-
Question About Treatment
I have just started treatment for Oropharyngeal Cancer tonsil stage 4. Radiation and chemotherapy. I have been doing some research alot of research and found this from the The New England Journal of Medicine. http://www.nejm.org/doi/full/10.1056/NEJMoa0912217#t=articleResults Please help me with the answer-it is very very…
-
Vertigo
As Roseann Roseannadanna used to say, "It's always something" but this might be a new one for us here. I am 5+ months out from a jaw resection--left side, and 5+ years past my successful rads and chemo gig. Not too long after the jaw surgery I started to have some periodic dizziness that was originally attributed to some…
-
Cancer spread to port site
My husband was 4th stage Squamous Cell Carcinoma on base of the tongue. He had 35 radiation treatments and 7 chemo treatments. He also got MIRSA from all the burned skin on his neck. The cancer in his neck was gone, but months later a tumor grew in the port site in his chest. On Oct. 30, 2013 that was removed. This is the…
-
2 years - UPDATE - NED!
This just in... May 19th 2015 - Follow up at Johns Hopkins... NED! Next appointment in 6 months. Hard to believe.... April 24th 2013 I returned home from Baltimore 65lbs lighter with a PEG tube hanging out of my stomach. I'm two years out, gained back around 30lbs and still NED. The "New Normal" certainly has it's ups and…
-
Katie
Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.
-
Better news than expected
I had a PET scan on Tuesday and went back yesterday (Friday) for results. Comparing Nov scan to this week, cancer in Maxillary sinus is much smaller. I will continue with chemo (taxol). I do have a yeast infection in sinus, have been treated for the last month for bacterial infection. Stopped antibiotics and will be taking…
-
5 yr check in
hello one and all. Wife here.... been a while, think you many of you often. We (my husband) has reached his five year mark. He is doing well, has been a grandpa for 5 months!... actually talking about retirement :) hope you are all well ... and for new members...if you are just beginning I won't sugar coat it... it is…
-
Another Check-Up
While I don't post here often anymore , I do check in and read the posts ..I saw my oncologist today and am now officially 40 months cancer free, the only thing is she said she wants me to loose 20lbs by the time she sees me again in October, she won't let me out of the 6 month routine until I hit the 5 year mark, my ENT…
-
i am new normal are you?
Friends, March 23rd marks 3 years post, the day I wore the mask for the last time. I wish to thank everyone who participates in the H&N forum and all the good advice that comes from radiated heads. Still batting NED! Matt
-
Checking in
going to see my ENT TOMORROW - good to see the regulars still being regular- glad John is feeling better - seems he had a " bump in the road" glad all seems well now. It's hard to believe it has almost been 2 1/2 years since my last treatment. I have just been feeling some discomfort in the area where the lymph nodes were…
-
ENT visit
Finally, my first ENT visit! He scoped me and saw the blockage in my left nasal as well as reddened throat. He decided on a course of antibiotics for 10 days followed by a CT scan after! He did say he wanted to be sure of things in light of the blockage and especially the persistent headaches. He said they wanted to be…
-
Chemotherapy Help?
The tumor board met today and changed my medical oncologist after I expressed my concern over how our first appointment went earlier this week. The original medical oncologist planned to prescribe a three-blend chemotherapy mix consisting of: 5-FU, Hydrea (Droxia, Myocel) and Taxol. She gave me the list of side effects…
-
NED Sweet NED 7 Months Post Treatment
I'm 7 months post treatment and nearly a year (May) since anything showed up on a scan. Yesterday, I had my 7 month follow up scans. Reports came back NED! Many thinks to everyone who supported me and answered my endless questions. This is an excellent group of caring people. You are all very much appreciated.
-
NED!
How about some good news? Six month follow up PET scan yesterday. NED today!
-
Having neck dissection next Wed very nervous don't know what to expect
Hi, I'm Karen from Australia, I was recently diagnosed with a stage 2 tumour but no lymph node involvement and no Mets scan results (T2 N0 M0) but it won't be until they open me up that they will really know. I'm very nervous about the operation, the surgeon says it will take most of the day, they will probably also take…
-
Look What I found.... Crappie
Found one; So I invited him home..., he brought friends..; Hope everyone has a great week-end, think positive and great things will happen.. Thoughts and prayers, john
-
CT Scan & Dental
My latest CT scan while all clean , made a reference for the 3rd time that the amalgam I have around any crown work distorts the beam or makes it bounce ,since I first saw this it always bothered me that the scan could miss something in all my oral nooks and crannies, so when I saw my dentist today we discussed the process…
-
How do you deal with coworkers
Okay guys, I need some good/funny ideas of how to deal with well meaning coworkers who are just too much. Just today I have had 3 different coworkers tell me: * I heard this story about cancer on the radio. You might want to listen to it. * Are you watching the Ken Burns cancer series on PBS? * Tell me about a mother of 4…
-
Positive SCC biopsy unknown primary looking for reassurance
Hi my name is Jenni Im from the Gold Coast Australia, this month I have had a positive biopsy for SCC in a lymph node in my neck, they suspected the tonsils to be the primary, so i had them removed 2 weeks ago but they have come back clear, whilst in surgery they tool multiple samples from back of mouth/throat area and…
-
I feel guilty
So my name is Kylee, I am 21, and I am a survivor of laryngeal cancer. No one in my life seems to understand who I am now, hell (pardon the language), I don't even know who I am anymore. However I grew up fast because of it all. I feel guilty because I feel like my cancer was so minimal compared to others, I only needed…
-
Good news, County School Board wants me to be a speaker. Update 4/14
Got the news today that the county school board wants me to be a speaker for there Anti-Tabacco program. I will go to schools all over the county and give talks and answer questions for the kids. May be I can save one or two. Also Stanford Medical in CA, and St Agnos Hospital, Fresno CA, are using my YouTube to help other…
-
Lots of Questions about Chemo
Just heard from MD Anderson yesterday. They want to start chemo next week. My husband will have 4 courses of treatment lasting 3 days each with 21 days in between the courses. He will be hospitalized for 3-5 days during his first course because of side effects and for monitoring. Not sure if they will hospitalize for the…
-
May have more
Went to my dental appt today expecting not a lot but instead of just a good to start treatment I have to have a bone smoothed out ,and then she finds white patches on the gum on side of the cancer is on. To her credit she got on the phone with my ENT. and Rad Onc. Who ordered another Ct tomorrow man talking about a kick…
-
tongue and throat cancer
Hello........My husband finished 35 radiation treatments Feb 23 for base of tongue cancer that spread to throat and lymphs on both sides of neck.........today he still can't swallow. I feed him by a G-tube and I would love to get some info on anyone who has had this, how long does it take to be able to swallow again?????…
-
YaHoo
In the past week I have been poked, prodded, scoped, unltrasounded , blood drawn and CT scanned. the results are in and it seems I am good to go...all clear so far...YaHoo!!! not that I had any doubts (Said in my best brave voice) thought I would share a little good news
-
5 Year Mark Past
Hi there my fellow warriors and friends. Back in January you all helped me celebrate my 5 year all clear wihen my surgeon declared I was officially cured. Just 6 days ago (March 30th) I silently celebrated my 5 year anniversary of ending radiation. My plan was to pull out my mask in a plastic bag in the basement and do…
-
My Husband's Journey, "The good, the bad and the ugly."
My husband was diagnosed with SC / BOT/one lymph node. He’s 55, never smoked, rarely drinks and it wasn’t HPV. He had chemo and 30 radiation treatments. First chemo was cisplatin but they had to switch to carboplatin because he had loss of hearing and tinnitus. Yesterday was his 6 week post treatment scope. NED!!!! I know…
-
My TV appearance on a New Zealand Network TV show in support of HPV vaccination
Here is a link to the video of a TV show which aired on New Zealand network TV last night with my cancer story. tvnz.co.nz/sunday-news/going-viral-video-6281540 (Just copy and paste the text in bold into your browser).My hope was to increase the public awareness regarding the issue of the HPV link to head and neck cancer.…
-
Raw mouth years after Rads?
Hey all! I don't post much here anymore but do try to check in every once in a while. I am 3 years out from diagnosis of ACC, I finished radiation in June of 2012. Overall I am doing well, I now have 3 kids (2 born after cancer treatment) & my scans so far have been clean although I am a bit overdo on those due to my last…
-
frustrated ... sometimes i miss myself
Hello all, its been a while since i last posted. This week is one year from my first surgery before i knew i had cancer. And now i am 7 months post radio treatment. I always thought everything will be okay once i finish treatment ... well it is ofcourse u get rid of the cancer. But sometimes after treatmemt u get bit lost!…