Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Anyone else get triggered like me?
I’ve noticed lately that I’m always seeing on tv shows or movies where they say so and so died of cancer. When they do this I always get a flood of anxiety all over my body like an adrenaline rush. It also happens on social media. I will see someone post about how their relative or this famous actor died of cancer and it…
Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I was recently diagnosed with Nodular lymphocyte predominant Hodgkin's lymphoma. Stage 2a with a bilateral presentation of lymph nodes with disease above the diaphragm. I just started R-ABVD, will do 3-4 cycles followed by radiation. Was hoping to hear from others with this condition and who have done this chemo…
AITL T-Cell Lymphoma & Returning Rash
Husband had a bad rash all over his body last November with swelling in his hands and ankles. His rash lasted 2 months. He didn't get an official diagnosis until September of this year. He's had 2 rounds of CHOEP and the rash is starting to return. Has anyone had the rash return while on chemo?
Looking for someone who understands
This is my first time using this website but I just wanted to make a post to see if there was another 21 year old with stage 3 lymphoblastic lymphoma out there who can understand what I’m going through and maybe needs someone to talk to as well.
Primary central nervous system lymphoma
Can anyone help direct me to a list of hospitals in Illinois that administer high dose methotrexate? My wife was diagnosed with PCNSL in October 2021. She did not do the HDMTX treatment at that time but her cancer has returned and we are considering that treatment option this time. I had found a list somewhere that only…
Please Share Your Diffuse Large B-Cell Lymphoma Journey
Hello, I was just wondering if anyone would like to share their journey with me and others about having diffuse large b-cell lymphoma. How their treatment went and if they had a relapse or not. If they had a transplant, how long has it been since that happened and how they are doing? If you read the print down below, some…
looking for similar experiences
I just want to start by saying I appreciate that many of you are not health care professionals and I am not looking for a diagnosis from anyone and also I understand that everyone’s experiences and symptoms are different. I am a 30yo(f) for the last few months I have been experiencing extreme fatigue in all aspects…
Looking for experience with R2 Treatment, Rituximab and Revlimid
I’m looking for people with experience with 2nd line treatment and R2. I remain with widespread nodal swelling near my stomach, kidneys, IVC and small bowel. The Follicular NHL has been deemed refractive after 8 cycles of G-CHop which ended in April 23. New treatment is advised as cancer cells were found in chylothorax…
AITCL - CHOEP & Side Effects
For those that have went through treatments with (CHOEP - Doxorubicin, Vincristine, Cyclophosphamide, Etoposide, Prednisone), what cycle of treatment did you start losing taste? Husband is having his second cycle next week and I’m wondering if he will still be able to enjoy Thanksgiving food on the 23rd.
Weed
Hello All, I have a question! Has anyone here smoked weed or ate edibles during the chemo treatment? At home of course. Just curious if it actually helps/works. Thank you!
Scared and Anxious!
Hello all, I am a 24 year old female who was diagnosed with Classical Hodgkins Lymphoma in March. I started my 6 cycles of chemotherapy at the end of July and I have had a horrible time coping with my new reality. The first couple of treatments were really rough and though it’s getting better and each treatment gets…
Frightened about possible diagnosis
Hi all, I'm a 31 year old female. A year ago I was diagnosised with ovarian cysts, and my gyno sent me off for a PET scan to measure the cysts, because they were quite large on the ultrasound. On the PET, an enlarged lymph node was seen in my retroperitineum, and my spleen was enlarged to 15 cm. My gyno sent me to an gyno…
EATL LYMPHOMA
I recently started treatment for EATL lymphoma which as I understand it mainly affects people with Celiac disease (which I have). It is in the T-cell lymphoma family. Do any members have this variety of cancer? I would like to hear from people going through treatment, especially survivors. All comments are welcomed. Thanks.
The Un-known Here we go Again
My husband had head and neck cancer 12 years ago. He had some heavy doses of chemo and 32 rounds of radiation. He's a survivor for 12 years. Last November he broke out all over his body except his head. Not to long after, his feet, ankles, and hands were swelled. We went to the family doc, and he was referred to a…
Splenic Cystic Lesion - further evaluation with MRI
Hello. I am in my mid 50's and a year ago I was diagnosed with testicular cancer. At that time a CT scan of the abdomen and pelvis was done and an incidental finding was a 5cm simple cyst in my spleen. Every few months I get a CT scan of the abdomen and pelvis to make sure that the testicular cancer has not come back.…
I NEED HELP WITH DIAGNOSIS - LYMPHOMA
I will try to be as short as possible. I am 18 years old - Male Around 10 months ago i noticed an increased lymph node on the back of my neck (occipital lymph node)- ignored it as many say oh it’s just your body fighting ilness. Month after that, I noticed the second lymp node appear right beneath it - also occipital lymph…
Adriamycin?
I have recently been diagnosed with atrial fibrillation (afib). I don't have any of the usual causes: high blood pressure, high cholesterol levels, diabetes or high blood sugar, sleep apnea, obesity, and smoking. There is a genetic dispensation and my mother had afib but not until she was 90 and she had been treated for…
PORT & pleural effusions
Can a PORT still be placed if there is large right and moderate left pleural effusions? Husband is getting the Port put in tomorrow morning.
Resource for latest NLPHL studies
I stumbled across a Twitter feed called GLOW (Global nLPHL One Working Group), which is a community of hem/onc docs who treat and conduct research around Nodular Lymphocyte Predominant Hodgkin's Lymphoma (or whatever you want to call the disease now). Here is the link: https://twitter.com/glow_nlphl. It seems to be a good…
Sevondary Cancers
Just wondering if anyone has any experience or knowledge of secondary cancers which may have been caused by their treatment for Lumphoma.
Am I a horrible caregiver?
I’ve been giving care to my mom with lymphoma this past year. For the most part, it’s been an honor to provide support. It has been a lot of appointments, calling providers, getting medications, managing side effects, talking through issues, all of it. Now I am burnt out. I have the small kids including a newborn. I have a…
New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
Newly diagnosed
Hello. I was just diagnosed with small lymphocytic lymphoma. I see a medial oncologist September 7th. I’m not sure what to expect. I’m not sure how to even feel about things until this appointment or even afterwards. Any suggestions or help. Especially with my anxiety! Thank you
Newly Diagnosed with MZL Lymphoma BUT aggressive (55 years old)
Hello, Starting chemo on Monday. pola r chp will be my treatment plan for six cycles. Looking for advice, encouragement, and wonderful connections. BTW, I'm scared. And I'm scared of relapsing since it's slow-growing lymphoma but aggressive. It seems I will be living with lymphoma.
Nutrition and the Cancer Patient
I have come to the conclusion (opinion only - I am not a doctor) that one of the biggest misconceptions about cancer is that it is treated as some kind of foreign invader when in fact it is not foreign at all. Cancer is part of you just the same as healthy tissue. This struggle is a civil war - brother against brother.…
Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
Neuropathy
My last chemo was in July 2018 but after 5 years I still experience neuropathy. It is mostly at night and interferes with my ability to sleep. It always starts in my toes and front part of both feet. It is a weird tingling/numb feeling. Occasionally it goes all the way to my knees. Hot baths help but the gabapentin my doc…
Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
Para Aortic Lymph Node Cancer
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards