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Designer Drugs Marketing
Several years ago, my husband and I made the decision to cancel our TV cable. It was so expensive and we hardly watched it. We would watch news. He liked the history channel and I liked watching cooking shows. Content we want to view is easily available online. Which makes it very shocking to me when I am exposed to TV. I…
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Tomorrow Pet Scan results
Hi warriors, Tomorrow is my Oncologist appointment for my results of my 6 month Pet Scan. At my earlier appointment on May 17th the labs should no worse. Platlets and WBC a tad lower. So he then ordered the Pet Scan on May 26th. I'm asking for positive thoughts and or prayers. I would so appreciate it. My prayers are…
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One year scan after SCT
Well my one year scan complete and all clear. My counts never fully rebounded but I guess it has arrived at a new baseline. Otherwise all is well. Retired at 57 and spending more time with family. Most of my friends are still working. i have been catching up on lots of things around the house I neglected. Some I let go…
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Pulmonary nodules
Anyone here have their nhl go to their lungs? After 9years of remission i have 10 measurable nodules and many smaller nodules in my right lung. Just had the scan. Radiology is going to compare to previous scans. But i see no mention of this in the past. I'm concerned that the beast is back on the move.
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numbness finger tips with R-epoch
I've just finished 2nd cycle of R-epoch, now I'm experiencing numbness of finger tip (mild but no sign of improvement in several days). I was told this can get worse with repeated doses and can be irreversible. has anyone experienced the same side effect? Did it go away? Should I ask doctor to reduce etoposide/vincrestine?
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Bogus advances
I do not have a strong opinion regarding this. The FDA is damned if they do, damned if they don't. People want new drugs gotten to market FAST, but then want them to be PERFECT also. An impossible task..... https://www.foxnews.com/health/fda-to-scrutinize-unproven-cancer-drugs
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Brevity
If it takes a lot of words to say what you have in mind, give it more thought.Dennis Roth
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Covid vaccination failure?
I had my two vaccine doses. In mid-April I read that a high percentage of lymphoma patients in treatment, or recently in treatment, are experiencing vaccine failures. Severe B cell depletion is not a great starting point for developing antibodies I guess. I went the next day to get a Covid antibody test, and sure enough,…
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What tests are necessary for a diagnosis or rule-out?
I hope it's okay for me to post this here as I don't have a diagnosis, but I figured you would all know better than anyone about what tests are necessary. A few months ago I noticed a rock solid lump below my ear. I was (still kinda am?) convinced it was a Parotid tumor and just left it alone. A few weeks later the lymph…
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Apology
Hello to you all, I am so sorry that I have been absent from the board for so long, I have been meaning to write and I feel so bad that I haven't done it. We have had a pretty hectic six or seven months and yes Bill relapsed with his mantle cell for about the fifth time. I will try to make this as short as possible. in…
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sleepiness
I was originally diagnosed in May 2020. I received a chemo treatment then, based on what I was told (I was also suffering from hydrocephalus at the time. After severa; MRIs, CAT scans, and PT scans, it appeared the cancer was gone. Then, around September or October, my doctor sent me for one last set of scans to confirm…
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Test results
Hello everyone, I just hit my 50 day post my autologous transplant mark yay. I was looking at my previous test results from when I was hospitalized for the transplant and I found a number of X-rays that said I might be having some tumors/treated disease in my lungs (it wasn't quite accurate because as you know X-rays are…
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EBV+ DLBCL, non germinal center B cell
Does the subject look familar to anyone? Still waiting to see the Doctor
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Relapsed Follicular Lymphoma options and advice please!
Hi, I'm new here and looking for advice, information, and feedback to help me make the biggest decision of my life! I have Relapsed Stage 1-2 Follicular lymphoma (diagnosed 5 years ago) which is primarily in my small intestines (jejunem) which causes intestinal wall thickening resulting in small bowel obstructions. I have…
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Wig from your own hair?
Hi, Has anyone had a wig made from their own hair? What was your experience? If not, what other types of wigs do you recommend? Jane
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Long Term Survivorship Issues
Blue Roses (and everyone else), I spent all day yesterday at Sloan Kettering with my late effect doc. Now as I recall from the last visit with him, the mention of "chemo brain" brought out a response of not really with survivors, but rather with those during treatments. Now, I can tell you that as far back as 10 years ago,…
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Very Concerned
Hello everyone. I have found myself on this website for HOURS reading through all the forums looking to relate to anyone and hopefully get some positive answers. I decided to finally make an account of my own and make my post. I will TRY to keep it short, but I have A LOT of information so if you read through it all- thank…
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Covid Vaccine
Probably a dumb question but has anyone had issues with the Covid Vaccine after having NHL and treatment. My DLBCL was in my right sinus which left a pretty large sinus void where tumor was and hope it doesn't cause me issues. I'm scheduled for my first shot this afternoon. Peace
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My son
Hello, I just joined today. My son was officially diagnosed with Hodgekins Lymphoma Stage 2. He will have 6 months of chemo beginning around the 20th of this month. Whew... I live in GA. He is in Ohio living with his father and we stay in touch. We were told that he will lose his hair with chemo. His Dad and I have seen…
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Is it negligent to not do a biopsy after positive PET scan?
The patient has had enlarged cervical nodes (8 months), itching, excessive fatigue, dizziness, nausea, shortness of breath, alcohol intolerance, and new mottled-appearing rash on legs, arms, buttocks, and stomach. Imaging shows numerous lymph nodes in the neck, chest, and armpits slightly under size criteria. the enlarged…
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Antibody test after Covid vaccine
I have splenic marginal zone lymphoma, was treated with rituximab, last dose on Dec 9th, 2020. I had a first Pfizer shot on Jan 24, 2021, and the second three weeks later. There is a study going on which is testing for antibodies, and titers, after vaccination in people with leukemia and lymphoma.…
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New to forum; awaiting information and have upcoming medical appointment. Need advice on questions t
Hi everyone. I’m new here, and I’m hoping some of you might be able to help me a bit. I want to say first that while I’m dealing with some ongoing health stuff which is concerning me, I’m trying hard not to delve into google too much as I know that can be overly worrying and counter productive. I’m actually here now and…
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Severe insomnia after chemo treatment for 32 years
Has anyone else had this, its about drove me crazy,and doctors just say its depression but after 15 different anti depressant mess I still have not been able to sleep more than 1 to 2 hours a night if I sleep at all, keep telling doctors I think the chemo damaged my area of the brain controlling sleep but they still won't…
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Swollen Lymph Nodes Behind Ear, Itchy Skin, Mild Night Sweats - Possible Lymphoma
Hi. 5 weeks ago I noticed two visibly swollen lymph nodes behind my right ear. They are not painful. They feel fairly hard, but not quite as hard as the surrounding bone and have a little bit of give to them. The upper one is about 3/4 of a centimetre and the one below is is about a centimetre (maybe slightly larger). My…
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ischemia necrosis gangrene after ABVD and blood transfusion
Has anybody know of anyone who has experienced gangrene in limbs after Hodgkins chemo treatment ABVD ? And was was done if anything to save the patient? I have a relative in Fiji 68yr male who just after 1 dose of chemo suddenly and rapidly declined to this condition. Blood Clot signs appeared straight after a blood…
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Side effect treatments?
Hi!! Am new to all of this and am looking for some help or advice.... ended treatment for stage IV in Feb of 2015. i am 29 yrs young with 3 kids one of which is ASD. Life is hard. When I get hot or stand in the sun for a while i get like prickly painful heat all over my body. I do have some neuropathy in my feet. Is this a…
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Awaiting biopsy results
Hi! New here and aimlessly looking for similar stories, hope, anything really to calm my nerves. Mid Feb I noticed a large lump on the left side on my neck. Made an appt with my ENT and PCP, blood work came back fine and ENT ordered a CT scan with contrast. Results indicated that I have a 3 x 4 x 6 cm cluster of lumps on…
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New to me
While reading my latest summary from a major cancer center I came upon a new (to me at least) word. "Pancytopenia caused by chemotherapy". From what I can tell it is a type of anemia in which wbc, rbc and platelets are all low. Has anyone rlse had this diagnosis and if so is it reversible, ie treatable? I will be speaking…
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Hoarse voice with PMBL
I discovered lymphoma (a big mediastinal mass)because one day I had trouble talking. My voice is distorted and it takes several breath to finish one sentence. Now I'm scheduled for 3rd cycle of chemotherapy next week. This problem has improved a little bit but not very significant. Doctors showed little concerned in last…
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False Positive Question/When a Node is Considered Suspicious
Hello All, It's been a while since I've been on the board and posted anything. But I have a question regarding a pet scan I had. My main question is: can a 3.3 cm x 2.3 cm inguinal lymph node with an SUV level of 7.6 on a pet scan be a false positive? When are they considered suspicious of being malignant? Additional Info:…