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ANY WORD FROM BOB 13440 AND HIS WIFE LORRAINE?
just checking in.
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Ok Ladies
I am all-out worried about Alexandra! She is not only NOT posting, but is not in the bsck ground! If anyone knows if she's ok, please let us know. I hate to stalk(well, not really), but I am concerned. Thanks, All Debrajo
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Sharon Nance (msfanciful)
I just found out that Sharon Nance has passed. I didn't know she was so ill. I did notice the last pictures I saw of her on Facebook she appeared very thin but did not talk about her illness. She is one of the first women I met here in 2010. She was beautiful and sweet. I watched all her videos on youtube and they were…
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Pray for Joyce
Our little friend Joyce, known here as jbeans888 is fighting for her life. I met Joyce here in 2011. She was only 31 and diagnosed with Stage IIIc. She got married after her recovery and I am proud and honored that we became friends. A Karate expert and sports enthusiast, I always refer to her as "my little hero" because…
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Mom
anyone out there that can offer any opinions I would be grateful. 83 year old mom has ovarian cancer. It has recurred 4 times in 71/2 years. It's back she's under hospice care. Is becoming confused and sleeping a lot . She has pnuemonia spot in lung has been on 4 antibodies in 3 months. Not eating much. Had some…
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Carboplatin for recurrence
hi everyone , just had surgery for 1st recurrence , ca125 came back higher than before surgery at 200 , so following up with carboplatin 6 cycles anyone else had this on its own for 1st recurrence , had it with taxol when originally diagnosed , hoping it works again , feeling very anxious more than when I was first told I…
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a year & a half after debulking still have some abdominal discomfort still tender & bruised-F eelt
Hi all I must preface this by being honest & saying I carry my excess fat in my jiggly belly Yesterday I was sitting in my wheel chair - paralysis from severe stroke & bent forward to pick something off the floor when I sat back up I had a sharp pain at the top of my incision - took my breath away for a few seconds.…
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GCT - Granulosa Cell Tumor Ovarian Cancer
Hello everyone, I am new here and looking for others that have the GCT Ovarian Cancer - it is a rare kind from what I have been told and I am wondering about remission stats, NED stats, as I have been told that I will NEVER be cured because of the Microscopic Cells that will always return in other organs at some…
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Adjuvant Chemo - 3 or 6 rounds which is better?
I am stage 1C2 Ovarian Cancer, staged this way due to the fact that my regular gyno did my surgery and not the gyno oncolgist. My CA125 is 7.8 and my pet scan is clear. My oncologist recommend 3 to 6 rounds of carbo/docetaxel as a prevenative. He preferred 6 rounds. I have completed two rounds and after the first they had…
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Avastin (Bevacizumab) to be added to Lipodox for Second line of Chemo - Risk Vs. Benefits ?
History [Complete treatment at Rajiv Gandhi Cancer Institute, Delhi, India]: My Mom was diagnosed with Stage 3c (Ovarian)+Stage 1a (Endometrium) cancer in May, 2014 at an age of 64. She underwent a “Primary debulking” (huge operation) in May, 2014 ; with an ileostomy bag connected to collect stool. Underwent First Line of…
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Ca125 and CEA And Terrified
Hello. I am new to the forum but you all are very brave strong women! I just had two blood tests yesterday that will tell the GYN if I have ovarian cancer. How do you even begin to pick up and just live the next week awaiting these results ??? I have a 6cm complex ovarian cyst that seems to be bleeding into my abdomen. I…
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New Chemo/ New Side Effects.
Hey guys, So I just started a new regunmine of carboplatin and paclitaxe for six cycles. I did my 1st treatment of my thrid go at chemo today and I have two blisters in the roof of my mouth by my tonsils.. Is this normal? I've had lots of side effects my last go around, shaking, puking, everything taste like metal but what…
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Scared of Future Diagnosis and Test Results
I have not posted on here since my mother died of ovarian cancer. I never thought to ask her if she wanted genetically tested for it since she had ovarian cancer. I have had a total hysterectomy and kept both ovaries because of my age. I really let the doctor decide, but I was not thinking that my GYN forgot that my mom…
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Finding it Very Difficult to Breathe
i had a debulking 6 months ago and just finished six cycles of cysplatin, taxol, and Avastin. I'm still having infusions of the Avastin and I'm also still on an oral chemo - both the Avastin and the oral chemo are part of a yearlong trial. Aside from the usual symptoms - the nausea, vomiting, loss of apetite, neuropathy,…
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Damned Unpretty
Hi I just wanted to say that I found my tumor on my 45th birthday. I have been through four rounds of chemo and thank God my doctor says it's working. I have kept my spirits up through most of it but today has been harder than most. I've cried five difference times about my appearance today. I've developed dark brown spots…
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Doxil
Does Doxil cause hair loss?
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ifIf you have had a recurrance
hI All I am still in Wait & see mode with 3 month appts & NED I am not obsesssively worrying But being vigilant But& learning all I can about recurrancel I can about recurrance. At my last visit - I said: I must have cancer cells in me" to which she agreed & unless they get togeter & create a tumor - we really won't know…
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Still Here After 8 Years w/Stage 4 Ovarian Cancer
It's been a while since I've been on these discussion boards. I have made lifelong friends with many beautiful ladies from this very board. I took a break from the boards when my cancer fight became more intense and I began going to md anderson once a month now. I'm currently on a second clinical trial study for recurrent…
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Trying to understand what's going on
My mother (64 years old, non-smoker, non-drinker) has not yet been diagnosed but it is presumed to be ovarian cancer stage III. In the beginning of the year she had a rash on her thigh and it was noted as being a UTI and got treated for it. After two months she began to lose weight and was tested for H.Pylori and it came…
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Port placement today
I had my port put in this morning. It went fine, but now my neck is really sore. It hurts to turn my head or lift my right arm. Is this normal?
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4 yrs Stage 3 survivor
I remember when I was first diagnosed with stage 3 ovarian cancer that I was horrifed at the statistics and could find very few survival stories. If you're just diagnosed or starting chemo, there are suvivors! I have been cancer free since I finished chemo and my CA 125 has been holding steady in the single digits. I know…
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Surgery Monday
I may be jumping the gun, but I really wanted someone to talk to. My Dr. found a large mass in my lower abdomen not quite three weeks ago, pushing my uterus out of place. My uterus and ovaries all show abnormalities so I am having debulking surgery on Monday morning. I won't know until after the surgery if the mass is…
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CHECKING IN
Hello, Everyone I certainly haven't forgotten about any of you, and continue to keep you in my thoughts and prayers. As I read the many recent posts, my heart breaks for so many - how I wish that by now there would have been more progress with detection/treatments for this horrible disease. But I am also encouraged by your…
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Kidney damage and other side effects from chemo?
HI, I was wondering if anyone else has had to deal with side effects from chemo...I was overdosed on taxol/carboplatin (weekly for 8 months) and now, even though my CA125 has been in the single digits for about a year, I suffer from kidney damage and also neuropathy-no feeling below the ankles. I have to have ureter stents…
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No sure if this is allowed
This is a link for a petition for a young mother in Israel who has Ovarian cancer. She is loosing her battle. I have followed her for several years, but don't know a lot about clinical trials or recurrences{Thank God!} She writes a blog of what she has been going through. I signed the petition, maybe you ladies would like…
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So scared
hi ladies, im new to this site. I was diagnosed stage 4 on February 17th. Have had a hysterectomy and started chemo april 17th. My question, how do you stay strong and posifive knowing the statistics of this horrible disease? I really do try, but I cry daily. I have faith in my gyno-oncologist, but even positive results…
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Booklet on CA125 levels for info - from Foundation for Womens Cancer
http://www.foundationforwomenscancer.org/wp-content/uploads/CA125levels.pdf
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Bloating/distension treatment?
Started on Abraxane on June 10, after my CA15 soared to 3100 on Xeloda. It's been rough. I have great discomfort from bloating or ascites -- I don't know exactly what, since I've had no scans since March. My question is -- does anyone have a good treatment for bloating? I weigh less than I did a few weeks ago, but my…
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Scheduled TAH on June 11 re-scheduled due to Magnesium Citrate pre-op but changing my decision
Hello, I have been lurking on many ovarian cancer, endometriosis, and hysterectomy websites for a while now since my ob-gyn recommended a hysterectomy last month. I have been battling severe endometriosis for 13 years now. I am turning 43 next month and I have accepted that I will not be able to bear a child of my own. My…
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Checking In
I don't check in often, but I just wanted you all to know that 5 1/2 years since my initial OVCA Stage 3c diagnosis, I'm still here. And after 4 years of my OVCA Brain Mets, I'm still here. There is hope. Love you all, my teal sisters. I pray for all of us every day. Love Leesa