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Very Concerned
Hello everyone. I have found myself on this website for HOURS reading through all the forums looking to relate to anyone and hopefully get some positive answers. I decided to finally make an account of my own and make my post. I will TRY to keep it short, but I have A LOT of information so if you read through it all- thank…
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Covid Vaccine
Probably a dumb question but has anyone had issues with the Covid Vaccine after having NHL and treatment. My DLBCL was in my right sinus which left a pretty large sinus void where tumor was and hope it doesn't cause me issues. I'm scheduled for my first shot this afternoon. Peace
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My son
Hello, I just joined today. My son was officially diagnosed with Hodgekins Lymphoma Stage 2. He will have 6 months of chemo beginning around the 20th of this month. Whew... I live in GA. He is in Ohio living with his father and we stay in touch. We were told that he will lose his hair with chemo. His Dad and I have seen…
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Is it negligent to not do a biopsy after positive PET scan?
The patient has had enlarged cervical nodes (8 months), itching, excessive fatigue, dizziness, nausea, shortness of breath, alcohol intolerance, and new mottled-appearing rash on legs, arms, buttocks, and stomach. Imaging shows numerous lymph nodes in the neck, chest, and armpits slightly under size criteria. the enlarged…
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Antibody test after Covid vaccine
I have splenic marginal zone lymphoma, was treated with rituximab, last dose on Dec 9th, 2020. I had a first Pfizer shot on Jan 24, 2021, and the second three weeks later. There is a study going on which is testing for antibodies, and titers, after vaccination in people with leukemia and lymphoma.…
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New to forum; awaiting information and have upcoming medical appointment. Need advice on questions t
Hi everyone. I’m new here, and I’m hoping some of you might be able to help me a bit. I want to say first that while I’m dealing with some ongoing health stuff which is concerning me, I’m trying hard not to delve into google too much as I know that can be overly worrying and counter productive. I’m actually here now and…
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Severe insomnia after chemo treatment for 32 years
Has anyone else had this, its about drove me crazy,and doctors just say its depression but after 15 different anti depressant mess I still have not been able to sleep more than 1 to 2 hours a night if I sleep at all, keep telling doctors I think the chemo damaged my area of the brain controlling sleep but they still won't…
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Swollen Lymph Nodes Behind Ear, Itchy Skin, Mild Night Sweats - Possible Lymphoma
Hi. 5 weeks ago I noticed two visibly swollen lymph nodes behind my right ear. They are not painful. They feel fairly hard, but not quite as hard as the surrounding bone and have a little bit of give to them. The upper one is about 3/4 of a centimetre and the one below is is about a centimetre (maybe slightly larger). My…
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ischemia necrosis gangrene after ABVD and blood transfusion
Has anybody know of anyone who has experienced gangrene in limbs after Hodgkins chemo treatment ABVD ? And was was done if anything to save the patient? I have a relative in Fiji 68yr male who just after 1 dose of chemo suddenly and rapidly declined to this condition. Blood Clot signs appeared straight after a blood…
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Side effect treatments?
Hi!! Am new to all of this and am looking for some help or advice.... ended treatment for stage IV in Feb of 2015. i am 29 yrs young with 3 kids one of which is ASD. Life is hard. When I get hot or stand in the sun for a while i get like prickly painful heat all over my body. I do have some neuropathy in my feet. Is this a…
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Awaiting biopsy results
Hi! New here and aimlessly looking for similar stories, hope, anything really to calm my nerves. Mid Feb I noticed a large lump on the left side on my neck. Made an appt with my ENT and PCP, blood work came back fine and ENT ordered a CT scan with contrast. Results indicated that I have a 3 x 4 x 6 cm cluster of lumps on…
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New to me
While reading my latest summary from a major cancer center I came upon a new (to me at least) word. "Pancytopenia caused by chemotherapy". From what I can tell it is a type of anemia in which wbc, rbc and platelets are all low. Has anyone rlse had this diagnosis and if so is it reversible, ie treatable? I will be speaking…
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Hoarse voice with PMBL
I discovered lymphoma (a big mediastinal mass)because one day I had trouble talking. My voice is distorted and it takes several breath to finish one sentence. Now I'm scheduled for 3rd cycle of chemotherapy next week. This problem has improved a little bit but not very significant. Doctors showed little concerned in last…
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False Positive Question/When a Node is Considered Suspicious
Hello All, It's been a while since I've been on the board and posted anything. But I have a question regarding a pet scan I had. My main question is: can a 3.3 cm x 2.3 cm inguinal lymph node with an SUV level of 7.6 on a pet scan be a false positive? When are they considered suspicious of being malignant? Additional Info:…
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How do you handle it when your DR/nurses mess up? (Mistake leads to infusion reaction...)
I am undergoing maintenance therapy every 2 months for follicular lymphoma with the newer immunotherapy drug, obinutuzumab. This drug has to be given at a slow drip EVERY single time due to the strong infusion reactions it causes (unlike rituxan which can be given more quickly after the 1st infusion). This past week,…
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Pet scan results rescheduled is this bad news
I was suppose to get my pet scan results today after 6 cycles of chemo for non Hodgkin lymphoma after 3rd cycle mass went from 10cm to 7 I did another 3 rounds ended Jan 1 I was supposed to get my results today but Dr reschuled said she had to talk to tumor board is this bad news I can't sleep
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Pet scan with lymph node activity
Hi there..it has been a while. I had a pet scan and it showed mild up take in a lymph node on my neck. It says that there is a small bilateral posterior cervical triangle lymph nodes associated with a mild degree of FDG avidity with SUV max reaching up to 2.6, Deauville score of 3. These measured about 5mm in diameter on…
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Has anyone here taken duvelisib/ copiktra
I'm starting a clinical trial and it's a very new drug. Wanted to talk to someone who had taken it. Thank you
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New drug duvelisib
Hi there. Can anyone tell me more about this pill. I am supposed to start citocin and rituxin plus 100 mg of prednisone (for 5 days every month). Got a call from dr to come in and take a look at this new drug. I have no idea how bad or good it is, all I know is that it's not chemo. Thank you all!!! .
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NLPHL Relapser - AMA
Hi all, First time poster here. Sharing my story in case it's of use to anyone, in particular given NLPHL is not common. First time I was diagnosed was in 2002, 21 y.o. Stage IA. Treated it with extended radiotherapy (mantle field). I believe/understand this now is an obsolete approach. Relapsed diagnosis in beginning 2018…
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R-chop advice
Hi, I would appreciate any advice you can give. My mom was recently found to have lymphoa and will be getting a final diagnosis in the next few days. Although We are waiting for confirmation, I suspect it is DLBCL and she will be on R-chop. I'm trying to have some plans In place to help her and was looking for your…
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Follicular
Recently diagnosed. Visiting oncologist Monday to discuss next steps. Any advice of what to expect. Still shocked that my life can change from one minute to the next. No symptoms outside of a swollen lymph node. Active, and I thought I was healthy. No other heal issues in my life.
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Has anyone Had "Non Germinal" Large Diffuse B-Cell Lymphoma
Has anyone else had Large Diffuse B-cell Lymphoma that was dianosed as "Non-Germinal" I know it is rare compared to Germinal and I am curious if anyone else had that? I had to take another drug Revlimid for ten days after each of my six treatments to compensate for it being Non-Germinal. This is why they called my…
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Freaking Out Waiting on Answers
Hi everyone, Hoping I can get some feedback from knowledgeable peers. 37 male nonsmoker. Super healthy and active. Noticed 2 palpable superclaviclar nodes on right side about 3 weeks ago. Could have been there longer but unsure. GP ran blood tests and showed normal WBC but lymphocytes high. Sent me for an ultrasound which…
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Results of my Pet Scan
Hi All I had my Pet Scan yesterday. Today had oncologist appointment. All my lymph nodes have shrunk. Some 50%, some 75%. Thats in a months time. I still have lymphoma but no treatment at this time. Will monitor me every three months like some of you are being monitored every three months. Today is a positive which will be…
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An update for you kind folks
Hi guys, I had posted here several times in the last couple of weeks, and everyone was very helpful and calming. I just had my results appointment with my doctor today and thought I'd let you all know how it went. All is seemingly good, barring some anatomically strange elements which evidently shouldn’t be causing…
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CT VS MRI VS PET
Hello all, I'm sorry to ask what might be an ignorant question. I've never been diagnosed with lymphoma, but I'm very concerned about the way I've been tested in the past. My symptoms are enlarged lymph nodes all around my neck, even one that I can actually see. Some have been there for years without changing, whereas…
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ACS sister site "WhatNext"
It has apparently been taken down. EDIT: Went to a different terminal and there it was. I've been watching One Step Beyond re-runs I guess.
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lymphoma massage therapy
I am the primary caretaker of someone who has had hodgkins for 5 years now..She has gone through transplant and approximately 5-7 types of chemo & radiation. She gets massage therapy 1x/week and was recently offered lymphoma massage. Has anyone ever experienced this or have been adviced to do it or not to do it...If you…
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Long Term HD survivors
Hi All, I would really like to talk with other long term survivors of Hodgkin's Disease. I was treated in 1971 and I am looking for other survivors treated then or even later. Please contact me directly at zame@earthlink.net thanks!