Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Has anyone experienced facial hair growth after treatment?
My sister stopped treatment in September and just now is growing hair back on her head...but unfortunately also on her face! Has anyone else experienced this? Thanks for any help on this. Gail
poopergirl
I have not posted on this site for a long time but I know that you would want to know Val is in the hospital and could use your prayers and good wishes.She was in the Icu with a collapsed lung according to her sister. since her sister posted this info i don't think Val would mind that I let you know too Colleen
Thanks to all
thank you to everyone that replied to my previous post. Because of you beautiful women/survivors/fighters, I feel I'm in a better place to fight for life and not listen to silly statistics! I hope that im here 20 years from now and can help another "newbies" the way you gals have helped me! with tons of love, heather ❤️
PLEASE READ ZEN MAMMA'S MAY 7 POST :Booklet on CA 125 Levels" more good info & education
Hi all We in this cancer war need to educate ouselves oin relevant info from reliable sources I WOULD RECOMMEND all newbies read this it ceretainly reinforces all I've learned about CA 125 n my journey agtain emphasizing it is oinly a guideline for our docs toi use in conjunction with other info in our treatment Susan P…
super flabby belly since debulking Ovt 14
Hi all - I've been fat all my lifew 63 years I carry my weight in my belly small butt - thighs & hips in proportion. Since the ssurgery & weight gain instead of just being fat it iks like a big glob og bread dough instead oif just puffy fat & now because of the scar - it kind of pouches funny sround my belly button on…
Care that never quits?
March 2013. I take my wife of seven years to the local hospital for abdominal pain and swelling. The blood test come back with the worst news anyone could ever want to hear-cancer. they send us to another city an hour away that is said to be the best in the state. I'm glad they think so...but that is a whole other story.…
port flush
I have a bard port that I usually get flushed every 6 weeks or so. I will be rv'ing the summer away and don't know where to go to get my port flushed. If I am REALLY lucky, I may get 3 months if the $$$$$$$ holds out! My onc. is with Florida Cancer Specialists, and, of course, they are only located in FLA. I didn't get any…
BRCA TESTING
My Doctor's office called. I am BRCA negative!!! Yeah! So thankful for my daughter and sister. As well as ny future granddaughters. Carla
Mayo Clinic Webinar
Did anyone else tune in to this today? I was interested in the points being made about clinical trials; MYTH: insurance doesn't pay for them FACT: insurance doesn't pay, but there is no cost to you, the patient. One person's comment on this said that while the drugs are not a cost to the patient in the trial, administering…
Still here... Coming up on 9 years!
Hi loves, I've been AWOL from the board for quite awhile so many of you may not know me. I was diagnosed 3C in 2006 and went through the surgeries and chemo rounds and was in remission for about 2 1/2 years. My disease became recurrent and I've been chemoing ever since. It's strange to say, but living my life around chemo…
Swelling After Chemo
Has anyone experienced swelling of the feet ankles and legs after chemo? My chemo was cisplatin and bleomycin and lasted for 3 months.
Am parent of adult cancer patient
Other than prayer warriors at church and within family network, I do not know where I can go just to speak my fears and questions about my adult child's ovarian cancer. We're in 3rd year and still considered terminal. I could use supportive replies. One neverending question is why my child instead of me (being the older…
Just diagnosed
Ovarian, stage 4b. Awaiting peritoneal tap, biopsies, then chemo. Was told that i am not an immediate surgical candidate. Pretty much in shock. Began with vague abd. discomfort, 8 wks or so. Then i noticed a mass. CT and here i am. am hoping for another Christmas. We'll see. question for anyone who has undergone the…
Friday, May 8 - world ovarian cancer awareness day!
Ladies, get out your TEAL (or more of it)!!! Sorry for the late notice but I hope some of you see this in time.
Hysterectomy
It's been 4 years since my Hysterectomy and the Dr. said I have scar tissue. My scar tissue has gotten bigger, wondering if anyone else has the same thing and did they have the tissue scrapped are removed. Trying to decide what to do
Carbo as a single agent
Hi everyone, wanted to check and see if anyone has done carbo as a single agent for a recurrence. If so, did it work, and what were some of the side effects? Thanks so much.
thoughts?
my wife Lorraine was diagnosed with stage 3 ovarian in january. She had the debulking surgery in february, removed the tumors. Started chemo in March, today was her eighth week of chemo. A couple of weeks ago she noticed her stomach was getting bigger again. She is worried that tumors are coming back. Is this possible this…
Is it "GIVING UP"?
I was just wondering what some of the other ovarian cancer survivors think about this topic: Is it GIVING UP if you decide NOT to keep on yet another round of chemo for a reoccurance? I was diagnosed stage IV in February 2009. An annual scan in May 2015 showed a reoccurance of the ovarian cancer in my abdomen, resulting in…
carcinosarcoma
hi everybody. my name is adina, i am from romania, bucharest. on 2010, octomber, my mother was diagnose having ovarian cancer. she suffers an surgical intervention.after this intervention, the result was: malign tumor, teratom. the tumors (both ovaries were affected) were remove, totally. in short time after surgical…
Salvestrols
While looking online for alternative therapies I came upon salvestrols, my mom has stage 3c ovarian and just started chemo today more than 60 days after her debulking because she had a c diff infection and the doctors worried she might get sepsis if they went ahead before the infection is gone. Anybody tried salvestrols…
Not getting any treatment
It was September 13, 2014. I had been in the emergency room since 9:00pm the night before. After going through many tests, I got the diagnosis at 5:00am. I was told that I had end stage terminal ovarian cancer that spread to my liver and spleen. The doctor wanted to admit me to the hospital. From how it sounded, he did not…
Ovarian ephithelial stage 3c
Hello everyone, new here. My mom has been diagnosed with stage 3c ovarian cancer she had her debulking surgery on the 4th of March and was due to start chemo last Sunday but it was postponed because she caught a stomach microbe and onc said chemo might harm due to low immunity. Any survival stories? I lost my dad 8 years…
More surgery
hi all , my numbers have been rising slowly a few points at a time after finishing 1st line treatment sept 2014, Avastin was started 3 weekly to prevent or at least slow down recurrance which I believe it has done, ca125 is at 86 at the moment and my oncologist is doing another ct scan and planning surgery for end June a…
Please help! Appetite just doesn't want to return!!
Hi Ladies, I completed 3 radiation treatments (targeted) to the brain about 3 weeks ago. Even prior to my seizure and all that mess, I was struggling with my appetite. Now it's really bad. I have had to eliminate dairy as it was causing nausea and vomiting. Spicy foods are out and tomato based foods seem to bother me. I've…
gefitinib can be used for ovarian cancer ?
Hello, My mom is fighting the battle with ovarian cancer. She had 5 chemo sessions and then surgery. After surgery 5 more chemo sessions were given. the C125 count had reduced drastically (from 6000 to 900) after the surgery. We were really happy as the CT scan also showed good results. But after surgery she had 5 chemos ,…
Strategies for dealing with Cisplatin?
I certainly don't recally why I chose the name "zenmama" when I joined this board way back way. Must have been wishful thinking. Or maybe more positive thinking at the time. Anyway, I don't feel very "zen". Does anybody have any experience and tips for coping with Cisplation? I have had many rounds of Carboplatin, which I…
Anyone been on Xeloda?
After the failures of Gemzar, Doxil, Avastin, Carboplatin, Taxol, & Arimidex (did I forget any?), I am now starting on Xeloda. Anyone out there have any experience with this? Thanks for your info! All the details: http://www.caringbridge.org/visit/caroleseaton/journal/view/id/55396c2bab28b91f769b7494
Etoposide and Y90 procedure
good evening teal sisters. Treatments for the past several months have been a little tough to take, but sometimes I think that as we continue year after year every treatment will be tougher. Diagnosed in November 2011 with 3c. I've had pretty much all the standard chemos for our disease plus 26 rounds of chemo. The last…
Platelets
Lorraine needs a blood transfusion tomorrow,platelet level is low.Anyone have to have to have this done? Wondering if this will tire her out.It's a 5 or 6 hour process.Just looking for any tips or advice.
CA 125
Lorraine's ca 125 was 8,000 before first treatment, it was 4,000 before round 5, last week. Wondering what people's thoughts were on this. Of course we're happy it's been cut in half, but the number is still high. Any similiar numers for you ladies?

Ovarian Cancer

Discussion List

Discussion Boards