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Asking for good thoughts ...
Hi everyone. I am waiting to go and get blood work drawn this morning and am praying that my numbers are good this week. They canceled my IV/IP treatment last Wed because my white count and platelets were too low. Not only am I frustrated I just feel as if I'm a complete failure sometimes at this whole chemo thing. Not one…
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Anxiety Medicines
Unfortunately the stress leading up to and following treatment has had devastating emotional effects on my wife Linda. She is now taking the regular chemo/anti-nausea drugs and Lorazepam for combination nausea/anxiety. The AD drugs keep her afloat. There is an anti-depressant prescribed that she's started but is nervous…
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Update
Hi Everyone, I have been away for a few weeks and on my return I have been advised that I do not meet the criteria for the Amgen Clinical Trials because I have received more than 3 previous regimens of anti-cancer chemo. Accordingly I hope to commence doxil next week in the hope it can reduce my ca125 sufficiently to be…
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Dr. report
My gyn/onc said that the physical exam and CA-125 of 6 indicates that I am disease free for now. I will have a CT scan on Friday to see if that concurs. I had the choice of stopping all chemo or taking a 12 month course of a low dose of Taxol one time a month. He said there was still controversy on this but the one study…
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Cisplatin experience: side effects?
Curious if anyone can share experiences with Cisplatin which is what our doctor initially mentioned as the chemo drug of choice. We may have a consultation with the chemo doc tomorrow (Wednesday October 3)
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New Here
I was posting on the colon cancer site this summer - I never thought I'd find myself here. I went in for colon surgery after a colonoscopy found a polyp with severe dysplasia. The polyp was flat so it was recommended I have the area of the colon as well as lymph nodes removed. The surgery was a success and the cancer had…
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Hi there, posting in again...
Sorry I have been a little abscent, as you know I'm so busy with my Mom and my baby (6 months now). We got my Mom's PET Scan result, thank good there has been a good response to treatment, up to now she has had 9 chemos. All the solid lesions that appeared in March are apparently gone, specially a bigger one that was…
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IV/IP treatments
I am to start my IV/IP treatments on October 10th - this will be my first attempt at the IP. I will be getting Taxotere in my chest port and Cisplatin in the abdomen. I was wondering if any of you have gone through this and what I can expect. Also, if you have any suggestions for once you are done with the treatment - i.e.…
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Very Rare Cell Type
I have tried this before with no response, but we have a lot of new people out there. I have Malignant Mixed Ovarian Tumer of the Ovary,stage IIIB. It is generally more progressive but I had good response to 8 treatments of carboplatin/taxol in 2005. Now I am going through my first recurrance. Another rarity, It has come…
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Confirmed recurrence
The gynecological oncologist did surgery on my wife Linda this morning and found a recurrence of ovarian cancer. His description of the cancer is that it is "plaqued" on the lower abdominal wall but is not manifested anywhere in the upper abdominal or chest cavity, nor on the organs. So like all cancer news, both bad and…
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Flu Shot or Not?
Hi all. I'm wondering what your Dr's have told you about getting a flu shot while undergoing chemo. I've had my regular general Dr. tell me not to have one while on chemo but I haven't actually asked my Oncologist about it. Does anybody have any advice on this with flu season approaching? It seems to me that it wouldn't be…
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Abdominal swelling management
I'll try to be briefer on my posts...With a week to go before exploratory surgery, my wife's stomach is very bloated and her back hurts. No sign of cancer cells in the fluid they tested (twice) though. But how do you handle this increased swelling and back pain. Any advice?
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new to the site
Hi. I wanted to introduce myself. I've been "watching" this wonderful support site for the past 2 months. I was diagnosed with Ovarian Cancer Stage IIIC 2 months ago today, have had surgery, my ports implanted and have went thru 1 round of chemo - my second round is tomorrow. I was originally to have Taxol/Cisplatin thru…
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AMGEN Clinical Trial
Hi Everyone, Has anyone heard of the amgen clinical trial, Phase 2 of Pactitaxel in combination with AMG386. About 150 patients from 40 centers will take part in this study from regions including the US, Canada and Australia. I am interest in any information on this trial. Irene
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Neuropathy
Well, I tried the vitamin B-6, and it has helped the cramps in my toes. I still have the numbness, and that affects my balance which is especially bad in the mornings. Thanks to all who suggested the B-6.
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Nervous up-coming Onc visit
Hi everyone...Well this is the end of my 10 week chemo break, and I go see the Onc, this Friday. Of course now all the crazy fear, and what if's return..and I'm fighting to stay positive...but it's so hard!!!At my last visit I was taken off the Gemzar 1 cycle early because I was going into congestive heart failure, and my…
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Sorry I haven't Posted Lately
Hi all. Sorry I've been away from this site for a while. I've been reading everthing, just haven't written anything. That's just kind of how I am. I like to listen but not speak much. But I thought I'd update you on my situation. I was on a chemo break for quite a while after trying Hexalen. (Bad for me). Now I'm currently…
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2nd treatment accomplished
They did decide to go with the Taxotere & Carboplatin today - then my doctor came in this morning to do my physical and asked if I'd like to try the IP Cisplatin this time around. I was so shocked! We decided to wait until the October 10th treatment and try to do at least 3 IV/IP treatments of the remaining 4 I have to go.…
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post-chemo
I have recently finished iv/ip chemo and now have move to the midwest and looking for a gyne/oncologist. I am having a hard time finding one within 3 hrs. of my home. I did finally find one and then found out he no longer takes care of the oncology part. He is in a sm. clinic and they do not do the chemo there. So, even…
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My mom is now home!
This is Rebekah, Kathie's daughter, once again. I am so excited to update you and let you know that my mom went home today! It's been almost four weeks since we first took her to the hospital and given the odds she has had against her, to have her at home now is a true miracle and blessing. I live in Denver but I just…
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Allergic reaction
I had a mild reaction for a few hours but it was stopped with the prednisone pak. That also seems to make my chemo go more smoothly also. Had good appetite and no nausea at all thru the week. Thanks ladies, for your support.
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Recurrance Strategies
My wife had low CA125 counts for a year and they suddenly shot up this month. This is one year+ 2 months after completion of a rigorous taxol/carbo (with some late reaction) chemo treatment and intraperitoneal therapy. She still feels great with no symptoms but is absolutely freaked and nearly inconsolable. She was so…
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allergic reaction
My platelets finally came up and I had my chemo Wed. Just as I was about three forths of the way through the carbo I started itching and broke out in hives. They had to give me a substitute for benadryl and steroids for the reaction. It was very miserable. I am now waiting to see if I am elligable fow a new and only study…
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Allergic reaction
I saw my oncologist today and was told we may have to drop either taxol or carbo after my next dose on Thursday because I had a mild rash for a week last dose. He said the reactions usually get worse and it could be either of the chemicals. I will be more heavily pre treated for allergic reaction this time and we'll see…
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Meet a survivor
I have a friend who has ovarian cancer, currently in remission. She has never met an ovarian cancer survivor. Is there any way we can put her in touch with a support group or whatever so she can talk to someone. She lives in southern New Jersey. Many thanks for any guidance you can provide. Banjoman
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Dating With Cancer
I want to know if anyone else fighting cancer has tried to get back into the "dating scene" after treatment. I have recurring Ovarian Cancer and I try to be honest about it with men I meet. However, it scares them away. I know this may seem like a ridiculous problem compared to our battles however, I want to live my life…
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Cranberry Juice (pure) and OVCA Effects
I all just heard on the radio about effects of pure cranberry juice and ovca. Found an article on it at http://www.medicinenet.com/script/main/art.asp?articlekey=83405 or just try medicinenet.com and search around. It is especially helpful with those who are sensitive to the platinum based drugs. Carboplatin,cisplatin,etc.…
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Senate Ovarian Cancer Awareness Month Resolution
Hi everyone, The Ovarian Cancer National Alliance has issued an alert to encourage as many people affected by ovarian cancer as possible to contact their senators to encourage them co-sponsor the House or Senate resolutios to make September Ovarian Cancer Awareness Month. You can get more information and fill out an…
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((((Group Hug))))))))
Thank you all so much for the notes you left!!! Reading all your messages is so heartwarming. What a group of brave compassionate warriors. I don't know about you but I think we all could use a group hug! ((((((((((((((((HUGS))))))))))))))))) Love Ya Bonnie
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Etoposide
Hello everyone, I just wanted to see if anyone has taken Etoposide. My mom just started it two days ago. Any advice will help. Thanks, Margarita and Stacey