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Roll call

mokus
mokus CSN Member Posts: 63 Member
in Head and Neck Cancer #1

I just returned from my 6 year annual check up. Still all clear. I think my ENT was surprised I still exist

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Comments

  • CivilMatt
    CivilMatt CSN Member Posts: 4,727 Member
    #2

    Andrewp16nose,

    This is CivilMatt from your favorite H&N forum website, i.e., ROLL CALL 2022. how are things in New Zealand or wear ever you “hang-your-hat” today. If you are up to it, I would like you to stop by the site and update your profile to let us know how you are doing. If I have sent this invitation to you in error, then I am sorry and I apologize for disturbing you.

    CivilMatt

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  • AnotherSurvivor
    AnotherSurvivor CSN Member Posts: 387 Member
    #3

    What means 'six years'? How long do you guys go? I'm in the US and was told don't come back after five.

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  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,635 Member
    #4
    https://csn.cancer.org/discussion/comment/1692029#Comment_1692029

    As far as treatment and follow up always go by your doctor's recommendations. If they say they don't want to see you after you reach the 5-year mark then follow that recommendation. 5 years has been the standard I would say. They feel you are pretty safe at that point and considered cured I think. As far as the roll call goes come back and let us know how you are doing every year or anytime it is posted.

    Take Care-God Bless-Russ

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  • CivilMatt
    CivilMatt CSN Member Posts: 4,727 Member
    #5

    Anothersurvivor,

    Yes, 5 years of NED seems to be the “gold standard” for moving a person into the cured category. The timeline may be partially based on the cut-off of the insurance after 5 years. If a person wants to see their ENT again, it is best to tell them you have some concern about some aspect of your former condition and there you go.

    CM

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  • ERomanO
    ERomanO CSN Member Posts: 327
    edited January 2022 #6

    My next follow-up in the spring will be my 4th anniversary. After that I'll alternate seeing 2 nurse practitioners one year, then one nurse practitioner and my ENT the next year, for 6 more years. After that they let me go, never to return unless I have a problem.

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  • Stephie75
    Stephie75 CSN Member Posts: 185 Member
    #7

    Mokus,

    Wow, congrats to you and good news! Happy Dance! Go out and celebrate eating a great meal somewhere! 😎

    The 5 year checkup being the last surprises me. I'm surprised they don't move it to every 2-3 years after that or something. Makes you wonder how people find it at 6,7,8 years quite often when it can literally show up anywhere. I guess we are all hyperaware about things after having cancer.

    Onward!

    Steph

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