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Lymphoma (Hodgkin and Non-Hodgkin)

Remission
I just wanted to update everyone who has helped and supported me through my journey with HL. I am in complete remission, praise the Lord! I have a CT scheduled for beginning of July and my oncologist said it will be surveillance going forward. Thank you again and I hope you’re all doing well. 💜
maintenance
Male, 73 years old Non Hodgkin's follicular lymphoma, diagnosed in June. Stage 3, 3a, no bone marrow involvement, no extra nodal involvement, nodes above and below the diaphragm enlarged, nothing larger than 3 cm. Five treatments of Rituxan/Bendumastine, generally well tolerated, sixth and final coming up. PET scan about…
Minimally prominent submandibular lymph nodes
Hi there. I’ve been having some weird medical issues that I feel like are still up in the air even after some investigation and I’d love input if I should be pushing harder for more investigation/get a second opinion or just let it go. In November 2021 I noticed a small visible lump under my right side of my chin when I…
Has anyone gotten Evusheld?
This is the COVID-preventative monoclonal antibody cocktail that's been out for a few months. For a while it seemed like people couldn't get or find it if they wanted it but this week NYTimes had a post about doses going unused and perhaps not enough people being aware of it. So are people in this community aware and has…
Sad news
This is one of the saddest things I have had to do. Bill passed away Feb 11. This has been a very difficult year and a half. We have spent much of that time in Houston at MD Anderson as he relapsed 3 times. Dr Wang put him on a clinical trial that lasted 10 months and this time another trial that didn't work. He ended up…
When will the R-CHOP start working?
Hi! My father has Morbus Waldenstrom (it's non hodgkin lymphoma). He has had two cycles r-chop, but there is no improvement in his condition. He feels very weak, just as he did before he started treatment. I would even say that he feels even worse. The doctor says that he has to wait and that the first improvement will…
Can anyone relate?
Hello, I'm new here and have not yet been diagnosed, but I am at my wits end here with symptoms of *something* wrong. Thank you so much for taking the time to read: 1) I am a 33 yo Caucasian female, wife, and mother of a 9 yo and 2 yo. 2) Summary of symptoms: After the traumatic delivery via c-section of my first child, I…
Extremely low white cell count 3 months after finishing chemotherapy
I had Large cell atiplastic lymphoma did 8 rounds of R Chop Chemotherapy 3 months later my white cell count dropped to 1.2 Just did a Bone marrow biopsy and was told that I may need a transplant depending upon the results has anyone else gone through this and what did they do
Mantel Cell Lymphoma
This is going to be long winded and I am really just looking for support, maybe some success stories. My brother, who is 38, was diagnosed with mantel cell lymphoma on 7/28/21. He immediately started chemotherapy, however was allergic to rituximab- bad like shaking all over and he passed out a time or two. So they had to…
vitamins and lymphoma
There have been studies performed, including one at Sloan Kettering, which show a possible connection between supplements for Vitamins B6, B12, and D with increased risk for lymphoma and especially leukemia. Has anyone's oncologist ever mentioned this? I take D on my GP recommendation and B12 for anemia. The B12 seems to…
B Symptoms
Hi -- I am curious if anyone has had Hodgkin's lymphoma-related "B symptoms" that fall outside of the normal list. The typical lineup being: Painless swelling of lymph nodes in your neck, armpits or groin. Persistent fatigue. Fever. Night sweats. Unexplained weight loss. Severe itching. Increased sensitivity to the effects…
DLBCL in cecum/ throat
My brother was diagnosed with DLBCL in his throat area and started RCHOP therapy. after his 3rd treatment, it was discovered he had lymphoma in his cecum as well. We've asked about surgery to remove his cecum, but no one seems to think it a good idea. Meanwhile, my brother is in a lot of pain in his right appendix area and…
Eye Issue
Went to eye optamologist yesterday, first time in about four years. I have not been able to see propery for some time now. He cut the appointment short, said he had to refer me to a specialist for 'advanced, wet-type macular degeneration.' I am not familiar with this, but he said that it is controllable in many cases, but…
video of Dad's reaction hearing his daughter's PET indicates NED
No relation to family but stumbled into it via Reddit and brought a smile (I'm on 4yrs NED)
R-Chop Fatigue
Hi, my father being diagnosed of NHL stage 4 - age:54 , has completed his second round of R-Chop last tuesday. First week was pretty amazing alhamdullilah. No nausea or anyother issues - mild pain in bones after neulasta shots on day 3,5 and 7. Today is his 8th day and he is feeling extremely fatigued, both physically and…
Gustatory sweating / hyperhidrosis... not at night, but "drenching" sweats when he eats?
We're at MD Anderson right now for tests for my husband Dave, and it was suggested we seek support from other NHL people. There's so much to learn and we hope to be able to give and receive anecdotal info with others over the coming months and years. Dave turns 62 in May. He is very fit (former firefighter, swims a mile…
Second opinion?
Hi all- I received my pathology report a few days ago. 2.2cm clear cell carcinoma of the R kidney removed via partial nephrectomy. Grade 2 and pT3a. I was told on the report that the margins are not clear and that cells have spread to a segmental branch of the renal vein. My doctor told me he feels very confident that they…
Increased pain after 3rd round of chemo
Hello. I was diagnosed with Burkitt's aggressive non-Hodgkin's lymphoma in November. I just completed my third round of R-EPOCH chemo a week ago. The fatigue increased this week which is OK. Now I have pain in my left shoulder, lower back, sciatic nerves, rib cage, and in a swollen gland under my right arm (area near…
Brukinsa ANYONE for WALSTROM
I have been taking the second generation daily pill of Imbruvica which is BRUKINSA ( zanubrutinib) with has very good sucess reported in bring down IGM and mine went down a 1000 in 2 weeks. So Iam hopeful. Anyone else on Brukinsa or side affects? ALOHA
Long-Term Hodgkin's Survivors- Late Effects
I have been a member of this group for about 10 years. My user name should now be "50 years and counting!" I just want to reach out to my fellow long-term survivors to find out how you are doing. I'd like to know if you have had any of the "Late Effects" from the kind of radiation and chemotherapy that we received decades…
just diagnosed - what can i expect? Follicular Lynmphoma
Follicular Lymphoma grade 3A/Stage 3 had cyst removed from scalp - found the cancer, cat scan from Jan 14th 2022 revealed spread throughout lymph nodes. looks like we will start with CHOP chemo then radiation - but i have no start date or exact meds to be used... would be be wise to cancel the trip to Germany next month…
ABVD treatment and continued hair loss
Hello,I was treated with the ABVD treatments for Hodgkins lymphoma for 6 months.I never lost any hair until almost the last treatment.Its now been over a year since my last treatment and my hair has not grown back at all.I was wondering if anyone else has had this happen,and what if anything you may have been told you can…
Follow up doctor visits
After diagnosis and treatment how often did you see your oncologist? If in a partial remission for awhile (9 years) what do your visits consist of? Blood work,scans, exams? Just curious what others have experienced. My oncologist has not done one scan in the 3 years i've known him, does a cbc but this time wants no blood…
EVUSHELD
Hi, what are your thoughts on Evusheld? Has anyone here received it yet? It is really new (came out in Dec 2021)
lookin for online frands
so i’m looking for cancer buddies who i can talk to, idk anyone my age with cancer who gets it, literally can’t relate to any of my old friends so if ur in your 20s and ur life that just started got turned upside down by cancer follow my insta @areliajrdan and dm me 💕
Anyone have high proliferation index FL?
I am looking to find some one to tell me about their experience with grade 2 follicular lymphoma with a paradoxically high proliferation index. I asked the oncologist about it was rate or not but he just told me it wasn’t unheard of. I am going to have another biopsy soon as the SUV in some lymph nodes was as high as 16.
Please help me with my PET scan results
Please note these results came in today, this Christmas morning. Of course no doctor is around and my follow-up is Monday, 12/27. I am already aware of the lymphoma diagnosis in right axillary lymph node and mesenteric mass. Sticking with the cancer related items, I believe that everything I thought I knew going into the…
Father diagnosed with Follicular Non-Hodgkin Lymphoma FNHL
Hi All ~ My father was recently diagnosed with FNHL after about a month of testing to find out what type of cancer her had. He is expected to get more info such as staging on 12/29 but I wanted to do a little research to see what he could expect. I personally had head and neck cancer last year and this site was so helpful…
Three month check up
Hi All, Today I have my CT. Had lab done on Friday. Oncologist appointment next week. Seems these three month check ups come faster and faster. As most of you know it’s been a year now November 2, 2020 since I was diagnosed with CLL/SLL. Watch and wait, Wait and watch whichever is where I’m at. I’m a 73 year old female for…
8 months sick. misdiagnosed. waiting for bone marrow biopsy
Hello friends. I am 34 years old, and was a healthy and active male. In early Sept of 2020 I started experiencing stabbing, and piercing pain in my gut. I went to my PCP who ran a few blood tests but found nothing wrong. He gave me some pain meds and sent me on my way. In Oct I had to go to the ER the pain was so bad. I…

Lymphoma (Hodgkin and Non-Hodgkin)

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