurance. The nearest GYN/ONC to me is 150 miles away. I will have local access to four different GYN/ONC beginning August 1. Should I switch doctors then? I…
Final journey
Hi beautiful ladies after 3 years fighring with this my Dr told me 3 months ago that there is no more treatments for me ans since then he asked me that it is me choice to stop it any time, my CA125 went to 120 then 260 and now 380 cancer is around my stomach and intestings now, I am under pain must of the time, so I…
New here, please help
I know worrying about something before there is something to worry about is silly but here I am anyway. I am a registered nurse (women's health) so I'm familiar with this area. I am not familiar with ovarian cancer until I began having some worriesome symptoms. Could anyone please let me know if I'm right to be worried or…
Need Advise!
Hello Ladies, I'm coming from the Lymphoma board in need of some advise, hope someone can help me. I've had some problems with my menses, my period began on April 23 and has not stopped till this day. I went to the emergency room on mother's day but the Dr only found some cyst and told me to go to my Dr or to a…
"Right to Try" bill - compassionate care triumph or a cruel joke?
Governor John Hickenlooper signed into law Colorado House Bill 14-1281, The Right to Try Act. The bill was co-sponsored by a retired physician and supported by others who wish to improve access to unapproved, investigational drugs for terminally-ill patients. Similar “Right to Try” bills are pending before state…
Update, reoccurance and surgery
I have an official reocurrance. Last week I had surgery. My new surgeon was unable to reduce my tumors optimally, but felt he was able to get a lot of tumor. He also stated, I was close to a bowel obstruction and thus had some bowel repair to do. I was hospitalized 8 days and got home yesterday. It is good to be home. I…
Ovarian Cancer Awareness
My niece had the teal on her mortar board at her college graduation to honor the memory of her mother, my sister, Julie, age 46, who lost her battle March 20. So proud of my niece. See my profile picture. Debbie
ct scan
So I got my results of my ct scan on wednesday, the two lymph nodes that they found have not grown nor have they shrunk. My oncologoist is telling me that I am stable. There are no new nodes but for some reason my CA number is rising. So we are going to do 3 more rounds of my current chemo which is Doxil then another scan.…
Gabapentin & water retention - ankles swollen by night time & Lyrica ?
any onr else noticed this with gabapentin? I read it could be a side effect -cbut you never what drug is causing it I'm on 1200 mg/day 400 3 times a day I was talking to a breast cancer survivor a few days ago while visiting at the smalll hospital where I last had tx & got onto neuropathy - she switched to Lyrica froim…
Shortness of breath
I've just had my second round of carbo/gemzar/avastin for a first recurrence. I am so short of breath, I can hardly walk from one room to the next. I talked to my gyn/onc's nurse who was unconcerned and said it is a side effect of all the meds. My bloodwork was ok enough to do the chemo...hemoglobin was 9.2 and white blood…
Ovarian Cancer and treatment?
I went to the ER yesterday and hoibble pain in my lower belly. (abdominal pain) I had the pain for a few days. ( I still have it) After blood work, urine test, ct scan and ultrasound I found out I have cyst on my right ovary. The ER doctor said it looks very complex and possibly cancerous. He gave me a name and a number to…

Ovarian Cancer

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