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Pain
Ugh, pain. Can't seem to get on top of it this weekend. At least I see my Doctor Tuesday. Not much information out there on palliative care or what to expect as I worsen. I will be asking the doctor many questions tomorrow.
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giving up alcohol?
no brainer, right? I mean, the first two questions the oncologist asked were, "do you smoke?" and "do you drink?" but is there some small amount of drink that eventually could be tolerated without risk? like one guinness per month? or every three months? I asked my oncologist about this, and all he said was that it's going…
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Re-Posted From: TammyC a new member
TammyC wrote: My son diagnosed at age 19 Dr Hanna will be overseeing his treatment for olfactory neuroblastoma. His first appointment is Jan 13, 2015. His tumor was removed Dec 2, 2014 and biopsy diagnosed him. They went into the negative margins and feel that the whole tumor was removed, but PET scan lit up in the area of…
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inspired by you guys - need ur opinion
Hello all. Sorry I haven't been posting lately .i am trying to get back on track, to find a job, get healthy.... I was treated in the best, actually the number 1 hospital in my country. Medically speaking they are veryyyy professional and the staff is amazing. But.. I have noticed that i wasn't approached or accompanied by…
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Rapid heartbeats and high blood pressure
Went to my GP on Wednesday due to a suspicion that I had prostatitis. The nurse took my blood pressure and it was 152 over 96, I said thats high, she agreed and then took my pulse, that was at 108. Doctor came in we went through the symptoms I had and the old finger test and said that I do indeed have prostatitis, put me…
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PEG tube question
Does getting a PEG tube require a hospital stay or is it a day procedure? I read that it's a two day hospital stay? I thought it would be something you had done and were out the door that day. Thanks
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Burning Tongue Oral Mucosa Changes Post Radiation & Chemo
Has anyone had post radiation / chemo changes to your oral mucosa? I have burning across the front top and tip of my tongue along with reoccurring tongue ulcers (no cancer). The ulcers come, heal and come back again. My ENT says this is a complication of treatment. I'm 5 months post treatment. Not sure how long this will…
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Question about HPV & Tongue Cancer Connection
Can someone please clarify this for me.... Perhaps, ignorantly, I thought that being HPV positive meant this could potentially have gynecological implications. However, since the virus is systemic, can being HPV positive also have manifestation in oral cancers? I've read on the board that HPV oral cancers generally have a…
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Advice Please
Hi Everyone, My husband has had 15 out of 30 rads. Yesterday he went in for his appt with the Chemo onc and was told he was being switched off Cisplatin to carboplatin. He was quite disappointed because he thought cisplatin was suppose to give him the best chance. He has stage 4A BOT. Only one lymph node. The doc said…
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New to this site
Hi all - my name's Crystal. I'm a 30 year old mom of 4 from Florida. I am new here - not 100% sure if I will need to be here or not but figured at least for now it is a place to start. 4 months ago I found I had a few swollen lymph nodes behind my ear and on my neck and collar bone and asked my doctor about them at a…
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Please help with advice..........am worried about throat symptoms and diagnosis!!
Hello Everyone, Firstly can I say you are all amazing people and having read a lot of threads I admire your strength and pray for you all xx I am a 35yr old smoker who has had a really sore throat (on the left side) and hoarse voice for over 5 weeks. I started by seeing my GP who diagnosed tonsillitis on the left side and…
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Keep on keeping on
Results of PET scan--lymph nodes are shrinking, less uptake (SUV) in maxillary sinus. They were not able to compare size of sinus cancer because scan was darker than the one in October. Doctor wanted to stop chemo and see what would happen, I chose to stay on chemo and keep it working. I am not having problems with Taxol.…
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Liquid vitamins
Because of paralysis of my tongue I have a hard problem swallowing pills. Does anyone have any recomendations on a liquid vitamin and what would really be nice is a liquid krill oil. Thanks, Mike
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Surgery done
I am doing exceptionally well or at least the morphine makes me think I am! They were very concerned with how best to put me under. Anesthesia was difficult and the most concerning safety issue for them. I had Mayo send them the procedure they used in September using nasal fiber optics, they ended up using same procedure.…
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Just diagnosed with squamous cell carcinoma of the tongue 1/27/15
Hi I'm so overwhelmed by all this. I was just given the diagnosis of squamous cell carcinoma on the right underside of my tongue the drs told me it's stage two. I had a CAT scan and they said they don't see it any lymphnodes they want to take a chunk of my tongue and remove the lymphnodes in my neck. I'm so scared I've…
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Almost done with rads. Cyber Knife? What to expect next?
Hi all, While I don't post often, I visit the site pretty much every day. I am so thankful for all the great info and encouragement I have received. Dima has his last radiation session this Friday! Praise God we are almost there. The last 3 weeks have been hell on earth. No matter what narcotics he got, he is always in…
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Radiation destroyed my teeth
Finished radiation treatments in April 2007 after surgery to remove a tumor from my left cheek. Healing has been difficult and slow but I've over come many obstacles. I find myself facing a new dilemma....my teeth. I've been seeing the same dentist for many years. I've been going every three months like my oncologist…
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replacement of left jawbone with bone from the leg
hi all im just wondering if anyone has had this, i had an op for neck cancer just over 10years ago, it got rid of the cancer, been clear for over 10 years now, but i cant swollow and have a peg. but thats not a problem. i had radiotherphy for 6 weeks every day, and because of that it killed off all of my blood cells in my…
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10 more rads to go & 2 questions
Hi Everyone, I am catching up on the boards here and also checking in. My husband is on the countdown... 10 radiation and 1 more cisplatin to go. He has pretty much lost his voice, and is full time tube feeding. I guess it's been about 10 days since he was able to eat something without gagging. So the doc told him to just…
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Anyone NOT have chemo?
Hello all, as you may remember my sad was diagnosed with SCC in sept and went through 30 rad treatments at MSKCC following a modified radical neck dissection. He had three affected lymph nodes and primary was a very very tiny spot on BOT. All along, the plan was always surgery and rads, no chemo. The week before treatment…
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Update, not good news and perhaps someone can make a suggestion on an Erbitux issue
Well folks, the beast is back, and for the second time. This time there's not much to do about it. It has metastasized to my lung(s) and more disturbing, it is back in the muscle under my tongue. The reason that's more disturbing is there is absolutely no therapy for it. The only good news is it looks like I'm the "poster…
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If I can do it so can you
I've been saying for quite some time now that if I can do it anybody can do it. Yesterday I went to see my surgeon for my 5 year check up. He scoped me and said I am officially cured. So again I say..............."If I can do it anybody can" I may even pull out my radiation mask on March 30th (my 5 year anniversary of…
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Hypothyroid Free T3 & Free T4 Testing?
Finished chemo/rad 9/5/14. Thyroid TSH was in the normal range until December 2014 when it went up to 5.02. Dr. Prescribed Levothyroxine 50 mcg. Thyroid damage from radiation (thanks a lot!) My chemo treatment consisted of 5FU & Hydrea. The 5FU caused hair thinning. However, my hair was falling out at an alarming rate even…
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Surgery this week
I will have surgery this coming Wednesday. The plan is to remove the fibula that replaced half of my lower jaw 3 years ago and hope the fistula will close (80% chance). Hinge is original and will remain. PET scans have remained clean, next one late February or early March. Cosmetically, that area is already a mess so at…
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Water and food
I am half way thru my radiation and the last 2 days I have been having to put water into my peg. Its not that Icant drink it, it just tastes soooo bad. Also I am NOT sleeping even with sleeping pills=maybe 2 hours a night. My dry mouth keeps me up. I have the Biotene and Stoppers 4 and it seems nothing I do gives me…
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Peg???
I am having such a time with my feeding tube! I had this put in Jan 5th and since then I have gotten an infection( am on antiobotics for it) and also it leaked alot. I mean some ugly stuff was coming out of the stoma. Stomach contents. Any how yesterday they were going to change it out, but discovered instead that it only…
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I need to give credit to Stanford Medical again...
I just need to give credit to my Doctor and the team at Stanford. For the last four days I have had a problem with the prosthesis in my neck so I can talk. It has been leaking down the center of my TEP [prosthesis] which means that I am asperating and liquid is going down my trach to my lungs. My GURD is the main cause of…
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Neck Dissection
Hi all, this is Tammy, wife to Dale. I posted awhile back but lost my user name so I had to just now make up a new one. Not sure if you all rememer me...him? Dale had stage 4 throat cancer and is now 4 years cancer free. Along with chemotherapy and radiation he also had a radical neck dissection. The usual stiff and tight…
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Coconut Oil
Have some of you tried "pulling oil"? If so, did it help in any way. I've read much about the benefits. If your suffering from dry-mouth from the rads, like me, and most of you I'm sure, doesn't swishing this oil for 15 or 20 minutes draw out what little saliva is in the mouth and make it even drier or worse? Is it worth…
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Lung biopsy update "there's good news and bad news"
Jim's surgeon had him come in today for his post surgery x-Ray. He also had final lung biopsy results. He said he didn't have confidence in the first lab results, so the sent his samples to The University of Louisville, which is the lab that found his cancer 3 years ago. They compared it to his slides from 2011 and…