New; questions about symptoms; appt w/ GYN ONC

deeder
deeder Member Posts: 1
in Ovarian Cancer #1

Hi everybody.  I have history of endometriosis (including cysts & an endometriomas) without ever having elevated ca125.  Last 3 ultrasounds showed persistent complex mass on left ovary (with some growth, but not substantial) and smaller one on right.  I am hoping it is another endometrioma yet an MRI showed septations I think they were called.  Ca125 is at 100.  The left ovary has been giving me lower persisitent pain.  I still have periods, but not sure what they are doing as of late.  During the past year, I skipped one period.  One period was 17 days.  Now I am having a period after just having one 2 weeks ago.  Also, for well over 2 months, breasts have remained painful.  (Mammogram was ok and not pregnant and never have been able to conceive.) 

 

So, I have a million questions while I wait 2 weeks go get into the gyn onc office.  How many of you had pain in the specific area of the ovary?  How many menstruating women began having irregularities as a possible symptom?

 

I don't know what the best course of action is.  I think my regular gyn indicated that the gyn onc would prob be taking the left ovary and doing frozen sections?  But isn't there more definitive tests, so that if it was just another large endometrioma--couldn't I just have it ablated?  Why all of a sudden am I supposedly having it removed?  Just because of the ca125 and the mri?  Kind of confused.  Well, as I said I don't for couple of weeks, but I will post and update and appreciate any guidance you all can offer.  Thanks and prayers for you all tonight.  -Dee

Comments

  • wholfmeister
    wholfmeister Member Posts: 315
    #2
    One step at a time

    Of course you have a million question!  Get a legal pad and start writing them down. A few days before your appointment, go back and organize them a bit.  Take the pad with you to the appointment and don't leave until all have been addressed.

    And don't jump to any conclusions or make any assumptions.  Don't assume your having the ovary removed.  If your regular doctor thought he knew it all, he wouldn't have referred you to the GYN-onc.

    Two weeks is a long wait.  Don't let your mind race ahead.  Don't fill in the blanks with the darkest thoughts.  I'm sending you my best thoughts for peace until your appointment.

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #3
    wholfmeister said:

    One step at a time

    Of course you have a million question!  Get a legal pad and start writing them down. A few days before your appointment, go back and organize them a bit.  Take the pad with you to the appointment and don't leave until all have been addressed.

    And don't jump to any conclusions or make any assumptions.  Don't assume your having the ovary removed.  If your regular doctor thought he knew it all, he wouldn't have referred you to the GYN-onc.

    Two weeks is a long wait.  Don't let your mind race ahead.  Don't fill in the blanks with the darkest thoughts.  I'm sending you my best thoughts for peace until your appointment.

    Dear Dee

    Sometimes the hardest part can be waiting for the doctor appointment.  I agree with Merrily to write down your questions and if you can, take a trusted family member or friend with you to the appointment.  They can take notes at the appointment and it always helps to have a second pair of ears.  Please keep us posted and let us know how the appointment goes.

    Warm hugs,

    Kelly

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #4
    lovesanimals said:

    Dear Dee

    Sometimes the hardest part can be waiting for the doctor appointment.  I agree with Merrily to write down your questions and if you can, take a trusted family member or friend with you to the appointment.  They can take notes at the appointment and it always helps to have a second pair of ears.  Please keep us posted and let us know how the appointment goes.

    Warm hugs,

    Kelly

    Dee, we can help you!

    Dee ,

    When I learned that I had uterine cancer (Later I found out it is most like ovarian cancer), I was in shock. I quickly learned to write down every question I had and I gave this list of questions to my gyn onc when I met with him. Don't assume you will remember each question when you see your doctor. Take a loved one with you for a second set of ears. At my treatment planning meeting , I brought my brother , a plastic surgeon , his RN nurse and my social worker partner. I like to believe that I had all my bases covered!  Obtain a copy of your operative and subsequent pathology reports and seek a second or third opinion if you are not sure what to do. I sought  3 opinions and I am glad that  I did.

    Wishing you the best,

     Cathy

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