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Ca125 and CEA And Terrified
Hello. I am new to the forum but you all are very brave strong women! I just had two blood tests yesterday that will tell the GYN if I have ovarian cancer. How do you even begin to pick up and just live the next week awaiting these results ??? I have a 6cm complex ovarian cyst that seems to be bleeding into my abdomen. I…
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New Chemo/ New Side Effects.
Hey guys, So I just started a new regunmine of carboplatin and paclitaxe for six cycles. I did my 1st treatment of my thrid go at chemo today and I have two blisters in the roof of my mouth by my tonsils.. Is this normal? I've had lots of side effects my last go around, shaking, puking, everything taste like metal but what…
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Scared of Future Diagnosis and Test Results
I have not posted on here since my mother died of ovarian cancer. I never thought to ask her if she wanted genetically tested for it since she had ovarian cancer. I have had a total hysterectomy and kept both ovaries because of my age. I really let the doctor decide, but I was not thinking that my GYN forgot that my mom…
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Finding it Very Difficult to Breathe
i had a debulking 6 months ago and just finished six cycles of cysplatin, taxol, and Avastin. I'm still having infusions of the Avastin and I'm also still on an oral chemo - both the Avastin and the oral chemo are part of a yearlong trial. Aside from the usual symptoms - the nausea, vomiting, loss of apetite, neuropathy,…
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Damned Unpretty
Hi I just wanted to say that I found my tumor on my 45th birthday. I have been through four rounds of chemo and thank God my doctor says it's working. I have kept my spirits up through most of it but today has been harder than most. I've cried five difference times about my appearance today. I've developed dark brown spots…
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Doxil
Does Doxil cause hair loss?
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ifIf you have had a recurrance
hI All I am still in Wait & see mode with 3 month appts & NED I am not obsesssively worrying But being vigilant But& learning all I can about recurrancel I can about recurrance. At my last visit - I said: I must have cancer cells in me" to which she agreed & unless they get togeter & create a tumor - we really won't know…
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Still Here After 8 Years w/Stage 4 Ovarian Cancer
It's been a while since I've been on these discussion boards. I have made lifelong friends with many beautiful ladies from this very board. I took a break from the boards when my cancer fight became more intense and I began going to md anderson once a month now. I'm currently on a second clinical trial study for recurrent…
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Trying to understand what's going on
My mother (64 years old, non-smoker, non-drinker) has not yet been diagnosed but it is presumed to be ovarian cancer stage III. In the beginning of the year she had a rash on her thigh and it was noted as being a UTI and got treated for it. After two months she began to lose weight and was tested for H.Pylori and it came…
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Port placement today
I had my port put in this morning. It went fine, but now my neck is really sore. It hurts to turn my head or lift my right arm. Is this normal?
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4 yrs Stage 3 survivor
I remember when I was first diagnosed with stage 3 ovarian cancer that I was horrifed at the statistics and could find very few survival stories. If you're just diagnosed or starting chemo, there are suvivors! I have been cancer free since I finished chemo and my CA 125 has been holding steady in the single digits. I know…
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Surgery Monday
I may be jumping the gun, but I really wanted someone to talk to. My Dr. found a large mass in my lower abdomen not quite three weeks ago, pushing my uterus out of place. My uterus and ovaries all show abnormalities so I am having debulking surgery on Monday morning. I won't know until after the surgery if the mass is…
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CHECKING IN
Hello, Everyone I certainly haven't forgotten about any of you, and continue to keep you in my thoughts and prayers. As I read the many recent posts, my heart breaks for so many - how I wish that by now there would have been more progress with detection/treatments for this horrible disease. But I am also encouraged by your…
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Kidney damage and other side effects from chemo?
HI, I was wondering if anyone else has had to deal with side effects from chemo...I was overdosed on taxol/carboplatin (weekly for 8 months) and now, even though my CA125 has been in the single digits for about a year, I suffer from kidney damage and also neuropathy-no feeling below the ankles. I have to have ureter stents…
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No sure if this is allowed
This is a link for a petition for a young mother in Israel who has Ovarian cancer. She is loosing her battle. I have followed her for several years, but don't know a lot about clinical trials or recurrences{Thank God!} She writes a blog of what she has been going through. I signed the petition, maybe you ladies would like…
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So scared
hi ladies, im new to this site. I was diagnosed stage 4 on February 17th. Have had a hysterectomy and started chemo april 17th. My question, how do you stay strong and posifive knowing the statistics of this horrible disease? I really do try, but I cry daily. I have faith in my gyno-oncologist, but even positive results…
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Booklet on CA125 levels for info - from Foundation for Womens Cancer
http://www.foundationforwomenscancer.org/wp-content/uploads/CA125levels.pdf
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Bloating/distension treatment?
Started on Abraxane on June 10, after my CA15 soared to 3100 on Xeloda. It's been rough. I have great discomfort from bloating or ascites -- I don't know exactly what, since I've had no scans since March. My question is -- does anyone have a good treatment for bloating? I weigh less than I did a few weeks ago, but my…
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Scheduled TAH on June 11 re-scheduled due to Magnesium Citrate pre-op but changing my decision
Hello, I have been lurking on many ovarian cancer, endometriosis, and hysterectomy websites for a while now since my ob-gyn recommended a hysterectomy last month. I have been battling severe endometriosis for 13 years now. I am turning 43 next month and I have accepted that I will not be able to bear a child of my own. My…
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Checking In
I don't check in often, but I just wanted you all to know that 5 1/2 years since my initial OVCA Stage 3c diagnosis, I'm still here. And after 4 years of my OVCA Brain Mets, I'm still here. There is hope. Love you all, my teal sisters. I pray for all of us every day. Love Leesa
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Has anyone experienced facial hair growth after treatment?
My sister stopped treatment in September and just now is growing hair back on her head...but unfortunately also on her face! Has anyone else experienced this? Thanks for any help on this. Gail
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poopergirl
I have not posted on this site for a long time but I know that you would want to know Val is in the hospital and could use your prayers and good wishes.She was in the Icu with a collapsed lung according to her sister. since her sister posted this info i don't think Val would mind that I let you know too Colleen
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Thanks to all
thank you to everyone that replied to my previous post. Because of you beautiful women/survivors/fighters, I feel I'm in a better place to fight for life and not listen to silly statistics! I hope that im here 20 years from now and can help another "newbies" the way you gals have helped me! with tons of love, heather ❤️
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PLEASE READ ZEN MAMMA'S MAY 7 POST :Booklet on CA 125 Levels" more good info & education
Hi all We in this cancer war need to educate ouselves oin relevant info from reliable sources I WOULD RECOMMEND all newbies read this it ceretainly reinforces all I've learned about CA 125 n my journey agtain emphasizing it is oinly a guideline for our docs toi use in conjunction with other info in our treatment Susan P…
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super flabby belly since debulking Ovt 14
Hi all - I've been fat all my lifew 63 years I carry my weight in my belly small butt - thighs & hips in proportion. Since the ssurgery & weight gain instead of just being fat it iks like a big glob og bread dough instead oif just puffy fat & now because of the scar - it kind of pouches funny sround my belly button on…
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Care that never quits?
March 2013. I take my wife of seven years to the local hospital for abdominal pain and swelling. The blood test come back with the worst news anyone could ever want to hear-cancer. they send us to another city an hour away that is said to be the best in the state. I'm glad they think so...but that is a whole other story.…
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port flush
I have a bard port that I usually get flushed every 6 weeks or so. I will be rv'ing the summer away and don't know where to go to get my port flushed. If I am REALLY lucky, I may get 3 months if the $$$$$$$ holds out! My onc. is with Florida Cancer Specialists, and, of course, they are only located in FLA. I didn't get any…
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BRCA TESTING
My Doctor's office called. I am BRCA negative!!! Yeah! So thankful for my daughter and sister. As well as ny future granddaughters. Carla
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Mayo Clinic Webinar
Did anyone else tune in to this today? I was interested in the points being made about clinical trials; MYTH: insurance doesn't pay for them FACT: insurance doesn't pay, but there is no cost to you, the patient. One person's comment on this said that while the drugs are not a cost to the patient in the trial, administering…
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Still here... Coming up on 9 years!
Hi loves, I've been AWOL from the board for quite awhile so many of you may not know me. I was diagnosed 3C in 2006 and went through the surgeries and chemo rounds and was in remission for about 2 1/2 years. My disease became recurrent and I've been chemoing ever since. It's strange to say, but living my life around chemo…