Stage 1 Mucinous and 23

Pdmishh

Hi, this past August I was diagnosed with what it seems to be stage 1c mucinous that ruptured during surgery. I understand that this type of cancer needs to be differentiated from other abdominal cancers and I just want to know others' experience with this type? I had 4 rounds of Carbo/taxol. Prior to surgery my ca-125 was 78 and CEA was .5. Now 4 months later my ca-125 is 9 and CEA is .4. I will be having a colonoscopy at the end of the month. Any advice would be great, this is so hard  

abrub

Were they able to tell you the origin of the tumor?

Were they able to tell you the origin of the tumor?  I had a mucinous tumor found on my ovary that was appendiceal in origin.  The treatment is quite different from that for ovarian cancer.  Appendix cancer must be treated by an appendix cancer specialist.  We've had many people who started with treatment for ovarian cancers, which simply delayed their getting proper treatment.

Your chemo seems to have helped, however.  My treatment was complete debulking followed by intraperitoneal chemo and then systemic chemo.  I'm 7+ years out and healthy.

As I don't come on the board often now, if you think I might have useful information, please send me a Private Message, as I'm notified when CSN emails come through.

Alice

MrCLINY

CA numbers

Ok, my wife has been fighing this for two years now. The first three chemo regiments failed. She is now on Doxil with Avastin added. The Avastin was added due to the Doxil failing and her marker numbers starting to go up. Now while most watch their CA125 numbers, the number to watch for mucinous ovarian cancer is CA19.9.  At this time her CA125 is 47 but her CA19.9 is over a 1000.