Ovarian Cancer

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Discussion List

  • User: "saundra"
    After debulking surgery and one treatment of taxol and carbo my CA-125 measured 10. Down from 35 pre surgery after 4 treatments of chemicals. My neuropathy is much better after startine the B-6 and do…
    2 views
    8 comments
    0 point
    Started by saundra
    Most recent by mccarty
  • User: "JenniferB71"
    Hi. I'm interested in finding out about peoples' experiences at Johns Hopkins Ovarian Cancer Center. My mom is under the care of a gynecologic oncologist in Northern Indiana, but we are considering ge…
    3 views
    1 comments
    0 point
    Started by JenniferB71
    Most recent by saundra
  • User: "saundra"
    Well, I now am getting neuropathy in my feet...burning & pain at night. Any remedie hints would be appreciated. I took one Tylenol and then two ibuprophen to get to sleep last night after midnight. I …
    40 views
    7 comments
    0 point
    Started by saundra
    Most recent by mccarty
  • User: "collins"
    I just returned from seeing my onc. My chemo was once again delayed -- this time for wbc. Last week it was platelets which have really gone up. I am back on nupegean (not sure how to spell it) shots a…
    4 views
    4 comments
    0 point
    Started by collins
    Most recent by paula2
  • User: "aussie59"
    Hi Everyone Last night there was on TV a very interesting story on cancer called For the Holy Grail. I found it very inspiring and it confirmed my belief that you have to continue to fight as hard as …
    2 views
    3 comments
    0 point
    Started by aussie59
    Most recent by paula2
  • User: "mopar"
    Hello, and welcome to our forum. I started a thread here, so that you would be able to spot it easier and read your responses. You sound so bewildered, concerned and frustrated, what most of us in thi…
    3 views
    4 comments
    0 point
    Started by mopar
    Most recent by paula2
  • User: "collins"
    I just went over my ct scans with my onc. For the first time I got to see all of the pictures not just the radiology report. It was interesting looking at the tumors but also a little scary. All of my…
    10 views
    5 comments
    0 point
    Started by collins
    Most recent by saundra
  • User: "collins"
    Has anyone out there used the chemo drug patupilone. I am considering going on a study using this drug and understand it is quite new. I have been on carboplatin and topopecan. The carbo is playing ha…
    4 views
    4 comments
    0 point
    Started by collins
    Most recent by groundeffect
  • User: "TxSky"
    Last week a cousin underwent exploratory surgery. They discovered two "large" tumors, one on each ovary, that they say were malignant. It has already spread to several locations. They did a radical hy…
    18 views
    8 comments
    0 point
    Started by TxSky
    Most recent by paula2
  • User: "BonnieR"
    My counts are still a bit low, the biggest concer was the anc is still low too. BUT, my chemo nurse called last night and she thinks because it has been postponed a couple times now, I will get chemo …
    18 views
    8 comments
    0 point
    Started by BonnieR
    Most recent by BonnieR
  • User: "lizper"
    Sorry to say that my Mom`s counts are so low that the Onc said to wait 7 days and repeat the lab tests in order to see if she is ready for chemo.. I hope so because waiting for treatment doesn`t make …
    11 views
    6 comments
    0 point
    Started by lizper
    Most recent by lizper
  • User: "paula57"
    I have been staying clear (Pretty Much)of this site for many reasons. I felt guilty that I was doing so well and others were having such a rough time. I may be having my first recurrance. Time will te…
    23 views
    12 comments
    0 point
    Started by paula57
    Most recent by shegal
  • User: "saundra"
    I am starting 4 to 6 cycles of carboplatin and taxol tomorrow following my debulking surgery. So I join Bonnie in hope that by Christmas we can have a rest. I saw the surgeon yesterday and the surgery…
    3 views
    3 comments
    0 point
    Started by saundra
    Most recent by floridajo
  • User: "floridajo"
    Hello ladies, I finally got an answer if thats what one would call it!!! The Onc's and Internist all agree that for right now they are going to watch those enlarged lymph nodes and nodules on my left …
    2 views
    4 comments
    0 point
    Started by floridajo
    Most recent by paula2
  • User: "bozeta"
    I'm sorta new on this site have been reading all for a while. I was in treatment for 18 cycles of taxol/taxotere,carboplatin,and avastin. My 125 finally dropped to the normal range of under 35 in marc…
    27 views
    7 comments
    0 point
    Started by bozeta
    Most recent by paula2
  • User: "BonnieR"
    Still no chemo today. My platelets came up, but wbc and rbc down even more. I received an aranesp shot but too late for neulasta. Carbo dose is going to be reduced and both types of shots have been or…
    23 views
    9 comments
    0 point
    Started by BonnieR
    Most recent by floridajo
  • User: "mopar"
    Rebekah: Saw your post on Bonnie's thread, and wanted to start the thread for you here so you can monitor the responses to your questions. So sorry Mom's not feeling well. Can they give her any pain m…
    2 views
    5 comments
    0 point
    Started by mopar
    Most recent by aliced
  • User: "kathie687"
    i woke up feeling better this morning and thought i would post before i got tired. my daughter has been keeping me informed about all of yo and you have been in our family thoughts and prayers. i trun…
    1 views
    4 comments
    0 point
    Started by kathie687
    Most recent by BonnieR
  • User: "floridajo"
    Hello liadies and I have some news that has shaken me to my bones. I have gotten a bad report. There is 4 nodes all on the left lung, they are very smll in size. I also have 2 enlarged lymph nodes in …
    32 views
    9 comments
    0 point
    Started by floridajo
    Most recent by paula57
  • User: "paula2"
    Are you home safe? Did you go through the staple removal yet? Perhaps you have posted and I missed, but wanted to send you best wishes for a speedy recovery. Prayers and Hugs and good energy sending y…
    3 views
    6 comments
    0 point
    Started by paula2
    Most recent by Cindy54
  • User: "lizper"
    My Mom just had her chemo (gemzar and cisplatin)last Friday and is still feeling so so tired, with some nausea... I think this chemo is harder that gemazar plus carboplat. Any tips to make her feel an…
    2 views
    3 comments
    0 point
    Started by lizper
    Most recent by jamilou
  • User: "lizper"
    It's been a while... update on my Mom's recurrence. She is still on chemo. She developed a hand rash on 3rd cycle so Carboplatin was changed to Cisplatin which she will start this Friday along with Ge…
    2 views
    3 comments
    0 point
    Started by lizper
    Most recent by paula2
  • User: "floridajo"
    Hi ladies!!! I have had a hell of a 2 weeks. I went to get another Procrit shot, and of course they weighed me and I had gained another 2 lbs. I then had my b/p taken and it was 196/98. I then brought…
    6 views
    3 comments
    0 point
    Started by floridajo
    Most recent by paula2
  • User: "lizper"
    Thank God!!!! Ca 125 is 11.7 out of 21...lets see what Dr. says Friday. My Husband had his job interview for the NY position same day. Can anyone tell me if Memorial Sloan Kettering is good for treati…
    2 views
    2 comments
    0 point
    Started by lizper
    Most recent by mopar
  • User: "paula57"
    I had an email yesterday on the 12th from CSN stating that I had a new message in my message box. There was no new message. If someone wrote, I just wanted to let them know that it was not recieved. T…
    4 views
    2 comments
    0 point
    Started by paula57
    Most recent by saundra
  • User: "wild007"
    I've posted before but haven't gotten anything. I have peritneal cancer and my CA 125 numbers went from 9 to 25 in three months. Should I be worried? I've been off chemo for 7 months now.
    26 views
    6 comments
    0 point
    Started by wild007
    Most recent by wild007
  • User: "saundra"
    Sandy's 5th day in hosp after surgery. Went to bathroom on her own this a.m. Still on morphene & oxygen, however. Joe
    14 views
    9 comments
    0 point
    Started by saundra
    Most recent by paula2
  • User: "Keelie"
    Hello everyone. That dreaded rash has hit big time, mainly in my bra and belly area!!! It started about 10 days after my 3rd infusion! It's fiery red and painful. I've been using some of your posted r…
    40 views
    7 comments
    0 point
    Started by Keelie
    Most recent by JanQ
  • User: "saundra"
    This is Saundra's husband Joe. Her debulking surgery on Friday was a huge success! Surgeons did remove the spleen, but left the colon alone. Three small lesions on liver were removed. She's recovering…
    16 views
    8 comments
    0 point
    Started by saundra
    Most recent by saundra
  • User: "duckcreek"
    I just got back from my 1st 3 month checkup after chemo. My CA-125 was 9 and I am VERY happy about that but another problem has comeup I was told I have a cyst on my vigina wall. The dr. does not seem…
    1 views
    1 comments
    0 point
    Started by duckcreek
    Most recent by Cindy54