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Here's the latest....
Picked up the slides from the pathology dept of the hospital where I had my debulking surgery and over-nighted them to Dr Sabbantini, along with a CD of the films I had done back in March of 2010. Got my gyn/oncologist's office to schedule a new CT scan for me Thursday. (How convenient....since I was already going to the…
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MSK is evaluating my records...
They have agreed to see me at Sloan Kettering, if my records pass muster. I am having the records faxed this week. I just need to get a new thyroid profile done, and have scheduled that blood draw for tomorrow. The scheduling nurse has reserved a slot for me on Jan 19th, but she has to check with the doctor, to make sure…
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CoQ10 - during chemo
i was wondering if i can take CoQ10 and other vitamins - like D,E,A and flaxseed, reservatrol during chemo?
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Marty White (aka Mawty)
I had forgotten she had a Caring Bridge page. Someone posted a link to it on Face Book today. This just breaks my heart. I hate this damn disease. Here is Marty's latest message from CB. Things changed. Now I'm not having radiation because the cancer has spread through my upper abdomen. I started my first chemo today.…
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"I wish you felt like I do"
That's what my husband told me this evening, in a fit of pique. He's sick. He has chills and a little bit of a temp (less than 101). He's achy and miserable. I get that. But he's also whiny. Absurdly whiny. Yesterday, at the onset of his grave illness, he mentioned several times that maybe he should go to the ER. Tonight…
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please read and thanks!
Hi, I was wondering if anyone here has had a reaccurence then went into remission for a long period of time(yrs)? I wonder if it is possible since I was told once you have a reaccurence you are considered incurable! hugs to all. :)
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One Step Closer
The scheduling nurse from MSK called me this morning and confirmed my appointment on Jan 19th. She gave a a list of things I need to bring/send: the glass slides from the hospital's pathology dept, taken during my initial surgery, and a CD with my CT films from last March. They also want me to have a new CT scan done…
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A vomitting question........
Just a bit of background info 1. I am on my second line chemo (same one as before) Carbo/taxol. 2. I had my second infusion on the Thursday before New Year. 3. On New Years eve around 3pm I began with violent stomach pains and vomitting. 4. I promptly took some anti-sick meds 5. Vomitting continued on and off until 9pm…
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What The ????
I have learned this morning that I also have kidney cancer ! This is crazy ! I've always joked that if it weren't for bad luck I would have no luck but come on now ! If it wasn't for the ct/pet scan I would not have known about it until it was too late, no symptoms at all. Good thing is that hopefully it has been caught in…
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chemo bag
I am packing my chemo bag for next week and it is pretty full. I have a neck pillow,a book a prayer shawl, a granola bar and some gum. what is in your chemo bag??? What do you do to pass the time??I also pack my ipod too......val
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Surgery this Wed.
Hello to all! Well, it turns out that all of the constipation and nausea I had with the Hexalen may not have been from the Hexalen at all. I have a "stricture" or "apple core lesion" on my colon, and the colon is only 2-3 centimeters wide in this area. I am going to have surgery this Wed. (they moved fast on this, barium…
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the beast is back again...
Ct scan show again 5 spots in pelvis area, but bigger in sizes from 0.5 to 2cm. I wonder if last chemo, 6 month ago, did kill them at all. I not think so. They probably was going dormant for a while and than start grow again, January 13 I will know what next treatment wiil be. In mean time I'm so angry. I angry with all…
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Helen for Hope -23 year OC survivior
I just posted this article on the Uterine board as I go back and forth since Uterine Papillary Serous is much more similar to OC. I had posted a question about Cisplatin/Doxirubicin and got this wonderful response from Helen. While the article is dated 2003 she is still going strong today and is active in Ovarian Cancer…
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Half way there
Hi all, New Year's Eve day marked my 3rd of 6th chemos. Half way there! Things are going well, the fatigue is definitely catching up and subtle transitory neuropathy is making itself known. At least I didn't have a UTI after this chemo like I did after my second one...which really knocked me out. I've been eating well and…
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I need information please
Hi, my sister-in-law (47 yrs old) had a hystorectomy today for what her doctor/oncologist thought was uterus cancer. We were also told by the doctor that my sister-in-law (Linda) had a large fibrosis tumor (not cancerous)on the uterus. Well, when she opened Linda up to do the hystorectomy she discovered it was not a…
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Mom going through hell. Anyone had this or heard of it? What can we do to get the doctor to listen??
Mom is 27 radiation and 6 chemo treatments down. She has had pretty much every reaction you could imagine plus some I didn't even think could happen. She ended up in the hospital before Christmas with a pulmonary embolism. Got out 4 days before Christmas but ended up in ER on Christmas day due to dehydration. She wasn't…
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hair question
I have gotten my hair back and don't seem to losing it on Carbo/Doxil, but it needs help. I usually color it and have a body perm. I thought I read this was a no-no(???) If so, does it affect the chemo outcome or the hair? I sure have a case of the uglies right about now! Ginny
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chemo delayed again
my chemo delayed again... i am very concerned and upset i had my surgery on november 15th, doctors gave me 6 weeks to recover went to see onco 2 days ago just to find out that my ip port was put too high and practically at the rib cage, plus i have pain in my right side. doctor wants to have ct scan done as well as check…
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The DAMN nerve!!
So my 4 year old son and I were heading in to hang out with my mom during her chemo today, and right out front of the clinic there are 2 benches. Between said benches is a sign that reads "Kelowna Cancer Clinic - Thank you for not smoking". There are 4 people on the benches... can you guess where this is going? G** damned…
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I feel sorry for myself and all of us!
I know there is no cure for ovarian cancer but I always try to have hope that I will beat this and be around for awhile but when you hear the words eventually you will die from this disease it hurt me so bad all I could do is cry on/off for hours!! I can longer have carbo due to 2 bad reactions and I know there are other…
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Weight loss....
Just wondering what everybody does to combat the weight loss associated with chemo. My mom is 5'9" and usually a thin 130 pounds. She's down to 108 right now and it's still pouring off her. She just started taking decadron so I'm hoping that helps quickly. She has an appetite but gets full very fast. Plus usually throws up…
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Anyone hear from Mawty?
I am getting concerned about Marty (Mawty). She hasn't posted in a long time, either on here or on FaceBook. Anyone have an e-mail addy for her? Carlene
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ca125 problems?
My medical center has not been able to do any ca125 testing due to a nationwide problem with the 'reagents' or 'reactors' used. They said the FDA was involved and they are not able to get any 'good' reagents. Is anyone else having this problem. They are drawing my blood but saving it for testing. My blood was draw over…
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PLease Pray for My MOm
She gets results from CT tomorrow..She is terrified. We have never had a no progression CT yet. That's all she wants.....we are not asking for regression....just no progression.....Thanks
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Ladies....be your own advocate
At the end of our last episode, Carlene had talked to Dr Sabbatini's clinical trial nurse and his scheduler, who gave her preliminary approval and penciled her in for a Jan 19th appointment, re the vaccine trial at MSK. Her local gyn/oncologist's office promised to fax over her records ASAP. (That was for the edification…
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Is there no hope for remission for me?
I was diagnosed with stage IV Sept. 10th. The gyn/onc was not able to complete the surgery as planned to debulk and a complete hysterectomy because there was so much cancer in my abdomen. I had the omentum removed, a colostomy, and as much cancer as possible removed before my blood pressure dropped and I was losing a lot…
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Update and thanks for the prayers
First of all, thanks for all the prayers......I really appreciate it. Results: My mother's liver tumor grew an inch over the past 2 months. Neither the PARPS or Doxil worked for her. They are pulling her from the trial and placing her on Taxol. I don't know if the doctor was just being nice but we asked if this was the end…
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scared before first chemo
hello, next tuesday i am going to see my onco and first chemo by the end of the week, if all is ok. i was first diagnosed 3c ovca end of october, surgery november 15th. Ca125 was 423 before surgery and 53 after... is this ok? dotor told me it is does not matter much as it is just a mark and after chemo we hope it will go…
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Abdominal fluid
I just got my CTScan results. It shows moderate amount of fluid in my abdomen. This explains the rise in CA125 (it's 3000). Anyone else had fluid in their abdomin. What was the treatment? Can the fluid be removed? Will chemo get rid of the fluid? Is chemo alway necessary? Thanks for any answers.
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Chemo postponed to next week due to low platelets
Unfortunately, my platelets were too low to have my 5th out of 6 chemos today. I am very familiar with the platelet issue as my son has a rare genetic syndrome that includes thrombocytopenia/low blood platelets. I belong to an online support group for individuals and family of persons with Thrombocytopenia Absent Radius…