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Lymphoma and COVID-19
I am just wondering if anyone on here has had complications in their lymphoma treatments (other than inconvenience) caused by the COVID-19 virus. So far I have been able to avoid it even though my neighbors and their four kids and my daughter and her husband and son have had it. All nine of these people tested positive but…
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Rituxan and back pain
I’m being treated with Rituxan for Malt Lymphoma. (Salivary gland). I’ve had 2 treatments so far. 4 days after my first treatment my back started hurting. Mostly the flank area. (Back sides) It hurts and burns and is uncomfortable. Has anyone else experienced this type of back pain with Rituxan infusions?
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Follicular Lymphoma (Endolent) grade 1 stage 4
The Dr. Stated that the next thing to do is remove the 2 small tumors I have in my abdomen. She said if first line treatment stops working that there is a problem and we have to remove or debulk the tumors. She said that is all I have is the 2 small tumors sitting there that everything else resolved with the Treneda. She…
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Itchy Port
I had a Rituxan Maintenance infusion Monday. Since then, the skin over my port has been itching. I can remember it being a little itchy before and finding myself mindlessly scratching the area. But this is a rather maddening itch! My nurse uses an ethyl chloride spray to freeze the skin before she inserts the harpoon…
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PMBCL
Hi. I am new here. I was diagnosed with primary mediastinal b-cell lymphoma. My hematologist recommended that I take the DA-EPOCH treatment. I have just completed my first cycle. My second begins in 2 weeks' time. So far things seem to be going well. My blood tests show that my hemoglobin is up compared to the day of…
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Mosquito bite question
Hi All, Yes you read it correctly, I have a question about mosquito bites. Prior to my last chemo (Bendamustine/Ofatumamab) I didn't have a problem with bites, just the typical irritation. Since my treatment I am highly allergic (mosquitos and moths, according to the allergist). Last summer I ended up in the ER with…
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M-spike
I'm 3.5 years in remission for DLBCL. My last PET scan was clear but my bloodwork noted a rise in my M-spike from 1.2 to 1.6g/dL. Oncologist is out of town and PA was the one noting it....said she would confer with Oncologist but as of yet has not got back to me. What might this indicate. I don't what to jump to any…
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C B D Oil May Help You
There has been much hype going on about the benefits of CBD Oil and after considerabe research on my part I deceided to give it a go. I have no pain with my cancer and started taking the oil for insomnia. I take a dropper full sublingually in the morning and at bed time. My results have been good after two months and I…
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My hubby passed away
As some of you know I’ve been a caregiver for my husband for three years now. After my diagnosis I thought to myself how will I be able to do so. My CLL/SLL is watch and wait since being diagnosed November 2020. Last check up my labs in range, still no treatment. Yesterday my Bobby passed away. He had been in and out of…
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Raynaud’s After Chemotherapy
Hi all, Has anyone ever been diagnosed with Raynaud’s after chemotherapy treatments that was related to the chemotherapy and not another underlying condition? My oncologist is referring me to a rheumatologist, but he does not think it is related to the chemotherapy, but possibly physiological condition. I researched that…
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Remission
I just wanted to update everyone who has helped and supported me through my journey with HL. I am in complete remission, praise the Lord! I have a CT scheduled for beginning of July and my oncologist said it will be surveillance going forward. Thank you again and I hope you’re all doing well. 💜
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maintenance
Male, 73 years old Non Hodgkin's follicular lymphoma, diagnosed in June. Stage 3, 3a, no bone marrow involvement, no extra nodal involvement, nodes above and below the diaphragm enlarged, nothing larger than 3 cm. Five treatments of Rituxan/Bendumastine, generally well tolerated, sixth and final coming up. PET scan about…
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Minimally prominent submandibular lymph nodes
Hi there. I’ve been having some weird medical issues that I feel like are still up in the air even after some investigation and I’d love input if I should be pushing harder for more investigation/get a second opinion or just let it go. In November 2021 I noticed a small visible lump under my right side of my chin when I…
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Has anyone gotten Evusheld?
This is the COVID-preventative monoclonal antibody cocktail that's been out for a few months. For a while it seemed like people couldn't get or find it if they wanted it but this week NYTimes had a post about doses going unused and perhaps not enough people being aware of it. So are people in this community aware and has…
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Sad news
This is one of the saddest things I have had to do. Bill passed away Feb 11. This has been a very difficult year and a half. We have spent much of that time in Houston at MD Anderson as he relapsed 3 times. Dr Wang put him on a clinical trial that lasted 10 months and this time another trial that didn't work. He ended up…
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When will the R-CHOP start working?
Hi! My father has Morbus Waldenstrom (it's non hodgkin lymphoma). He has had two cycles r-chop, but there is no improvement in his condition. He feels very weak, just as he did before he started treatment. I would even say that he feels even worse. The doctor says that he has to wait and that the first improvement will…
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Can anyone relate?
Hello, I'm new here and have not yet been diagnosed, but I am at my wits end here with symptoms of *something* wrong. Thank you so much for taking the time to read: 1) I am a 33 yo Caucasian female, wife, and mother of a 9 yo and 2 yo. 2) Summary of symptoms: After the traumatic delivery via c-section of my first child, I…
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Extremely low white cell count 3 months after finishing chemotherapy
I had Large cell atiplastic lymphoma did 8 rounds of R Chop Chemotherapy 3 months later my white cell count dropped to 1.2 Just did a Bone marrow biopsy and was told that I may need a transplant depending upon the results has anyone else gone through this and what did they do
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Mantel Cell Lymphoma
This is going to be long winded and I am really just looking for support, maybe some success stories. My brother, who is 38, was diagnosed with mantel cell lymphoma on 7/28/21. He immediately started chemotherapy, however was allergic to rituximab- bad like shaking all over and he passed out a time or two. So they had to…
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vitamins and lymphoma
There have been studies performed, including one at Sloan Kettering, which show a possible connection between supplements for Vitamins B6, B12, and D with increased risk for lymphoma and especially leukemia. Has anyone's oncologist ever mentioned this? I take D on my GP recommendation and B12 for anemia. The B12 seems to…
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B Symptoms
Hi -- I am curious if anyone has had Hodgkin's lymphoma-related "B symptoms" that fall outside of the normal list. The typical lineup being: Painless swelling of lymph nodes in your neck, armpits or groin. Persistent fatigue. Fever. Night sweats. Unexplained weight loss. Severe itching. Increased sensitivity to the effects…
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DLBCL in cecum/ throat
My brother was diagnosed with DLBCL in his throat area and started RCHOP therapy. after his 3rd treatment, it was discovered he had lymphoma in his cecum as well. We've asked about surgery to remove his cecum, but no one seems to think it a good idea. Meanwhile, my brother is in a lot of pain in his right appendix area and…
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Eye Issue
Went to eye optamologist yesterday, first time in about four years. I have not been able to see propery for some time now. He cut the appointment short, said he had to refer me to a specialist for 'advanced, wet-type macular degeneration.' I am not familiar with this, but he said that it is controllable in many cases, but…
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video of Dad's reaction hearing his daughter's PET indicates NED
No relation to family but stumbled into it via Reddit and brought a smile (I'm on 4yrs NED)
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R-Chop Fatigue
Hi, my father being diagnosed of NHL stage 4 - age:54 , has completed his second round of R-Chop last tuesday. First week was pretty amazing alhamdullilah. No nausea or anyother issues - mild pain in bones after neulasta shots on day 3,5 and 7. Today is his 8th day and he is feeling extremely fatigued, both physically and…
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Gustatory sweating / hyperhidrosis... not at night, but "drenching" sweats when he eats?
We're at MD Anderson right now for tests for my husband Dave, and it was suggested we seek support from other NHL people. There's so much to learn and we hope to be able to give and receive anecdotal info with others over the coming months and years. Dave turns 62 in May. He is very fit (former firefighter, swims a mile…
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Second opinion?
Hi all- I received my pathology report a few days ago. 2.2cm clear cell carcinoma of the R kidney removed via partial nephrectomy. Grade 2 and pT3a. I was told on the report that the margins are not clear and that cells have spread to a segmental branch of the renal vein. My doctor told me he feels very confident that they…
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Increased pain after 3rd round of chemo
Hello. I was diagnosed with Burkitt's aggressive non-Hodgkin's lymphoma in November. I just completed my third round of R-EPOCH chemo a week ago. The fatigue increased this week which is OK. Now I have pain in my left shoulder, lower back, sciatic nerves, rib cage, and in a swollen gland under my right arm (area near…
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Brukinsa ANYONE for WALSTROM
I have been taking the second generation daily pill of Imbruvica which is BRUKINSA ( zanubrutinib) with has very good sucess reported in bring down IGM and mine went down a 1000 in 2 weeks. So Iam hopeful. Anyone else on Brukinsa or side affects? ALOHA
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Long-Term Hodgkin's Survivors- Late Effects
I have been a member of this group for about 10 years. My user name should now be "50 years and counting!" I just want to reach out to my fellow long-term survivors to find out how you are doing. I'd like to know if you have had any of the "Late Effects" from the kind of radiation and chemotherapy that we received decades…