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To MD Anderson we go
Well, just when we think we are in the clear, another hiccup! Three years ago this week we were in ICU with Jim's surgery for his jaw cancer. In January he had surgery to remove 2 small spots that turned out to be a recurrence of his sarcoma, but were told that all spots were gone and all was good. Last week, his radiation…
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post irradiation otitis media with effusion - update
To make a long story short: on Sunday (everything seems to happen during weekend!) early morning I wake up with a severe pain in my (right) ear. A few hours later I went to ER. Of course, no ENT specialists available on Sundays, so the general practitioner missed the diagnosis. Anyway, can’t blame him, how many NPC…
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Swollen voice box after 9 months ?
Hi there , I saw the drs about 3 weeks ago and had a pet scan done. They found a new mark , not near site of cancer, was at back of my nose. They are going to keep an eye on it, they dont seem too concerned. My treatment finished about 9 / 10 months ago. The drs told me at my last visiti that my voice box is still swollen…
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Long Term Survivor aka Dr. Patrick S. Dunlap (wife)
I am Janet Dunlap, wife of Dr. Patrick Dunlap, better known to some of you on this board, as "LongTermSurvivor." Pat passed away February 10th, 2015 at 6:00 a.m. Pat was on the board even February 9th. If anyone desires details you can reach out to me at jbcody2424@gmail.com. We had contacted hospic about three weeks prior…
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updates
Hello everyone, My brother goes in for his 9 month check up (PET/CT) on Monday. SCC HPV + As for everyone else the scanxiety is massive for himself and his wife. I try my best to calm the fears...but as we all have experienced these are only words, until they themselves hear the words "all clear - NED". I have put my…
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Helloooooooooooo
Boy, I am so tired! Hi Warriors! It is meeeeee! I have been volunteering at a Senior Center, and afraid I am fitting right in with this group! Eeeek! I present my current situation, and would like any input you may have. I had a full work up of blood work. I went to a neurologist, and have peripheral neuropathy in my feet.…
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Neuropathy...
I'm now seven months post tx...I had tingling numbness in all my fingers for a couple of months and it slowly dissipated, but it has now returned in the four fingers of my right hand excluding my thumb. Have any of you had neuropathy in the hands or feet? Did it occur and go away and then come back? My ENT mentioned that…
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fentanyl patches
I finished my rads almost 4 weeks ago and chemo almost 6 weeks ago. Thursday, I have my peg removed-THANK YOU JESUS!! Any how I had been using only 25mg patches for about 1month and a half and a couple of weeks ago we took it down to 12mg. I get very dizzy and I am not sure if it from the patches or not so I just took off…
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Dysphagia from Radiotherapy (Sudden Late Onset Fibrosis)
One of the causes of fibrosis in the body is radiation therapy (RT) or chemoradiation therapy (CRT), each used for cancer treatment. For most patients, fibrosis is scar like tissue that may form during RT/CRT or soon after. For other patients, who resolve well after RT/CRT, fibrosis may be suddenly experienced years after…
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Diabetes insipidus, anyone?
Hi all, I'm wondering if anyone has had to deal with diabetes insipidus. My husband has it as a result of his tumor and it is what causes problems. Since diagnosis we have landed in emergency and then hospitalized 4 times. Every single time it was due to high or low sodium in the blood. His sodium gets out of balance if he…
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a great article on the "after" affects of cancer tx
this is a little long but well worth reading, especially those who have not finished tx yet as it will help you understand what you may feel then.…
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Spell check.....How can we get it to work?
Just a thought for the Staff....How can we get spell check to work on this site. My computer will on all other things I do but for some reason it just won't work here. By the way, i'm terrible on spelling. Just a thought if it can be worked on that would be so nice. Bill
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Can taste buds grow back ?
Hi there, just wondering if taste buds can grow back ? I have very smooth sections on my tongue and have to confirm in 2 wks with my oncologist that this is geographic tongue, my go has already said yes. Had a good look at my tongue and there is red very smooth sections, can taste buds grow back ? This is the result of the…
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First PET scan is clear
Whew! we dogged a bullet.. I am so happy to feel like we can live a little again, and not be stuck in the tunnel of fear/wondering. I will ensure my hubby works on his nutrition over the next few months, since we no longer have to worry if the treatments did their job at this point. Eating is still not his favorite…
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beverage suggestions
Hi all, My brother Bob is trying to find things he can drink....getting kind of tired of warm tap water. I got him coconut water and he liked that. Has a little taste but isn't overpowering or sugary. Something with calories would be good too. Just thought I's see what worked for you. He's coming up on first pet 3/16, tube…
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Dilations
had my fourth dilation today and the tube keeping my throat opened was taken out. I swallow better with it out. I have a bit of a problem since my throat was opened, with bile and acid i had the problem before but it didn't reach my throat and mouth. I hate the burning and bitterness of the bile.ive been on ranitidine but…
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for those who can't swallow
a cancer pt on FB had said that radiation had burned her throat up so bad that her doctors told her she would never swallow again and be on peg feedings the rest of her life. she did some research and found a doctor who gave her other options and much hope. Well, he was able to repair her throat and now she can swallow and…
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Prednizone
I have come back from the other side. :{ It is amazing how the support differs so much from one discussion board to another on CSN. As I told you all earlier my mom has recently been diagnosed with lung cancer with mets to medial lymph and hylar lymph. They also saw a place on her L4 vertebre that is likely metastic. She…
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G tube removal
I just came upon this website tonight and have been reading all the posts about pain after radiation treatments have ended. My husband completed his 30 radiations one week ago today. We knew that the throat/swallow pain relief wouldn't be immediate, but they said he'd be much better in two weeks when he returns and his…
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Tooth extraction yesterday-no hyperbaric-watching for healing process
Hi everyone. We have been having this discussion for some time now and thought I should update everyone on my progress. I had the molar, number 19 extracted yesterday after an experimental trial of a wire and rubberband extraction failed. This was an alternative method proposed by my dentist using leverage to remove the…
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Two Years Ago
It was two years ago this past Monday that I stepped through doors of the radiation center at MD Anderson in Houston to start six weeks of treatment. The mask had been fitted, I had eaten at every favor resturant and had really not slept well that night. My wife and yes even my two kids walked in with me as we were…
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First Post Treatment PET
Hubby had his first PET last week (2 weeks shy of 6 months post treatment) at MDA and it came back with no lights. His scattered <3mm lung nodules appear to just be the way his lungs are as they come and go continuously, so the thorasic guy said he's just a nodule-y person and not to worry about those. All good news! Next…
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Aspiration??
I have been having severe heart burn whenever I use my peg and it doesnt matter if I am using food or water in it. Could this be a sign of aspiration? I am going to talk to my Dr about this, but I wanted to know if anyone else has had this problem?
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What where your signs and symptoms for tongue cancer?
Hello all, ive come to this site seeking for information. For almost 2 months I have been feeling with pain in my mouth, it all started after a dental visit on January 7th. After some feelings my mouth has been in pain till this day. At first it was just pain In the areas worked on then started to have pain in all my…
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Locked jaw
Has anyone experienced a seizure after their jaw has locked up? Husband drinks a lot of water and drinking ensure after his jaw lockec up but sodium level dropped and caused a seizure. laurabeau
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dizzy with pain question
I had laryngeal, stage 4 cancer, finished with chemo and rads 2 years ago, neck disection Dec. of '13. For the past 8 months or so, once or twice a week I get dizzy/light-headed and nauseaous, usually along with a sharp pain in my jaw or side of my face. I've had 2 MRIs of brain and neck, chest x-rays, all check-ups NED.…
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about to complete 1 yr
Day after tomorrow i am taking my father for the monthly check up). Its been long and toughest year for our family.Last April My father was detected with cancer IVA of Pyriformafossa from then long 8 months suffer continued(Chemo, radiation then surgery on october and after surgery complications continued for 3 months…
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Good News
22 Months post treatment. NED! I saw my Medical Oncologist and Speech Pathologist and was told to book an appointment for 1 YEAR! I see my Rad Onc and ENT in May and if all goes well, next appointment will be November. I'm basically at the 2 year mark (April 24th is the official anniversary) and that, as we know, is the…
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just wondering about tounge flap
Hey gang just being curious if anyone else had the tounge flap to replace tounge?They took part of my thigh to rebuild what they had to remove.Everything is going well at least that is what my doctor.Says the swelling is way down and healing better then he thought at this time which has been a year now.Anyway have been…
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Seeking feedback from anyone who has undergone jaw replacement
I've already communicated with some really wonderful people on this site & hope to connect with more. It was suggested I open up another Forum Topic to engage more members. I have suffered from jaw issues as my jaw was radiated when I was 17. I'm now 54 & as time goes by the joy of a radiated jaw does not get any better.…