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Lymphoma (Hodgkin and Non-Hodgkin)

How long have you survived
I came across the original post in the head and neck cancer section so I thought I'd recreate it for our lymphoma community. Let us spread positively and hope. Do share your story
Left flank pain
I am currently waiting to speak with my oncologist about my latest PET scan that shows 3 areas with focal increased uptake of 4.3 to 4.7. I am on maintenace treatment and was considered NED in Dec 2020. I am having terrible left flank pain. Has anyone else had this and could you please give me some idea of what this might…
For What It Is Worth- Vaccine
I was part of the Lymphoma study that showed 1 out of 4 who had Lymphoma previuosly didn't have antibodies tafter getting two shots. I was lucky to be one that did show antibodies, but after six months i came down with coivd yet again for the second time (Oct 2021). I just recieved my booster, but if are vaccinated you…
Terrified I have lymphoma
I am headed again to another Dr to try to get help for the health problems I have been having. I have multiple swollen painful lymph nodes on the back of my head and neck which started 4 months ago and which keep growing and multiplying. The entire back of my head and neck itch so badly! I have also been haing shortness of…
Awaiting test results for likely lymphoma 2019 negative
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Lymphoma vs Sarcoid
Hi all, After lots of labwork and tests (chest xra, abdominal ultrasounds, ct scans) it has almost been diagnosed that I have a type of lymphoma. I am completely 100% new at this. I have an appointment with a surgeon Monday to excise a swollen lymph node in my neck. They will have a definitive diagnosis after this. After…
Post-vaccination vigilance
This is NOT political and NOT pro or anti-vaccine. This is medical/scietific data that reveal a risk that we should be on guard against. Dr. John Campbell PhD is one of the best-known online individuals tracking the Covid-19 pandemic. He does this from a scientific, peer reviewed data vantage point. He interviewed a young…
Non Hodgkin Lymphoma
Hello everyone, Recently diagnosed with lymphoma non Hodgkin cutaneous B cell , I am waiting for the PET scan results Oct. the 13th . I am also requesting a second opinion at Mayo Clinic. First symptom was a skin tissue that my dermatologist sent to biopsy. I don't have symptoms blood work normal . Just wondering if somone…
Fluid build-up in the stomach
My husband as Diffuse Large B cell Lymphoma. Has had 4 rounds of chemo. He now has a tremendous build up of fluid in his stomach and will have parasentesis tomorrow to remove it. Has anyone else had this problem?
Max
How are your eyes?
Bone Marrow Biopsy for Anemia
My Oncologist has recommended a bone marrow biopsy because of my continous low hymogloben counts and fatigue since end of treatment with RCHOP & radition 2.5 yrs ago. He mentioned a possible link to lymphoma but said not to worry....of course I wouldn't worry, NOT! 2 things I'm thinking about. What type of lymphoma might…
skipping chemo treatments at times
I was told early April 2021 I had stage 2.B H.L When I was told this I did not know enough to ask questions. I later did lots of google research. I had 4 chemo dates (two in April and 2 in May). I hated the needles and was about to stop all treatments and just die. I hated needles that much. I googled and found it was okay…
RITUXAN AND COVID VACCINE
Has anyone had rituxan and had the covid vaccine and told that the vaccine may not be effective because of rituxan? I had my last chemo treatment on August 2 and I asked my specialist about the covid booster shot. She said that because I took rituxan, the booster will not have be effective. I got my first covid vaccine on…
RADIATION AFTER R-EPOCH
After seeing a specialist, I was told that it is highly unlikely that I will need a Stem cell transplant. However, I will need some radiation. I have had 6 chemo treatments consisting of R-EPOCH. Any know what that radiation will be like and what to expect?
Uncle has been recently diagnosed with Burkitts
Hi Everyone- My uncle was recently diagnosed with Stage II NHL, Burkitts which is rare in adults. I was searching for peer-reviewed literature in adults on this type of NHL and did not find much. Has anyone gone thru this and have information on prognosis and outcome? He is 64, no pre-existing conditions, athletic. I'm so…
'Unusual' Pfizer vaccine response
Second Pfizer vaccine was received Thursday, August 5th. As of Sunday, August 8th, I developed a fever, muscle aches and a general sense of malaise. So far, expected. However, the fever has gone as high a 102F and varies during the day, seemingly activity-related. Today, in my 3rd week, it was 100.9F. Along with this, I…
Radiation in Infancy
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
Long term effects of having FNHL treated with Treanda / Rituxin
My FNHL has been in remission for about 1.5 years. I went through Treanda/Rituxin treatment for about a 6+ month time span. When I was first diagnosed it seemed to happen so quickly! Everything was being scheduled and I was being taken this way and that. It was kind of overwhelming but at the same time, it was comforting…
Autologous stem cell transplant
Hello, I hope all is doing well I was looking for posts regarding stem cell transplant but didn't find any so thought of making one. if you have had a stem cell transplant please do share your experience especially how you coped with the side effects post discharge, its concerning me the most.
Life after cancer/chemo
Hi everyone, I am almost a year out from my last chemo treatment. I had stage 2A Hodgkin's (bulky) and went through 12 chemo treatments. I didn't have to have radiation as they were worried there was a high risk of me developing a secondary cancer due to my age as well as one of my biggest tumors being in the middle of my…
New to forum, in middle of FL treatment, need perspectives please
Hi folks. Looking for perspectives or experiences from others. I was diagnosed with FL Grade IIIA in Feb, 58 years old, picked up on a routine abdominal US scan. Asymptomatic other than a swollen jaw node in Dec that went away after 3 weeks. Total of 5-6 nodal clusters throughout the torso, the main ones in middle of gut…
Mediastinal B-Cell NHL -R-EPOCH
Hi, I am new to this forum. I am going in for my 6th chemo treatment of R-EPOCH tomorrow. Originally my Oncologist was hoping the cancer would be gone by the 4th treatment and I would need a total of 6 treatments. My PET scan after 4 treatmetns showed the cancer had shrank, but still there. My Dr said this is still great…
Primary Mediastinal B Cell Lymphoma or Double Hit?
43 years old and I was just told on 4/22/19 that my Primary Mediastinal B Cell Lymphoma was in complete remission after 6 rounds of DA-EPOCH-R, but have been referred to a stem cell transplant team for a consultation. My oncologist has never used the term "double hit" until the referral. Wouldn't they have diagnosed me…
Scans at check up
Just wondering what your onc does. I have a new one since we moved. He sees me annually for a cbc only. No scans. He uses blood work and exam...which is pretty fast and incomplete. Im not used to this. Anyone else followed up with this way? In remission since 2012. Nodes wax and wane...
Premature Ovarian Failure
Hi, I was diagnosed with Hodgkin's Lymphoma in 2001 at the age of 14. I was told there is a chance I can't have children due to Cyclophosphamide being part of my treatment. I am now 30 years old. My husband and I have been trying to have a baby for six months now. Due to my history, I decided to see a fertility specialist.…
Transformed NHL from Follicular to Diffused Large Cell B
My mother has had NHL for 7 years. She would have treatment and then it would come back. In January, she stopped treatment since she was feeling better and was reacting to what they were giving her (rash all over). Doctor said if she was feeling ok, they could just watch and wait. In February, she started having hip pain.…
R-CHOP peeps
Hi All, Hope you all have a merry Christmas & are getting ready for the new year! Had a question for those of you that have had R-CHOP or are currently having it now. Did your side effects seem to get worse with each treatment? I know everyones reaction to chemo is different but I was curious to see if anyone's side…
anyone fighting SMZL splenic marginal zone lymphoma
I was diagnosed with smzl a couple of months ago. Currently undergoing chemo therapy with cladribine and rituxin. The spleen is already starting to shrink and I am having little negative response to the chemo, essentially just fatigue and a little chemo brain. The big debate between my two oncologists was getting a…
Gum pain
I am one year out from my first treatment of smzl with rituximab. My gums are always sore. Has anyone else had this problem?
How long does chemo stay in your system
I really felt like I dodged a bullet when I didn't experience fatigue or chemo brain during my chemo treatments.I now am back at work and by Thursday or Friday I'm fatigued.It is hard for people to understand that it doesn't matter how much extra sleep you get it doesn't always help.One of the hardest is mental for me. I…

Lymphoma (Hodgkin and Non-Hodgkin)

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