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Pelvic Tumour
It seems the CA125 was telling the truth. I have a recurrence after 3 years cancer free. A pelvic mass, just waiting for MRI scan to confirm what it is. Prognosis not so good if it multi site. On the left side, so the same as before. For stage 1 it's disappointing especially as the consultant had been so positive. I go on…
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A toast
Today is Seatown's 70th birthday. Carole hoped she'd be here to celebrate. Since she isn't, I propose a toast. Here's to a life well lived. We won't forget
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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Who had a recurrence after stage 1?
So chemo is over and soon I start the every 3 months visits for 2 years. I know a recurrence of ovarian cancer when it was stage 3 or 4 is very high, but what about when it was stage 1? I haven't seen many statistics about this. And every time I do read something, it sounds like EVERYONE has a recurrence. I think the stage…
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anyone else finding found OVCA recurrence MUCH harder emotionally than initial dx?
Again - her I go expecting too much of myself. I think - had been lulled into a false sense of security for over a year- all the while pretty sure it would come back WELL if it does, "ll just fight it again . I've lost some of the oomph - this time it issmall bowel restriction. so eating & digesting is a problem - as were…
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Who has problems with bowels & irregularity since Cytoreductive Surgery
Hi Ladies Just want to know if anyone else has problems with their bowels and irregularity since their Cytoreductive Surgery. If so, what remedies were useful? Am on my second series of Carboplatin and Taxol to combat potential Intestinal Blockage. Diagnosed Thanksgiving of 2012 with Peritoneal Carcinomatosis. Exploratory…
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praying hard for mom
Has anyone had this problem? we just found out that my mom had overian cancer she had surgery they had to take out the spleen,appendix , and she had histotrectomy done. She was like nine months prego they removed a big tumor from her cavity of the stomach. She had so much done the poor thing is so weak the cut will not…
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tumor around small bowelcausing slow down leaving stomach -docs say not a real blockage yet ensure &
As I'm dealing with this new phase of my OV CAI 'm feeling alone seemed like we all go through first line together same drugs responsesoibses & reactions. my TX is 3 x doxil then contrast CT - they tell me you need the 3 tx's before you can expect results the tumor isnkind of a band around some small bowel - causing…
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doxil & backache
Hi all dince my first tx I've had what I thot was lower back strain - I normally have no back problems While trying to learn more abopit Doxil - I came across back pain as one of the possible side effects Just curious if anyone else knowsabout or has experienced this this? Tks yet again Susan P from Southern Albera Canada…
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It's THAT time again :(
OK..........I've been putting it off................I ran out of excuses...........went for a CT scan today.......last one was October 2014 as I finished the last chemo for a reoccurance of Stage IV OC. Now...................the wait................................I see my oncologist Monday, yeah, "only" 5…
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Clear cell vs serous cell
Hello lovely ladies, I have posted this on the uterine board too. I'm interested in how many of you have clear cell, serous cell or a mixture of both. I had my CT scan today to see why my CA125 is rising again, and came home to read some research papers. A bit depressing I know, but it said that clear cell is more commonly…
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Carole (Seatown) passed away
It is with great sadness that I must inform you, on Doug's behalf, that his beloved Carole passed today just before noon. Her final hours were peaceful, with Doug spending the night awake and next to her holding her hand. Through the night she was still able to acknowledge his squeeze. Through yesterday she was lucid,…
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Alexandra's update
I would like to apologize for the long silence and express my sincere gratitude to everyone who sent emails, PMs and good wishes. Sorry if I didn't reply right away. I didn't want to be Debbie downer, so please consider this a semi-motivational post. I have been in the second recurrence of high-grade ovarian cancer,…
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Small steps
Looking for what it takes to make it 5 more wks until my 70th birthday. Or not. Today I entered hospice. it's all at www.CaringBridge.org/visit/CaroleSeaton
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What can I expect?
My wife has stage 3 endometrial cancer and she was also recently diagnosed with bladder cancer. We have been through 5 months of chemo, 4 weeks of alternative treatment in Germany but her cancer continues to progress. We are awaiting a CT scan and MRI to figure out if surgery (removal of her uterus and possibly her…
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AROMASIN & CA125?
Hello Everone: Long-time member, but here's a quick recap: 2000 OVCA Stage 1C 2006 OVCA (not sure of stage) 2013 Breast cancer Surgeries, treatment for all. Been well since 2014 after radiation for breast cancer. Here's my question: Have any of you experienced higher CA125 levels while on Armoasin/Examestane or any other…
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Hello
Hi Everyone, What a fantastic board. I have been browsing here and the uterine cancer board. I live in the UK so treatment is far more restricted than the US. I have stage 1C, have had initially key hole surgery in September 2012 where my tube, ovary and cyst were removed, histology showed cells within the cyst so I…
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Topetechan started last week. ?
hi my name is Kathy, I have stage IV OV cancer. IIstarted with taxal/carboplatin, then surgery then 3 rounds of doxil. I was taken off doxil due to a terrible chemical burn that radiated from the inside out on both legs.Doc took me off after 3 rounds. My CA 125 is now up to 1155 with cells spread through my omentum and a…
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I'm now part of the recurrence gang - sorry to say of course heading to Doxil
I knew it was more probable than just possible yet I am still scared had a contrast CT last weekend - couldn't keep food down -- small small bowel obstruction - tumor around the bowell & a few scattered bits in there, too lymph seems ok - no other organs at this point . blockage is just a slow down. NO thot of surgery -…
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The blessing and curse of Stage 1
I am new to the Cancer Survivor Network. I came here to find the support that I have been missing during the worst six months of my life. In January of 2015 they found a cyst on my right ovary during a routine yearly exam. Four weeks later my ultrasound showed it had grown to 7 cm. Four weeks afer that I had surgery. I was…
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Dear Valerie
Valerie's sister, Cindy posted on Facebook that our dear friend has passed. I am heartbroken. Karen
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Help finding a patient advocate/nurse navigator
Having a very hard time finding a patient advocate / nurse navigator to help my mother and me through all of this. Just diagnosed as ov stage III and surgery scheduled 1 week from now. We are not unhappy at all with any of the care, but would just like some advice and guidance as I am overwhelmed. My mom is not proactive…
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ANY WORD FROM BOB 13440 AND HIS WIFE LORRAINE?
just checking in.
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Ok Ladies
I am all-out worried about Alexandra! She is not only NOT posting, but is not in the bsck ground! If anyone knows if she's ok, please let us know. I hate to stalk(well, not really), but I am concerned. Thanks, All Debrajo
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Sharon Nance (msfanciful)
I just found out that Sharon Nance has passed. I didn't know she was so ill. I did notice the last pictures I saw of her on Facebook she appeared very thin but did not talk about her illness. She is one of the first women I met here in 2010. She was beautiful and sweet. I watched all her videos on youtube and they were…
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Pray for Joyce
Our little friend Joyce, known here as jbeans888 is fighting for her life. I met Joyce here in 2011. She was only 31 and diagnosed with Stage IIIc. She got married after her recovery and I am proud and honored that we became friends. A Karate expert and sports enthusiast, I always refer to her as "my little hero" because…
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Mom
anyone out there that can offer any opinions I would be grateful. 83 year old mom has ovarian cancer. It has recurred 4 times in 71/2 years. It's back she's under hospice care. Is becoming confused and sleeping a lot . She has pnuemonia spot in lung has been on 4 antibodies in 3 months. Not eating much. Had some…
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Carboplatin for recurrence
hi everyone , just had surgery for 1st recurrence , ca125 came back higher than before surgery at 200 , so following up with carboplatin 6 cycles anyone else had this on its own for 1st recurrence , had it with taxol when originally diagnosed , hoping it works again , feeling very anxious more than when I was first told I…
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a year & a half after debulking still have some abdominal discomfort still tender & bruised-F eelt
Hi all I must preface this by being honest & saying I carry my excess fat in my jiggly belly Yesterday I was sitting in my wheel chair - paralysis from severe stroke & bent forward to pick something off the floor when I sat back up I had a sharp pain at the top of my incision - took my breath away for a few seconds.…
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GCT - Granulosa Cell Tumor Ovarian Cancer
Hello everyone, I am new here and looking for others that have the GCT Ovarian Cancer - it is a rare kind from what I have been told and I am wondering about remission stats, NED stats, as I have been told that I will NEVER be cured because of the Microscopic Cells that will always return in other organs at some…