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Doxil and PARP Inhibitator Clinical Trial
Hi, has anyone actually be selected for the PARP inhibitator part of the Doxil and PARP inhibitator clinical trial. Everything I've been reading is that people have signed up for this trial but were given the Doxil. So, if anyone has had the PARP portion of the trial, anything you could share with me would be helpful.…
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I'm in real trouble now: CA125 almost doubled even though I've been getting carbo chemo. :(
I have that 'beginning of the end' feeling; maybe I'm just shell-shocked. I went this morning for my every-Thursday labs/doctor visit/fractionated carbotaxol chemo. Only this morning when I met with my chemo-onc, his opening words were "I'm not happy." Seems my CA125 jumped up from 330 to 450 to 712 on the last 3 weekly…
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other lab values?
Does anybody else monitor other labs besides the ca125 and WBCs? My AST and ALT are both elevated. Probably liver inflammation. This is the first time those levels have been elevated since starting chemo in 2008. Wondering if anyone else has the same problem from the chemo? I haven't spoke with the doc about it as I am…
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I'm in....for better or worse
I had my last Taxol infusion today and a long heart-to-heart with my doctor. He strongly encouraged me to take advantage of the vaccine trial I was offered at MSK. Getting into the MIMOSA trial is a long shot. They may not recruit new people. They may stick with the criteria that excludes anyone more than 8 weeks out of…
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hernia
hi, 8 weeks after - surgery - i have pain in my right side of abdomen saw my onco for pre-chemo appointment, she thought it could be my ip port as she feels it is too high, right under my rib cage, had my CT - it actually looked good - no new spots after surgery, just few that we knew about and hopefully chemo will kill…
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Question for LPack re: your PARP Inhibitator
Hi, saw your note re: your trial of Doxil and PARP. If you have any information about your trial, could you please share it when you have time. Thanks.
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Can a CA125 go up 100 points IN A WEEK???
I had my CA125 drawn a week ago before what I hoped would be 2nd infusion of carboplatin and was thrilled that my CA125 went down from 298 to 238 after 1 round of carbo. But my platelets tanked so bad that I had to get a transfusion instead of getting my 2nd round of carbo. Yesterday I went back to try again for my chemo…
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Avastin
Hi everyone, I'm new to the discussion board. I have had ovarian cancer since Nov 2006 and have had 3 recurrences. I'm currently on Avastin and Cytoxan. Has anyone had this treatment and what type of results have you received with it. I was previously on Doxil and after 3 treatments, the tumors got a little larger. Prior…
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how long after dancing with Ned do you get another PET scan
it has been 7 months since I was dancing with Ned,how long do they wait to give you your second PET scan? When do they remove the port also
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Has anyone had to be on a blood thinner while being on Avastin
I'm presently on Avastin/Cytoxan. Last January, during my 3rd ovarian cancer surgery, I developed a small blood clot in my lung. The doctor immediately put me on a blood thinner and when I was released, I was put on Coumadin. I thought I would have gotten off of the blood thinner by now, but since I started on Avastin, the…
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fatique after carbo/taxol - how long it can last
hello ladies last thursday i had my first ever carbo/taxol first two days were ok, but after that i started to get body ache and now horrible fatique. i can not describe it - but feels like i can not control my body, soooo weak. how long it usualy lasts? thank you Victoria
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6 weeks after surgery-no chemo yet
hi, i had my surgery on nov 15th, 2010 - stage 3c ovarian cancer, doctors wanted me to have 6 weeks for recovery and yesterday i had my onco appt. i have healed well and off my pain meds by now, but i do have annoying pain on my right side, below ribs. it is not sharp, but constantly there.. and more painful when i sneeze…
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another carbo reaction
I had another reaction to the carbo portion of my gemzar/carbo infusion yesterday. Despite multiple premeds and enormous quantities of steroids it took 12 hours to infuse me yesterday. I caught the reaction sooner this time because I knew what was happening. I'm getting so very discouraged. I'm in my 13th month of chemo…
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Mom's CA 125
My mom's ca125 is at 89 after having 7 infusions of carbo/taxol. Not sure what this means? If chemo is successful do you always reach NED or a CA 125 of 35 or below? She was suppossed to get 8 infusions and because of such terrible neuropathy in her feet gyn/onc decided not to do the last infusion. She's in so much pain…
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Good news with my numbers
Just had my CA125 results from my 2nd cycle of Carbo/taxol. It was 220 (down from 449) so I am over the moon. Carbo/taxol is really suiting me as after the first 5-6 days of feeling a bit nauseous I feel really well and have been able to go back to work and even back to the running clu :) Tina xx
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Gluten and ovarian cancer
I attended a presentation this evening on gluten. The long and the short of it was, don't eat gluten. It is the primary cause of many of our mondern diseases, and causes nearly all neurological diseases. Most people have some form of gluten intolerance, whether they have Celiac disease or not. MD Anderson is now testing…
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Good news today.
I went to my Lung doctor (for Interstitial Lung Disease) today and he told me that my lungs sound really good. He said, I didn't have to come back to see him unless I needed him for anything. He shook my hand and said good luck and he said, "Don't you wish your oncologist would tell you that?". I said, "Boy, I sure do." I…
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Surgery update
Hi to all. I had surgery 1/12/11, and my docs were able to do a bowel resection and avoid the ostomy routes. Recovery has been slower than from my previous surgeries, and I still can't seem to get my bowels working much. Still have little to no appetite. Anyway, one day at a time, right? They sent tissue samples off for…
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I made it another year
Today is my 60th birthday. A few y9ears ago I didn't think I would. So lets wish each other Happy birthday,if it was last month or this summer spring or fall. we made it. Happy birthday to all of my teal friends, I think I am going to party like it's 1999....val
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Started the Avastin today - Hope all goes well
Well I went to the doctor and blood pressure was high. However, they started the Avastin anyway. I hope and pray that all goes well with this. They told me to double up on the blood pressure meds and to monitor my blood pressure every day. Linda
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Scary politics
Having burned out on politics a few years ago I try to stay as apoliticial as possible but this was frigthening: "Eric Cantor said this morning, under hard questioning I should add, that yes indeed cancer research would also be on the table when you talk about cutting spending. Can you envision cuts in cancer research?"…
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Starting Chemo and would like input
Hello, I am 34 and have stage III ovarian cancer. I am starting chemo on 1/12 and frankly terrified. I would really appreciate some advice and guidance from other ladies that have been through this experience. What is out there for support and assistance. Thank you so very much and God Bless. Warm Regards, Jaime
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Hexalen Chemo & ovarian cancer
I recently went on a telephone support group and some of the ladies mentioned that they were on the pill, Hexalen for ovarian cancer. Has anyone been on this and if you have were there any side effects and did it stop the growth of the cancer. The ladies in the group said that while they were on Hexalen, they were NED for…
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I am re-thinking the clinical trial in NYC and need advice
I have been searching for clinical trials closer to my home, because the mad dash to NYC this past week was horrendous and staying there from Feb 1st - 10th, as they would like is proving problematic. The hotel is $200 per night, which my husband insists is not an issue, but when you add in meals for 10 days, it's quite a…
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4 of 6 down
I can't believe how fast, and yet slow, it has gone since my first post of "Help, what should I expect"...I just completed my 4th of 6th carbo/taxol infusions on Friday. If I stay on schedule I have one in February and the final on March 4. This last time I just barely made the "cut" with my WBC just at the bare minimum.…
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Fragmin blood thinner
In Jan 2010, I had my 3rd surgery for ovarian cancer. I had developed a blood clot in my lung and I was put on Coumadin. When I started Gemzar my INR counts were constantly changing and the medication had to be adjusted. When I was put on Doxil, my INR was pretty stable. Now that I'm on Avastin, the dr. has put me on…
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Mom has been accepted into a clinical trial
There are 75 clinics around the world accepting 350 patients into this clinical trial. Mom's oncologist's team has 38 patients and mom is one of them. I really hope this is the answer we have all been praying for. The trial has been going on for a while and apparently the results are encouraging. Has anyone else…
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Dear Ellen
So nice to see your post and congrats on that new granddaughter! (((HUGS))) Maria
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Ding! Round two
I saw my Dr. today to find out what my ct revealed, as we thought cancer is back. I have some lesion on my liver and bowel. I well be starting carbo/taxol every 3 weeks and taxol once a week for 18 weeks. It has just been 6 months since my last chemo treatment. Even though I have had chemo before it is still scary as I…
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General Info on Clincial Trials...borrowed from another board
From National Cancer Institute (NCI): "Clinical trials are usually conducted in a series of steps, called phases. Treatment clinical trials listed in PDQ®, NCI's comprehensive cancer information database, are always assigned a phase. However, screening, prevention, diagnostic, and quality-of-life studies do not always have…