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ENT visit
Finally, my first ENT visit! He scoped me and saw the blockage in my left nasal as well as reddened throat. He decided on a course of antibiotics for 10 days followed by a CT scan after! He did say he wanted to be sure of things in light of the blockage and especially the persistent headaches. He said they wanted to be…
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Chemotherapy Help?
The tumor board met today and changed my medical oncologist after I expressed my concern over how our first appointment went earlier this week. The original medical oncologist planned to prescribe a three-blend chemotherapy mix consisting of: 5-FU, Hydrea (Droxia, Myocel) and Taxol. She gave me the list of side effects…
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NED Sweet NED 7 Months Post Treatment
I'm 7 months post treatment and nearly a year (May) since anything showed up on a scan. Yesterday, I had my 7 month follow up scans. Reports came back NED! Many thinks to everyone who supported me and answered my endless questions. This is an excellent group of caring people. You are all very much appreciated.
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NED!
How about some good news? Six month follow up PET scan yesterday. NED today!
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Having neck dissection next Wed very nervous don't know what to expect
Hi, I'm Karen from Australia, I was recently diagnosed with a stage 2 tumour but no lymph node involvement and no Mets scan results (T2 N0 M0) but it won't be until they open me up that they will really know. I'm very nervous about the operation, the surgeon says it will take most of the day, they will probably also take…
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Look What I found.... Crappie
Found one; So I invited him home..., he brought friends..; Hope everyone has a great week-end, think positive and great things will happen.. Thoughts and prayers, john
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CT Scan & Dental
My latest CT scan while all clean , made a reference for the 3rd time that the amalgam I have around any crown work distorts the beam or makes it bounce ,since I first saw this it always bothered me that the scan could miss something in all my oral nooks and crannies, so when I saw my dentist today we discussed the process…
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How do you deal with coworkers
Okay guys, I need some good/funny ideas of how to deal with well meaning coworkers who are just too much. Just today I have had 3 different coworkers tell me: * I heard this story about cancer on the radio. You might want to listen to it. * Are you watching the Ken Burns cancer series on PBS? * Tell me about a mother of 4…
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Positive SCC biopsy unknown primary looking for reassurance
Hi my name is Jenni Im from the Gold Coast Australia, this month I have had a positive biopsy for SCC in a lymph node in my neck, they suspected the tonsils to be the primary, so i had them removed 2 weeks ago but they have come back clear, whilst in surgery they tool multiple samples from back of mouth/throat area and…
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I feel guilty
So my name is Kylee, I am 21, and I am a survivor of laryngeal cancer. No one in my life seems to understand who I am now, hell (pardon the language), I don't even know who I am anymore. However I grew up fast because of it all. I feel guilty because I feel like my cancer was so minimal compared to others, I only needed…
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Good news, County School Board wants me to be a speaker. Update 4/14
Got the news today that the county school board wants me to be a speaker for there Anti-Tabacco program. I will go to schools all over the county and give talks and answer questions for the kids. May be I can save one or two. Also Stanford Medical in CA, and St Agnos Hospital, Fresno CA, are using my YouTube to help other…
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Lots of Questions about Chemo
Just heard from MD Anderson yesterday. They want to start chemo next week. My husband will have 4 courses of treatment lasting 3 days each with 21 days in between the courses. He will be hospitalized for 3-5 days during his first course because of side effects and for monitoring. Not sure if they will hospitalize for the…
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May have more
Went to my dental appt today expecting not a lot but instead of just a good to start treatment I have to have a bone smoothed out ,and then she finds white patches on the gum on side of the cancer is on. To her credit she got on the phone with my ENT. and Rad Onc. Who ordered another Ct tomorrow man talking about a kick…
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tongue and throat cancer
Hello........My husband finished 35 radiation treatments Feb 23 for base of tongue cancer that spread to throat and lymphs on both sides of neck.........today he still can't swallow. I feed him by a G-tube and I would love to get some info on anyone who has had this, how long does it take to be able to swallow again?????…
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YaHoo
In the past week I have been poked, prodded, scoped, unltrasounded , blood drawn and CT scanned. the results are in and it seems I am good to go...all clear so far...YaHoo!!! not that I had any doubts (Said in my best brave voice) thought I would share a little good news
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5 Year Mark Past
Hi there my fellow warriors and friends. Back in January you all helped me celebrate my 5 year all clear wihen my surgeon declared I was officially cured. Just 6 days ago (March 30th) I silently celebrated my 5 year anniversary of ending radiation. My plan was to pull out my mask in a plastic bag in the basement and do…
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My Husband's Journey, "The good, the bad and the ugly."
My husband was diagnosed with SC / BOT/one lymph node. He’s 55, never smoked, rarely drinks and it wasn’t HPV. He had chemo and 30 radiation treatments. First chemo was cisplatin but they had to switch to carboplatin because he had loss of hearing and tinnitus. Yesterday was his 6 week post treatment scope. NED!!!! I know…
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My TV appearance on a New Zealand Network TV show in support of HPV vaccination
Here is a link to the video of a TV show which aired on New Zealand network TV last night with my cancer story. tvnz.co.nz/sunday-news/going-viral-video-6281540 (Just copy and paste the text in bold into your browser).My hope was to increase the public awareness regarding the issue of the HPV link to head and neck cancer.…
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Raw mouth years after Rads?
Hey all! I don't post much here anymore but do try to check in every once in a while. I am 3 years out from diagnosis of ACC, I finished radiation in June of 2012. Overall I am doing well, I now have 3 kids (2 born after cancer treatment) & my scans so far have been clean although I am a bit overdo on those due to my last…
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frustrated ... sometimes i miss myself
Hello all, its been a while since i last posted. This week is one year from my first surgery before i knew i had cancer. And now i am 7 months post radio treatment. I always thought everything will be okay once i finish treatment ... well it is ofcourse u get rid of the cancer. But sometimes after treatmemt u get bit lost!…
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Checking In, Up and Check out mine and Chargee's Selfie
Hi all! So sorry to be so long posting. I have been keeping up and do check in from time to time believe it or not! I did a maternity leave long term sub for a kindergarten teacher from Jan. 5 to March 6 and have just started another one in kindergarten this past week that will go thru end of year. I am truly grateful for…
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CSN MeetUp -Dos Equis
JOHN, SHELLEY and HONDO Tim HONDO Mc...., meetup in the other Bay Area from Don and Steve... Good times, old friends...
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Looking for people with the same type
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
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To Peg tube or not
Hi guys am about to start my journey with Rad and Chemo to kill the beast,Onc.gave me the choice to have it or not, I told him I would decide this weekend. Guess I'm trying to get some input on this thing I plan on working as long as possible and sounds like this thing could get in my way alot,I do warehouse work so this…
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Cleavers Herb
Hi all, I'm 3 years 5 months out from my robotic surgery to remove a cancerous mass on my epigoltis. I'm doing good, feeling good, except, for the " turkey neck". Recently, I read an article that said cleavers herb will reduce swelling, keep nodes clear , help with mucus . Have any of you tried this herb...? Hope this…
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Bad Choices during Cancer
Like a woman had posted earlier, when my husband was diagnosed with head and neck cancer, I was okay, then got severly depressed. There was nothing I could do to stop it from happening, but I was angry. Seems that him and I had just started and I didn't bear/didn't want to see him waste away before me. I shut down/out. I…
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New Diagnosis from MD Anderson
Well, Jim and I got some unexpected news when we went to MD Anderson last week. They obtained all slides from 2011 and 2012 and analyzed them in the sarcoma lab. They have re-classified his cancer to an osteosarcoma of the jaw that has metastisized to the lungs. Good news is that the treatment for this in the jaw is…
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Checking in...
Hi, folks! Sorry for the absence--life has been busy and, to be honest, after losing my mom to cancer last year I think I needed a bit of a break. I'm doing fine, though--ENT check-ups are all clear. The last PET scan around a year ago had an unknown hot spot in my nasopharynx but my ENT said he'd never seen cancer look…
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Could it be recurrence
I haven't been on this site in a long time but am feeling the need for some feedback. I survived my Stage IV throat cancer in Spring of 2013 after 35 rads and 7 cisplatin treatments. Was declared cancer free in July 2013. Went through a year of learning to cope with all the standard side effects (swallowing deficiency,…
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CSNer meetup
Couple years ago Steve and John met up in Norcal, leaving me out. lol. This time Steve and I grabbed a coffee and had a super chat about how everyday is such a gift. Steve is just 7 months past a 16 hour major surgery due to ORN and looks and is doing incredible. There are lots of CSN folks that can do the same thing. It…