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I am sad today, but not without hope....
I know that I have mentioned a number of times that a woman in my local support group - and a neighbor of my good friend Sue - was an 11+ year survivor of OC. Even though she was never in remission for long periods (the longest was 12 months), she was working full time, up until a few months ago, when tumors started…
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itchy after tx
does anyone else get very itchy after carb/taxol tx. I am scratchin mysel on les back and torso. I put on some cocoa butter lotion and it helps for a while. I don't remember having this last year withmy first round ...val
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Onco/Gyno
I know you are supposed to see your oncologist/gyno for 5 years after your diagnosis but I would really like to switch to a regular gyno soon. I was diagnosed with cancer in November 09. My onco/gyno did my surgery. He doesn't take my insurance and would like to get a "regular" exam :-/. Does anybody see a regular gyno??…
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Chemo treatments for second recurrency
I had my initial chemotreatment March-July 2007 - 6 cycles carboplatin/taxoter +(herceptin one year for HER2 pos. breast cancer). My first reccurency of ovarian cancer a year ago was treated with 8 cycles of carboplatin/gemzar. After 5 month (remission? or chemo brake?) my cancers back again. My gyn/onc recommend this time…
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Cancer Treatment Centers of America
I am newly diagnosed with peritoneal carcinomatosis and since I don't see it as a listed choice, I'm putting myself under Ovarian Cancer as I've read that it is a similar cancer. Anyway, I'm looking for a good cancer center and have an appt at the Greenbaum Cancer Ctr in Baltimore (i live in VA). While researching, I came…
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ovarian and BRCA2 troubles
Had surgery July 2010 and found out I had stage 1 clear cell cancer. I did the genetic testing and found I am positive for BRCA2. Have gone through the chemo, finished last dose on Dec 8th. CA125 now down to 20 from 385. Now going through the breast screening and of course they found a mass on the left. Have to have a…
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Back on dense dose with a new port
Things are finally cranking back up in Japan, after the New Year's holiday. There are only 3 days of official holiday, but things are slow to start back up. I started back on the dense dose taxol/carboplatin today. They did a CA125 draw and after being off for 6 weeks, it will be interesting to see what the number did.…
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Is it just me....
Is it just me or has anyone else experienced a drop in level of care due to insurance issues? When I was first dx in May '09 I was on COBRA/United healthcare thru the office job I had lost (closed due to economy). As of March '10 when the COBRA coverage ended & I couldn't afford to convert ($1100 a mo. !!!!)- I had to go…
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I could really use some help, could this be ovarian cancer?
Hi Everyone! My name is Carol, I'm 27 years old with two beautiful kids and a wonderful husband. I'm new here and I've been experincing some pains that worry me. I'm hoping that maybe someone could shed some light as to what may be happening to me. My mother is a Breast Cancer survivor and just two years ago I lost my 16yr…
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CT scan was good....
I'm off to NYC next Wednesday, providing the weather doesn't throw a monkey wrench into the works! Carlene
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huge CA125 rise!!
I just got my ca125 results from 12/22, after completing the clincial trial. I rose from 192 to 662 in one month. WOW. my ca125 was 720 when I was initally diagnosed. Not sure what these means but it can't be good. The ct scan I had done at the same time didn't show much progression. Maybe I just have a higher…
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Update CA-125
Good Morning, Well, it seems that my CA-125 is in keeping with my personality. 2 weeks ago it jumped to 10 and yesterday is was 7. Finally, after 20 months of 30 day blood draws, I have been moved to every 90 days. Geez, it is like taking an exam and finally passing it. I have started a part-time job. It really helps with…
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Chemo brain...
We all know that chemotherapy targets and kills/cripples fast-growing cells..hair, nails, Cancer, and brain cells. But I get the feeling sometimes that people - my family members included - just don't quite get it. I really do not remember stuff. It's not a cop-out...honest. And maybe it's early (or not so early...LOL)…
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Cranberry Extract
Have you read or know anything about taking cranberry extract in conjuction with Carboplatin. I've heard positive things about it from survivors and I took it toward the end of my treatment. Here is a link for anyone interested.…
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Urinary infections
Linda is waiting on test results for a urinary infection. It always crops up when we try to return to "normal" if you catch my drift. But this same thing has had its advent with every bout of cancer and having just come off treatment where the tumor went away dramatically after four rounds of three treatments each, none of…
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One test down....one more to go before I am confirmed for NYC
Had my labs run today. CA125 is 6.1 Yea me!!! Now I just need a clean CT scan (tomorrow). Everyone, keep praying! Carlene
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Here's the latest....
Picked up the slides from the pathology dept of the hospital where I had my debulking surgery and over-nighted them to Dr Sabbantini, along with a CD of the films I had done back in March of 2010. Got my gyn/oncologist's office to schedule a new CT scan for me Thursday. (How convenient....since I was already going to the…
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MSK is evaluating my records...
They have agreed to see me at Sloan Kettering, if my records pass muster. I am having the records faxed this week. I just need to get a new thyroid profile done, and have scheduled that blood draw for tomorrow. The scheduling nurse has reserved a slot for me on Jan 19th, but she has to check with the doctor, to make sure…
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CoQ10 - during chemo
i was wondering if i can take CoQ10 and other vitamins - like D,E,A and flaxseed, reservatrol during chemo?
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Marty White (aka Mawty)
I had forgotten she had a Caring Bridge page. Someone posted a link to it on Face Book today. This just breaks my heart. I hate this damn disease. Here is Marty's latest message from CB. Things changed. Now I'm not having radiation because the cancer has spread through my upper abdomen. I started my first chemo today.…
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"I wish you felt like I do"
That's what my husband told me this evening, in a fit of pique. He's sick. He has chills and a little bit of a temp (less than 101). He's achy and miserable. I get that. But he's also whiny. Absurdly whiny. Yesterday, at the onset of his grave illness, he mentioned several times that maybe he should go to the ER. Tonight…
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please read and thanks!
Hi, I was wondering if anyone here has had a reaccurence then went into remission for a long period of time(yrs)? I wonder if it is possible since I was told once you have a reaccurence you are considered incurable! hugs to all. :)
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One Step Closer
The scheduling nurse from MSK called me this morning and confirmed my appointment on Jan 19th. She gave a a list of things I need to bring/send: the glass slides from the hospital's pathology dept, taken during my initial surgery, and a CD with my CT films from last March. They also want me to have a new CT scan done…
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A vomitting question........
Just a bit of background info 1. I am on my second line chemo (same one as before) Carbo/taxol. 2. I had my second infusion on the Thursday before New Year. 3. On New Years eve around 3pm I began with violent stomach pains and vomitting. 4. I promptly took some anti-sick meds 5. Vomitting continued on and off until 9pm…
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What The ????
I have learned this morning that I also have kidney cancer ! This is crazy ! I've always joked that if it weren't for bad luck I would have no luck but come on now ! If it wasn't for the ct/pet scan I would not have known about it until it was too late, no symptoms at all. Good thing is that hopefully it has been caught in…
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chemo bag
I am packing my chemo bag for next week and it is pretty full. I have a neck pillow,a book a prayer shawl, a granola bar and some gum. what is in your chemo bag??? What do you do to pass the time??I also pack my ipod too......val
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Surgery this Wed.
Hello to all! Well, it turns out that all of the constipation and nausea I had with the Hexalen may not have been from the Hexalen at all. I have a "stricture" or "apple core lesion" on my colon, and the colon is only 2-3 centimeters wide in this area. I am going to have surgery this Wed. (they moved fast on this, barium…
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the beast is back again...
Ct scan show again 5 spots in pelvis area, but bigger in sizes from 0.5 to 2cm. I wonder if last chemo, 6 month ago, did kill them at all. I not think so. They probably was going dormant for a while and than start grow again, January 13 I will know what next treatment wiil be. In mean time I'm so angry. I angry with all…
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Helen for Hope -23 year OC survivior
I just posted this article on the Uterine board as I go back and forth since Uterine Papillary Serous is much more similar to OC. I had posted a question about Cisplatin/Doxirubicin and got this wonderful response from Helen. While the article is dated 2003 she is still going strong today and is active in Ovarian Cancer…
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Half way there
Hi all, New Year's Eve day marked my 3rd of 6th chemos. Half way there! Things are going well, the fatigue is definitely catching up and subtle transitory neuropathy is making itself known. At least I didn't have a UTI after this chemo like I did after my second one...which really knocked me out. I've been eating well and…