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Surgery Monday
I may be jumping the gun, but I really wanted someone to talk to. My Dr. found a large mass in my lower abdomen not quite three weeks ago, pushing my uterus out of place. My uterus and ovaries all show abnormalities so I am having debulking surgery on Monday morning. I won't know until after the surgery if the mass is…
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CHECKING IN
Hello, Everyone I certainly haven't forgotten about any of you, and continue to keep you in my thoughts and prayers. As I read the many recent posts, my heart breaks for so many - how I wish that by now there would have been more progress with detection/treatments for this horrible disease. But I am also encouraged by your…
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Kidney damage and other side effects from chemo?
HI, I was wondering if anyone else has had to deal with side effects from chemo...I was overdosed on taxol/carboplatin (weekly for 8 months) and now, even though my CA125 has been in the single digits for about a year, I suffer from kidney damage and also neuropathy-no feeling below the ankles. I have to have ureter stents…
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No sure if this is allowed
This is a link for a petition for a young mother in Israel who has Ovarian cancer. She is loosing her battle. I have followed her for several years, but don't know a lot about clinical trials or recurrences{Thank God!} She writes a blog of what she has been going through. I signed the petition, maybe you ladies would like…
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So scared
hi ladies, im new to this site. I was diagnosed stage 4 on February 17th. Have had a hysterectomy and started chemo april 17th. My question, how do you stay strong and posifive knowing the statistics of this horrible disease? I really do try, but I cry daily. I have faith in my gyno-oncologist, but even positive results…
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Booklet on CA125 levels for info - from Foundation for Womens Cancer
http://www.foundationforwomenscancer.org/wp-content/uploads/CA125levels.pdf
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Bloating/distension treatment?
Started on Abraxane on June 10, after my CA15 soared to 3100 on Xeloda. It's been rough. I have great discomfort from bloating or ascites -- I don't know exactly what, since I've had no scans since March. My question is -- does anyone have a good treatment for bloating? I weigh less than I did a few weeks ago, but my…
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Scheduled TAH on June 11 re-scheduled due to Magnesium Citrate pre-op but changing my decision
Hello, I have been lurking on many ovarian cancer, endometriosis, and hysterectomy websites for a while now since my ob-gyn recommended a hysterectomy last month. I have been battling severe endometriosis for 13 years now. I am turning 43 next month and I have accepted that I will not be able to bear a child of my own. My…
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Checking In
I don't check in often, but I just wanted you all to know that 5 1/2 years since my initial OVCA Stage 3c diagnosis, I'm still here. And after 4 years of my OVCA Brain Mets, I'm still here. There is hope. Love you all, my teal sisters. I pray for all of us every day. Love Leesa
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Has anyone experienced facial hair growth after treatment?
My sister stopped treatment in September and just now is growing hair back on her head...but unfortunately also on her face! Has anyone else experienced this? Thanks for any help on this. Gail
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poopergirl
I have not posted on this site for a long time but I know that you would want to know Val is in the hospital and could use your prayers and good wishes.She was in the Icu with a collapsed lung according to her sister. since her sister posted this info i don't think Val would mind that I let you know too Colleen
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Thanks to all
thank you to everyone that replied to my previous post. Because of you beautiful women/survivors/fighters, I feel I'm in a better place to fight for life and not listen to silly statistics! I hope that im here 20 years from now and can help another "newbies" the way you gals have helped me! with tons of love, heather ❤️
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PLEASE READ ZEN MAMMA'S MAY 7 POST :Booklet on CA 125 Levels" more good info & education
Hi all We in this cancer war need to educate ouselves oin relevant info from reliable sources I WOULD RECOMMEND all newbies read this it ceretainly reinforces all I've learned about CA 125 n my journey agtain emphasizing it is oinly a guideline for our docs toi use in conjunction with other info in our treatment Susan P…
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super flabby belly since debulking Ovt 14
Hi all - I've been fat all my lifew 63 years I carry my weight in my belly small butt - thighs & hips in proportion. Since the ssurgery & weight gain instead of just being fat it iks like a big glob og bread dough instead oif just puffy fat & now because of the scar - it kind of pouches funny sround my belly button on…
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Care that never quits?
March 2013. I take my wife of seven years to the local hospital for abdominal pain and swelling. The blood test come back with the worst news anyone could ever want to hear-cancer. they send us to another city an hour away that is said to be the best in the state. I'm glad they think so...but that is a whole other story.…
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port flush
I have a bard port that I usually get flushed every 6 weeks or so. I will be rv'ing the summer away and don't know where to go to get my port flushed. If I am REALLY lucky, I may get 3 months if the $$$$$$$ holds out! My onc. is with Florida Cancer Specialists, and, of course, they are only located in FLA. I didn't get any…
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BRCA TESTING
My Doctor's office called. I am BRCA negative!!! Yeah! So thankful for my daughter and sister. As well as ny future granddaughters. Carla
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Mayo Clinic Webinar
Did anyone else tune in to this today? I was interested in the points being made about clinical trials; MYTH: insurance doesn't pay for them FACT: insurance doesn't pay, but there is no cost to you, the patient. One person's comment on this said that while the drugs are not a cost to the patient in the trial, administering…
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Still here... Coming up on 9 years!
Hi loves, I've been AWOL from the board for quite awhile so many of you may not know me. I was diagnosed 3C in 2006 and went through the surgeries and chemo rounds and was in remission for about 2 1/2 years. My disease became recurrent and I've been chemoing ever since. It's strange to say, but living my life around chemo…
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Swelling After Chemo
Has anyone experienced swelling of the feet ankles and legs after chemo? My chemo was cisplatin and bleomycin and lasted for 3 months.
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Am parent of adult cancer patient
Other than prayer warriors at church and within family network, I do not know where I can go just to speak my fears and questions about my adult child's ovarian cancer. We're in 3rd year and still considered terminal. I could use supportive replies. One neverending question is why my child instead of me (being the older…
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Just diagnosed
Ovarian, stage 4b. Awaiting peritoneal tap, biopsies, then chemo. Was told that i am not an immediate surgical candidate. Pretty much in shock. Began with vague abd. discomfort, 8 wks or so. Then i noticed a mass. CT and here i am. am hoping for another Christmas. We'll see. question for anyone who has undergone the…
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Friday, May 8 - world ovarian cancer awareness day!
Ladies, get out your TEAL (or more of it)!!! Sorry for the late notice but I hope some of you see this in time.
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Hysterectomy
It's been 4 years since my Hysterectomy and the Dr. said I have scar tissue. My scar tissue has gotten bigger, wondering if anyone else has the same thing and did they have the tissue scrapped are removed. Trying to decide what to do
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Carbo as a single agent
Hi everyone, wanted to check and see if anyone has done carbo as a single agent for a recurrence. If so, did it work, and what were some of the side effects? Thanks so much.
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thoughts?
my wife Lorraine was diagnosed with stage 3 ovarian in january. She had the debulking surgery in february, removed the tumors. Started chemo in March, today was her eighth week of chemo. A couple of weeks ago she noticed her stomach was getting bigger again. She is worried that tumors are coming back. Is this possible this…
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Is it "GIVING UP"?
I was just wondering what some of the other ovarian cancer survivors think about this topic: Is it GIVING UP if you decide NOT to keep on yet another round of chemo for a reoccurance? I was diagnosed stage IV in February 2009. An annual scan in May 2015 showed a reoccurance of the ovarian cancer in my abdomen, resulting in…
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carcinosarcoma
hi everybody. my name is adina, i am from romania, bucharest. on 2010, octomber, my mother was diagnose having ovarian cancer. she suffers an surgical intervention.after this intervention, the result was: malign tumor, teratom. the tumors (both ovaries were affected) were remove, totally. in short time after surgical…
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Salvestrols
While looking online for alternative therapies I came upon salvestrols, my mom has stage 3c ovarian and just started chemo today more than 60 days after her debulking because she had a c diff infection and the doctors worried she might get sepsis if they went ahead before the infection is gone. Anybody tried salvestrols…
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Not getting any treatment
It was September 13, 2014. I had been in the emergency room since 9:00pm the night before. After going through many tests, I got the diagnosis at 5:00am. I was told that I had end stage terminal ovarian cancer that spread to my liver and spleen. The doctor wanted to admit me to the hospital. From how it sounded, he did not…