-
R- Bendeka treatment
Hello all, trying to get some feedback on the treatment plan listed. I went through the 1st cycle and it’s need rough. Hospital twice and now I very apprehensive about cycle 2. Very anxious and borderline PTSD. Any advice you can offer would be so appreciated. Svence24
-
Severe Reaction to Prednisone...what do people do?
My father was recently diagnosed with NHL DLBCL and is scheduled to start RCHOP. They have dosed him at 50mg (reducing from 100 mg) of Prednisone. They reduced due to side effects of Prednisone from previous use a few years back. We have a follow up appointment today to talk to doc regarding the 50 mg dosage. He…
-
What now
My daddy was diagnosed on Feb 7 2022, has had several complications blood clots, stomach and gi tract bleeds that have left him in icu 3 times, after 5- 21 day rounds of chemo basically 4 months in the hospital and another month stay for several infections at the same time. He has been home for a little over a month now…
-
Long-term side effects of cobalt radiation therapy
Calisurvivor asks the following: Where are all the long range side effect survivors of cobalt radiation? I was diagnosed with Hodgkins in the mid 60's in california. after a few cobalt radiation exposures i was clear and here i am now, however, the long range side effects are suddenly all catching up with me. Anyone find a…
-
Newbie
Hi everyone! I am a newbie to the group.I was diagnosed Oct 2021 with AITL (Angioimmunoblastic T-Cell Lymphoma) did 6 rounds of chemo and been in remission since Feb 2022. Looking forward to sharing and learning from others :)
-
Advice please
This is the first time I have posted so I'll explain a little about myself. My husband has for many years had Chonic Lymphocytic Leukaemia, which was until september of this year in remission. After feeling very unwell and losing a great deal of weight, the hospital finally gave Philip a CT Scan and found he had a very…
-
recovery questions
Anyone experiencing loss of smell and taste months after finishing chemo? Its been almost 7mths since my last treatment and no smell or taste back yet..I know everyone is different when it comes to treatment /recovery but just wanna make sure I am not being paranoid. Also itchy scalp..what is anyone using/doing for relief?…
-
Minimally prominent lymph nodes a few months ago- now more enlarged?
Hi everyone. I posted here back in April with some questions about my lymph nodes. I had a small visible lump under my right side of my chin at the end of last year that my doctor had an ultrasound done on, and all that came back from it was I had two minimally prominent lymph nodes and they would just watch for changes…
-
Hairstylist Recommend
I'm undergoing chemotherapy and have hair loss and scalp psoriasis. Where can I find a salon familiar with these issues? Thanks Depressed
-
Insurance Battle
I am in the middle of CAR-T cell therapy for Stage 4 Non-Hodgkins Diffuse Large B Cell Lymphoma. The people at my cancer center got insurance approval from BCBS of Texas to have an EKG, PET Scan Bloodwork and my T cells collected & sent out to KITE to be engineered. The cells are done now & waiting to be sent back to be…
-
New member
Hi, just diagnosed in June with stage 3 B cell lymphoma. Have undergone 3 r chop so far but this last one has been different. I have never felt so tired and anxious. I’ve gone thru two kidney transplant and I just worry either the treatment or the cancer will damage my transplant. Is it normal to feel so unbearably tired…
-
Bug Bites
I’ve had over the summer bug bites that turn into a blister that takes several days to go away. I’ve read that those diagnosed with Lymphoma/Leukemia are more susceptible to these types of reactions. I’ve had a bite/blister on my left outside ankle for maybe 4 days or so. Before turning into a blister it was very red itchy…
-
Toxo and Lymphoma
In the USA about 20% of the population tests positive for latent toxoplasmosis. In Western Europe, where eating raw meat is considered sophisticated, the infection rate jumps to 55%. In eastern Europe and Brazil it is estimated to be 70%-80%. Those folks are beginning to take this parasite quite seriously. It is an…
-
Interesting COVID article
https://www.foxnews.com/health/vaccinated-patients-blood-cancers-higher-risk-breakthrough-covid-other-cancers-study
-
New to this group. introduction (and advice?)
Hi Everyone, I just joined this group today. I was researching my condition online and found this network. I'll just give a brief introduction at this time. I found out that I had NHL slow marginal zone b cell lymphoma. I was diagnosed by my cardiologist who was testing me for something else, saw this, and said I had some…
-
Slightly raised LDH post complete remission...what does this mean?
Hi Everyone, My dad suffered with Diffuse Large B Cell Lymphoma and was lucky enough to achieve complete remission post R-CHOP and 2 rounds of Methetrexate. 28 months post CR he's having routine blood tests every 6 months. This week all his bloods were looking positive e.g. Lymphocytes were finally back to normal etc which…
-
Rituximab alone...? Chemo-free thoughts invited.
For those of you with low-grade/indolent lymphomas, what are your thoughts? Were any of you offered Rituximab monotherapy? We are not even to treatment options yet ourselves, waiting on initial grading... but we are curious about the chemo-free options, for those offered "watchful waiting." Does using Rituximab WITHOUT…
-
Follicular lymphoma grade 1-2 stage 4 rituximab+bendamustine
I am 60 years old and just completed 5 cycles of Rituximab+ bendamustine with one more cycle to go. I was diagnosed with grade 1-2, stage 4 follicular lymphoma with bone marrow involvement in November of 2021. Up until now, I have not been doing any research on the internet for fear of information overload and also…
-
New to Waldenstroms
Hi all… I’m new to the board today. I was told I have Waldenstroms today, though the final report on staging will not be available until Thursday. I was feeling okay about it when I left the office, but now am crashing. My doctor said he wants to give me monoclonal therapy every week for four weeks (I think it’s…
-
Lymphoma and COVID-19
I am just wondering if anyone on here has had complications in their lymphoma treatments (other than inconvenience) caused by the COVID-19 virus. So far I have been able to avoid it even though my neighbors and their four kids and my daughter and her husband and son have had it. All nine of these people tested positive but…
-
Rituxan and back pain
I’m being treated with Rituxan for Malt Lymphoma. (Salivary gland). I’ve had 2 treatments so far. 4 days after my first treatment my back started hurting. Mostly the flank area. (Back sides) It hurts and burns and is uncomfortable. Has anyone else experienced this type of back pain with Rituxan infusions?
-
Follicular Lymphoma (Endolent) grade 1 stage 4
The Dr. Stated that the next thing to do is remove the 2 small tumors I have in my abdomen. She said if first line treatment stops working that there is a problem and we have to remove or debulk the tumors. She said that is all I have is the 2 small tumors sitting there that everything else resolved with the Treneda. She…
-
Itchy Port
I had a Rituxan Maintenance infusion Monday. Since then, the skin over my port has been itching. I can remember it being a little itchy before and finding myself mindlessly scratching the area. But this is a rather maddening itch! My nurse uses an ethyl chloride spray to freeze the skin before she inserts the harpoon…
-
PMBCL
Hi. I am new here. I was diagnosed with primary mediastinal b-cell lymphoma. My hematologist recommended that I take the DA-EPOCH treatment. I have just completed my first cycle. My second begins in 2 weeks' time. So far things seem to be going well. My blood tests show that my hemoglobin is up compared to the day of…
-
Mosquito bite question
Hi All, Yes you read it correctly, I have a question about mosquito bites. Prior to my last chemo (Bendamustine/Ofatumamab) I didn't have a problem with bites, just the typical irritation. Since my treatment I am highly allergic (mosquitos and moths, according to the allergist). Last summer I ended up in the ER with…
-
M-spike
I'm 3.5 years in remission for DLBCL. My last PET scan was clear but my bloodwork noted a rise in my M-spike from 1.2 to 1.6g/dL. Oncologist is out of town and PA was the one noting it....said she would confer with Oncologist but as of yet has not got back to me. What might this indicate. I don't what to jump to any…
-
C B D Oil May Help You
There has been much hype going on about the benefits of CBD Oil and after considerabe research on my part I deceided to give it a go. I have no pain with my cancer and started taking the oil for insomnia. I take a dropper full sublingually in the morning and at bed time. My results have been good after two months and I…
-
My hubby passed away
As some of you know I’ve been a caregiver for my husband for three years now. After my diagnosis I thought to myself how will I be able to do so. My CLL/SLL is watch and wait since being diagnosed November 2020. Last check up my labs in range, still no treatment. Yesterday my Bobby passed away. He had been in and out of…
-
Raynaud’s After Chemotherapy
Hi all, Has anyone ever been diagnosed with Raynaud’s after chemotherapy treatments that was related to the chemotherapy and not another underlying condition? My oncologist is referring me to a rheumatologist, but he does not think it is related to the chemotherapy, but possibly physiological condition. I researched that…
-
Remission
I just wanted to update everyone who has helped and supported me through my journey with HL. I am in complete remission, praise the Lord! I have a CT scheduled for beginning of July and my oncologist said it will be surveillance going forward. Thank you again and I hope you’re all doing well. 💜