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Question for the gals....
I had a bone density test the other day, and the Dr. has prescribed Fosamax for me. I was reading the side effects and this one is listed: Bisphosphonates can also cause osteonecrosis of the jaw, a rare condition in which a section of jawbone is slow to heal or fails to heal, typically after a tooth is pulled. This occurs…
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Oxygen Usage
We're having a pretty tough time with my wifes Mom here who is having throat / lung cancer... Been in 4th stage almost 6 months now. Out oxygen concentrator only goes to a 5.0. This is no longer enough to sustain her. We have 7-8 bottles of 02 delivered here every week now. She had a tracheooscopy 6 weeks ago, and a…
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Cold all the time
Ok... here goes from someone fairly new on here. Background Mid 50's male (whos brain still tries to tell him he is in his mid 20's) that is 8 months out from treatment for Tonsil Cancer (caused by HPV) Treatment was chemo (first 2 treatments with Cisplatin and last with Carboplatin as the Cisplatin was distroying my…
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nervous
I was on this board a while back ......................not sure what to do I had went to my ent telling him that the left back of my throat was sore but could never pinpoint were it.......so he checked gave methe spray and said it was nothing ..........Now I still have the pain but i ohave figured out were its comming fr…
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Prevention Oncology Mouth Rinse?
Hi Everyone, My husband finished his chemo and radiation four weeks ago today. Overall I think he's doing really well. He started eating solid foods a few days ago and is handling that quite well. He has to drink water while he eats but he says the worst pain is from the mouth sores. He has the Magic Mouthwash and a few…
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Options for treatment
For a while I have been worrying about a total glossectomy. I really don't think my quality of life will be very good without a functional tongue especially at the age of 19. I worry that I may receive a total glossectomy due to nearly over half my tongue being indurated. I have done all my scans and FNA and am now waiting…
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Small Tumor or Viral Wart Reoccurring Cancer or? I am Scared
I have not been on here for over a year. I had my last radiation/chemo two years and three months ago. I had HPV related cancer. Three scans have been clear and my quarterly neck check up always clear. The ENT doctor scoped me and said I have a small growth in the soft tissue back of neck/mouth on right side. My cancer…
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Guzzle Rides Again!
Friends across the pond, I am doing UK COAST TO COAST ON A BICYCLE 14/05/15. West to East whitehaven to Newcastle over the Pennine Mountains (C2C) FOR cancer Reasearch which has an International Mandate for Cancer Resrearch UK which has an international mandate. 180 miles over rough terrain. 3 days. One sore backside.…
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3 years ago today....
was the day my life changed for what I thought might be forever....but not so. I was diagnosed March 5, 2012.....what a mind blower that was! So today I had an ENT appointment, and he looked down my gullet, and checked out my vocal coads, checked my mouth and said....every thing looks great! Then as he backed up he…
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And then the bough breaks
long made short- 2 weeks ago knee hurting, no idea why, got mri, went to ortho, tapped my knee and all they could get was a tsp of blood, can't walk. My labs are norm for us. Being sent to hematologist oncologist tomorrow, scared out of my mind. I can't deal with another cancer, I can barely deal with life- have therapist,…
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To MD Anderson we go
Well, just when we think we are in the clear, another hiccup! Three years ago this week we were in ICU with Jim's surgery for his jaw cancer. In January he had surgery to remove 2 small spots that turned out to be a recurrence of his sarcoma, but were told that all spots were gone and all was good. Last week, his radiation…
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post irradiation otitis media with effusion - update
To make a long story short: on Sunday (everything seems to happen during weekend!) early morning I wake up with a severe pain in my (right) ear. A few hours later I went to ER. Of course, no ENT specialists available on Sundays, so the general practitioner missed the diagnosis. Anyway, can’t blame him, how many NPC…
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Swollen voice box after 9 months ?
Hi there , I saw the drs about 3 weeks ago and had a pet scan done. They found a new mark , not near site of cancer, was at back of my nose. They are going to keep an eye on it, they dont seem too concerned. My treatment finished about 9 / 10 months ago. The drs told me at my last visiti that my voice box is still swollen…
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Long Term Survivor aka Dr. Patrick S. Dunlap (wife)
I am Janet Dunlap, wife of Dr. Patrick Dunlap, better known to some of you on this board, as "LongTermSurvivor." Pat passed away February 10th, 2015 at 6:00 a.m. Pat was on the board even February 9th. If anyone desires details you can reach out to me at jbcody2424@gmail.com. We had contacted hospic about three weeks prior…
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updates
Hello everyone, My brother goes in for his 9 month check up (PET/CT) on Monday. SCC HPV + As for everyone else the scanxiety is massive for himself and his wife. I try my best to calm the fears...but as we all have experienced these are only words, until they themselves hear the words "all clear - NED". I have put my…
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Helloooooooooooo
Boy, I am so tired! Hi Warriors! It is meeeeee! I have been volunteering at a Senior Center, and afraid I am fitting right in with this group! Eeeek! I present my current situation, and would like any input you may have. I had a full work up of blood work. I went to a neurologist, and have peripheral neuropathy in my feet.…
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Neuropathy...
I'm now seven months post tx...I had tingling numbness in all my fingers for a couple of months and it slowly dissipated, but it has now returned in the four fingers of my right hand excluding my thumb. Have any of you had neuropathy in the hands or feet? Did it occur and go away and then come back? My ENT mentioned that…
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fentanyl patches
I finished my rads almost 4 weeks ago and chemo almost 6 weeks ago. Thursday, I have my peg removed-THANK YOU JESUS!! Any how I had been using only 25mg patches for about 1month and a half and a couple of weeks ago we took it down to 12mg. I get very dizzy and I am not sure if it from the patches or not so I just took off…
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Dysphagia from Radiotherapy (Sudden Late Onset Fibrosis)
One of the causes of fibrosis in the body is radiation therapy (RT) or chemoradiation therapy (CRT), each used for cancer treatment. For most patients, fibrosis is scar like tissue that may form during RT/CRT or soon after. For other patients, who resolve well after RT/CRT, fibrosis may be suddenly experienced years after…
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Diabetes insipidus, anyone?
Hi all, I'm wondering if anyone has had to deal with diabetes insipidus. My husband has it as a result of his tumor and it is what causes problems. Since diagnosis we have landed in emergency and then hospitalized 4 times. Every single time it was due to high or low sodium in the blood. His sodium gets out of balance if he…
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a great article on the "after" affects of cancer tx
this is a little long but well worth reading, especially those who have not finished tx yet as it will help you understand what you may feel then.…
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Spell check.....How can we get it to work?
Just a thought for the Staff....How can we get spell check to work on this site. My computer will on all other things I do but for some reason it just won't work here. By the way, i'm terrible on spelling. Just a thought if it can be worked on that would be so nice. Bill
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Can taste buds grow back ?
Hi there, just wondering if taste buds can grow back ? I have very smooth sections on my tongue and have to confirm in 2 wks with my oncologist that this is geographic tongue, my go has already said yes. Had a good look at my tongue and there is red very smooth sections, can taste buds grow back ? This is the result of the…
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First PET scan is clear
Whew! we dogged a bullet.. I am so happy to feel like we can live a little again, and not be stuck in the tunnel of fear/wondering. I will ensure my hubby works on his nutrition over the next few months, since we no longer have to worry if the treatments did their job at this point. Eating is still not his favorite…
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beverage suggestions
Hi all, My brother Bob is trying to find things he can drink....getting kind of tired of warm tap water. I got him coconut water and he liked that. Has a little taste but isn't overpowering or sugary. Something with calories would be good too. Just thought I's see what worked for you. He's coming up on first pet 3/16, tube…
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Dilations
had my fourth dilation today and the tube keeping my throat opened was taken out. I swallow better with it out. I have a bit of a problem since my throat was opened, with bile and acid i had the problem before but it didn't reach my throat and mouth. I hate the burning and bitterness of the bile.ive been on ranitidine but…
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for those who can't swallow
a cancer pt on FB had said that radiation had burned her throat up so bad that her doctors told her she would never swallow again and be on peg feedings the rest of her life. she did some research and found a doctor who gave her other options and much hope. Well, he was able to repair her throat and now she can swallow and…
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Prednizone
I have come back from the other side. :{ It is amazing how the support differs so much from one discussion board to another on CSN. As I told you all earlier my mom has recently been diagnosed with lung cancer with mets to medial lymph and hylar lymph. They also saw a place on her L4 vertebre that is likely metastic. She…
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G tube removal
I just came upon this website tonight and have been reading all the posts about pain after radiation treatments have ended. My husband completed his 30 radiations one week ago today. We knew that the throat/swallow pain relief wouldn't be immediate, but they said he'd be much better in two weeks when he returns and his…
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Tooth extraction yesterday-no hyperbaric-watching for healing process
Hi everyone. We have been having this discussion for some time now and thought I should update everyone on my progress. I had the molar, number 19 extracted yesterday after an experimental trial of a wire and rubberband extraction failed. This was an alternative method proposed by my dentist using leverage to remove the…