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Head and Neck Cancer

Questions from you folks with experience
Hi, im having a few problems since my surgery. I had a SCC stage 1 tumor removed from the bottom of my mouth in September. Then found out I had precancerous cells scattered elsewhere under the floor of my mouth. So I was told that there was a 95% chance I would have no problems because it was caught so fast. Then I agreed…
Cetuximab aka Erbitux
Does anyone have experience with Cetuximab for Head and Neck Cancer? My husband has tried three studies and each study failed him. Now Cetuximab alone is being offered. I don't know if it alone can help which is why I'm looking specifically for H & N cancer patients on Cetuximab alone. He has been told he will be on…
Pharyngoesophageal Stenosis - Long term effect of chemo radiation
teeth
Had my first teeth xrays since finishing my Tonsil Cancer treatment last September. I was a little nervous after reading all the possible issues with teeth after radiation. Dentist said all looks excellent with no decay and gums look perfect. My treatment consisted of 35 rads (70 greys to right side and 54 greys to left…
Foul smell during radiation
I am in my first week of treatment for Stage II nasopharynx cancer. Everytime during IMRT radiation, I notice a pungent and foul odor. I haven't smelled it before, however, I can best describe it as trash / burning blood. I have asked the docs and the attendants about it. I haven't gotton any reasonable explanation. The…
Throat cancer?
My throat has been like this for awhile (first noticed in august) but I chalked it up to dental problems. I also have swollen lymph nodes.
Biopsy confirms Tonsil Cancer HP16 positive
Well, even though I “knew” it is still a gut punch. I have read up on tonsil cancer and have a good idea of what is to come but I’m still scared and anxious. So the next step appears to be PET scan then, Off to the Races!
Methylprednisolone during H&N recovery?
Hey everyone was prescribed methylprednisolone for the coming hell of week 6. I never took it until week 9 starting on Superbowl Sunday. I think this was the magic bullet for my quick improvement. Has anyone here taken a round around my recovery time and if so what happened when it wore off?
How to wean off feeding tube - or when can I eat real food?
I’m really tired of my feeding tube but I can’t seem to find enough food that I’m able to eat. Basically, (and I realize many of you have been here), if it’s not wet it’s not going down my throat! Today marks four months (17weeks, 3days)since my last radiation treatment for BOT Cancer. My mouth was on fire with swelling…
Has anyone tried hyperthermia treatments?
Trying to find out if anyone has experience with hyperthermia treatments. Thanks.
Interesting Article
In Pdf form from the American Cancer Society here is something some of you may find interesting and it is pretty extensive. There is a menu showing topics on the left side. Cancer Treatment & Survivorship Facts & Figures 2019-2021 There are parts covered that I think would be of interest to those starting treatment and…
late check in for 2022 almost 10 years since diagnosis
hello to old and new friends....want to let those recently diagnosed, that this cancer is not only survivable, but beatable too. I got my diagnosis of Squamous cell carcinoma, small tumor on rt tonsil, metastasized to lt. Standard chemo with cisplaitin, and radiation. I had immediate permanent severe hearing loss with…
using cpap after neck surgery
greetings all. i'm glad to have found this site and am just starting out. Dx'd with Squamous Cell - HPV +. Lymph node just below my right jaw joint is swollen. Scans and visual can not find a primary. On 8/24/21 i have surgery, TORS for base of tounge where they think their maybe a microscopic primary and regualr sugery…
Newly diagnosed cancer patients: Questions to ask your health care team
Very good info from MD Anderson Cancer Center BY Rosemary Catallo Patients and their families often come into The Learning Center, where I work as a librarian, to seek information. After interacting with people for many years -- and from reviewing the large amount of information we have access to here --I've come to…
New Tongue Cancer Diagnosis
Hello all, In early December 2021 I was diagnosed with INVASIVE SQUAMOUS CELL CARCINOMA, MODERATELY DIFFERENTIATED. So began the journey. PET/CT, then MRI, met with Surgeon and other Oncology teams later in December 2021. Became part of a new Immunotherapy Study at Johns Hopkins in Baltimore in January 2021. I have had 2…
Best way to get crushed pills down G-tube into stomach
Had a G-tube installed 5 days ago with scant advice on feeding going forward. Had told them I had a FT for 17 months 10+ years ago, so maybe they figured I knew it all. NO. I was able to swallow chopped-up pills during my initial tx. But now, swallowing them is a coin toss as to whether or not they go down the right pipe.…
End of week 6...miserable
Well I finally got hit with the treatment **** storm. When you layer 6 visits of chemo right on top of 33 radiation visits you finally are crushed under the treatment by week 6. I've been very lucky not to have scorching throat pain until now. I cannot swallow any smoothies because the nutrients stick to the burned areas…
Will I ever swallow again?
Hello, I have to preface this with the fact that I am fighting the poor me's. I finished treatments March 8th and I started seeing a speach therapist for swallowing therapy. I feel like I will never be able to swallow again. If I drink anything thin like water it goes down my airway, anything thicker even soft peaches cut…
Nausea help
I’m new to discussion boards but I really need to talk with others who have gone through nasal sinus radiation. I have been nauseous with headaches since I’ve started. I’ve had 21 treatments so far and it’s only getting worse. My doctor is saying that my radiation will not cause nausea. He is saying it’s either anxiety or…
Be careful on this website
It’s the internet and there are scammers. Just a word of caution to keep information secure. If someone wants to send you a Christmas card or asks for your phone number think twice.
Diagnosis Complete (95%) - Chemo/Rad Starting Next Week - Yikes!
Well its been interesting so far...to say the least I am 60 yrs young and hate going to the doctor to the point that I just dont go...rarely....unless I notice/feel something is Doctor worthly wrong. Lo and behold late June/21 I noticed 3 lumps on the right side of my neck and under my chin. Didnt have a Primary doctor…
Weight Survey
Folks! I'd like to do a quick survey on weight. If you can just post, what your weight was, pre-treatment, post treatment, and +1 year, +2 years, +3years out. Mine is: Pretreatment: 160 lbs Post-treatent: 140 lbs (-20 lbs) +1 year: 148 lbs (+8 lbs) Reason for the survey: Im no longer gaining weight, despite chewing down…
Biopsy results
Finally got biopsy result for my neck and lungs. They are positive for cancer. They are going to put me on immunotherapy but this cancer is very aggressive and any measures taken will be palliative. I assume just knock it back enough so it doesn't quadruple in size one day which will be very painful considering the…
New Video from Beagledad: Affordable Things to Get For Your HNC Patient Friend
https://youtu.be/nokr9oAoOdQ This video lists several inexpensive items that could make your patient's experience a little bit better. Please feel free to comment under the video if you have other suggestions or ideas for the same, or if you have benefitted from any of the ones mentioned. As always, thanks to PIPLILLY for…
A remarkable article. All should read.
I cannot recall where I read this, if it was here, please ask admin to remove this post. I found it quite fascinating. I haven't been getting much sleep. I would love to research with this man. By: Stewart Lyman, Ph.D., HPV-related Tonsil Cancer Survivor You don’t have to be an oncologist to know that fighting cancer is…
Quad Shot Radiation
I'm looking for anyone with experience with quad spot radiation for head and neck cancer treatment? THX
help to understand
Understanding this P16 contraction is boggling my husband and I Is there other ways that a person can contract the positive p16 factor?
Recurrence of upper esophageal cancer
Had feeding tube placed on Jan. 6th and home on the 11th but suffered blockage on the 19th. Went to see Dr. but ended up in ER with pneumonia on the 20th due to aspiration. Home today. Feeling much better but wondered if it's safe to rinse and spit anything just to taste something again? No swallowing involved, just need…
I have chemo next week constantly spitting and coughing
So what is the deal here? Do I spit discreetly into a kleenex? Anybody else reach this point?
Think I got this lol
Click my profile select (+) then choose new topic Create topic title Start typing Hit post topic Hope this works.

Head and Neck Cancer

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