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Post CT Scan~
I saw my PCP today and wished I had more specific info but did find out that nothing too significant was seen on sinus CT scan except swollen turbinate. Doc wants me to see ENT which is sceduled May 8th. I know this is good news to some extent but will be more relieved to see ENT next week for more specifics! Doc also…
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Nasopharyngeal Carcinoma
Hi My Name is Sam! I'm Happy To Say I Have Been In Remission For 4 Years! i Was Diagnosed At 19 With Nasopharyngeal Carcinoma Stage 4! i Did Chemo And Radiation And It Was A Very Tough Time In my Life But I Am Hapy to Be On The Other End It Has Greatly Changed my Life And To this Day i Still Deal With Side Effects....One…
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Eye cancer
Can't remember if I told you all that my mom now has cancer in her eye. Don't know if anyone here has delt with it but apparently it is included as a head and neck cancer. She was diagnosed with lung cancer and two lymph nodes over two months ago. The Oncologist doesn't know what to do about treatment and keeps changing…
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*New* Question about hot spots on PET
I had my first PET scan after surgery and radiation for SCC of the tongue. The primary site and side looked good, however I had some hot spots pop up on the opposite side in my tonsil, a jaw muscle and a lymph node beside the jaw muscle. My radiation doctor said not to worry Because it was on the opposite side, and I'd…
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Prostate
Don't know if I posted anything much about my diagnosis of prostate cancer a couple of years ago. I had a biopsy due to the fact that both my dad and brother had prostate cancer. The biopsy showed a minimal amount of cells in the prostate. Classified as gleason 6 which is the lowest it can go. Recently had a follow up…
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Looking for tips!
Hi there I'm new to the site but have found it to be a great resource so far. I am 30 years old and was diagnosed with SCC of the tongue HPV negative, in October. (When I was 18 weeks pregnant!) I went through two surgeries, one being a hemiglossectomy the day after Christmas. luckily, the cancer was just localized to the…
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Question About Treatment
I have just started treatment for Oropharyngeal Cancer tonsil stage 4. Radiation and chemotherapy. I have been doing some research alot of research and found this from the The New England Journal of Medicine. http://www.nejm.org/doi/full/10.1056/NEJMoa0912217#t=articleResults Please help me with the answer-it is very very…
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Vertigo
As Roseann Roseannadanna used to say, "It's always something" but this might be a new one for us here. I am 5+ months out from a jaw resection--left side, and 5+ years past my successful rads and chemo gig. Not too long after the jaw surgery I started to have some periodic dizziness that was originally attributed to some…
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Cancer spread to port site
My husband was 4th stage Squamous Cell Carcinoma on base of the tongue. He had 35 radiation treatments and 7 chemo treatments. He also got MIRSA from all the burned skin on his neck. The cancer in his neck was gone, but months later a tumor grew in the port site in his chest. On Oct. 30, 2013 that was removed. This is the…
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2 years - UPDATE - NED!
This just in... May 19th 2015 - Follow up at Johns Hopkins... NED! Next appointment in 6 months. Hard to believe.... April 24th 2013 I returned home from Baltimore 65lbs lighter with a PEG tube hanging out of my stomach. I'm two years out, gained back around 30lbs and still NED. The "New Normal" certainly has it's ups and…
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Katie
Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.
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Better news than expected
I had a PET scan on Tuesday and went back yesterday (Friday) for results. Comparing Nov scan to this week, cancer in Maxillary sinus is much smaller. I will continue with chemo (taxol). I do have a yeast infection in sinus, have been treated for the last month for bacterial infection. Stopped antibiotics and will be taking…
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5 yr check in
hello one and all. Wife here.... been a while, think you many of you often. We (my husband) has reached his five year mark. He is doing well, has been a grandpa for 5 months!... actually talking about retirement :) hope you are all well ... and for new members...if you are just beginning I won't sugar coat it... it is…
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Another Check-Up
While I don't post here often anymore , I do check in and read the posts ..I saw my oncologist today and am now officially 40 months cancer free, the only thing is she said she wants me to loose 20lbs by the time she sees me again in October, she won't let me out of the 6 month routine until I hit the 5 year mark, my ENT…
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i am new normal are you?
Friends, March 23rd marks 3 years post, the day I wore the mask for the last time. I wish to thank everyone who participates in the H&N forum and all the good advice that comes from radiated heads. Still batting NED! Matt
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Checking in
going to see my ENT TOMORROW - good to see the regulars still being regular- glad John is feeling better - seems he had a " bump in the road" glad all seems well now. It's hard to believe it has almost been 2 1/2 years since my last treatment. I have just been feeling some discomfort in the area where the lymph nodes were…
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ENT visit
Finally, my first ENT visit! He scoped me and saw the blockage in my left nasal as well as reddened throat. He decided on a course of antibiotics for 10 days followed by a CT scan after! He did say he wanted to be sure of things in light of the blockage and especially the persistent headaches. He said they wanted to be…
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Chemotherapy Help?
The tumor board met today and changed my medical oncologist after I expressed my concern over how our first appointment went earlier this week. The original medical oncologist planned to prescribe a three-blend chemotherapy mix consisting of: 5-FU, Hydrea (Droxia, Myocel) and Taxol. She gave me the list of side effects…
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NED Sweet NED 7 Months Post Treatment
I'm 7 months post treatment and nearly a year (May) since anything showed up on a scan. Yesterday, I had my 7 month follow up scans. Reports came back NED! Many thinks to everyone who supported me and answered my endless questions. This is an excellent group of caring people. You are all very much appreciated.
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NED!
How about some good news? Six month follow up PET scan yesterday. NED today!
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Having neck dissection next Wed very nervous don't know what to expect
Hi, I'm Karen from Australia, I was recently diagnosed with a stage 2 tumour but no lymph node involvement and no Mets scan results (T2 N0 M0) but it won't be until they open me up that they will really know. I'm very nervous about the operation, the surgeon says it will take most of the day, they will probably also take…
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Look What I found.... Crappie
Found one; So I invited him home..., he brought friends..; Hope everyone has a great week-end, think positive and great things will happen.. Thoughts and prayers, john
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CT Scan & Dental
My latest CT scan while all clean , made a reference for the 3rd time that the amalgam I have around any crown work distorts the beam or makes it bounce ,since I first saw this it always bothered me that the scan could miss something in all my oral nooks and crannies, so when I saw my dentist today we discussed the process…
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How do you deal with coworkers
Okay guys, I need some good/funny ideas of how to deal with well meaning coworkers who are just too much. Just today I have had 3 different coworkers tell me: * I heard this story about cancer on the radio. You might want to listen to it. * Are you watching the Ken Burns cancer series on PBS? * Tell me about a mother of 4…
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Positive SCC biopsy unknown primary looking for reassurance
Hi my name is Jenni Im from the Gold Coast Australia, this month I have had a positive biopsy for SCC in a lymph node in my neck, they suspected the tonsils to be the primary, so i had them removed 2 weeks ago but they have come back clear, whilst in surgery they tool multiple samples from back of mouth/throat area and…
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I feel guilty
So my name is Kylee, I am 21, and I am a survivor of laryngeal cancer. No one in my life seems to understand who I am now, hell (pardon the language), I don't even know who I am anymore. However I grew up fast because of it all. I feel guilty because I feel like my cancer was so minimal compared to others, I only needed…
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Good news, County School Board wants me to be a speaker. Update 4/14
Got the news today that the county school board wants me to be a speaker for there Anti-Tabacco program. I will go to schools all over the county and give talks and answer questions for the kids. May be I can save one or two. Also Stanford Medical in CA, and St Agnos Hospital, Fresno CA, are using my YouTube to help other…
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Lots of Questions about Chemo
Just heard from MD Anderson yesterday. They want to start chemo next week. My husband will have 4 courses of treatment lasting 3 days each with 21 days in between the courses. He will be hospitalized for 3-5 days during his first course because of side effects and for monitoring. Not sure if they will hospitalize for the…
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May have more
Went to my dental appt today expecting not a lot but instead of just a good to start treatment I have to have a bone smoothed out ,and then she finds white patches on the gum on side of the cancer is on. To her credit she got on the phone with my ENT. and Rad Onc. Who ordered another Ct tomorrow man talking about a kick…
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tongue and throat cancer
Hello........My husband finished 35 radiation treatments Feb 23 for base of tongue cancer that spread to throat and lymphs on both sides of neck.........today he still can't swallow. I feed him by a G-tube and I would love to get some info on anyone who has had this, how long does it take to be able to swallow again?????…