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Checking In
Hello to all the ladies on this board. I have missed keeping up with so many of you. I no longer have my internet at home, so it is hit and miss at the library. This has been a year of great change for me. After losing my job of 22 years, I got one job that was part time, graduated from school with my associate degree,…
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Gemzar & Avastin - Need Advice
Well I just got back from my doctor's appointment. Not very good news. The spot in my liver has grown. It is now 1 3/4 inches. It was only an 1 inch. (sorry I don't do cm). So the Metformin pill did not do anything for me. I also have another spot that lit up on the PET/Scan a lymph node the size of 1/2 inch. It is along…
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Update from the GreenHouse
Hi everyone! Paula and Carlene--LOVE LOVE LOVE you guys! (and everyone else, too!) Tina, I hope you're doing well--miss you honey--sending healing thoughts out to the universe for you! Linda (all of the Lindas ;) and Nancy (all of the Nancys, too!) thinking about you and praying for you daily! My latest news...where to…
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My mom, my best friend, is having a recurrence after 6 years of remission--just need to talk about i
with those who understand. After reading some of the stories on here--I understand how truly blessed we've been that my Mom has felt so good for so long. She started having what we thought were bouts of bronchitis in August. She ended up in the emergency room in October with extreme shortness of breath and they sent her to…
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Great news I am ok
just got back from my doctor yesterday, the cancer is still in remission and gone, guess I was just experiencing stress from loosing my sister Thanks for all who prayed for me and please continue to pray.
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MICHAELA MARIE
I am sorry to say that we have lost another sister in this fight with such a horrible disease. Dear MM passed away yesterday, as I was informed by her daugther today via email. My last communication with MM was after an emergency surgery that she had, and hardly survived. Her words were brief, but her spirit was still…
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I've burnt the lot!!!!!
That's it tomorrow is D.day! I've just thrown every smoking product I own on the fire! Hooray, I've been taking champix for 7 days now and that is it I'm giving up my stinking habit for me and for my children. Wish me luck ladies, I've done it twice before for my babies with no help ,so I am sure as hell i can do it with…
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My neighbor has OVCA - at least stage 3
I was shocked to find a prayer request in my email this morning from a member of my local support group. Someone had forwarded a message about "a woman in my church who is having surgery today for ovarian cancer". Turns out it's my neighbor, a retired RN who was so kind and helpful following my own de-bulking and long,…
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Gemzar question
Has anyone who's had Gemzar ever experienced any side effects 8 to 9 days after receiving the drug? I had my first dose with Carbo on Nov 26th and then the single dose a week later on Dec 3rd. I have just recently developed what looks likes a rash/blood spots on my arms and legs and I'm short of breath just walking 10 to…
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Altered bowels habits
I am worrying about my bowels at the moment. I go about 6 times a day only to pass small soft amounts that are yellowy/brown in colour. I do pass a lot of wind too. I was on doxil and have just been switched to carboplatin/taxol. I am quite worried about a blockage but have had a CT scan, an x-ray and a ultra-sound and my…
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new research: ICON7 Results May Change Practice in Ovarian Cancer
Dr. Andrés Cervantes: ICON7 Results May Change Practice in Ovarian Cancer OncologySTAT Editorial Team. 2010 Oct 25, Interview by L Scott Zoeller Andrés Cervantes, MD, PhD, is Chair of the Educational Program for the 2010 Congress of the European Society of Medical Oncology (ESMO). OncologySTAT: Dr. Cervantes, what were the…
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Caelyx anyone?
Mom is continuing her chemo today carbo/taxol and this new drug called caelyx is being added in the hopes it will shrink her tumor. Does anyone have experience with it? TIA
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Is this now classed as remission?
Hi everyone. Mum had her last chemo a week ago Friday, and she had to see her consultant on Monday , every thing good, they will do a ct scan / blood text beginning of January to get a baseline picture, is she now in remission as treatment has ended? Or is it classed as remission after her 3 month blood test comes back…
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CT/PET results today: mets to the liver. 4 little spots. :(
Anyone have any encouraging words for me on a dark day? Please someone post and tell me you have liver mets that shrunk away with chemo or that linger without causing trouble! They're small (only one slightly larger than a cm & 3 other tiny ones noted on the report that my gyne-onc couldn't even FIND on my scan images) but…
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Elizabeth Edwards
I wanted to let you guys know that you can get Elizabeth Edwards latest book, Reliance, as an e-book on Amazon for $8. I downloaded it onto my i-phone and ipad. I started reading it last night and there are many many gems regarding her coping style and way of viewing her life (death of her oldest son, breast cancer and…
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My dear wonderful pets
My two dogs are amazing and they rarely leave my sidr. they know when i am not feeling well and stay close even outside the bathroom door!! My one little shitzu slepth with mr and peed on the bed as she would't leave me Do any of you have pets? they help me stay focused also I am buying them a nice big bone of course they…
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Recurrent Clear Cell/Clinical trial for morab-003
My 2nd look surgery last week revealed that the cancer is all over my abdomen. They drained the fluid that was causing my pain. Saw the gyn/oncologist today and he is recommending I go back on the original protocol of 18 weeks carboplatin/taxol which put me in remission for over 18 months. He's also recommending a clinical…
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20/20 last night
Did anyone see this show last night? Little girls Mom had advanced ovarian cancer: http://abcnews.go.com/Entertainment/rhema-marvanne-year-gospel-singing-sensation-amazes-crowds/story?id=12285881
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Is it my fault I have ov cancer???
Sometimes I wonder if I could have done more for myself and not getting ca. I misssed my gyno appointment and later found out in2009 I have st3 ov cancer. I had pelvic pain and bloating. I feel I should have paid more attention to my boday ...maybe It would't have spread. Anyone feel the same way sometimes?? stay strong Val
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red/white blood counts
Just had my second chemo yesterday. Glad to report all went well, except for one potential snag. My red counts were up higher than last time. That of course is good. My white count was just barely below the threshold of allowable for chemo but he signed me off to have chemo anyway. I was very surprised because I have been…
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more new research: BRCA-Negative Ovarian Cancer Responds to Monotherapy With PARP Inhibitor
I don't know if many of you like to read new research, but I think it's good if we work to make this Discussion Board an important resource for anyone diagnosed with OVA. It is so great to have one place online that is nurturing and informative, with so much scary inaccurate stuff out there. So here's what I read on…
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what do you recommend for nausea?
My mother has started the PARPs yesterday and they warned her about nausea..only recommended 2 drugs: ativan which knocks her out and something else that makes her constipated that she won't take. any other suggestions?
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cancer color wars
This is an interesting article I read on the inspire board and thought I'd share it. http://www.politicsdaily.com/2010/09/28/cancer-and-the-color-wars-pink-teal-purple/
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What are the Steps for Treatment for Ovarian Cancer Stage 3?
A very good friend of mine told me she has ovarian cancer stage 3. They said it has spread to her lymph nodes. They prescribed her hexamethylamine, which is an oral chemo med. I find it strange that the doctor has not made plans to remove her ovary and the tumor. Is this normal? I am very worried about her and I want to…
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looking good with cancer
I read an amusing article about a woman with cancer and how people would always comment how good she looked. I got a chuckle out of it thought you'd might enjoy it too. http://www.mskcc.org/mskcc/shared/graphics/Living_Beyond_Cancer/Bridges/Fall_2010.pdf
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I am here to stay
A friend sent me this song. Don't know if others have heard it or it has been posted about but it is great. The story behind it is wonderful. I think this is how to post a link but if not it is Sarah Mattea on you tube singing I am here to stay. http://www.youtube.com/watch?v=_FDOdC7wEkA Lori
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Get this monster out of me please!!
On December 6th, shortly after I woke up, I noticed a large lump in my abdomen. Soon, I was being examined by a doctor friend of mine who told me to get to urgent care. I immediately went, and was told to go get an ultrasound performed. Got it. One hour later, I received the news. "A 12.8 cm solid and cystic mass in right…
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Tina
I want everyone to keep Tina Brown in their thoughts. Last I heard, she is in the hospital with a high fever and had to have fluid drained from her lung. Let's all send positive thoughts and healing energy her way so she is feeling better soon.
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What I want for CHRISTMAS hOW ABOUT YOU?
I would like some nice warm night gowns and pjs. Also a nice warm hat for cold weather. I would really like my ca-125 to go very low and get rid of this cancer. I want to hug my grown chidren and 6 grandchildren and go outside and throw snow balls at my hubby. what do you want????
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Happy News :-)
GREAT NEWS!! My CA125 is now 9.5! Initially it was well over 1000. For months before my surgery in August I was stuck around 14. I am so thankful it has dropped! I pray it continues to do so. Blessings, Natalie