The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Has anyone had ROMA (risk of ovarian malignancy algorithm) test prior to diagnosis?

Daydreaming
Daydreaming CSN Member Posts: 1
in Ovarian Cancer #1

Hello all

I have had an 8cm complex ovarian cyst for at least 11 months. It was found during an u/s to date my pregnancy but my OB assured me that due to my age (31) it was probably nothing and recommended we check it after delivery. I was scheduled to have it and the ovary removed but my ROMA came back high so now I have an appointment with the onoc. next wed. 

 

ROMA uses the ca 125 and he4 values and is supposed to be pretty accurate (25% false positive rate). Have you had any experience with this test? If so was is accurate? I'm not finding much online as it is a pretty new test. My ca-125 was normal at 30. 

 

Thanks in in advance for any info you can provide!

Like Care

Discussion Boards