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Avastin & ca125
Still waiting for a response from my doc in NYC but I read this on another board: "I read somewhere that if you are on Avastin, CA 125 number may not be the best indicator of how you are doing. Is it true? if so, does CA 125 stay elevated even if you are making a progress or does it stay low even if there is no clear…
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What do people usually have CT scans or PET/CT scans
I've been reading alot of discussions where people go for CT/PET scans. When my gyn/onc sent me for a scan he always did a PET/CT because he said it was a better tool. Now I go to MSKCC and they only seem to do CT scans. Has anyone gone to MSKCC and had a PET/CT scan? Do any of you feel it is a better tool for diagnosing…
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Carlene
Have a safe trip. and check in often. hugs, kat
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Root Canal Survey
If you have or had cancer and DO NOT have a root canal, i'd like to hear from you. There is a theory being tossed around out there that there is a link between root canal in specific teeth and breast and ovarian cancer. I am just curious whether anyone without a root canal gets this disease. Thanks in advance. Kate
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After Chemo Joint and Muscle Pain
I am experiencing a lot of joint and muscle pain after my sixth round of chemo (Taxotere and Carbo). Does anyone have any tips on what will help with this? I am trying to exercise, but honestly it's hard when you feel like a walking Frankenstein. The pain is mostly in my back and hips. I know this is a common side effect,…
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Chemo cancelled again due to low platelets
Went in for my 6th chemo this morning and got canceled because of low platelets and another count that determines ability to fight off infection. Will try again next week. This happened for my 5th chemo also and after a week my platelets rose from 63,000 to 265,000. Hope this happens again. I'm so down because my initial…
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MD Anderson CC survey re follow-up care for those with no recurrence
I follow Gyn Onc Foundation on Twitter and received this link today re a survey MD Anderson Cancer Center is doing on follow-up care for patients who have not had a recurrence if anyone is interested in participating. GYNCancer Your Opinion Requested http://conta.cc/fUjaP3 via #constantcontact Annie
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Need advise about doxil, carboplatin treatment
This will be my 3rd treatment this week of carbo/doxil. I got the usual side effects mentioned here. Mouth sores, and blisters but also around the second week in my tougue and lips swell up making it hard to even get down the meds to help with this let alone any food. Other than ensure. etc. Have any of you had this? So…
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getting off pain mediction
Any input on how to get off of pain meds after chemo?
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Dear Carlene, Nancy, Linda, Sharon,Leesa, Colleen, and Teal Sisters,
I have been reading and posting, mostly reading and learning from all of you, since I joined in September. Carlene, you just posted a quotation from another OC post about the anatomy of hope that was inspirational for me, thank you! If you don't mind, I would like to know more about some of the other boards, discussion…
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tough week
Hi dear hearts... I've had one of those very tough weeks. The carbo/gemzar hit me especially hard and I've not even been able to respond to posts. I don't understand my body's different reaction from one infusion to another of the same combo. I'm upright this AM for the first in a week, but I can't even fathom that I'm…
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They're driving me CRAAAAAZY!!! - UPDATE
Just when I thought everything was all worked out, I get an email from Dr Sabbatini's NP. It says she has scheduled a CT scan for me on Feb 1st, the day before I get my first treatment. I email her right back....No, I had a CT scan done here just two weeks ago, at the suggestion of the trial nurse, and hand-carried both…
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Saw doctor today, sound right?
Today I saw the chemo/onc. before my 6th chemo on Monday.We were talking about next steps.I have Stage IV CA Metastatic to Pleura.Before my first chemo,I found a bump on my chest which turned out to be ovarian cancer.After the first chemo,it along with something in my neck could no longer be felt.The Dr.scheduled a CT of…
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Rising CA 125 score
Hi, am new to this site. Finished my first round of chemo - carbo/cisplatin/taxol in August and wound up with a CA 125 of 27 Have just had new test run at MDA in Houston and it is up to 92. Will have CT scan next week. Feeling great and no symtoms. Was examined last week and found no problems in examination. Am starting to…
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Rising CA 125 score
Hi, am new to this site. Finished my first round of chemo - carbo/cisplatin/taxol in August and wound up with a CA 125 of 27 Have just had new test run at MDA in Houston and it is up to 92. Will have CT scan next week. Feeling great and no symtoms. Was examined last week and found no problems in examination. Am starting to…
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Anyone heard from CafeWoman--Colleen?
I have been looking for an update regarding Colleen. As you guys recall, she had a cancerous kidney removed around the middle of the month. Has anyone spoken with her? Did I miss a posting here????? Worried about her. Wendy
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Is it possible to have OVCA with no palpable mass via pelvic exam?
Hello, I am a 47 year old bc survivor 2 years, and presently have most all symptoms of ovca. Today I went for a pelvic exam due to symptoms ( I only have one ovary and fallopian tube remaining-right ovary removed due to torsion, then later same year had hysterctomy (uterus and cervix removed) ). Gyn stated my ovary felt of…
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Great results for CA 125!
I am so happy. I had blood work yesterday and I just got the results of my CA 125. It is 5. It has been 7 since the chemo I had after surgery. This is the first result since I was released by the doctors. I wasn't super worried but of course I am relieved. I am trying to make the most of everyday even doing mundane things…
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The Anatomy of Hope.....from another poster, another OC board
"Each disease is uncertain in its outcome, and within the uncertainty, we find real hope, because cancer has not always read the textbook. This is the great paradox of true hope: Because nothing has been absolutely determined, there is not only reason to fear but also reason to hope. And so we must find ways to bridle fear…
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Doxil and PARP Inhibitator Clinical Trial
Hi, has anyone actually be selected for the PARP inhibitator part of the Doxil and PARP inhibitator clinical trial. Everything I've been reading is that people have signed up for this trial but were given the Doxil. So, if anyone has had the PARP portion of the trial, anything you could share with me would be helpful.…
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I'm in real trouble now: CA125 almost doubled even though I've been getting carbo chemo. :(
I have that 'beginning of the end' feeling; maybe I'm just shell-shocked. I went this morning for my every-Thursday labs/doctor visit/fractionated carbotaxol chemo. Only this morning when I met with my chemo-onc, his opening words were "I'm not happy." Seems my CA125 jumped up from 330 to 450 to 712 on the last 3 weekly…
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other lab values?
Does anybody else monitor other labs besides the ca125 and WBCs? My AST and ALT are both elevated. Probably liver inflammation. This is the first time those levels have been elevated since starting chemo in 2008. Wondering if anyone else has the same problem from the chemo? I haven't spoke with the doc about it as I am…
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I'm in....for better or worse
I had my last Taxol infusion today and a long heart-to-heart with my doctor. He strongly encouraged me to take advantage of the vaccine trial I was offered at MSK. Getting into the MIMOSA trial is a long shot. They may not recruit new people. They may stick with the criteria that excludes anyone more than 8 weeks out of…
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hernia
hi, 8 weeks after - surgery - i have pain in my right side of abdomen saw my onco for pre-chemo appointment, she thought it could be my ip port as she feels it is too high, right under my rib cage, had my CT - it actually looked good - no new spots after surgery, just few that we knew about and hopefully chemo will kill…
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Question for LPack re: your PARP Inhibitator
Hi, saw your note re: your trial of Doxil and PARP. If you have any information about your trial, could you please share it when you have time. Thanks.
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Can a CA125 go up 100 points IN A WEEK???
I had my CA125 drawn a week ago before what I hoped would be 2nd infusion of carboplatin and was thrilled that my CA125 went down from 298 to 238 after 1 round of carbo. But my platelets tanked so bad that I had to get a transfusion instead of getting my 2nd round of carbo. Yesterday I went back to try again for my chemo…
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Avastin
Hi everyone, I'm new to the discussion board. I have had ovarian cancer since Nov 2006 and have had 3 recurrences. I'm currently on Avastin and Cytoxan. Has anyone had this treatment and what type of results have you received with it. I was previously on Doxil and after 3 treatments, the tumors got a little larger. Prior…
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how long after dancing with Ned do you get another PET scan
it has been 7 months since I was dancing with Ned,how long do they wait to give you your second PET scan? When do they remove the port also
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Has anyone had to be on a blood thinner while being on Avastin
I'm presently on Avastin/Cytoxan. Last January, during my 3rd ovarian cancer surgery, I developed a small blood clot in my lung. The doctor immediately put me on a blood thinner and when I was released, I was put on Coumadin. I thought I would have gotten off of the blood thinner by now, but since I started on Avastin, the…
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fatique after carbo/taxol - how long it can last
hello ladies last thursday i had my first ever carbo/taxol first two days were ok, but after that i started to get body ache and now horrible fatique. i can not describe it - but feels like i can not control my body, soooo weak. how long it usualy lasts? thank you Victoria