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Celebrating one year
Today I have been one year cancer free, yay! I was wondering if anyone else in their early 20's has suffered from laryngeal cancer and losing a vocal cord? Trying to find a supoort system, thank you!
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Halfway through Chemo and Radiation
I'm almost halfway through weekly chemo and daily radiation. My hair was coming out in fistfuls so I cut it short, very good decision. Chemo day is the only day I feel okay. I got half a dose of Dekadron today and no Ativan and felt great when I left. Now I'll decline from now until next Thursday and have to have a driver…
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Looking for some people in their 20's to connect with
I haven't gotten to meet someone my age who has had to deal with having cancer and would really love to talk to someone.
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I can finally exhale
Flew to Mayo today with my brother and we both had clean scans! BCBS denied another PET so I had to go with CTs of chest and neck. The doctor even called them but their new policy is PETs within 6 months of tx otherwise only if CT indicates concern. I've had so many PET scans already and was surprised at how many they…
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Anything good for soreness of the mouth
She just finished cemo and radiation for tongue cancer.. The mounth is so tender and raw. Besides the mouth washes/soda/etc does anybody find any relieve?
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Oh and While I'm at it ~ Six Years
On January 2, 2009 I was Dx STG III SCC Tonsil Cancer.. Today I just got my results from the six year CT scan... It doesn't really mention the total of sixteen weeks of Tx, to include sixteen doses of four different types of chemo, 35 daily rads sessions wearing a mask and bolted to a table, and the 35 Amifostine…
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Tumour
my blockage biopsy came back. I have a slow growing tumour,well I did have ,they think it's all out but haven't seen the specialist yet. It's not the same as the throat cancer it's a tumour that's not benign or malignant it's in between. Never heard of that one before. It could have been living in my small bowel for years…
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Recent CT scan- important message to people who fight reccurances
For those who know my mom's story she have had 2 reacurrances since her diagnosis in Nov of 2010. Since November of 2010 overall she has had at least 5 different surgieries plus biopsies here and there and radiation. Her last surgery was in on 3/2/12, her birthday. She just had a routine CT scan and I am so happy to say…
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Skiffin Update
Just wanted to thank everyone for the thoughts and prayers for Shelley and myself most of last year..., that Whipple was a bear. But with the surgery in December, all is well to date, and hopefuly I'm done with everything health wise for another 30 years or so... Gaining a few pounds back, enjoying life.., which includes…
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Wish us Luck!
Jim left this afternoon to drive to MD Anderson in Houston. He is scheduled for scans Wednesday and Thursday. I'm going to fly to Houston Thursday evening so I can go with him to meet with the doctors. The Tumor Board meets Thursday, so hopefully, we will learn the results and have a gameplan when we come home Friday…
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Tumour
my blockage biopsy came back. I have a slow growing tumour,well I did have ,they think it's all out but haven't seen the specialist yet. It's not the same as the throat cancer it's a tumour that's not benign or malignant it's in between. Never heard of that one before. It could have been living in my small bowel for years…
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Question for the gals....
I had a bone density test the other day, and the Dr. has prescribed Fosamax for me. I was reading the side effects and this one is listed: Bisphosphonates can also cause osteonecrosis of the jaw, a rare condition in which a section of jawbone is slow to heal or fails to heal, typically after a tooth is pulled. This occurs…
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Oxygen Usage
We're having a pretty tough time with my wifes Mom here who is having throat / lung cancer... Been in 4th stage almost 6 months now. Out oxygen concentrator only goes to a 5.0. This is no longer enough to sustain her. We have 7-8 bottles of 02 delivered here every week now. She had a tracheooscopy 6 weeks ago, and a…
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Cold all the time
Ok... here goes from someone fairly new on here. Background Mid 50's male (whos brain still tries to tell him he is in his mid 20's) that is 8 months out from treatment for Tonsil Cancer (caused by HPV) Treatment was chemo (first 2 treatments with Cisplatin and last with Carboplatin as the Cisplatin was distroying my…
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nervous
I was on this board a while back ......................not sure what to do I had went to my ent telling him that the left back of my throat was sore but could never pinpoint were it.......so he checked gave methe spray and said it was nothing ..........Now I still have the pain but i ohave figured out were its comming fr…
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Prevention Oncology Mouth Rinse?
Hi Everyone, My husband finished his chemo and radiation four weeks ago today. Overall I think he's doing really well. He started eating solid foods a few days ago and is handling that quite well. He has to drink water while he eats but he says the worst pain is from the mouth sores. He has the Magic Mouthwash and a few…
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Options for treatment
For a while I have been worrying about a total glossectomy. I really don't think my quality of life will be very good without a functional tongue especially at the age of 19. I worry that I may receive a total glossectomy due to nearly over half my tongue being indurated. I have done all my scans and FNA and am now waiting…
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Small Tumor or Viral Wart Reoccurring Cancer or? I am Scared
I have not been on here for over a year. I had my last radiation/chemo two years and three months ago. I had HPV related cancer. Three scans have been clear and my quarterly neck check up always clear. The ENT doctor scoped me and said I have a small growth in the soft tissue back of neck/mouth on right side. My cancer…
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Guzzle Rides Again!
Friends across the pond, I am doing UK COAST TO COAST ON A BICYCLE 14/05/15. West to East whitehaven to Newcastle over the Pennine Mountains (C2C) FOR cancer Reasearch which has an International Mandate for Cancer Resrearch UK which has an international mandate. 180 miles over rough terrain. 3 days. One sore backside.…
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3 years ago today....
was the day my life changed for what I thought might be forever....but not so. I was diagnosed March 5, 2012.....what a mind blower that was! So today I had an ENT appointment, and he looked down my gullet, and checked out my vocal coads, checked my mouth and said....every thing looks great! Then as he backed up he…
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And then the bough breaks
long made short- 2 weeks ago knee hurting, no idea why, got mri, went to ortho, tapped my knee and all they could get was a tsp of blood, can't walk. My labs are norm for us. Being sent to hematologist oncologist tomorrow, scared out of my mind. I can't deal with another cancer, I can barely deal with life- have therapist,…
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To MD Anderson we go
Well, just when we think we are in the clear, another hiccup! Three years ago this week we were in ICU with Jim's surgery for his jaw cancer. In January he had surgery to remove 2 small spots that turned out to be a recurrence of his sarcoma, but were told that all spots were gone and all was good. Last week, his radiation…
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post irradiation otitis media with effusion - update
To make a long story short: on Sunday (everything seems to happen during weekend!) early morning I wake up with a severe pain in my (right) ear. A few hours later I went to ER. Of course, no ENT specialists available on Sundays, so the general practitioner missed the diagnosis. Anyway, can’t blame him, how many NPC…
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Swollen voice box after 9 months ?
Hi there , I saw the drs about 3 weeks ago and had a pet scan done. They found a new mark , not near site of cancer, was at back of my nose. They are going to keep an eye on it, they dont seem too concerned. My treatment finished about 9 / 10 months ago. The drs told me at my last visiti that my voice box is still swollen…
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Long Term Survivor aka Dr. Patrick S. Dunlap (wife)
I am Janet Dunlap, wife of Dr. Patrick Dunlap, better known to some of you on this board, as "LongTermSurvivor." Pat passed away February 10th, 2015 at 6:00 a.m. Pat was on the board even February 9th. If anyone desires details you can reach out to me at jbcody2424@gmail.com. We had contacted hospic about three weeks prior…
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updates
Hello everyone, My brother goes in for his 9 month check up (PET/CT) on Monday. SCC HPV + As for everyone else the scanxiety is massive for himself and his wife. I try my best to calm the fears...but as we all have experienced these are only words, until they themselves hear the words "all clear - NED". I have put my…
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Helloooooooooooo
Boy, I am so tired! Hi Warriors! It is meeeeee! I have been volunteering at a Senior Center, and afraid I am fitting right in with this group! Eeeek! I present my current situation, and would like any input you may have. I had a full work up of blood work. I went to a neurologist, and have peripheral neuropathy in my feet.…
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Neuropathy...
I'm now seven months post tx...I had tingling numbness in all my fingers for a couple of months and it slowly dissipated, but it has now returned in the four fingers of my right hand excluding my thumb. Have any of you had neuropathy in the hands or feet? Did it occur and go away and then come back? My ENT mentioned that…
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fentanyl patches
I finished my rads almost 4 weeks ago and chemo almost 6 weeks ago. Thursday, I have my peg removed-THANK YOU JESUS!! Any how I had been using only 25mg patches for about 1month and a half and a couple of weeks ago we took it down to 12mg. I get very dizzy and I am not sure if it from the patches or not so I just took off…
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Dysphagia from Radiotherapy (Sudden Late Onset Fibrosis)
One of the causes of fibrosis in the body is radiation therapy (RT) or chemoradiation therapy (CRT), each used for cancer treatment. For most patients, fibrosis is scar like tissue that may form during RT/CRT or soon after. For other patients, who resolve well after RT/CRT, fibrosis may be suddenly experienced years after…