-
YaHoo
In the past week I have been poked, prodded, scoped, unltrasounded , blood drawn and CT scanned. the results are in and it seems I am good to go...all clear so far...YaHoo!!! not that I had any doubts (Said in my best brave voice) thought I would share a little good news
-
5 Year Mark Past
Hi there my fellow warriors and friends. Back in January you all helped me celebrate my 5 year all clear wihen my surgeon declared I was officially cured. Just 6 days ago (March 30th) I silently celebrated my 5 year anniversary of ending radiation. My plan was to pull out my mask in a plastic bag in the basement and do…
-
My Husband's Journey, "The good, the bad and the ugly."
My husband was diagnosed with SC / BOT/one lymph node. He’s 55, never smoked, rarely drinks and it wasn’t HPV. He had chemo and 30 radiation treatments. First chemo was cisplatin but they had to switch to carboplatin because he had loss of hearing and tinnitus. Yesterday was his 6 week post treatment scope. NED!!!! I know…
-
My TV appearance on a New Zealand Network TV show in support of HPV vaccination
Here is a link to the video of a TV show which aired on New Zealand network TV last night with my cancer story. tvnz.co.nz/sunday-news/going-viral-video-6281540 (Just copy and paste the text in bold into your browser).My hope was to increase the public awareness regarding the issue of the HPV link to head and neck cancer.…
-
Raw mouth years after Rads?
Hey all! I don't post much here anymore but do try to check in every once in a while. I am 3 years out from diagnosis of ACC, I finished radiation in June of 2012. Overall I am doing well, I now have 3 kids (2 born after cancer treatment) & my scans so far have been clean although I am a bit overdo on those due to my last…
-
frustrated ... sometimes i miss myself
Hello all, its been a while since i last posted. This week is one year from my first surgery before i knew i had cancer. And now i am 7 months post radio treatment. I always thought everything will be okay once i finish treatment ... well it is ofcourse u get rid of the cancer. But sometimes after treatmemt u get bit lost!…
-
Checking In, Up and Check out mine and Chargee's Selfie
Hi all! So sorry to be so long posting. I have been keeping up and do check in from time to time believe it or not! I did a maternity leave long term sub for a kindergarten teacher from Jan. 5 to March 6 and have just started another one in kindergarten this past week that will go thru end of year. I am truly grateful for…
-
CSN MeetUp -Dos Equis
JOHN, SHELLEY and HONDO Tim HONDO Mc...., meetup in the other Bay Area from Don and Steve... Good times, old friends...
-
Looking for people with the same type
Hi All, I am new here and I am looking for information and people with the same thing I have. I come from the UK and can find very little info about the type of cancer I have on the sites over here. Was told to have a look at the american ones, and this ones gives lots of good information. So far I have been told that I…
-
To Peg tube or not
Hi guys am about to start my journey with Rad and Chemo to kill the beast,Onc.gave me the choice to have it or not, I told him I would decide this weekend. Guess I'm trying to get some input on this thing I plan on working as long as possible and sounds like this thing could get in my way alot,I do warehouse work so this…
-
Cleavers Herb
Hi all, I'm 3 years 5 months out from my robotic surgery to remove a cancerous mass on my epigoltis. I'm doing good, feeling good, except, for the " turkey neck". Recently, I read an article that said cleavers herb will reduce swelling, keep nodes clear , help with mucus . Have any of you tried this herb...? Hope this…
-
Bad Choices during Cancer
Like a woman had posted earlier, when my husband was diagnosed with head and neck cancer, I was okay, then got severly depressed. There was nothing I could do to stop it from happening, but I was angry. Seems that him and I had just started and I didn't bear/didn't want to see him waste away before me. I shut down/out. I…
-
New Diagnosis from MD Anderson
Well, Jim and I got some unexpected news when we went to MD Anderson last week. They obtained all slides from 2011 and 2012 and analyzed them in the sarcoma lab. They have re-classified his cancer to an osteosarcoma of the jaw that has metastisized to the lungs. Good news is that the treatment for this in the jaw is…
-
Checking in...
Hi, folks! Sorry for the absence--life has been busy and, to be honest, after losing my mom to cancer last year I think I needed a bit of a break. I'm doing fine, though--ENT check-ups are all clear. The last PET scan around a year ago had an unknown hot spot in my nasopharynx but my ENT said he'd never seen cancer look…
-
Could it be recurrence
I haven't been on this site in a long time but am feeling the need for some feedback. I survived my Stage IV throat cancer in Spring of 2013 after 35 rads and 7 cisplatin treatments. Was declared cancer free in July 2013. Went through a year of learning to cope with all the standard side effects (swallowing deficiency,…
-
CSNer meetup
Couple years ago Steve and John met up in Norcal, leaving me out. lol. This time Steve and I grabbed a coffee and had a super chat about how everyday is such a gift. Steve is just 7 months past a 16 hour major surgery due to ORN and looks and is doing incredible. There are lots of CSN folks that can do the same thing. It…
-
Terrified:p
I don't have a diagnosis yet as I am waiting for my first ENT appt. April 10th! I saw my PCP last month as I had a extremely sore throat and my nose was blocked on one side. I have very bad allergies and thought that may be the problem or infection. Doc put me on enough antibiotics to knock out a horse and added Flonase.…
-
Anniversary Coming soon
The anniversay of Jim's death is on the 17th of April. Last year is was Good Friday on that day so this past Friday was like a prelude to that awful day. I feel that with God's help I have come quite a ways in the grief process but still miss Jim terribly. As some of you know my mother was diagnosed a month ago with lung…
-
Removal of Small Growth - Surgery Tomrrow and Neck Question
Hi I posted a few days ago about the ENT guy saying I had a small what he called "wart" on my soft tissue. I found the medical report and the technical term is "excision Of Pharyngeal Lesion" The doctor said its not likely cancer as it is on the right side and my cancer was on the left side, although I did have an unknown…
-
Non-Metastatic Ground Glass Nodules Lungs Help
Hi all. I wonder if someone could help me? I've been celebrating my 7 months post treatment NED. Then, I read the chest CT report..... Of course I'm happy there's no metastatic disease but the "ground glass" nodules seem very scary. The earlier scans don't characterize the nodules as ground glass. Is this something I…
-
Hospital again
well I'm in hospital again blocked bowel. my luck has left me lately, my beloved partner died on Thursday he was my rock through this Cancer. He had pulmonary fibrosis. He became ill with a viril lung. I sat with him 3 days he seemed to be getting better then when I was by his hospital bedside he went into spasms and was…
-
How long after treatment do the swallow/hearing tests happen?
Just curious what to expect- husband is a little over 3 weeks past the end of treatment (35 rads, 3 Cisplatin for tonsil/lymph nodes) and he is eager to try eating by mouth. It's just little bits, mostly to see what doesn't burn going down. He only wants to try on the weekend when he's relaxed and at home. So, when will…
-
lymph node testing for cancer
I am going into the hospital at the end of the month for surgery. My dr said the swollwn lymph node is either lymphoma or squamous. Has anyone had this? If squamous will take part of lymph node to find out what kind of cancer. If no squamous found will take all lymph nodes on right side of neck. Don't know what to expect…
-
Neck Tumor It Is Benign - No Cancer
I just got word from my ENT doctor that the tumor he removed from the opposite side of where they think my cancer started is benign. He said it is fairly common to get such tumors due to radiation. I had, at least at first, stage VI a unknown primary. After some radiation they felt the cancer was on the left side, the same…
-
Nutrition & supplements
Good Morning!! have a question maybe omebody has some info... Hubby finished treatments august 20th.. NED in November .. Eating now which is amazing food still doesnt taste great but doing what He needs to do, problem is weight is not coming back lost 55 lbs in 7 weeks so muscles mass gone. I have been researching as usual…
-
Celebrating one year
Today I have been one year cancer free, yay! I was wondering if anyone else in their early 20's has suffered from laryngeal cancer and losing a vocal cord? Trying to find a supoort system, thank you!
-
Halfway through Chemo and Radiation
I'm almost halfway through weekly chemo and daily radiation. My hair was coming out in fistfuls so I cut it short, very good decision. Chemo day is the only day I feel okay. I got half a dose of Dekadron today and no Ativan and felt great when I left. Now I'll decline from now until next Thursday and have to have a driver…
-
Looking for some people in their 20's to connect with
I haven't gotten to meet someone my age who has had to deal with having cancer and would really love to talk to someone.
-
I can finally exhale
Flew to Mayo today with my brother and we both had clean scans! BCBS denied another PET so I had to go with CTs of chest and neck. The doctor even called them but their new policy is PETs within 6 months of tx otherwise only if CT indicates concern. I've had so many PET scans already and was surprised at how many they…
-
Anything good for soreness of the mouth
She just finished cemo and radiation for tongue cancer.. The mounth is so tender and raw. Besides the mouth washes/soda/etc does anybody find any relieve?