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When is a bone marrow biopsy necessary?
Dave's bloodwork shows slightly low levels of RBC, hemoglobin, hematocrit, platelets, and monocytes... his WBC dips in and out of low/normal range. His LDH and beta 2 microglobulin and most all the other numbers are within normal range. We are in the process of getting diagnosed right now (retroperitoneal biopsy done…
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Still waiting on my results... terrified
2 months ago i had a ct which showed an 8 cm(3.1 inch) mass in my mediastinum and two other smaller 2 cm lymphoadenopaties ( i assume these are swollen lymph nodes ) I also can feel pea sized lymph nodes under my jaw. I am 31 and been losing a lot of weight in the last few months, i look really skinny now. No real other…
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Large B-cell lymphoma
HI! My dad is 63 years old today, and last week was diagnosed with NHL Large b-cell lymphoma in stage 3-4. He is currently on CHOP and Rituxin. i was just wondering if there was anyone his age that has survived this specific type of lymphoma.....and any advice on how we can get it into remission fast? :) thanks, I'm just…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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funding
hello new to the group. my son in law is in the hospital with burkitt lymphoma cancer. my daughter will be the only one working now. where on the amc website can she look up to get help for herself and him. thank you god bless you all
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Lymphoma (N.H.L ) T cell
Hi everyone My son have 2.5 yers old He have lymphoma non hodgkin T cell on stage4 How Can help me? What is this 😭😭😭
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I need clarification
Dear wonderful people, I am here once again because state health wouldn't assist me. I have taken my mum to the medical unit ever so often and all they do is a full blood count. I had to insist that a private doctor would do a blood test to check out all her organs. Everything else looked fine but her liver has some damage…
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First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…
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Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?
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1st time doing Rituxan Infusion tomorrow for Extranodal Marginal B Zone Cell Lymphoma
Hello, I am 31 years old and I was just diagnosed with extranodal marginal zone b cell lymphoma. Noduals were accidently found in my lungs and ended up being cancerous. I am going to start my treatment of rituxan since it is was caught at such an early slow growing stage and I will not have to get chemo. I will be getting…
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MCL Facebook Groups
I have read that there are some very active MCL Facebook groups. I do not have a Facebook account. In your opinion, are the Facebook groups helpful enough to justify creating a Facebook account? Thanks
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Struggling with a parent’s diagnosis
Hello everyone! Never in a million years did I think I’d find myself here. My mom was recently diagnosed with NHL. Chemo is getting ready to begin. My mom lives alone and I’m out of state. She has my sibling and friends local. I am about a 6 hour drive from my mom. I have a home, a husband, pets, and a job. Unfortunately…
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Mantle Cell Lymphoma
Looking for Mantle Cell survivors to talk too
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Splenic marginal zone lymphoma
integrative Medicine for SMZL
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Neulasta or other stimulant injections severe side effects
I am actually writing this from a hospital bed after being admitted 3 days ago for lower back muscle spasms that were so painful and debilitating I could not even stand. I have never had in my life had anything comparable to this pain. And yes that includes childbirth. I had the neulasta single dose injection given 5 days…
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Auto Stem Cell Transplant for MCL
Soon I will have to decide if I want to elect to do an Auto Stem Cell transplant for my Mantle Cell Lymphoma or just Rituxin maintenance. I am interested to hear any stories about your Stem Cell transplant experience and whether or not you would make the same choice. I am also interested in hearing if the ASCT was an…
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Likely.....
Hello friends, old and new.... I was diagnosed with advanced S-3 HL in 2009, and went into complete remission (c.r.) very readily, during or before the end of six months of R-ABVD. It has mostly been worry-free complete remission since, except for a few occurrences of anemia, although some episodes of anemia were serious,…
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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does this sound like I might have lymphoma?
Hey everyone, i would like to thank you in advance for your availability and for helping so many people. im an 18 years old white girl and I’m a little concerned since I’ve had a weird lump on my left groin for quite some time. 2 years, if not more. I’ve had one in the right area a couple years ago but it went away, not…
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Worried about Lymphoma
Hi all! I am a first time poster. I have had an enlarged lymph node on the left side at the base of my neck, somewhat more on the collarbone, and some puffiness/a lump on that side at the base of my neck for months, and went to my PCP. I had an ultrasound which showed benign lymph nodes. My doctor called me in an…
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Mantle Cell lymphoma survivors
I am a Mantle Cell Lymphona cancer survivor I! I was diagnosed in 2021 went thru chemo , was unable to do stem cell transplant due to two unsucessfull stem cell extractions and will be starting my maintenance plan soon. Is there anyone that has gone thru this recently?
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Worried About Enlarged Lymph Nodes And Other Symptoms
Hello everyone. I have been worried because I have a few lymph nodes on both sides of my neck that are enlarged. There’s constant pain in my right neck where a 1.9cm right lymph node is located. On the left side I have a 2.2cm lymph node that only hurts when pressed. All other lymph nodes in my neck are enlarged as well…
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Tumor Fevers
Hi my husband has been diagnosed with Diffused Large B-Cell Lymphoma with it also in his spinal fluid as well. He is receiving 2 separate chemotherapy’s every 3 weeks. Last month my husbands WBC were extremely low along with his RBC and platelets. He did get a infection that was treated for over 2 weeks. About a week after…
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Hilar lymphadenopathy
I was in the ER Saturday for what had been diagnosed as cellulitis 2 weeks earlier. I had many tests including a chest X-ray followed by a CT scan that showed bilateral hilar lymphadenopathy. It was suggested I follow up with my oncologist on Monday. He has suggested a PET scan. I was just wondering if anyone has had a…
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Just diagnosed with Mantle Cell
Hope you are reading this new thread Todd and hope you saw Max's reply on the old one. First off I do want to say that with you having no symptoms, you may be put on Wait and Watch. When I first heard about it, I was skeptical but now I totally understand and agree with the reasoning. The thought is that as long as you are…
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Diagnosed with fNHL
Good morning, my 78 year old mother was just diagnosed with Follicular Non-Hodgkins Lymphoma, and she is going to be starting chemo soon. This whole experience has been such a roller coaster for our family. She didn't know she was sick until Labor Day weekend, and after the weekend, I ended up taking her to the Hospital.…
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Duodenum lymphoma
Hello, I am new here and at a loss on how to proceed with helping my mom. She just received a dx of “Lymphoproliferative B cell disorder” with instruction to see oncologist, on a biopsy taken from duodenum mass. The endoscopy and colonoscopy were done to investigate severe lower bleeding episode. In addition to gi episode…
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Pregnancy and Hodgkin Lymphoma resources
Hi All, 35 year old dad of 2. My wife and I found out this week that she has an orange size mass in her chest. The biopsy results showed Hodgkin lymphoma. The kicker is, she is 12 weeks pregnant. We are scared but determined. She is so brave. Is there anybody on this board who has been in this situation, or knows someone…
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Losing my hair
Most of you have gone through this a long time ago, but it is my current reality. In the long run, this will seem less catastrophic but for me this was a reason that I seriously considered delaying or refusing traditional chemo. It may sound vain, but it totally rocked my world off kilter. I was not blessed with beauty or…
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Port Removal
I have been in remission just over one year. My last scans were completely clear and my doctor suggested removal of my Port. To me it feels premature right now. I'm thinking he may just not want to tie up his staff having to flush it every 6 weeks. Although I'm NED, psychologically it does not feel like it's over and the…