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Update on my mom.
I haven’t had time to get on in a while and I thought this would be a good opportunity to post an update. My mother is now in a phase II clinical trial to measure the effects of an experimental immune enhancing drug or placebo vs Doxil. The study is double blind, but given the fact that 4 hours after receiving the…
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Trial: anti-PD1 and anti-KIR combined
IS ANYONE PARTICIPATING IN THIS TRIAL? This trial sounds very promising. It combines two experimental drugs, the much-sought-after PD-1 drug BMS-936558 (nivolumab) and an anti-KIR drug BMS-986015. This trial is available to qualified patients with colorectal cancer, kidney cancer, melanoma, NSCLC (non-small cell lung…
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Naturopath Upstate New York (?)
Hi, Can anyone recommend a Naturopath in the Upstate NY area that specifically works with ovarian cancer? (Rochester, Syracuse, Buffalo, etc.) Finding many on the west coast but no luck near home... Thanks!!
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Fatigue
I am currently starting chemo therapy for my first reccurance after 17 months of being in remission. I had my first treatment with carbo/gemzar Tuesday. I know with my initial treatment fatigue was a big issue. I wanted to start this discussion to get input from as many as possible about how they fought fatigue during…
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mammogram pain with neuroipathy-- anyone else findf it much worse
I hadn't had a mammo for years & the onc had me have one- I suspect as a baseline a we move into my "watch& wait stage. Inormally have ahigh pain tolereance & do remember them as hurting a little - but never anything that coulsdn't be tolerated for a few seconds. Seriously this one about finished me PAIN at a 11 - almost…
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My Wife diagnosed with Ovarian Cancer
Hello, my Wife, 43 yrs of age has been diagnosed with Ovarian Cancer. Her CA-125 is 508 and there is neoplasticism lesion in the right ovary of 6.5x5.2x6.2 cms and a smaller lesion of 2.1x1.7cms in the left ovary. No free fluid is seen. i have no idea what this all means but the gynac just said it does not look good and I…
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Is a CT scan better than an ultrasound?
I posted my symptoms yesterday (see: new here, please help) I had a doctor appointment today and initially he said he was going to order an ultrasound but by the end of the exam he changed his mind and ordered an abdominal/pelvic CT scan with and without contrast. Is this better than an ultrasound at detecting a problem if…
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Platinum Resistant Women, Anyone on Doxil and a parp inhibitor?
My CA-125 started rising as soon as chemo ended with a good CA and cat scan. My CA has since gone up several times and the doctor wants to put me on a clinical trial of veliparib and Doxil. I would like to know which drugs the women who were declared platinum resistant wound up taking and how are you doing? Do you take…
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Researchers identify ovarian cancer biomarkers
Researchers have identified markers unique to the cells of blood vessels running through ovarian tumors. The finding, while preliminary, could one day improve screening, diagnosis and treatment for this disease. The team of researchers from the University of Michigan, University of Pennsylvania, and universities in Greece…
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CA 125 Elevation in the Safe Zone
Good Morning Ladies! It has been awhile since I posted, but I keep up with all of you everyday. You have helped me get through my fight of Ovarian Cancer. I just finished my last chemo last week. I have a question for you. After my surger my CA 125 number was 24. Then after my first round of chemo it was 11 until my last…
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Time for reflection
Its hard to believe that we started this journey only 6 months ago, it seems like years have gone by. My arling wife of 37 years (as of a couple of weeks ago) went to the emergency room with a pain in the tummy and vomiting and was admitted. Over the next 4 days all sorts of scans and tests were done leading the surgeon to…
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New teal sister
Hello all , have been reading this site since being diagnosed on 1st April this year, some of you lovely ladies have made me laugh and cry and given me the strength to fight my diagnosis. After months of doctors visits for integestion tummy pain and bloating eventually a laparoscopy was done and I was diagnosed with stage…
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Need advice Ovary Removal
I need some advice. According to the cancer.org site women who have a "harmful" gene mutation in the brca 1 or 2 should consider removing the ovaries. My sister, who just died from OC at age 46 had a mutation that was Favor Polymorphiism in braca 1. I took the test and have the same mutation. However, according to my…
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Please Help I am So Scared!!
Hello to All! I Am new to this forum and searching frantically for answers or help. I am 32 (33 next month), I have had a long history since the age of 17 with severe endometriosis and pelvic adhesive disease as well as autoimmune thyroid disease. I'll try to keep this as condensed as possible . In April I ended up in the…
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NO BRAIN METS!!
I am so thankful and relieved. Thanks for all your support!! Carla
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Happy Father's Day!
Missing my dad today. He died 2009. He was a quiet, supportive, caring father.
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Finished out my mastectomy
Today I had a surgery to finish out my mastectomy. Evened out right and left and did the origami fold to creat the nipples. Next on the horizon, tattooing. All is well.
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Guidance to upload a pic - where do I start?
can siomeone point me to where I go to upload a snap of me. Tks Susan P
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Carla, how is it going today!
I'm thinking of you and hoping you feel calmer and less panicked. Susan
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Follow up to beginning tx for 1st recurrence
I met with an oncologist at the University of Chicago yesterday and another gyn -oncologist at Northwestern in Chicago. They both agree that standard chemo with a platium drug and another one such as gemzar, doxil or taxol would be appropriate. They also felt since I responded with initial treatment and I'm BRCA 1 that I…
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Anybody have Cyber Knife? Or know anybody who has?
Hi ladies, I habe a consult on June 18th to find out about cyber knife. I was wondering of anybody has had it done or know of anybody who has for ovarian cancer? I only found a few articles about it and ovarian cancer. It sounda definitely worth a shot especially for women with in operable tumors. Thanks Joyce Aka: Too…
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Doctor just called. Today's scan reports are BAD! I am beyond TERRIFIED!!
My dr. just called. I had a node come up in my neck, so he also ordered scans of it today. There is node activity in my neck. Also, they found a suspcious spot in the pons of my lower brain. He is scheduling an MRI for asap. He said if it has metasized there that he will do radiation. Also, I now have two spots in my…
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Medicare ?
Hi ladies, In August I will be eligible for medicare since I will have been on disability for 2 years. (I will turn 52 in August). Anyway, I have been working with an insurance agent to find my supplement and drug coverage. He said that most of the time medicare will not pay for clinical trials. That option is probably in…
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iDO inhibitor
Io was asked at las visit if I'd liketo take part in a clinical trial - I was excited hoping it was PARP after googling Parp - I think I have an idea ofhow it works. can't seem to find a simple explanation for IDO - the company is Incyte Tks Susan P from Alberta Canada &TX& WY
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Anybody on a Clinical Trial using MEK162 Drug?
Hi Ladies, The second opinion doctor I went to suggested two options for me. 1 is surgery but she that said she may be asking for trouble because due to the small size, position and the unkown of other possible site. I didn't really like that answer. The other options was a clinical trial for the Drug MEK162. IS anybody…
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Its back...:-( Does anybody have my type of Ovarian Cancer?
HI Ladies, I know I haven't been on here for a while because I pretended that I never had cancer. But after three years in remission its back. They found 3 small nodules on Pet scan. They are in deep pelvis. I am so frustrated because my type of ovarian cancer isn't "common" my oncologists say it doesn't really does not…
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dentist
Has anybody gone to the dentist while on chemo. If so what was the procedure. I really need to go.
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Good News from PET scan-- learning to take these things with a grain of salt
Hi all - I saw my gyne/onc yesterday & they are very pleased with the results- but there us a very small spot they are interested in following 1/4" square they are not convinced that it is or may be cancer because of its proximity to the surgical inscision SO I have an appt in 3 mos for a follow up PET & appt. not NED yet…
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Alexandra
Just wondering if you are ok.....missing your humor! Debra
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update..
A little while back I posted and asked a lot of questions. Here is a quick update. The hospital faxed all the paperwork, contrast ct scan results and my ultrasound results to my doctor. My doctor had me sign the release forms at my appointment and that's all we did. She called me the next day (weds) to inform me that has…