-
Small steps
Looking for what it takes to make it 5 more wks until my 70th birthday. Or not. Today I entered hospice. it's all at www.CaringBridge.org/visit/CaroleSeaton
-
What can I expect?
My wife has stage 3 endometrial cancer and she was also recently diagnosed with bladder cancer. We have been through 5 months of chemo, 4 weeks of alternative treatment in Germany but her cancer continues to progress. We are awaiting a CT scan and MRI to figure out if surgery (removal of her uterus and possibly her…
-
AROMASIN & CA125?
Hello Everone: Long-time member, but here's a quick recap: 2000 OVCA Stage 1C 2006 OVCA (not sure of stage) 2013 Breast cancer Surgeries, treatment for all. Been well since 2014 after radiation for breast cancer. Here's my question: Have any of you experienced higher CA125 levels while on Armoasin/Examestane or any other…
-
Hello
Hi Everyone, What a fantastic board. I have been browsing here and the uterine cancer board. I live in the UK so treatment is far more restricted than the US. I have stage 1C, have had initially key hole surgery in September 2012 where my tube, ovary and cyst were removed, histology showed cells within the cyst so I…
-
Topetechan started last week. ?
hi my name is Kathy, I have stage IV OV cancer. IIstarted with taxal/carboplatin, then surgery then 3 rounds of doxil. I was taken off doxil due to a terrible chemical burn that radiated from the inside out on both legs.Doc took me off after 3 rounds. My CA 125 is now up to 1155 with cells spread through my omentum and a…
-
I'm now part of the recurrence gang - sorry to say of course heading to Doxil
I knew it was more probable than just possible yet I am still scared had a contrast CT last weekend - couldn't keep food down -- small small bowel obstruction - tumor around the bowell & a few scattered bits in there, too lymph seems ok - no other organs at this point . blockage is just a slow down. NO thot of surgery -…
-
The blessing and curse of Stage 1
I am new to the Cancer Survivor Network. I came here to find the support that I have been missing during the worst six months of my life. In January of 2015 they found a cyst on my right ovary during a routine yearly exam. Four weeks later my ultrasound showed it had grown to 7 cm. Four weeks afer that I had surgery. I was…
-
Dear Valerie
Valerie's sister, Cindy posted on Facebook that our dear friend has passed. I am heartbroken. Karen
-
Help finding a patient advocate/nurse navigator
Having a very hard time finding a patient advocate / nurse navigator to help my mother and me through all of this. Just diagnosed as ov stage III and surgery scheduled 1 week from now. We are not unhappy at all with any of the care, but would just like some advice and guidance as I am overwhelmed. My mom is not proactive…
-
ANY WORD FROM BOB 13440 AND HIS WIFE LORRAINE?
just checking in.
-
Ok Ladies
I am all-out worried about Alexandra! She is not only NOT posting, but is not in the bsck ground! If anyone knows if she's ok, please let us know. I hate to stalk(well, not really), but I am concerned. Thanks, All Debrajo
-
Sharon Nance (msfanciful)
I just found out that Sharon Nance has passed. I didn't know she was so ill. I did notice the last pictures I saw of her on Facebook she appeared very thin but did not talk about her illness. She is one of the first women I met here in 2010. She was beautiful and sweet. I watched all her videos on youtube and they were…
-
Pray for Joyce
Our little friend Joyce, known here as jbeans888 is fighting for her life. I met Joyce here in 2011. She was only 31 and diagnosed with Stage IIIc. She got married after her recovery and I am proud and honored that we became friends. A Karate expert and sports enthusiast, I always refer to her as "my little hero" because…
-
Mom
anyone out there that can offer any opinions I would be grateful. 83 year old mom has ovarian cancer. It has recurred 4 times in 71/2 years. It's back she's under hospice care. Is becoming confused and sleeping a lot . She has pnuemonia spot in lung has been on 4 antibodies in 3 months. Not eating much. Had some…
-
Carboplatin for recurrence
hi everyone , just had surgery for 1st recurrence , ca125 came back higher than before surgery at 200 , so following up with carboplatin 6 cycles anyone else had this on its own for 1st recurrence , had it with taxol when originally diagnosed , hoping it works again , feeling very anxious more than when I was first told I…
-
a year & a half after debulking still have some abdominal discomfort still tender & bruised-F eelt
Hi all I must preface this by being honest & saying I carry my excess fat in my jiggly belly Yesterday I was sitting in my wheel chair - paralysis from severe stroke & bent forward to pick something off the floor when I sat back up I had a sharp pain at the top of my incision - took my breath away for a few seconds.…
-
GCT - Granulosa Cell Tumor Ovarian Cancer
Hello everyone, I am new here and looking for others that have the GCT Ovarian Cancer - it is a rare kind from what I have been told and I am wondering about remission stats, NED stats, as I have been told that I will NEVER be cured because of the Microscopic Cells that will always return in other organs at some…
-
Adjuvant Chemo - 3 or 6 rounds which is better?
I am stage 1C2 Ovarian Cancer, staged this way due to the fact that my regular gyno did my surgery and not the gyno oncolgist. My CA125 is 7.8 and my pet scan is clear. My oncologist recommend 3 to 6 rounds of carbo/docetaxel as a prevenative. He preferred 6 rounds. I have completed two rounds and after the first they had…
-
Avastin (Bevacizumab) to be added to Lipodox for Second line of Chemo - Risk Vs. Benefits ?
History [Complete treatment at Rajiv Gandhi Cancer Institute, Delhi, India]: My Mom was diagnosed with Stage 3c (Ovarian)+Stage 1a (Endometrium) cancer in May, 2014 at an age of 64. She underwent a “Primary debulking” (huge operation) in May, 2014 ; with an ileostomy bag connected to collect stool. Underwent First Line of…
-
Ca125 and CEA And Terrified
Hello. I am new to the forum but you all are very brave strong women! I just had two blood tests yesterday that will tell the GYN if I have ovarian cancer. How do you even begin to pick up and just live the next week awaiting these results ??? I have a 6cm complex ovarian cyst that seems to be bleeding into my abdomen. I…
-
New Chemo/ New Side Effects.
Hey guys, So I just started a new regunmine of carboplatin and paclitaxe for six cycles. I did my 1st treatment of my thrid go at chemo today and I have two blisters in the roof of my mouth by my tonsils.. Is this normal? I've had lots of side effects my last go around, shaking, puking, everything taste like metal but what…
-
Scared of Future Diagnosis and Test Results
I have not posted on here since my mother died of ovarian cancer. I never thought to ask her if she wanted genetically tested for it since she had ovarian cancer. I have had a total hysterectomy and kept both ovaries because of my age. I really let the doctor decide, but I was not thinking that my GYN forgot that my mom…
-
Finding it Very Difficult to Breathe
i had a debulking 6 months ago and just finished six cycles of cysplatin, taxol, and Avastin. I'm still having infusions of the Avastin and I'm also still on an oral chemo - both the Avastin and the oral chemo are part of a yearlong trial. Aside from the usual symptoms - the nausea, vomiting, loss of apetite, neuropathy,…
-
Damned Unpretty
Hi I just wanted to say that I found my tumor on my 45th birthday. I have been through four rounds of chemo and thank God my doctor says it's working. I have kept my spirits up through most of it but today has been harder than most. I've cried five difference times about my appearance today. I've developed dark brown spots…
-
Doxil
Does Doxil cause hair loss?
-
ifIf you have had a recurrance
hI All I am still in Wait & see mode with 3 month appts & NED I am not obsesssively worrying But being vigilant But& learning all I can about recurrancel I can about recurrance. At my last visit - I said: I must have cancer cells in me" to which she agreed & unless they get togeter & create a tumor - we really won't know…
-
Still Here After 8 Years w/Stage 4 Ovarian Cancer
It's been a while since I've been on these discussion boards. I have made lifelong friends with many beautiful ladies from this very board. I took a break from the boards when my cancer fight became more intense and I began going to md anderson once a month now. I'm currently on a second clinical trial study for recurrent…
-
Trying to understand what's going on
My mother (64 years old, non-smoker, non-drinker) has not yet been diagnosed but it is presumed to be ovarian cancer stage III. In the beginning of the year she had a rash on her thigh and it was noted as being a UTI and got treated for it. After two months she began to lose weight and was tested for H.Pylori and it came…
-
Port placement today
I had my port put in this morning. It went fine, but now my neck is really sore. It hurts to turn my head or lift my right arm. Is this normal?
-
4 yrs Stage 3 survivor
I remember when I was first diagnosed with stage 3 ovarian cancer that I was horrifed at the statistics and could find very few survival stories. If you're just diagnosed or starting chemo, there are suvivors! I have been cancer free since I finished chemo and my CA 125 has been holding steady in the single digits. I know…