Hi teal sisters! Last several months have been rough

Photo queen

I haven't been on much lately but the last several months have been interesting to say the least. From what I read mom with 2 great kids and wolfmeister must be about where I am in my progression with this disease, only we all seem to have slightly different problems. I was doing pretty well till October and my ca125 went from about 100 to over 1000 almost over night.  At the time I was on topotecan. Because of the location of the nodes they decided to try 26 rounds of radiation.  Anyway I finished that and am now on gemsar. Don't care for it much, rough stuff. I have anywhere from 3 to 4 liters of ascites fluid drained every week. (Don't know how long that can go on). They sent the fluid away to see what would be most effective at this time. Stupid cancer cells died so they are doing it again.  They would like to do a new procedure called Y90 where they put radiation spheres in your liver for a new spot that has popped up.  Between kidney stones, bladder infections and good ole constipation it has been a rough couple months. Counts have dropped hundreds of points but the ascites continues.  Just getting really tired. How do you guys stay so positive with all the stuff they put us thru. Some days I don't know whether to fight or give up.  I think I am just getting tired of watching life pass me by.  I guess I just need some words of encouragement. Anyone found anything that seems to help?

NoTimeForCancer

Photo queen, I have not gone

Photo queen, I have not gone through anything you or any of the other lovely ladies here have, but I have to say I find you all so INSPIRING.  I am sure with all the abuse that has been done to your body you don't feel that way.  Every day, I pray for all the women on the gynecological cancer pages.  It is a scary and not talked about cancer, but you all are very real and very much loved.

 

lovesanimals

NoTimeForCancer said:

Photo queen, I have not gone

Photo queen, I have not gone through anything you or any of the other lovely ladies here have, but I have to say I find you all so INSPIRING.  I am sure with all the abuse that has been done to your body you don't feel that way.  Every day, I pray for all the women on the gynecological cancer pages.  It is a scary and not talked about cancer, but you all are very real and very much loved.

 

Dear Photo Queen

Please know that I am sending lots of warm hugs and prayers your way as you battle the beast! 

Kelly

mom2greatkids

lovesanimals said:

Dear Photo Queen

Please know that I am sending lots of warm hugs and prayers your way as you battle the beast! 

Kelly

So VERY sorry.  This disease

So VERY sorry.  This disease is an absolute beast!! I successfully completed 3 radiation treatments for the brain mets.  Dealing with fatigue, nausea, vomiting and constipation.  It's not all from the radiation.  Meet with my dr. next week to see what chemo drug is next.  I still have to have the kidney stents put in.  Seems as though there's no end in sight, doesn't it?  ONe step and one day at a time.  Best wishes!!!  Carla

 

wholfmeister

I don't know

I don't know how any of us do it!  I was diagnosed 3 years ago, and although I have never gotten to NED, I was doing pretty well until  October.  I think continuous chemo of one sort or another just started to take a toll.  I have not had to deal with the ascites, which sounds absolutely awful...and frightening!  

But we have to keep moving forward! One foot in front of the other.  One day at a time.  We are the ONLY ones who can do it.  I don't know how.  But I know I have to get up tomorrow and be the best I can be.  I'm not going to allow cancer to define who I am.  I want to make a contribution to the world.  So I have to keep going! 

kimberly sue 63

Sorry it is so rough for you

Sorry it is so rough for you right now. Be good to yourself....get a facial or a massage. Take a chair outside and soak up some sun rays and get some vitMin D. Don't feel guilty about a nap...you need all the strength you can get. Kim