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Am I on the right webpage?
I'm not a survivor yet. I just had surgery for stage 3 ovarian cancer and will be starting chemo shortly. I'm looking for someone who can tell me something about what's in the future, if anything. Really scared
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New York Times Article about exercise during treatment
http://well.blogs.nytimes.com/2015/03/25/how-exercise-may-aid-cancer-treatment/?comments&_r=1 I made a comment to the article about the difficulty in doing exercise when you can't walk up a flight of stairs. Somebody replied that essentially whatever exercise you can get to challenge your body aerobically is helpful. So…
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Keep your hair during chemo: is it worth it?
Saw this story today in the NY Times describing a method to keep your hair during chemo: http://well.blogs.nytimes.com/2015/03/09/keeping-your-hair-in-chemo/ Frankly, it sounds like a lot of trouble and discomfort, to say nothing of the expense. Not sure I'd be up for it. I've lost my hair twice in the last two…
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Angelina Jolie has ovaries removed
Angelina Jolie faces the threat of ovarian cancer after dealing with it in her family: http://www.nytimes.com/2015/03/24/opinion/angelina-jolie-pitt-diary-of-a-surgery.html
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Avastin/Topotecan
hi loves, anyone been on this regiment? I've been very fortunate to have been able to tolerate cisplatin/Gemzar for the past 3 1/2 years for my recurrent OVCA and knew it would become less effective with time. My Onc is changing me to this new regime and I wondering if anyone has had this combo and could tell me how it…
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2 primary cancers
I have 2 primary cancers - Ovarian stage 3c and Endometrial stage 1-2... anyone else?
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brca1&2 genetic testing results
Hi all Vey excited we saw geneticest today for results. I DO NOT HAVE MUTATED GENESFFOR EITHER OF THESE. verey happy as I have 2 daughters & 2 grand daughters 1 sis - 2 nieces & 1 great niece. as it was explained. - the general population risk without the mutation for ov & breast ca is 2-5% or with the mutation - could be…
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nutrition
There are so many different schools of thought on good nutrition after cancer treatment I can't decide which way to turn... I am currently doing weight watchers and that is working okay, except when sugar cravings overcome me. I read an article yesterday I should be eating all raw fruits and veggies. I can't believe I…
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Parp inhibitor
I was in a clinical trial with a parp inhibitor but as soon as olaparib became available i switched to it. So far so good! Anyone else start the new parp inhibitor? I'm BRCA 1 so i'm glad i have the opportunity to take the drug. Kim
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NED the Movie
just finished watching this movie..it is on PBS stations....really hits home about all gynecology cancers...focus a lot on ovarian . A groups of Gyn/Onc Drs have a band Called NED to spread awareness about below the belt cancers. I encourage all you to watch with daughters sisters..husbands. One lady said she wished she…
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Feeling good
Hi everyone just a quick update, been on Avastin since 1st line chemo finished in sept 2014 , numbers rising very slowly 33, 39 , 42,48, ect I'm now on 80 . My oncologist thinks it is avastin playing with my numbers and has had other patients with the same thing, I'm hoping that's true as results from last 2 ct scans dec…
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Bindweed = natural anti-angiogenic treatment
I got a new book today (Defeat Cancer, by Connie Strasheim) & learned about bindweed used by Dr. Julian Kenyon in his integrative cancer clinic in London, England. The herb is available online in the US & is called VascuStatin. Here's the link to more info (I think it is expensive but nothing compared to the cost of…
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Looking for LMP/Borderline OC members
Hi, I am new to this network and am looking to connect with others with similar situations, experiences and history. As I read through the posts under Roll Call, I didn't see any LMP/Borderline diagnosis listed, and feel uncertain whether to introduce myself there. I feel very blessed and fortunate my cancer turned out to…
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saw gyne onc yersterday CA upalittle - now at 218 - she's not worried as I feel fine & present with
Hi all as said above we had a good talk about CA # in all this. I found her very logical and she pretty much matched what we've learned about CA# I asked if anyone would ever have a zero reading for this specific Cancer Antigen NO even a perefectly healthy woman will have a reading & she suspected even testing Wayne could…
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Iron is not always your friend, and why you should be very careful in regards to cancer growth.
Hello, Carolen read this post on the Uterine side and asked that I post it here also. Hope it helps. california_artist Posts: 964 Joined: Jan 2009 November 17, 2011 - 5:53am More info to help you figure things out. You might want to go to the Nutrition Science News site to view this article. This is a url for a slew of…
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Amazing cancer treatment result from gene sequencing
Was struck by this story. . . http://www.nytimes.com/2015/02/26/health/fast-track-attacks-on-cancer-accelerate-hopes.html in the NY Times. My doc has sent samples from my abdominal tumors away for DNA sequencing; waiting now for results, which should be in soon. I'm not expecting any miraculous results, but wouldn't it be…
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Dental decay
I had my firstline chemo from May 14 to Apr 15 last fall I began dental repairs for quite a few cavities asa well as 2 teeth having to be rebuilt totally filled with the white stuff pois - posts root canals & crowns did anyone else have a dental wreck after ov ca tx? I blame part oif it on not being able to go to dentist…
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BRCA testing
I had the BRCA testing done and just received a call from my oncologist that I am positive. My family history at first unknown, I had breast cancer in 1983 (age 28) and again in 1985. That is when I learned my maternal grandmother died at an early age from breast cancer, and my mother was just diagnosed with breast cancer…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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HEATT
Just curious has anyone consideeed the heatt trial in california (verthermia)?
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Ureteral stents
Gees! Is this the week for yucky scan results?! Mine was a plethora of impressions that don't make me smile, but the one that needs immediate action is right hydronephrosis caused by a tumor compressions the ureter. Seeing a urologist ASAP. I looked up all the stuff on the internet, and it made me cringe! haha! Who has…
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No more carbo - what next?
Feeling low today for two reasons: Had taxol/carbo yesterday and carbo always seems to lay me low. It just makes me feel worse than taxol alone (I have taxol alone on weeks two and three, carbo/taxol on week one). I had two more cycles to go of six carbo/taxol, but yesterday had an allergic reaction and won't be able to…
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What a weekend!!!!
Dear Ladies, What a what a weekend. Friday morning a friend was taking me to a couple of appointments. She could not get me to respond. She noticed my van in the parking lot. She went to the my manager's apartment. She let could get not get me to respond, She went to my apartment manager. When she unlocked my door, I was…
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Hi Everyone... It has Been A Long Time....
Hi ladies... It has been a long time since I posted in here but I come in all the time and read to stay up to date. I us mostly my tablet these days and it is so much quicker to type on my laptop..... Since I posted last we have moved again.... Yikes. Third time since we moved to New Hampshire in April 2013.. They say…
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Has your OC's DNA been sequenced?
Met with the gyn/onc surgeon yesterday to discuss what comes next, after I had a bad reaction to Doxil, new tumors were discovered, & my CA125 was not going down much. So Gemzar is next for me. The whole story is here: http://CaringBridge.org/visit/CaroleSeaton But what I wanted to know is this: have any of you had your…
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Stupid Google. I need to hear your brain mets success stories
Hi Ladies, As I reported last week, my 3 month scans continue to show worsening of the disease. From the neck scan, a spot was found on the lower brain. I am scheduled for an MRI Friday (Feb 6). I am scheduled to see the radiation doctor on the 10th. I am terrified. Now like I know I shouldn't have done, I just googled the…
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Pedaling with Purpose
I was flipping through the inflight magazine and saw a picture of women sitting on bicycles and it was "Wheel to Survive" and was SHOCKED to see that this fundraising event was founded in 2012 by the Be the Difference Foundation, a groups started by four ovarian cancer survivors. Upcoming Wheel to Survive events: Dallas -…
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New; questions about symptoms; appt w/ GYN ONC
Hi everybody. I have history of endometriosis (including cysts & an endometriomas) without ever having elevated ca125. Last 3 ultrasounds showed persistent complex mass on left ovary (with some growth, but not substantial) and smaller one on right. I am hoping it is another endometrioma yet an MRI showed septations I think…
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Planning for the future
Sorry about this long post. I am trying to organize my thoughts by putting them on "paper". Quick recap: I am BRCA+, diagnosed OVCA 3C in May 2012, had optimal THBSO, 7 rounds of IV Carbo/Taxol. After 9 months remission recurred in Sep. 2013, refused more chemo, no treatment for 8 months. Since Apr. 2014 been on PARP…
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fatigue post- Christmas exhaustion
Hi all As most of you know I completed my first-line tx for OvCa in April -- 8 mos ago-- also I am a 12 yr survivor of a giant-golf-ball size brain anneurysm that left me with severe stroke deficits & paralysis on my left side. The brain damage from the stroke is known to cause true fatigue. MY QUESTION IS from your…